Round 2?
John Snyder
Since my last update on July 29th much has happened, besides taking the kids to Florida on vacation. It appears that going to Florida at the end of July may cause tumors to appear in my chest, but this is not yet conclusive (no Ma, I’m not blaming Florida – yet).
Upon my return from Florida on Thursday the 9th of August I came down with a fever of about 100.6 degrees. After managing the fever through the weekend close to a normal level I went to work on Monday the 13th. Unfortunately by the end of my day I had a fever of 101.6, which is a free pass to the Emergency room under my conditions.
While attempting to identify the source of my fever, the ER took an X-Ray of my chest to check for pneumonia. The ER doctor came into my room and asked with concern if I knew I had a mass in my chest. I confirmed that I was aware that it existed and that it should be about 2.7 x 2.5 cm based on my CT scan from July 11th (maybe it is ERs that cause tumors because that’s where they keep popping up). The doctor switched the ER computer screen from my long history of X-Ray’s to my litany of CT scans where he more calmly reviewed the scan. He then proceeded to show me how the X-Ray, as poor as it is, seemed to show the mass at closer to 4 cm - a new tumor was born.
This did not, however, keep me from being tested for everything under the sun, except maybe pregnancy, to identify the source of my fever. They continuously drew blood, gave me two more CT scans and even conducted a 360 degree X-Ray of my teeth. Nothing. My fever raged to a high of 102.6 before they finally started dropping something on it to bring it down, but they could not kill it. Even the endless rounds of anti-biotics had no effect (I was beginning to think I was superman). Finally they gave me a form of Aleve and back to normal it went. This was a ploy they made to establish my fever was caused by the tumor, which was established.
Since my blood counts are so poor, it is not possible for me to be treated with chemotherapy so the weapon of choice will be radiation. I was a little concerned until the Radiologist explained that he could eliminate the tumor with no possibility of a return to that spot and it will require 30 minutes a day for four weeks as an outpatient (and I can continue to work!). The side effects might be a sore throat and some difficulty in swallowing, which will end after treatment. It sounds like a walk in the park compared to the chemotherapy and all I could say was “where do I sign up?”.
My real question was why didn’t we do this first? Why did I go through eight months of torture and loose my blood count when I could have spent four weeks and destroyed it? The answer is in the type of Lymphoma. I have Lymphoblastic lymphoma, which is a very aggressive form of lymphoma and can pop up anywhere. Dr. Needles, my oncologist, is very familiar with this cancer and sought to ensure that it remain localized; causing him use the leukemia treatment.
I currently have two issues, first, the tumor must be eliminated rapidly (as before) because of it’s fast rate of growth; it is likely to press my esophagus closed in three weeks. Second, my blood count continues to lack adequate numbers and it does not appear to be capable of improving.
The Radiology group has already taken their pictures and is rushing their mathematical work so that I will begin radiation treatment on Monday. This should eliminate the tumor. I will likely meet with the Barnes Hospital Bone Marrow group to being the process of evaluating my need for a bone marrow transplant. It is believed that my bone marrow is sick and may be the real cause of the tumor. It has not been infected with cancer and does not show any measurable signs of disease but it has not recovered from the 6th treatment, which is an indication there is something wrong with it.
The good news for me is that the tumor has remained localized to my chest and has not shown up anywhere else. I am not too concerned about the radiation treatment and look forward to having the tumor blasted away (again). I am concerned about the bone marrow transplant as it sounds high risk (though not as high as having the tumor). I will know more in the next couple of weeks.
What is certain is that I am going down for a number of months again. Somehow, God is not looking for me to work too much; I can never seem to get back. I don’t believe this will hurt the Experience on Demand IT Practice as we have five IT people with another interested party. The timing is good as we will be able to shift some efforts to cover customer requirements. My biggest concern, however, is my personal finances, as I will be without an income again for an unknown number of months. Following the last eight month ordeal, it makes for a serious triage effort.
Overall, the return of the tumor is not unexpected. Dr. Needles did explain in general terms early on, he just could not be specific because no one could know how things would unfold. The plan has not changed, just advanced. The cancer continues to be localized. I will be having another bone marrow biopsy on Monday so they can be sure there is no cancer in the bone marrow. Barring any further developments, Dr. Needles is expecting to achieve a full remission; it will just require a bone marrow transplant to get there. It was not the thing I wanted on my treatment list, but I believe it will make a difference.
