Fwd: Submission for WSIS 20+ Zero Draft from IGF Dynamic Coalition on Data Driven Health Technologies

[Amali De Silva - Mitchell]

Fyi. I was away from my device, so here is catching up! Amado sorry got your email spelt wrong on the email. 

Amali

---------- Forwarded message ---------
From: ungawsisreview <ungawsi...@un.org>
Date: Wed, Oct 1, 2025, 8:30 AM
Subject: RE: Submission for WSIS 20+ Zero Draft from IGF Dynamic Coalition on Data Driven Health Technologies
To: Amali De Silva-Mitchell 

msg cut

Dear Amali,

 

On behalf of the Co-facilitators, we acknowledge receipt of the IGF Dynamic Coalition on Data Driven Health Technologies’ inputs to the Zero Draft. Thank you very much for your valuable contribution to the WSIS+20 process and we will do our best that these are reflected in the next revisions.

 

Best regards,

UN DESA WSIS+20 Secretariat

 

 

From: Amali De Silva-Mitchell 

Msg cut
Sent: Tuesday, 30 September, 2025 4:02 PM
To: ungawsisreview <ungawsi...@un.org>
Cc: Jörn Erbguth <jo...@erbguth.net>; joseamad...@gmail.com
Subject: Submission for WSIS 20+ Zero Draft from IGF Dynamic Coalition on Data Driven Health Technologies

 

Dear UNGA WSIS 20 + Review Committee

Re: WSIS +20 Zero Draft

As there is an open invitation to contribute to the review, I am taking this opportunity to write this short note to the committee. I am the Founder and Chair of the Dynamic Coalition on  Data Driven Health Technologies at the United Nations  Internet Governance Forum.

The Dynamic Coalition is a space where everyone can gather to talk., to share, to capacity build, to gain feedback, to learn, to test out a process, develop guidance and guidelines, propose solutions and so forth, for patient centered ehealth.

It is a great space for all stakeholders, including represenatives of countries, to engage with the global public, with no commitments. It is a space for innovation and active, timely discussions on subjects such as ethics and cultural diversity for human / patient rights..

We have been active at both the annual WSIS conferences and the IGF annual meetings, as well as at Eurodig, over the past several years. We have members and participants from at least 25 different countries, representing all continents and stakeholder groups. Many more international people join our events.

The DC is an opportunity like no other, to engage and talk about emerging issues, prepare for the future and risk mitigate while keeping a human rights, people centered orientation, to all matters discussed.

I just want to emphasize, that like our DC, we have a family of DCs at IGF and they play an invaluable role for a people centered internet. With  AI and Quantum discussions, we can keep up the pace, all year through at IGF rather than meet fir discussions just once a year! It is an open forum, hence open to the international public, like no other space!

Kind regards and best wishes,

Ms Amali De Silva-Mitchell
Chair IGF DC DDHT

Cc:  Vice Chairs DC DDHT: Dr J. Erbguth and Dr A, Espinosa 

[Amali De Silva - Mitchell]

Dear DCs

Just a quick fyi. DDHT also wrote a letter to the WSIS co facilitators, see the reaponse below in thread. 

As the DC membership structure is perhaps reviewed for the future..Please ensure retaintion of  individual memberships for the DCs for the future. It is very important for independent thinking for a realistic bottom up approach. Associations dilute the facts into a norm and can miss points of risk.

Any of the Social Media channels are examples where an individual can have impact influencing on a topic. If we don't include individuals we may not have  relevance and a balanced view point may be lost. Risk analysis is critical for IGF.

There are countries where the individual voice can be critical for the world e.g. for health the Dr who disclosed covid on Facebook.

Cheers to the DCs! 

Amali De Silva-Mitchell 

Chair DC DDHT

---------- Forwarded message ---------
From: ungawsisreview <ungawsi...@un.org>
Date: Wed, Oct 1, 2025, 8:30 AM
Subject: RE: Submission for WSIS 20+ Zero Draft from IGF Dynamic Coalition on Data Driven Health Technologies
To: Amali De Silva-Mitchell 

msg cut

Dear Amali,

 

On behalf of the Co-facilitators, we acknowledge receipt of the IGF Dynamic Coalition on Data Driven Health Technologies’ inputs to the Zero Draft. Thank you very much for your valuable contribution to the WSIS+20 process and we will do our best that these are reflected in the next revisions.

 

Best regards,

UN DESA WSIS+20 Secretariat

 

 

From: Amali De Silva-Mitchell 

Msg cut
Sent: Tuesday, 30 September, 2025 4:02 PM
To: ungawsisreview <ungawsi...@un.org>
Cc: Jörn Erbguth <jo...@erbguth.net>; joseamad...@gmail.com
Subject: Submission for WSIS 20+ Zero Draft from IGF Dynamic Coalition on Data Driven Health Technologies

 

Dear UNGA WSIS 20 + Review Committee

Re: WSIS +20 Zero Draft

As there is an open invitation to contribute to the review, I am taking this opportunity to write this short note to the committee. I am the Founder and Chair of the Dynamic Coalition on  Data Driven Health Technologies at the United Nations  Internet Governance Forum.

The Dynamic Coalition is a space where everyone can gather to talk., to share, to capacity build, to gain feedback, to learn, to test out a process, develop guidance and guidelines, propose solutions and so forth, for patient centered ehealth.

