HPI Results

[robray]

I thought I would update my original thread with the results of my HPI
(Human Probiotic Infusion) treatment, but there only seems to be a
'reply to author' option so I have created a new thread.

I am not much of a writer so feel free to ask me any questions or
email me in private if you like.

I went to the Centre of Digestive Diseases in Sydney Australia during
April and May. The HPI treatment involves stool testing for parasites/
bacteria, anitbiotic preparation and finally the actual human
probiotic infusions. In total it takes several weeks to complete.
Everything with the treatment went very well. The staff at the CDD
were amazing as well as the facility.

At the start of the infusions I stopped taking Dipentum (5ASA) and
Entocort Enemas and started taking a small dose of prednisone and
Pariett (proton pump inhibitor). The Pariett is not part of the
procedure, but I had an endoscope done at the CDD because I was
complaining of acid reflux. The endoscope showed an ulcer at the end
of my esaphagaus and the CDD recommended that I take Pariett to allow
it to heal. I really didn't feel much different during the infusions,
except for a definite increase in bloating and gas which seemed to
indicate that something was going on. I was still going to the
bathroom about twice a day and they weren't very formed. This is
normal for me when I am in so called remission. This was a little
disappointing as I had heard that some patients experience normal
bowel movements after even the first infusion.

It has now been 11+ weeks since my last infusion and I have had a few
ups and downs during that time. But overall I have had a steady
decline leading me to the point I am at now which is cramping,
bleeding, and diarrhoea 8-10 times per day. The two month timeframe of
stopping Dipentum and going in to a flare is pretty consistent as I
had experienced that in the past when I tried to reduce the dosage of
my Dipentum. I am now back on Dipentum, Entocort Enemas and still on
prednisone.

I hate to say it, but HPI did not work for me. I still believe that UC
is caused by an unknown bacteria. I would be willing to try HPI a
second or even third time before I completely give up on it. I hope
this doesn't stop anyone from trying HPI, but I wanted to tell people
what happened when I tried it.

[j]

robray,

I'm very sorry HPI didn't work for you. As you probably found during
your visit, it's not for lack of effort on the part of CDD. The will
do a limited number of follow-up consults, I think, so keep in touch
with them as much as you can. Note: Dr Borody has a company called
Giaconda which is running trials on various drugs for colitics.

Also: I have tried a wide variety of treatments, mostly alternative or
complementary medicine. While none have worked for me, I continue to
pursue them. I encourage you to consider any approach that has
potential, as long as it is not dangerous or cost-prohibitive.
Options include:

- Acupuncture/Traditional Chinese Medicine
- Homeopathy
- Radical diet changes
- Chi-gong healing and practice
- Healing touch, energy work
- Craniosacral healing
- Ayurveda (Traditional Indian Medicine)
- Meditation (Mindfulness Meditation has worked well for people with
various illnesses)

I'm spent a lot of time and money of some of these over the years with
no results. However, what better place to put one's money than trying
to get well?

Keep trying!

Regards,

J

[robray]

I can't speak highly enough of the staff at CDD. They are all really
great and I am still in contact with them.

I am not giving up on HPI yet. There was a period where I was taking
quite a lot of fiber and I was having some fairly formed stool. I am
not sure if it was the fiber that helped form the stool or if it was
HPI. I also was taking psyllium and flax seed fiber and when I told
the CDD about it they told me to stop, as it wasn't necessary to take
extra fiber just follow a regular diet. What I am getting at is there
are so many variables that I feel I may have contributed to HPI not
working. When I am healthy again I may give it another shot, but I
will try to do it with a local donor. The flare up that I am in now
really sucks and I'd hate to be like this again in a year or so.