actually doing HPI
banana
australia and how do they administer it?. Do you strain it and put it
in an enema applicator? How much do you use per transfusion as well?
Any info would be greatly appreciated. thanks
Burke Porter
my case, it was administered via a colonoscope and then through a bag
and tubing device for the successive infusions. They have a specific
instruction manual which tells how to properly mix and prepare it for
home treatment with saline water. Apparently over mixing it might
destroy the bacteria. I don't believe it is strained. I think the
bag and tubing device can be purchased from the clinic, although I
don't know if it is the only thing that they recommend using. Please
contact them for more info.
I was told by a nurse there that anywhere from 200-450 ml are used per
transfusion depending on how much each individual can tolerate.
Of course, my advice is to definitely contact the clinic for details.
They are aware that some people try variations without first
consulting them, and it worries them greatly.
Scandinavian
Do you know what do they mean by "over mixing it"? Is there an
indicator on how much it should be mixed? Since the mix must flow from
the bag via the plastic tube some mixing and saline is required. My
first HPI was challenging since it did not flow easily and it was
necessary to make it more fluid like.
regards,
Burke Porter
bacteria could also get split and destroyed in the mixing process, so
it shouldn't be over mixed. I think proper mixing was based on the
time and also, and probably more importantly, getting it to the point
where it could be administered. Sorry I don't know specifics.
When did you do the HPI? How were the results?
Scandinavian
below a quote on my HPI experince form another section in this forum:
"I got my first symptoms of UC during my military service and I
thought
that all that time eating, sleeping and crawling in the bush and
swamps was the reason for my stomach upset. After 2 months the
symptoms disappeared and in few years they returned with a vengeance.
Was diagnosed with distal UC (proctosigmoiditis) in 2003. Been in
8-10
months remissions and 3-4 month flares since. In 2005 by accident I
found a 3 line mentioning of HPI, at first did not think of it much
until I noticed the case research and the results with some 13 years
of symptom free periods. Since conventional UC medicine has never
much
worked for me and I noticed improvement using probiotics I felt that
this was the way for me to go. Called the CDD in Sydney, sent my
papers and I got the HPI protocol with the instructions. Did a 10 HPI
course at home (with the antibiotic prep and diet) during December
2005 (at that time was already in my 4th month of remission). After
my
HPI I remained in remission for 13 months until Feb 2007, basically I
set a record for my self with 17 months of total remission with the
help of HPI vs 8-10 months with conventional UC
medicine...coincidence? -
> I DO NOT THINK SO! I believe I misjudged that a single course of 10
HPI session would be enough. Now I am waiting for the flare to go
away
and have a new scheme for my next HPI attempt. This time if I am
lucky
will do this in a much more consistent way with regular top ups each
6
months for 2 years. If everything goes well after 2 years will reduce
the top ups for once a year as long as it is necessary."
Jack
I had almost as simular experience as you had.
Long remission after HPI, almost 2,5 years and longest ever as I never reacted that good to the medicines after HPI but only 1 top up ;-( and that was of course because I felt good.
But thinking about it more I can say that even while UC returned it never came back the way it was, it is much more mild as ever before but still not gone at all.
Diets help extremely well these days but not enough so I am planning to HPI again soon but without the antibiotics just to see/feel how I am reacting. Remember I am still better off than ever before say 60%
I am going for the 100% Long term ;-)
Scandinavian
If you are the chap with the "nexus of steve blog" I followed your
advice on how to contact the CDD in Sydney and how you did the HPI at
home. It helped me a lot to get started and how to book an appointment
for HPI consultation.
I am saddened to say that we have both relapsed, but perhaps learned
how to improve the procedure. Currently I am in my 4th month of flare,
last week I thought I was getting the upper hand against the UC but
this week I am a bit worse (I know I will win eventually). Anyway I am
relatively OK, but still as you know during a flare ones life is very
restricted. I however have found strength to deal with this; I am
usually not very patient with anything. Personally I am thinking that
this is not happening to me (all my stool samples have come back
negative for bacteria and parasites, which I find difficult to believe
- there has to be a culprit for this). I have always been healthy and
straight forward achiever. In the army I was an NCO in special
operations unit and now I find it difficult to cope with something I
cannot control. I have read that in the US some F-16 pilots have UC
and still fly...I do not know how they do it. As far as my relation
with my doctors is concerned I don't even bother seeing them anymore
since I have found them to be quite useless (we all know what they
will say anyway...don't know this, don't know that, it is not curable,
try immunosuppressive etc.). I just call and order the prescription I
need and they accommodate, I have no further use for them as it is.
