In CA: 5 year missing 8-10 permanent teeth

[Anne]

Pediatric dentist told us in October 2016 that our 5 year old son was missing 8-10 permanent adult teeth.

I've had several dentists look at his xrays and they were in agreement that if they weren't present underneath the root now, the  chances of adult permanent forming were nil.

My son is globally delayed(failure to thrive, speech, motor planning, etc) due to  a heart defect(ASD) that was repaired when he was 18 months old.

My son was very sick for many months leading up to his heart defect diagnosis.

I was hoping that due to his previous medical condition, that this was the possible reason for the delay of his permanent teeth.

We had genetic(met with a geneticist who did a thorough physical exam) testing done in January 2016.

CGH Micro Array, Prader Willie and Fragile X, results were all normal.

Like many have posted, I have cried my eyes swollen.

I worry about how all this may affect my son's esteem as he ages.

I live in San Diego, California and my next steps are to get a medical diagnosis and hope that my medical insurance will spot some of these expenses.

I have Kaiser Permanente Health insurance and I'm not sure how cooperative they'll be???

Some help in this will be greatly appreciated.  

Anyone know a good  Prosthodontist in my area?

I do remind myself that dentistry has made SO many gains in it's field.  

There are options and its all manageable.

We all agree the cost is thru the roof and with a $1500 max per year, it seems like chump change when your dealing in the $1000's+

But in the end, I'm thankful it's just his teeth and not his health.

I'm glad that I found this group.

I do not feel alone in my long journey ahead.

[Patricia Lamm]

There's a wonderful Periodontist in La Jolla named Dr. Nordland. He can refer you to an excellent prosthodontist.  

In Newport Beach, we have Dr. Cherilyn Sheets, who is amazing. Very expensive, but she is worth it. 

Tricia Lamm

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[anne pham]

Hi Tricia....at what point do I start consulting with a Periodontist and Prosthodontists?  

Do I wait for the pediatric dentist to direct me?  

Which doctor should be the primary lead for oilgodintia cases?

Thx!

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[Patricia Lamm]

Great questions! Start asap. My daughter, who is now 18, was fitted with a palette expander at 5 years old. My orthodontist had us consult with Dr. Cherilyn Sheets at that point. Dr. Sheets is world leader in prosthodontics. 

Our dental team has included orthodontist, periodontist, prosthodontist, speech therapist (tongue thrust issue because not enough room in the mouth), oral surgeon for double jaw surgery (Michael Gunson in Santa Barbara, the best of the best), and psychologists for the emotional aspects of dealing with this. 

Don’t wait for anyone to direct you to find your team. Be proactive. Find people that have experience with this, which is not common. I think I would reach out to Dr. Peter Nordland in La Jolla first because he knows good people where you live. Use my name when contacting him. He knows the Lamm family well as both my daughters have had perio work and I’m scheduled for the same in the fall. He speaks internationally and is very well respected. He’s also just a very nice man to deal with. 

In terms of insurance coverage, my daughter’s bi-lateral jaw surgery was covered and some periodontal work that was necessary for the jaw surgery. We’ve appealed for more, but been denied on almost everything else. 

Unfortunately, medical insurance sees it as dental, and dental doesn’t pay much at all as you know.  

Hope this helps. Feel free to research my prior posts on this site or reach out to me with any additional questions at trici...@icloud.com. There’s also a hypodontia support group on Facebook that you should join. 

Tricia 

On Jun 25, 2017, at 9:24 AM, anne pham <anneph...@gmail.com> wrote:

Hi Tricia....at what point do I start consulting with a Periodontist and Prosthodontists?  

Do I wait for the pediatric dentist to direct me?  

Which doctor should be the primary lead for oilgodintia cases?

Thx!

On Sat, Jun 24, 2017 at 10:31 PM Patricia Lamm <trici...@icloud.com> wrote:

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