4S/EASST track "Flows and overflows of personal health data"
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Tempini, Niccolo
Dec 12, 2019, 11:17:52 AM12/12/19
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Dear all,
Dr Niccolò Tempini
Senior Lecturer in Data Studies & Turing Fellow
Department of Sociology, Philosophy and Anthropology
University of Exeter
Together with Mary Ebeling (Drexel) and Tamar Sharon (Radboud) I will co-convening a track at the next 4S/EASST meeting in Prague 18-21 August 2020 titled 'Flows and overflows of personal health data'. I share the news trusting
it might be of interest to some in this group. Details below and please do get in touch if you could be interested in submitting something and have any questions.
Deadline for abstracts will be 29 Feb.
Cheers
Niccolo
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Flows and overflows of personal health data
M Ebeling (Drexel U), T Sharon (Radboud U), N Tempini (Exeter U)
With the explosion of digital technologies that generate massive sets of personal data, from internet networks and big data infrastructures, to wearable devices and sensors, many actors see the analytical potentials of these collections for healthcare and medical research and knowledge production. These data circulate across domains, amongst different types of actors – e.g. academic scientists, corporations, non-profit organizations, individual data subjects, and patient groups – and according to different logics of exchange – e.g. donation, sharing, commodification, and appropriation (Ebeling 2016; Sharon 2018; Tempini
This track invites papers that explore the complex dynamics of the increasing circulation of health data. In particular we seek analyses asking not only how benefits are construed and by whom, and what harms may result, but also what frameworks currently exist for governing flows and what alternative frameworks might be imagined.
References
Ebeling, Mary F.E. 2016. Healthcare and Big Data. New York: Palgrave Macmillan US. http://link.springer.com/10.1057/978-1-137-50221-6.
Sharon, Tamar. 2018. ‘When Digital Health Meets Digital Capitalism, How Many Common Goods are at Stake? Big Data & Society 5 (2) https://doi.org/10.1177/2053951718819032.
Tempini, Niccolò, and David Teira. 2019. ‘Is the Genie out of the Bottle? Digital Platforms and the Future of ClinicalEconomy and Society 48 (1): 77–106. https://doi.org/10.1080/03085147.2018.1547496.
M Ebeling (Drexel U), T Sharon (Radboud U), N Tempini (Exeter U)
With the explosion of digital technologies that generate massive sets of personal data, from internet networks and big data infrastructures, to wearable devices and sensors, many actors see the analytical potentials of these collections for healthcare and medical research and knowledge production. These data circulate across domains, amongst different types of actors – e.g. academic scientists, corporations, non-profit organizations, individual data subjects, and patient groups – and according to different logics of exchange – e.g. donation, sharing, commodification, and appropriation (Ebeling 2016; Sharon 2018; Tempini
This track invites papers that explore the complex dynamics of the increasing circulation of health data. In particular we seek analyses asking not only how benefits are construed and by whom, and what harms may result, but also what frameworks currently exist for governing flows and what alternative frameworks might be imagined.
References
Ebeling, Mary F.E. 2016. Healthcare and Big Data. New York: Palgrave Macmillan US. http://link.springer.com/10.1057/978-1-137-50221-6.
Sharon, Tamar. 2018. ‘When Digital Health Meets Digital Capitalism, How Many Common Goods are at Stake? Big Data & Society 5 (2) https://doi.org/10.1177/2053951718819032.
Tempini, Niccolò, and David Teira. 2019. ‘Is the Genie out of the Bottle? Digital Platforms and the Future of ClinicalEconomy and Society 48 (1): 77–106. https://doi.org/10.1080/03085147.2018.1547496.
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Dr Niccolò Tempini
Senior Lecturer in Data Studies & Turing Fellow
Department of Sociology, Philosophy and Anthropology
University of Exeter
Alan Turing Institute
n.te...@exeter.ac.uk
ntem...@turing.ac.uk
@tmpncl
www.tempini.info
www.turing.ac.uk/people/researchers/niccolo-tempini
n.te...@exeter.ac.uk
ntem...@turing.ac.uk
@tmpncl
www.tempini.info
www.turing.ac.uk/people/researchers/niccolo-tempini
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