Post HPI update

[Cassie]

I had HPI at the CDD about 4 months ago now. I have IBS.
I did seem to get better for a bit after having the pre- colonoscopy
clean out, (fasting and Picoprep) - worked both times, really odd.
Back to the old symptoms now though, but now (post HPI) I am actually
more sensitive to even more foods. Already was gluten (all foods when
I go eat out or so it seems!), Casein (all dairy, cow, goat, buffalo,
sheep and camel!), white potatoes, prawns and shrimp (there goes Thai
food) and now, oranges, pineapple, mangoes, strawberries. And the
reactions are now more violent.
The CDD gave me a course of antibiotics pre HPI and they always make
me much worse. I shouldn't have taken them.
Very very disappointed. I will never give up though!

[Cyrus David]

I'm sorry to hear that! Thank you so much for sharing. I have UC and
I have been considering HPI, but everyone I hear about doesn't get
cured (talking about UC patients - CDiff patients seem to get cured).

--
Sent from my mobile device

[j]

Cassie,

That really sucks and I am sorry to hear it. It might be worth
getting allergy testing to see exactly what you are allergic/sensitive
to. You are right--do not give up!

Are you from the U.S.? Can you tell me about your experience at CDD?
It is impossible to get in contact with Dr. Borody (I know, I have
tried getting his attention), but are they still accepting overseas
patients? Did you bring a donor with you, or did you use the CDD-
supplied donor infusions?

-J

[Cassie]

Hi J

No I am from Australia. The first thing you will need to do is, if you
haven't already had one, you will need a colonoscopy to make sure you
have what you say have and you haven't got something else. You can
have this anywhere. You just need the results for the CDD.
With the treatment you have a colonoscopy initially that feeds in the
new human probiotics (which of course is human faeces) into your bowel
and then for the next two weeks you are given a faecal enema daily.
No I didn't need a donor. I just paid extra for it.
The person you will need to talk to about it is Sharon at the CDD.
You can get an appointment at the CDD for a phone consult with her.
It is about AU$70 I think. She will be the one who you will have most
to do with. I never talked to Dr Borody. I saw another doctor, Dr
Whetstone, for the 1st consult and the colonoscopy and that was it.
All else was done by Sharon and the nurses. I was given a time to ring
for a phone consult with the Dr 2 months later at 7 am in the morning
at the CDD but nobody answered the phone when I rang. I didn't feel
very good about that after spending so much money.

Forget about email they just don't respond.

I hope this helps you and good luck

Cassie

[j]

Cassie,

Thanks for this info. I have moderate-to-serious IBS, and I live in
the U.S. I traveled to Sydney in 2003 and had HPI. Unfortunately, it
didn't work for me. I had a follow-up talk with Dr. Borody, and he
suggested a few options including Asacol, but nothing has helped. Dr.
Borody and staff are critically overloaded with work and patients.
Their hearts are in the right place, but they are impossible to reach
from overseas. I'm disappointed that you could not reach them to
follow up. I would call Sharyn.

There is no clinic in the U.S. which regularly offers HPI. They only
way Isee them doing it currently is for deathly ill C.Difficile
patients.

J