My Mother is returning tomorrow to assist (after her 6 weeks of vacation in her Florida home). My parents continue to make such a loving sacrifice to help me. But Mr. Nault is not allowed to feed any idea’s to my mother, she has enough of her own.
Thank you for all the continued prayers and assistance.
James Hardy
lort...@comcast.net
From: "John Snyder" <JohnD...@STLSnyders.net>
To: jsnyder...@googlegroups.com
Sent: Saturday, August 18, 2012 5:29:22 PM
Subject: Round 2?
D&L Amato
John Snyder Personal
John Snyder
D&L Amato
lindas...@yahoo.com
You are back on top of my prayers. We will continue to ask God for your complete healing. Stay strong knowing so many are praying for you!
Love
Linda and family
Jason Graklanoff
John - You continue to be in our thoughts and prayers. You have been such an inspiration for all of us as you have maintained your positive attitude and drawing strength from your faith throughout this whole ordeal.
Do keep us updated. The localized nature of the tumor and radiation treatment vs chemo sounds much more manageable as compared to Round 1!
Jason
Mark Heckler
betty...@aol.com
John is not doing well at all. Please pray, pray, pray! We love him dearly!
Signed, Carol Ward (John's sister)
Todd Nault
Sent from my iPhone
betty...@aol.com
He was placed in ICU this morning. Tumor is back and growing rapidly and he has a contagious infection.
My entire family is traveling to St. Louis to be with him.
Carol
Debbie Schneider
Please call me if I can do anything for you or your family. My prayers continue daily for John.
314-566-0732
Debbie
Sent from myTouch 4G
Erick Harlow
John-
I know you are not reading these posts today, but know you are in our thoughts and prayers.
John 16:33
“In the world ye shall have tribulation: but be of good cheer ; I have overcome the world.”
Hang in there my friend-
I know John needs his rest, so I will not burden him with my presence, but could someone in his family please pass along this message?
Thanks
Erick Harlow
Hillis, Linda A
Yes, we will pass it on ~ thanks for your prayers!
|
|
|
Linda Hillis |
|
Senior Network Provisioner
|
|
314-512-4204 direct |
|
Enterprise Rent-A-Car 620 Technology Drive |
CONFIDENTIALITY NOTICE: This e-mail and any files transmitted with it are intended solely for the use of the individual or entity to whom they are addressed and may contain confidential and privileged information protected by law. If you received this e-mail in error, any review, use, dissemination, distribution, or copying of the e-mail is strictly prohibited. Please notify the sender immediately by return e-mail and delete all copies from your system.
Mary Beth Andaloro
Todd Nault
Sent from my iPhone
lort...@comcast.net
From: betty...@aol.com
To: jsnyder...@googlegroups.com
Sent: Wednesday, August 29, 2012 9:12:46 AM
Subject: Re: Round 2?
Todd Nault
Sent from my iPhone
betty...@aol.com
Yes and there is no end time for visitors. Mercy room 409, bed 11. You need to wear a gown and gloves (provided by ICU) and make sure you take the gown and gloves off in his room before leaving. Do not exit his room with gown and gloves on.
Todd Nault
Sent from my iPhone
Mark Heckler
Ellie Snyder
Ellie
Todd Nault
Fred and I will be there between 11:30 and 12:00 today to see him. About 10 of us met this morning for prayer and mass for him. No worries on the praying.
Sent from my iPhone
Dino Busalachi
Thx Ellie. Keep me posted. Tell your dad I'm thinking of him.
Dino
Debbie Schneider
Sorry to hear that his condition has worsened. We are praying for him at daily Mass. Please call on us if we can do anything to help your family.
Love,
Debbie and Les
Sent from myTouch 4G
From: "Ellie Snyder" <sh...@tampabay.rr.com>
To: <jsnyder...@googlegroups.com>
Subject: Round 2?
lindas...@yahoo.com
I can hope that knowing so many are praying for him might give him comfort and strength in this time.
Linda,Jeff, Grace and Laine
Jason Graklanoff
Jason Graklanoff
John has pneumonia and small bowel obstruction. He is in ICU 4th floor bed 11. Please keep those prayers coming as it doesn't look good at all He is so tired.