Basically I am willing to talk to a doctor that actually knows
something and has treated some one back to health such as Borody.
I just hope to get well soon, do my HPI and hope that this beast UC
will just "burn off" as it is possible in the course of the disease.
It would be nice to get some person that was actually cured with HPI
just to improve our statistics in this blog ;)
StarChild
and he was very positive about his experience, he essentially said
that his disease was gone, like it was never there. He has some
trouble with normal digestion because he had his gall bladder removed,
but other than that he was feeling great... Btw, it's great to see so
much activity here, for a while it seemed as though the initial
enthusiasm died, but I guess not :)
bporter
Thanks again!
On 6/19/07, Scandinavian <Scan...@gmail.com> wrote:
>
Carl
for those parasites they are familiar with and are testing for. There
are thousands of different types of bacteria in our gut, so who knows
if one or a combination of unknown types are causing a reaction. I
get the impression it's a very complex problem.
banana
great help, especially the semi success stories of long remissions.
I agree with Carl that this is a very complex problem. I've read a
bit about bacteria in general and the scientific knowledge in this
area is still very limited. Bacteria are extremely hard to research
as only around 1% grow in a lab environment, and it is thought that
they grow or behave differently around different bacteria as if
forming colonies or families of different types. So isolating one type
of bacteria may not be that helpful all the time. To think that they
could combine with thousands of other types of bacteria to form an
almost infinite number of different combinations puts it into
perspective how far science may have to come to solve some of these
bacteria questions. I think research in this area is the way to
finding a cure for IBD's and a lot of other diseases, as our guts are
the gateway to the rest of our bodies.
Jack
Yes Jack is not Steve but Steve was the one who brought me the idea, so we emailed for some time.
I asked Steve to put the Australian papers online.
I will tell more about my experiments as well as soon as I find a bit more time ;-(
anyways, are you from norway or else from where?
Thx,
Jack
superman
recovering to a degree. must it be something more than just an
imbalance of bacteria, could you guys with crohns or UC be diferent
and have the unknown bacteria that borody mentions in his papers.
something that is dominating the gut and overwhelming the digestive
tracks good bacteria and eventually taking back control, or could it
be the ones that relapse arnt eating sensibly. are you eating
everything and anything you like perhaps, that cant be the case
anymore right. are you binge drinking and partying hard. what is with
this relapse why cant the bacteria just take. i have the belief that i
understand its a bacterial problem because as with me only
fermentation is what provokes the symptoms. the carbohydrates are the
culprit. eggs and meat only diets illiminates symtoms and gives full
relief allowing the digestive track to rebuild itself after 3 days. my
brain takes the hit also i get profound brain fog with massive chronic
fatigue which clears up as the gut heals. its fully a bacterial
problem or pehape i should say i think it is i cant really say for
certain can i. theres a reason people are not having the new bacteria
implant in the long run. its probably something simple just like the
idea for curing the disease is simple yet disgusting. because once i
do this HPI im planning to be a really sensible eater there after.
drinking days are gone for me. no more partying and only sensible
eating. could this still not work considering that and i to only get
partial recovery or relaspse. i really hope i dont relapse after all
this crap. sorry if i've just rambled on with sh*t guys im just a
little disappointed. i was hoping to hear great success stories.
Jack
There are really great success stories but they dont write here or somewhere else.
I know Steve did: http://nexusofsteve.com/News/news_102204.html and he had huge success and there are many more.
Don't forget I am not cured but I am so much beter for 2 years now, ok far from perfect but I can handle with a diet.
I came from 25 visits to the toilet down to 2 or 3 or even many days one. Not perfect stool but good enough for now.
What else can I try, I will crack down this thing.
HPI is a part of the answer for me.