Its Alive

[TODDMAN]

I took a shot in the dark to see if this group was still alive after 2
years of no activity. I'm glad its still being watched.

I haven't used mine for a while, anybody out there still using
there's?

Thanks Kevin & Scott for the quick responce :)

[roger...@btinternet.com]

Only 3 years late replying, are you guys still using the system? I believe there may only be one or two of us in the UK

[roger...@btinternet.com]

Hi is there anybody there. I'm still using my Freehand system every single day and can't imagine how awful life would be without it. Such a shame they overstretched and went bust. Hope the original professor gets his patent back and gets an updated system back for the good of everyone who could benefit, maybe one that works off the wheelchair battery and weighs less than half a ton :-)

[Scott Abram]

I still have my implant but no longer have a functional controller. Couldn't find the Motorola pager batteries on my own and the few I had no longer charged. 

Glad to hear someone is still up and going.

Been thinking about getting the device removed but was basically told the risk outweighed the benefits.

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[Kevin Kilgore]

Roger,

Nice to hear from you.  Hopefully your Freehand will keep working for a long time, but we are making progress on "the next one"!  Here are three things that have happened in the past couple of years to get the Freehand "back"...

First, we set up a non-profit and for-profit partnership.  We hope this arrangement will protect us from the sudden change of direction that NeuroControl made.  The non-profit is called the "Institute for Function Restoration".  Here is their website:

http://restorefunction.org/

Second, we developed a new version of the technology that we call the "Networked Neuroprosthesis" (NNP).  We implanted the first two people with this new system last year, and we have more implants scheduled in the next few months.  It seems to be working well.  The key thing is that everything is internal - nothing to tape to the chest during use.  It does have rechargeable batteries, so those have to get recharged, but otherwise it is totally inside the body.  We think that's a big advantage.  Here is some information about that system:

http://fescenter.org/research/technology-programs/networked-neuroprosthetic-system-nnps/

Third, I know coming to the USA - to Cleveland - would be a long trip.  Eventually we will get this back out more broadly...probably US first before we spread to UK.  But, in the meantime, we do have a spectacular new place for people to stay while they get the new NNP implanted and get training for it.  People can stay there for up to six months for free while they participate in the study and get the NNP.  So - at least it is an option, though certainly not without significant hardships.  The house was originally called "MetroHouse", although it's real name will "Zubizarreta House" in honor of the donor.  It will open it's doors in about a month.  Here is a bit more information about that:

http://fescenter.org/patient-resources/metrohouse/

So...we have not given up!!!  It's just taken us quite a while to get these pieces together.  I think the momentum is picking up, though.

Kevin

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Kevin L. Kilgore, Ph.D.
Professor, Dept. Orthopaedics, MetroHealth Medical Center

Research Service, Louis Stokes Cleveland VAMC

Cleveland Functional Electrical Stimulation Center

Phone: 216-957-3657
Email:  kl...@case.edu

Research:  http://fescenter.org/

Personal:  http://www.kevinlloydkilgore.blogspot.com/

[Kevin Kilgore]

Scott,

If you ever wanted to get the system back up and running, I'm sure we could figure it out (assuming your implant is still working).  We do have some of the batteries - although you probably would need some reprogramming by now.  That might require a trip to Cleveland.

We do have a newer system that we are just starting to implant - it is battery powered (inside the body) and has some good advantages.  There are some links to more information on that in my email to Roger.  Let me know if you didn't see that note.

Hope everything else is going well.

Kevin

On Tue, May 30, 2017 at 12:40 PM, Scott Abram <scott...@gmail.com> wrote:

I still have my implant but no longer have a functional controller. Couldn't find the Motorola pager batteries on my own and the few I had no longer charged. 

Glad to hear someone is still up and going.

Been thinking about getting the device removed but was basically told the risk outweighed the benefits.

On May 30, 2017 9:53 AM, <roger...@btinternet.com> wrote:

Hi is there anybody there. I'm still using my Freehand system every single day and can't imagine how awful life would be without it. Such a shame they overstretched and went bust. Hope the original professor gets his patent back and gets an updated system back for the good of everyone who could benefit, maybe one that works off the wheelchair battery and weighs less than half a ton :-)

On Sunday, 14 December 2014 10:24:29 UTC, roger...@btinternet.com wrote:

On Friday, 10 June 2011 19:44:44 UTC+1, TODDMAN wrote:
> I took a shot in the dark to see if this group was still alive after 2
> years of no activity. I'm glad its still being watched.
>
> I haven't used mine for a while, anybody out there still using
> there's?
>
> Thanks Kevin & Scott for the quick responce :)

Only 3 years late replying, are you guys still using the system? I believe there may only be one or two of us in the UK

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