Ellie
On 8/29/2012 6:16 PM, Todd Nault wrote:
Ellie Snyder
Ellie
On 8/30/2012 8:36 AM, Dino Busalachi wrote:
Thx Ellie. Keep me posted. Tell your dad I'm thinking of him.
Dino
On Aug 30, 2012 7:46 AM, "Ellie Snyder" <sh...@tampabay.rr.com> wrote:
John has pneumonia and small bowel obstruction.� He is in ICU 4th floor bed 11. Please keep those prayers coming as it doesn't look good at all� He is so tired.
Ellie
On 8/29/2012 6:16 PM, Todd Nault wrote:
I have forwarded your message to his CRHP brothers. We are all meeting for mass at 0630 and I will be by to see him tomorrow. Please call me if anything happens. 636-288-9950. Please give mom a hug for me.
Todd
Sent from my iPhone
Yes and there is no end time for visitors. Mercy room 409, bed 11. You need to wear a gown and gloves (provided by ICU) and make sure you take the gown and gloves off in his room before leaving. Do not exit his room with gown and gloves on.
Sent from my Verizon Wireless BlackBerry
From: Todd Nault <usarm...@aol.com>Sender: jsnyder...@googlegroups.comDate: Wed, 29 Aug 2012 17:38:32 -0500ReplyTo: jsnyder...@googlegroups.comSubject: Re: Round 2?
Carol,�
Can he have visitors?�
Thanks for the update John. �Sorry you have to go thru this, but God has his own way of telling you that "no one ever dies and says from the other side I wish I had spend more time at work"!!! �You have other work to do, apparently! �
Take care and get well soon. �We'll be here rooting for you and send our love and prayers. �
Your Jersey Shore Cousins!!!
On Sat, Aug 18, 2012 at 6:52 PM, <lort...@comcast.net> wrote:
John, hang in there...will keep you in my thoughts and prayers
From: "John Snyder" <JohnD...@STLSnyders.net>
To: jsnyder...@googlegroups.com
Sent: Saturday, August 18, 2012 5:29:22 PM
Subject: Round 2?
Since my last update on July 29th much has happened, besides taking the kids to Florida on vacation.� It appears that going to Florida at the end of July may cause tumors to appear in my chest, but this is not yet conclusive (no Ma, I�m not blaming Florida � yet).
�
Upon my return from Florida on Thursday the 9th of August I came down with a fever of about 100.6 degrees.� After managing the fever through the weekend close to a normal level I went to work on Monday the 13th.� Unfortunately by the end of my day I had a fever of 101.6, which is a free pass to the Emergency room under my conditions.
�
While attempting to identify the source of my fever, the ER took an X-Ray of my chest to check for pneumonia.� The ER doctor came into my room and asked with concern if I knew I had a mass in my chest.� I confirmed that I was aware that it existed and that it should be about 2.7 x 2.5 cm based on my CT scan from July 11th (maybe it is ERs that cause tumors because that�s where they keep popping up).� The doctor switched the ER computer screen from my long history of X-Ray�s to my litany of CT scans where he more calmly reviewed the scan.� He then proceeded to show me how the X-Ray, as poor as it is, seemed to show the mass at closer to 4 cm - �a new tumor was born.
�
This did not, however, keep me from being tested for everything under the sun, except maybe pregnancy, to identify the source of my fever.� They continuously drew blood, gave me two more CT scans and even conducted a 360 degree X-Ray of my teeth.� Nothing.� My fever raged to a high of 102.6 before they finally started dropping something on it to bring it down, but they could not kill it.� Even the endless rounds of anti-biotics had no effect (I was beginning to think I was superman).� Finally they gave me a form of Aleve and back to normal it went.� This was a ploy they made to establish my fever was caused by the tumor, which was established.
�
Since my blood counts are so poor, it is not possible for me to be treated with chemotherapy so the weapon of choice will be radiation.� I was a little concerned until the Radiologist explained that he could eliminate the tumor with no possibility of a return to that spot and it will require 30 minutes a day for four weeks as an outpatient (and I can continue to work!).� The side effects might be a sore throat and some difficulty in swallowing, which will end after treatment.� It sounds like a walk in the park compared to the chemotherapy and all I could say was �where do I sign up?�.�
�
My real question was why didn�t we do this first?� Why did I go through eight months of torture and loose my blood count when I could have spent four weeks and destroyed it?� The answer is in the type of Lymphoma.� I have Lymphoblastic lymphoma, which is a very aggressive form of lymphoma and can pop up anywhere.� Dr. Needles, my oncologist, is very familiar with this cancer and sought to ensure that it remain localized; causing him use the leukemia treatment.
