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Roshnee is 17 years old. She is my granddaughter from my daughter's side. Her parents are both doctors. I am an Engineer from IIT Kharagpur. After a successful career in the corporate world, I started my own business.
In 2002/3 her Autism was diagnosed and, in 2005, her disability was declared to be 90%. The triad of Autism, Communication, Social skill and Imagination all had affected her deeply. She had almost all features of Autism. Restlessness, almost no eye contact, anxiety, obsession to what she was doing, pinching, biting others and self, hitting, crying and laughing for no apparent reason (unexplained giggling and crying), hand flapping, screaming, tantrums, meltdown, picky eater, wearing only few dresses, sleep disorder (sleeping around 1/2AM and getting up by 4/5 fresh as a lark were common features and everyday affairs. We didn't know what Autism was. It was not taught in medical classes too, so her parents too didn't know much about it.
However, the news that Roshnee has Autism didn't knock us out. We studied about it and decided to face it head-on. We learnt that Autism needed intervention, close intervention. So we (her parents and grandparents) decided to live together, since this would give us time and opportunity to take care of Roshnee while her parents could concentrate on furthering their career and provide for Roshnee and her elder sister (who is neurotypical and final year student of engineering).
We learnt that Applied Behavior Analysis (ABA) was very effective in managing behaviors of children with Autism. We came across Dr. Smita Awasthi, first BCBA (Board Certified Behavior Analysts) from India and she became Roshnee's consultant. Intervention started in earnest.
We gathered that formal schooling was out of question. We worked on her strengths and supported her where she was weak. We observed her interest in music. We supported her and created opportunities for her to sing on stage.
We set our targets to improve and address her behaviours and improve her quality of life. We NEVER thought of CURING her Autism. Much later she showed interest in drawing and paintings and we got a teacher for her.
Presently, she is a good singer and a good painter. A calendar was made in USA using some of her paintings along with other persons on the spectrum, and taking a cue from there we made a calendar ourselves using only her paintings. It has been well received. Roshnee recently presented at an International Conference for Autism in Bangalore where she was Guest of Honour.
Roshnee doesn't have developed language. She cannot converse like you and me; she cannot read and comprehend books like we do. She has strong rote and visual memory and these are her strengths. So answers below are written by me (her grandfather) but they reflect true picture about her.
I know many songs... Dil hai chhota sa, Her Ghadi badal rahi hai roop zindagi, Ik pyar ka nagama hai, Chura liya hai tumne jo dil ko, Chhoo kar mere man ko kiya tune kya ishara I like. If you miss the train I am on, Que sara sara etc.
I remember the songs by listening and then practicing with my music teacher. I have a strong rote memory. I remembered very many songs may be 20/30. When the number increased my Nanu started typing out lyrics in English and taught me sight reading. Now all my songs are typed and kept in front of me as a help, though I still remember all songs.
I have been on many plane rides. My first ride was from Kolkata to Glasgow when I was just 4 years and my autism had been diagnosed. My Nanu-Nani had taken me there where my Mama lived then. I had no problem in aeroplane or climbing on escalators. I like the window seat and I can exactly feel when plane leaves the ground. I feel very excited. (wide grin)
(Future or look forward to, etc are often abstract concepts for persons on the autism spectrum. It is a different matter that parents try and make them proficient in some skills and then with their efforts put them in some job. So we have identified for Roshnee -
Music stirs emotions. We all have a playlist that we tune into on days when we need to bust our bad mood or feel more calm and relaxed. For some, it is the voices from the golden era of Bollywood like Kishore Kumar, Rafi, and Lata Mangeshkar that have shaped a good part of their childhood and adulthood. For others, it is the songs of Arijit Singh and Shreya Ghosal that light up their bad days.
Whatever the occasion might be, these artists and their music have become a part of our lives. To celebrate World Music Day, we bring you a fun Bollywood music quiz, but with a twist. We have put together all your favourite Bollywood songs and translated them into English. These translations might sound odd at first, but we promise, you will have fun guessing the songs.
Damini is passionate about photography and travelling. She is happy to have her camera in hand to click random pictures. Always searching for answers about the chaos around her, she spends most of her time reading and learning new things. She also loves listening to music but is a pathetic singer herself. From being a journalism student to working with several media houses, she hopes to keep narrating compelling stories all her life. Write to her at
damin...@byjus.com or
storyw...@byjus.com. BYJU'S
1) Ek garam chai ki pyali ho, koi usko pilane wali ho, chahe gori ho ya kali ho, sine se lagane wali ho.
2) Dil pe pathtar rakhkar maine makeup kar liya, mere saiyan ji se aaj maine breakup kar liya.
3) Suraj hua madhdham , chand jalne laga, aasma ye kyu aaj pighalne laga. Main thahra raha zami chalne lagi.
4) Kabhi kabhi mere dil me khayal aata hai, ki jaise tujhko banaya gaya hai mere liye.
5) Pehli nazar me kaisa jadu kar diya, tera ban baitha hai mera jiya.
6) Keh du tumhe ya chup rahun, dil me mere aaj kya hai. Jo bolo to janu, guru tumko manu.
