[WG-HealthIDAssurance] Fwd: SOCI’s Consent Service Utility at the ONC Tech Forum

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Martin Smith

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Aug 31, 2021, 2:49:53 PM8/31/21
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Looked interesting!

Martin


-------- Forwarded Message --------
Subject: SOCI’s Consent Service Utility at the ONC Tech Forum
Date: Tue, 31 Aug 2021 19:23:38 +0100
From: Daniel Stein, SOC Institute <Stewards....@ourmailer.com>
Reply-To: Daniel Stein, SOC Institute <re-14XM-7IKU7...@ourmailer.com>
To: martin...@acm.org


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  - August 31, 2021 -

Learn about SOCI's Breakthrough Consent Service Utility at the ONC Tech Forum

By Daniel Stein

    

The Office of the National Coordinator for Health Information Technology (ONC), as most readers of this blog probably know, is a significant driver of progress for our nation’s health system. So Stewards of Change Institute (SOCI) is delighted and honored that ONC has invited us to participate in its online 2021 Tech Forum, which is a showcase for ideas, insights and innovations for advancing health technology to improve patient care, health equity, data exchange and interoperability.

    

SOCI’s focus at the event will be our Consent Service Utility (CSU), which we have been developing throughout this year with several partners and dozens of subject matter experts from across the country. CSU is a systems-change approach to modernizing the processes by which individuals (patients, consumers, clients, etc.) allow or deny the exchange of their personal information across programs, sectors and domains such as healthcare, behavioral health, education, housing, probation and other social factors that greatly impact everyone’s health and well-being.

    

We urge you to register for the ONC forum, which takes place on September 10 and September 17. And, of course, we invite you to learn more about SOCI’s many initiatives, especially our CSU, at our very-cool-looking virtual booth at the event.


Here’s a brief preview of what you’ll learn about CSU:

    

  • CSU is an open-source, open-standards technical solution and architecture that will be replicable and customizable
  • It is usable and useful across multiple social and human services, as well as across those that are directly healthcare-related
  • Our initial testing and implementation partners are the federally funded Integrated Care for Kids (InCK) sites in New Jersey and New York

    

We’re developing this innovative approach as part of Project Unify, an initiative we launched a few years ago to advance interoperability and information sharing across the Social Determinants of Health and Well-Being (SDOH), because we strongly believe they are key to making substantive, enduring progress, most pointedly to broadly further health equity. Specifically, we believe the CSU could be transformational by enabling and empowering individual decision-making while dramatically reducing duplication, lowering costs, streamlining processes and improving outcomes.

    

We’re very grateful to the ONC for its growing interest in Project Unify and the CSU, not only by enabling us to highlight them during the upcoming Tech Forum, but also by potentially including them in ONC’s own initiatives, accelerator programs and efforts relating to SDOH.


This work, which is a strategic priority for SOCI, grew out of our National Action Agenda to Advance Upstream Social Determinants and Health Equity (NAA), a major initiative we launched a couple of years ago with the Stanford University Center for Population Health Sciences and additional organizational collaborators across the U.S. The initiative’s intent was (and still is) to instigate and implement tangible, systems-level change across Health, Human Services, Education, Public Health, Public Safety and other domains.


The CSU is a primary way in which we’re striving to achieve that objective, and we’ve assembled a formidable team of volunteer technologists, subject-matter experts and other professionals to conduct the work. If you want to learn more about this ambitious, potentially transformational effort – or want to participate in it, individually or with your organization – please write me at dan...@stewardsofchange.org.



GO TO THE FULL BLOG >>>

    

Our ITCC course, Managing Privacy and Consent, is Available!

  

This course provides foundational knowledge designed to help any organization – public or private – better-understand, navigate and accelerate its interoperability efforts; it offers your personnel the core competency they need to develop and manage projects that involve the sharing of private/sensitive data – including an understanding of when inter-agency data sharing is legally permissible or restricted, and how law and policy define the roles and responsibilities of the involved entities.


Learn more and register at www.stewardsofchange.org/ITCC.

Connect with SOC Institute

Connect with NIC 

Stewards of Change Institute, Centerport, NY

 

Unsubscribe

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Martin Smith 703 389-3224

Jim St.Clair

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Aug 31, 2021, 3:44:58 PM8/31/21
to martin...@acm.org, wg-healthi...@kantarainitiative.org

I’m a member of SOCI’s Project Unify and happy to offer any insights or invite you to the meetings. Both SOCI and Lumedic are at the ONC Tech Forum.

 

Best regards,

Jim

_______________ 

 

Jim St.Clair 

Chief Trust Officer

jim.s...@lumedic.io | 228-273-4893 

Let’s meet to discuss patient identity exchange: https://calendly.com/jim-stclair-1

 

From: WG-HealthIDAssurance <wg-healthidass...@kantarainitiative.org> On Behalf Of Martin Smith
Sent: Tuesday, August 31, 2021 1:50 PM
To: wg-healthi...@kantarainitiative.org
Subject: [WG-HealthIDAssurance] Fwd: SOCI’s Consent Service Utility at the ONC Tech Forum

 

CAUTION: This email originated from outside of the organization. Do not click links or open attachments unless you recognize the sender and know the content is safe.