�
I currently have two issues, first, the tumor must be eliminated rapidly (as before) because of it�s fast rate of growth; it is likely to press my esophagus closed in three weeks.� Second, my blood count continues to lack adequate numbers and it does not appear to be capable of improving.�
�
The Radiology group has already taken their pictures and is rushing their mathematical work so that I will begin radiation treatment on Monday.� This should eliminate the tumor.� I will likely meet with the Barnes Hospital Bone Marrow group to being the process of evaluating my need for a bone marrow transplant.� It is believed that my bone marrow is sick and may be the real cause of the tumor.� It has not been infected with cancer and does not show any measurable signs of disease but it has not recovered from the 6th treatment, which is an indication there is something wrong with it.
�
The good news for me is that the tumor has remained localized to my chest and has not shown up anywhere else.� I am not too concerned about the radiation treatment and look forward to having the tumor blasted away (again).� I am concerned about the bone marrow transplant as it sounds high risk (though not as high as having the tumor).� I will know more in the next couple of weeks.
�
What is certain is that I am going down for a number of months again.� Somehow, God is not looking for me to work too much; I can never seem to get back.� I don�t believe this will hurt the Experience on Demand IT Practice as we have five IT people with another interested party.� The timing is good as we will be able to shift some efforts to cover customer requirements.� My biggest concern, however, is my personal finances, as I will be without an income again for an unknown number of months.� Following the last eight month ordeal, it makes for a serious triage effort.
�
Overall, the return of the tumor is not unexpected.� Dr. Needles did explain in general terms early on, he just could not be specific because no one could know how things would unfold.� The plan has not changed, just advanced.� The cancer continues to be localized.� I will be having another bone marrow biopsy on Monday so they can be sure there is no cancer in the bone marrow.� Barring any further developments, Dr. Needles is expecting to achieve a full remission; it will just require a bone marrow transplant to get there.� It was not the thing I wanted on my treatment list, but I believe it will make a difference.
�
My Mother is returning tomorrow to assist (after her 6 weeks of vacation in her Florida home).� My parents continue to make such a loving sacrifice to help me.� But Mr. Nault is not allowed to feed any idea�s to my mother, she has enough of her own.�
�
Terri O'Daniel
I will let him know. I am John's mother
Ellie
On 8/30/2012 8:36 AM, Dino Busalachi wrote:
Rick Swygman
Sent from my iPhone
I will let him know. I am John's mother
Ellie
On 8/30/2012 8:36 AM, Dino Busalachi wrote:
betty...@aol.com
Good day all!
I just want to let you all know that John was put on a ventilator today.
Please pray for God's will to be swift, even though I know his plan is followed regardless of what we want.
I want to at least share with you the John that has been the sweetest brother!
"Smiling Jack" was the nickname that my Uncle Lowell gave to him when he was little. And smiling he was! It took an act of God and a lot of razing to get John to react. Patience is defined in John's heart of hearts. I know that, as we all have faults, John's intentions with everyone he met were from a base of love. He is a good man and would do anything for anyone! "Can't say no" should have been his nickname.
Please pray for my parents to find the strength to endure this very trying time. As a mother it kills me to see this happen to a brother that is a "son."
I hope you all realize how special you are to have been chosen to know John and be his friend!
Please share all the love you have for him with my family. We appreciate it!
Carol Ward
Todd Nault
Lance, Chris
Thank you for the update, Carol.
John has been one of the most influential people in my life - a small group, shared with my father and grandfather. I would not be the man I am today, nor would I have the life and opportunities that I do, had it not been for his mentoring, friendship, support, and devotion. A day does not pass that I don’t share the wisdom he imparted with those around me. I cannot thank you and your family enough for sharing him with me and the countless others whose lives he has touched, shaped, and left better off. I don’t know a single person more deserving than John of the love, support, hope, and prayers of all who know him.