It is a great space for all stakeholders, including represenatives of countries, to engage with the global public, with no commitments. It is a space for innovation and active, timely discussions on subjects such as ethics and cultural diversity for human / patient rights..

We have been active at both the annual WSIS conferences and the IGF annual meetings, as well as at Eurodig, over the past several years. We have members and participants from at least 25 different countries, representing all continents and stakeholder groups. Many more international people join our events.

The DC is an opportunity like no other, to engage and talk about emerging issues, prepare for the future and risk mitigate while keeping a human rights, people centered orientation, to all matters discussed.

I just want to emphasize, that like our DC, we have a family of DCs at IGF and they play an invaluable role for a people centered internet. With  AI and Quantum discussions, we can keep up the pace, all year through at IGF rather than meet for discussions just once a year! It is an open forum, hence open to the international public, like no other space!

[Amali De Silva - Mitchell]

I mean for example retired people can participate. They have experience to share but are no longer with their formal associations. A rich set of view points will give a stable governance. 

Thanks for asking Roberto, 

Amali

On Wed, Dec 24, 2025, 12:49 Roberto Gaetano <roberto...@hotmail.com> wrote:

Dear Amali

What do you mean by “individual memberships for the DCs”?

If it is individual membership in each DC, I believe that this is already the case, and that is not going to change. Besides, this is the matter of each individual DC, not the DCCG.

If OTOH you mean that individuals could join the DC as individuals, not as part of a coalition, I would need some more explanation on what you think exactly..

Cheers,

Roberto

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[Amali De Silva - Mitchell]

Thanks for asking it's #1

Roberto has  clarified that it will be dependent on the articles of operation of the DC. In which case it is important to have a single general DC where anyone can join and raise issues, which may then be directed to the other DCs which may not have open membership. 

I am coming from the perspective of risk management of the internet.

Amali

Chair DDHT

On Sat, Dec 27, 2025, 10:56 avri <av...@doria.org> wrote:

Hi,

I am confused, again

Are we talking about:

1 individuals being able to join any DC?
2 individuals not affiliated with any DC, being able to join the  DCCG?
3 yet another proposition?

Thanks

Happy festive gap

Avri

On December 24, 2025 11:00:34 PM EST, Judith Hellerstein <jud...@jhellerstein.com> wrote:

Hi Amali 

Retired people can already participate and can join any DC they want. There are no restrictions. They can also participate in any of the policy networks and best practice forum

Best

Judith 

Sent from my iPhone

Mobile and What’s app: +12023336517

On Dec 24, 2025, at 7:58 PM, Amali De Silva - Mitchell <gphli...@gmail.com> wrote:



Avri Doria
Technicalities

[Amali De Silva - Mitchell]

Thank you to Roberto, Avri and Judith! 

Your support of membership open to All, IS reassuring ! 

Thankfully yours, 

Amali

Chair DC DDHT

Ps

The expectation is that there will be future pandemics given climate change etc. I am glad some one can join a DC quickly and sound the alarm !!!

Here is a small laugh for all. Best way to protect from quantum breaks ( for $ restricted groups or even countries)  if you don't have the costly  protective algorithms ( unless donated at no cost to all,  by a UN channel) is to use paper ? and keep that locked up!! ;)

Happy New Year!!

On Sat, Dec 27, 2025, 17:36 Judith Hellerstein <jud...@jhellerstein.com> wrote:

HI Roberto,

I agree with you.  I also think that the rules of DC says that membership should be open to all unless a person has violated the code of conduct.  We had some people who have violated these rules.  Also, all mailing lists are open

So, I am not really understanding the issue here.  If anyone can join a DC, then what is the issue.  It seems the only issue is for people who are not interested in any of the topics covered by any of the 32 DCs, and if that is the case than why are they interested in joining a DC at all.  Or, as Roberto says, they could create their own DC if they have a topic not being covered.  But if this is not the issue, than I seem to be missing something here. 

Judith

_________________________________________________________________________
Judith Hellerstein, Founder & CEO
Hellerstein & Associates
3001 Veazey Terrace NW, Washington DC 20008
Phone: (202) 362-5139  Skype ID: judithhellerstein
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On 12/27/25 6:33 PM, Roberto Gaetano wrote:

Just to make sure that I am not misunderstood.

I did indeed say that every DC has its rule for membership, and I assume - but I am not sure that this is always the case - that these rules do not restrict membership as long as members are interested in the main topic that is the “raison d’être” od the DC.

So what is left out is the case of individuals who are not interested in any of the topics that are in the scope of any DC.

In this case, there are two possibilities to join the DC community: one is to create a DC that addresses the area that is left out from the current scenario, the other one is to create a “catch-all” DC that has as members all individuals that are not members of a DC.

Either case would need somebody who has the time and energy to draft some “constitutional” papers, i.e. rules for joining, internal functioning, possibly a web site, and all that jazz. Personally, I believe that nobody is willing to invest this time and energy unless there is a real topic of interest - in which case we just follow the normal rules applied so far. To build a “none-of-the-above” DC is, IMHO, a waste of time and energy. However, if Amali - or anybody else - is willing to do it, why not?

Cheers,

Roberto

PS: IMHO, this has nothing to do with “risk management of the internet”, but if somebody has a use case to show that confutes my hypothesis, I will be glad to stand corrected

PPS: recalling my former life - about half a century ago - of researcher in abstract algebra and group theory, I can mimic the Russell’s Paradox trying to define the DC that has as members all the individuals who are *not* members of a DC 🤪