Tom (Thomas) Sullivan

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Aug 31, 2021, 3:55:31 PM8/31/21
to Jim St.Clair, martin...@acm.org, wg-healthi...@kantarainitiative.org
That's great Jim!

Do you think you could offer those insights at our Kantara/HIAWG meeting on September 16th at 2 PM ET?

Thanks,

Tom

Thomas E Sullivan, MD
Chief Medical Strategic Officer
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From: WG-HealthIDAssurance <wg-healthidass...@kantarainitiative.org> on behalf of Jim St.Clair <jim.s...@lumedic.io>
Sent: Tuesday, August 31, 2021 3:44 PM
To: martin...@acm.org <martin...@acm.org>; wg-healthi...@kantarainitiative.org <wg-healthi...@kantarainitiative.org>
Subject: [EXTERNAL] Re: [WG-HealthIDAssurance] Fwd: SOCI’s Consent Service Utility at the ONC Tech Forum
 
Notice of Confidentiality: The information included and/or attached in this electronic mail transmission may contain confidential or privileged information and is intended for the addressee. Any unauthorized disclosure, reproduction, distribution or the taking of action in reliance on the contents of the information is prohibited. If you believe that you have received the message in error, please notify the sender by reply transmission and delete the message without copying or disclosing it.

Jim St.Clair

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Aug 31, 2021, 3:57:08 PM8/31/21
to Tom (Thomas) Sullivan, martin...@acm.org, wg-healthi...@kantarainitiative.org

I can! I can also invite Danial Stine and/or Adam Perlman from SOCI to discuss if desired.

 

Best regards,

Jim

_______________ 

 

Jim St.Clair 

Chief Trust Officer

jim.s...@lumedic.io | 228-273-4893 

Let’s meet to discuss patient identity exchange: https://calendly.com/jim-stclair-1

 

Salvatore DAgostino

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Aug 31, 2021, 3:58:27 PM8/31/21
to Jim St.Clair, Tom (Thomas) Sullivan, martin...@acm.org, wg-healthi...@kantarainitiative.org
Very interested, particularly how they conceived consent

IDmachines
1264 Beacon St., #5
Brookline, MA 02446
@idmachines

From: WG-HealthIDAssurance <wg-healthidass...@kantarainitiative.org> on behalf of Jim St.Clair <jim.s...@lumedic.io>
Sent: Tuesday, August 31, 2021 3:57:01 PM
To: Tom (Thomas) Sullivan <tsul...@drfirst.com>; martin...@acm.org <martin...@acm.org>; wg-healthi...@kantarainitiative.org <wg-healthi...@kantarainitiative.org>
Subject: Re: [WG-HealthIDAssurance] Fwd: SOCI’s Consent Service Utility at the ONC Tech Forum
 

Tom (Thomas) Sullivan

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Aug 31, 2021, 3:58:48 PM8/31/21
to Jim St.Clair, martin...@acm.org, wg-healthi...@kantarainitiative.org
That's great, Jim!  Please invite them.

tom

Thomas E Sullivan, MD
Chief Medical Strategic Officer
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From: Jim St.Clair <jim.s...@lumedic.io>
Sent: Tuesday, August 31, 2021 3:57 PM
To: Tom (Thomas) Sullivan <tsul...@drfirst.com>; martin...@acm.org <martin...@acm.org>; wg-healthi...@kantarainitiative.org <wg-healthi...@kantarainitiative.org>
Subject: [EXTERNAL] RE: [WG-HealthIDAssurance] Fwd: SOCI’s Consent Service Utility at the ONC Tech Forum
 

Jim St.Clair

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Aug 31, 2021, 4:14:31 PM8/31/21
to Kay Chopard, wg-healthi...@kantarainitiative.org

Yes, Kay! Thank you, and sorry I did not mention your active participation!

 

Best regards,

Jim

_______________ 

 

Jim St.Clair 

Chief Trust Officer

jim.s...@lumedic.io | 228-273-4893 

Let’s meet to discuss patient identity exchange: https://calendly.com/jim-stclair-1

 

From: Kay Chopard <k...@kantarainitiative.org>
Sent: Tuesday, August 31, 2021 3:09 PM
To: Jim St.Clair <jim.s...@lumedic.io>

Cc: martin...@acm.org; wg-healthi...@kantarainitiative.org
Subject: Re: [WG-HealthIDAssurance] Fwd: SOCI’s Consent Service Utility at the ONC Tech Forum

 

I’m also a member of this group. I was a member before

I came to Kantara and once they realized I was here 

added me to more of their groups. Ha!

 

By the way at the last weekly meeting Jim gave an

excellent presentation and talked about Kantara’s work. 

Nancy Lush also did a great job talking about UMA. 