I promised John months ago that I would be there for him and his family should the need arise. If I can be of any help whatsoever, please do not hesitate to reach out.
Chris Lance
betty...@aol.com
Here is another thing I would like to share that you all may have seen, but I think it is appropriate for John's situation.
To you all from me with love:
http://play.simpletruths.com/movie/pulling-together-v/?cm_mmc=CheetahMail-_-FR-_-08.31.12-_-PUTGmovie-USCAXX-Corp-&utm_source=CheetahMail&utm_campaign=PUTGmovie
Todd Nault
From: bettyizuzu <betty...@aol.com>
To: jsnyder-status <jsnyder...@googlegroups.com>
Jason Graklanoff
Jason Graklanoff
Dino Busalachi
Mark Heckler
Your Jersey Shore Cousins!!!
My real question was why didn’t we do this first? Why did I go through eight months of torture and loose my blood count when I could have spent four weeks and destroyed it? The answer is in the type of Lymphoma. I haveLymphoblastic lymphoma, which is a very aggressive form of lymphoma and can pop up anywhere. Dr. Needles, my oncologist, is very familiar with this cancer and sought to ensure that it remain localized; causing him use the leukemia treatment.
I currently have two issues, first, the tumor must be eliminated rapidly (as before) because of it’s fast rate of growth; it is likely to press my esophagus closed in three weeks. Second, my blood count continues to lack adequate numbers and it does not appear to be capable of improving.
The Radiology group has already taken their pictures and is rushing their mathematical work so that I will begin radiation treatment on Monday. This should eliminate the tumor. I will likely meet with the Barnes Hospital Bone Marrow group to being the process of evaluating my need for a bone marrow transplant. It is believed that my bone marrow is sick and may be the real cause of the tumor. It has not been infected with cancer and does not show any measurable signs of disease but it has not recovered from the 6thtreatment, which is an indication there is something wrong with it.
Patti Koehler
He continues to be in very serious condition but today we had a little good news. His blood pressure seems to have stabilized, so they took him off of the blood pressure medicine. He also was taken off of the respirator for about half an hour. They are going to slowly try to ween him off of that and get him breathinig on his own. That will likely take several days.
They are also going to start a feeding tube to get him some nutrition. This should give him protein and glucose, which he needs to continue his recovery.
I'm sure your prayers have played a major role in his recovery so far, so please keep praying. His bone marrow is the key to his recovery from both the C-Diff infection, and his lymphoma. Please, please keep praying that his bone marrow will somehow start working again.
Thanks to all of you who have brought us dinner, watched John's kids, and offered your support. It is greatly appreciated!!
God Bless you all!
Patti Koehler
Subject: Re: Round 2?
From: ma...@thehecklers.org
Date: Sun, 2 Sep 2012 12:34:15 -0500
To: jsnyder...@googlegroups.com
D&L Amato
Janet Snyder
From: cpa...@msn.com
To: jsnyder...@googlegroups.com
Subject: Update on John 9-2-12
Date: Sun, 2 Sep 2012 12:06:46 -0700
Todd Nault
Sent from my iPhone
cpain1
They were talking about a bone marrow transplant before the c-diff infection, but he can't have it now because he is too sick.
From my Android phone on T-Mobile. The first nationwide 4G network.
------ Original Message ------
From : Todd Nault
To : jsnyder...@googlegroups.com;
Cc : John Snyder-google group;
Sent : 9/2/2012 5:15 PM
Subject : Re: Update on John 9-2-12
Debbie Schneider
That is awesome news.
I don't have your cell#.
Could you call me.
314-566-0732
Debbie
Sent from myTouch 4G
From: "Patti Koehler" <cpa...@msn.com>
To: "John Snyder-google group" <jsnyder...@googlegroups.com>
Subject: Update on John 9-2-12
Wendy Schoenfeldt
lort...@comcast.net
Patti thanks for the update. We will continue to keep John and the family in our thoughts and prayers.
From: "Patti Koehler" <cpa...@msn.com>
To: "John Snyder-google group" <jsnyder...@googlegroups.com>
Sent: Sunday, September 2, 2012 3:06:46 PM
Subject: Update on John 9-2-12
Patti Koehler
God Bless you all for your prayers and suipport!
Patti Koehler
Erick Harlow
Sent from my iPhone