7) Har ghadi badal rahi hai roop zindagi, chhav hai kabhi, kabhi hai dhoop zindagi. har pal yahan ji bhar jiyo, johai sama kal ho na ho
1. Ek garam chai ki pyali hoo
2. Dil pe pathhar rakh k muu pe makup kar liya
3. Suraj hua madham, chand jalne laga
4. Kabhi kabhi mere dil me khayal aata hai, ki jaise tujhko banaya gaya hai mere liye
5. Dus bahane kar k le gye dil
6. Pehli nazar me aisa jaadu kar diya, tere ban baitha hai mera jiya
7. Keh du tumhe ya chup rahu, dil me mere aaj kya hai
8. Har ghari badal rahi hai dhuup zindegi
1) Ek Garam Chai ki Pyali ho, koi mujhko pilanewali ho
2) Dil pe pathhar rakh ke mu pe makeup karliya
3) Sooraj hua madham chaand jalne laga, Aasma yeh hay kyu pighalne laga?
4) Kabhi Kabhi mere dil mein khayal aata hai, ke jaise tujhko banaya gaya hai mere liye
5) Dus bahane karke le gaye dil
6) Pehli nazar mein aisa jadoo kar diya, tera ban baitha hai mera jiya
7) Kehdu tumhein Ya chup rahu dil mein mere aaj kya hai
8) Har ghadi badal rahi hai roop zindagi, chaav hai kabhi kabhi hai dhoop zindagi
1. Ak garam chai ki pyali ho, koi usko pilane wali ho
2. Dil pe patthr rakh ke mooh par makeup kr liya, mere sayya g se aj mene breakup kr liya
3. sooraj hua martham, chand dhalne laga, aasma y hay kyu pighlne lga
4. Kabhi Kbhi mere dil me khayal aata h , ki jese tujhko banaya gya h mere liye
5. Das bahane krke le gya dil, le gye dil
6. pahli nazar ne kesa jadu kar diya, tera ban betha hai mera jiya
7. kahdu tumhe ya chup rahu dil mere aaj kya h, jo bolu to janu, guru tumko manu chalo y bhi wada h
8. ha pal yha jee bhare jiyo jo h saman kal ho na ho
ek garam chai ki piyaali ho
dil pe pathar rakh ke muh pr makeup kr liya
surja hua madham, chand jalne lga
kabhi kabhi mere dil m khayal aata hai
dus bhane krke le gye dil, le gye dil
pehli nazar m kesa jaadu kr diya, tera bn betha hai mera jiya
keh du tumhe, yaa chup rho, dil m mere aaj kya hai
har gadhi badal rahi hai, chao hai kahi, kahi hai dhup zindagi
1. Garam chai ki pyali ho aur usko pilane wali ho
2. dil pe patthar rakh k muh pe makeup kar liya
3. suraj hua maddham chand jalne laga
4. kabhi kabhi mere dil m khayal aata h ki jaise tujhko banaya gaya h mere liye
5. dus bahane karke le gayi dil
6. pehli nazar m esa jadu kar diya tera ban baitha h mera jiya
7. kehdu tumhe ya chup rahu ki dil m mere aaj kya hain
8. har ghadi badal rhai h roop zindagi chanv h kahi kabhi to dhoop zindagi
1. Ek garam chai ki pyali ho
2. Break up song- Dil par patthar rakh ke muh par make up kar lia
3. Suraj hua maddham, chaand dhalne laga
4. Kabhi kabhi mere dil me khayal aata hai, ki jaise tujhko banaya gaya hai bas mere liye
5. Das bahane karke le gayi dil
6. Pehli nazar me kaisa jaadoo kar dia, tera ban baitha hai mera jiya
7. Keh du tumhe ya chup rahu, dil me mere aaj kya hai
8. Har ghadi badal rahi hai roop zindagi, chhanv hai kahi kahi hai dhoop zindagi, har pal yaha ji bhar jio, jo hai sama kal ho na ho
1. Ek garam chai ki pyali ho.
2. Dil pe patthar rakhkar muh pe makeup kar liya.
3. Suraj hua madham, chand dhalne laga, asma ye haye kyu pighalne laga.
4. kabhi kabhi mere dil mein khayala aata hai, jiase tujhko bana ya gaya hai mere liye.
5. Das(10) bahnae karke le gaya dil.
6. Pehli nazar mein aisa jadu kar gaya, tera ban baitha hai mera ziya.
7. Keh dun tumhe ya chup rahu, dil mein mere aaj kya hai.
8.Har ghadi badal rahi hai roop zindagi, Chaanv hai kabhi, kabhi hai dhoop zindagi.
1. ek garam chai ki pyali ho, aur usko pilane vali ho.
2. dil pe pathar rakh ke muh pe makeup kar liya, saiya ji se aaj maine breakup kar liya
3. suraj hua madham, chaand jalne laga, aasman ye haye kyu pighalne laga
4. kabhi kabhi mere dil me khayal aata h ki jaise tujh ko banaya gaya h mere liye
5. dus bahane kar ke le gayi dil
6. pehli najar mein kaisa jadoo kar diya, tera ban baitha h mera jiya
7. keh du tujje ya chup rahu, dil mein mere aaj kya h?
8. har pal badal rahi h roop zindagi, chaav h kabhi, kabhi h dhoop zindagi, har pal yaha jee bhar jiyo
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