 

We are well represented!

Kay

Kay Chopard

Executive Director 

Kantara Initiative Inc. 



On Aug 31, 2021, at 3:45 PM, Jim St.Clair <jim.s...@lumedic.io> wrote:



I’m a member of SOCI’s Project Unify and happy to offer any insights or invite you to the meetings. Both SOCI and Lumedic are at the ONC Tech Forum.

 

Best regards,

Jim

_______________ 

<image001.png>

_______________________________________________
WG-HealthIDAssurance mailing list
WG-HealthI...@kantarainitiative.org
https://kantarainitiative.org/mailman/listinfo/wg-healthidassurance

Kay Chopard

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Aug 31, 2021, 4:18:02 PM8/31/21
to Jim St.Clair, wg-healthi...@kantarainitiative.org
No worries. It’s all good. Appreciate you all sharing 
the information with the group. 


Kay Chopard
Executive Director 
Kantara Initiative Inc. 

On Aug 31, 2021, at 4:14 PM, Jim St.Clair <jim.s...@lumedic.io> wrote:



Yes, Kay! Thank you, and sorry I did not mention your active participation!

 

Best regards,

Jim

_______________ 

<image001.png>
 

Kay Chopard

unread,
Aug 31, 2021, 4:18:03 PM8/31/21
to Jim St.Clair, wg-healthi...@kantarainitiative.org
I’m also a member of this group. I was a member before
I came to Kantara and once they realized I was here 
added me to more of their groups. Ha!

By the way at the last weekly meeting Jim gave an
excellent presentation and talked about Kantara’s work. 
Nancy Lush also did a great job talking about UMA. 

We are well represented!
Kay

Kay Chopard
Executive Director 
Kantara Initiative Inc. 

On Aug 31, 2021, at 3:45 PM, Jim St.Clair <jim.s...@lumedic.io> wrote:



I’m a member of SOCI’s Project Unify and happy to offer any insights or invite you to the meetings. Both SOCI and Lumedic are at the ONC Tech Forum.

 

Best regards,

Jim

_______________ 

<image001.png>
 

_______________________________________________

Jim St.Clair

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Aug 31, 2021, 4:45:30 PM8/31/21
to Salvatore DAgostino, Tom (Thomas) Sullivan, martin...@acm.org, wg-healthi...@kantarainitiative.org

Thanks Sal, I can tell you in advance that SOCI have been taking a broad approach to assess and document what “consent” means, down to the state regulatory level. Several of us advocate for approaches to “granular consent” but it’s pretty clear that what state laws allow and require, as well as the cultural approach of the organizations themselves, affects how consent is defined and managed.

 

Best regards,

Jim

_______________ 

 

Jim St.Clair 

Chief Trust Officer

jim.s...@lumedic.io | 228-273-4893 

Let’s meet to discuss patient identity exchange: https://calendly.com/jim-stclair-1

 

Tom Jones

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Aug 31, 2021, 6:21:36 PM8/31/21
to Jim St.Clair, Kantara WG HealthIDassurance
I agree with sal we could do a lot to make the consent process more clear.  FAPI is struggling with the difference between consent and grants.  I think they are badly confused.

thx ..Tom (mobile)

_______________________________________________

Salvatore DAgostino

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Aug 31, 2021, 6:25:20 PM8/31/21
to Tom Jones, Jim St.Clair, Kantara WG HealthIDassurance
Yes Tom, ty, consent is a precedent to grants and permissions and not identity management, there is work to do here

IDmachines
1264 Beacon St., #5
Brookline, MA 02446
@idmachines

From: Tom Jones <thomascli...@gmail.com>
Sent: Tuesday, August 31, 2021 6:21:20 PM
To: Jim St.Clair <jim.s...@lumedic.io>
Cc: Salvatore DAgostino <s...@idmachines.com>; Tom (Thomas) Sullivan <tsul...@drfirst.com>; Martin Smith <martin...@acm.org>; Kantara WG HealthIDassurance <wg-healthi...@kantarainitiative.org>

Tom (Thomas) Sullivan

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Aug 31, 2021, 7:00:41 PM8/31/21
to Salvatore DAgostino, Tom Jones, Jim St.Clair, Kantara WG HealthIDassurance
All,

IMO, If consent is to be trusted, it must be derived from a trusted identity.  That's the way it goes in healthcare - at least that's the idea.

Tom

Thomas E Sullivan, MD
Chief Medical Strategic Officer
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Description automatically generated
 DrFirst.com, Inc.

 

From: Salvatore DAgostino <s...@idmachines.com>
Sent: Tuesday, August 31, 2021 6:25 PM
To: Tom Jones <thomascli...@gmail.com>; Jim St.Clair <jim.s...@lumedic.io>
Cc: Tom (Thomas) Sullivan <tsul...@drfirst.com>; Martin Smith <martin...@acm.org>; Kantara WG HealthIDassurance <wg-healthi...@kantarainitiative.org>
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