2 kids in OH with multiple missing teeth

[Debbie Dillon]

This is a brand new diagnosis for us. Genetic testing was done today to determine why oligodontia is present in two children. We now have 3 a general dentist, an orthodontist, and a prostadontist. But now they want is to see another specialist. The bills are getting huge and we haven't had any work done yet. I understand why this process needs support from others who know the frustrations. I started to read on the internet but the study on oligodontia linked to colon cancer scared me away and I thought it best not to go too far into this thing right now. Definitely overwhelmed.

Debbie- OH

[Patricia Lamm]

It's shocking, I know. If I can be of any help, please let me know. My daughter is now 18 years old and we are awaiting eight implants when she's in her 20's. It's been a long journey, but in the end, it's made her a stronger person and she has a beautiful
smile.



Tricia Lamm
Sent from my iPhone

> On Nov 17, 2016, at 1:50 PM, Debbie Dillon <deborahe...@gmail.com> wrote:
>
> This is a brand new diagnosis for us. Genetic testing was done today to determine why oligodontia is present in two children. We now have 3 a general dentist, an orthodontist, and a prostadontist. But now they want is to see another specialist. The bills are getting huge and we haven't had any work done yet. I understand why this process needs support from others who know the frustrations. I started to read on the internet but the study on oligodontia linked to colon cancer scared me away and I thought it best not to go too far into this thing right now. Definitely overwhelmed.
>
> Debbie- OH
>

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[Mickey D]

Debbie, how many teeth are they missing and do you have any other relatives with any issues? We just learned that one of my sister's kids is missing one tooth and her wisdoms. That is the first indication of it being anywhere else in the families. My dd is missing 6 and has 2-3 others that the permanents are not viable and will have to lose those babies and permanents. She is almost 12 and finishing her phase I braces soon. Got her second party tooth this month and has a full smile for first time. Lots ahead tho!

[Debbie Dillon]

Thank you for the support. We have found a doctor and have a medical plan. It all leads to implants for both kids down the road. The disheartening part is the cost. Unbelievable that this expense is so great. Also sad that because we both work- we are exempt from any of the state programs. Long road but we will get through. Somehow.

Debbie- Ohio