Re: Started HPI Treatment Today
superman
ill be watching closely.
Scandinavian
Can you give us a short intro on how was the HPI done to you at the
CDD?
E.g, the amount of infusion, was it an enema bag, how long did you
retain, any special instructions you received? Also are you on any
medication now and were you in complete remission before you started
the HPI.
Thank you in advance for your time and GOOD LUCK!
It would be excellent if we could get some more people who have done
HPI and feel they have gotten rid of UC to write here and see how are
they doing it
superman
can i please ask who is the donar?
another thing i wonder is this. they test the donar with a variaty of
testing but how do they know if the donar has the correct balance of
bacteria. even if there absent from any problems thats no guarantee
that there stools are in the proper balance. my brother for example
has had his stools tested for his bacteria composition by bioscreens
laboratory in melbourne, aparently there the only one in the world who
does this for the public. http://www.bioscreenmedical.com/ my brothers
test showed he was a bit out of wack from the normal community, yet he
suffers no digestive problem. so he could be picked as a donar say for
example yet wouldnt offer maximum benefit. its just something i think
about and i wonder if thats why not everyone is being cured. because
they are not getting the truely correct balance right from a truely
healthy stool. . does any of this make any sense if it doesnt just
ignore me please. i can say some silly things at times but please i
would like an answer to my question as i have no one to be my donar.
Scandinavian
I have read about Otsuka's Adacolumn and I know there are currently
clinical trials in Scandinavia. Its use is very limited here as I
understand due to its costs vs. cortisone use. Since it is a Japanese
invention how are the results with it? If one reads the marketing
material and trial data its sounds promissing, but I guess in Japan
they have the real experience from it.
What antibiotics were you on before coming to Australia for the HPI?
If possible to ask from the CDD how important is the colonoscopic
infusion vs, the infusion with an enema? I guess only the first time
they did the HPI during colonoscopy? Are they using the same donor
each time or a different one for each session? Also if they have done
any documented clinical trials a part from the articles published in
2003 and 2004 with the 6 case base results. I am sure what we all want
to know is how many HPIs for UC the CDD has done and what is their
success rate for 1, 2, 3, 5 and 10 years?
There will be more questions I am sure :)
cheers and I hope you get to have a real holiday as well!
bporter
morning.
First, I was taking the antibiotic Vancomyacin.
I don't remember the exact amounts of infusions versus enemas, but I
think they were 400ml and 300ml, respectively. However, different
people would take different amounts, and as little as 250ml. She
stressed that it is always quality over quantity. They mix their
donors to try and get as quality a sample as possible. They have been
working with their donors for seven years so they are highly reliant.
As for the colonoscopy vs enema, I forgot to ask her about this, but
she did talk about how it's just a matter of getting the sample
throughout the entire colon. That is why for enema infusions, they
have patients roll over, etc., and massage to try and get as much of
the colon coated as possible. Through the colonoscope, however, they
are able to go even into the small bowel and other areas where simply
because of organ structure, you wouldn't be able to get to through
physics and rolling around. The infusion is done through the
colonoscope only on the first day.
I forgot to ask about other published articles, but should have a
chance later.
She didn't know an exact number for infusions that they have done, but
she figured it was around a few hundred. Success being around 50% for
colitis, but different types of cases having higher and lower success
rates. Also, we talked about people who have relapsed.
In talking about quality vs. quantity, we also talked about donors.
My feeling from the conversation was that as long as you have a
quality donor with healthy screening results, very regular bm, a good
diet, good health history, no major use of anti-biotics, you might be
just as well off doing the treatment on your own. Also, if you
relapse, your donor is still local, so you can always go back to them.
Let me know if you have more questions that I can ask them about.
superman
digestive track. so wouldn't it be better if thats correct of course
to have the infusion through the mouth? i know that the inflamation
for some of you is in the large bowel only but why wouldnt you coat
the entire digestive track just to be sure.
@ also when done through the mouth if they ever have or do,
what kind of results could you expect and most importantly would they
even survive the "stomach acid and bile"?
@one more question is do they think they will they ever be
able to make a probiotic just like HPI, that could colonise the gut
permently. it would be the best supplement the world will ever see i
think.
my first two questions i ask this because im having trouble with my
small intestine not the large bowel. i suffer from diarrhea
prodominate IBS and when a doctor pushes on my gut he says the large
bowel is inflamed. i get sharp pains in my gut at times when i go of
my strict diet. ive had a colonoscopy up the bum and they saw
previous inflamation where the large and small bowel meet. though its
only remnents of what once was.
i would like to thank you bporter, thanks for letting me watch this
unfold. i hope i see you in some block buster film at the cinema next.
where your getting paid the big bucks. lol.
superman
intestine is inflamed.
superman
recevied. some studies showed one was enough.
Burke Porter
thing is that my medisone dosages have changed and so has my diet to
try and aid the new bacteria.