Fwd: {Erella's Brain Trust} bike heaven

[Erella Ganon]

I am in for part of the purchase price of this Biria bike from Shelagh. You can send your pledge to me. Mic...@michael-page.ca. Only want to hear from those who are flush. Someone needs to put me in touch with Shelagh. -MP

 

From: erellas-b...@googlegroups.com [mailto:erellas-b...@googlegroups.com] On Behalf Of Erella Ganon
Sent: Monday, April 25, 2011 2:49 PM
To: erella google brain trust
Subject: {Erella's Brain Trust} bike heaven

 

 

 

Hi All, 

 

 

I haven't been in touch lately because I kept on thinking that I would feel better in a day or so and I would write you then.

Days turned into weeks.

The last month has been gruesome. Really. 

There have been never ending new tests and in the interim, I feel absolutely unable to get anything done. 

My friend Sue encouraged me last week to talk to all my doctors and get to the bottom of what is going on.

She's right. 

When it was just a brain tumour, it was easier to fight against it. Pain is one thing but coupled with the malaise I have been experiencing has been a different kind of challenge. For the last couple months, it has been extreme fatigue, nausea, and exploding diarrhea (sorry for the colourful language.

My doctor sent me to a gastroenterologist who gave me a colonoscopy. 

For normal people, this has to be done in a clinic, no big deal, for me, I have to have a anesthetist involved and it is done in a clinic. Last time, I took off a morning from work and didn't use and drugs at all. It wasn't any kind of challenge.

This time was a whole day affair in a hospital but the results were good.

Friday, I will have the upper GI test. 6 months of diarrhea is really hard to take. Exhausting. This has been since I have had my adrenal glands removed in Oct. 2010.

 

I saw a new neurophysiologist last week who diagnosed me with Carpal Tunnel Syndrome.

I understand this is a common occurrence with Cushing's disease. The tests are kind of cool. They hook me up to a machine and the doctor moves my fingers for me by playing with the dials. 

I become Pinocchio to his Gappeto. I showed him how one of my fingers  has limited movement. He called that "Trigger FInger" and said there was nothing to be done about it. I liked the sound of it though. He said it might go away on its own.

I showed him a new bump on my wrist and asked if this would interfere with the treatment for the carpal tunnel. He thought not but he looked at me and my charts a bit and asked me if I have been tested for something called M.E.N. type 2A. Nope.

We discussed all my ailments, which are for different areas, mainly for an Endocrinologist to look into.

He said he suspects that there's another tumour in my body, from the look of my ganglia wrist bump. He wants me to have my pancreas checked, which is what my trusted American friend Ami just asked. 

When I see the endocrinologist, May 9, I will ask him to look into this.

 

On a brighter note,

My friend Shelagh was selling her cool bike. 

I used to be a major bike person years ago but it has been at least 5 years since I rode one. If there was a bike for me, Shelagh's was it because it has a lower middle and centre of gravity, so I asked if I could try it before she sells it.

 

Just look at this thing!

 

When you hear someone say, "it's just like riding a bike, think of me".

 

Shaking a little, I got on the bicycle and though my brain tumour still makes me a little tippy, I had no trouble, it was an exhilarating feeling to soar with relatively little power! What excitement! I was so thrilled.

She let me buy the bike from her even though there were people coming later in the day for it.

 

I feel as though I have added an extra room on to my possible future. 

It is bigger and wider and more hopeful. I was breathing so well and full of hope.

So exciting.

 

Saturday, I went on a tiny ride a few blocks away to visit my friend Sue's little pop up vintage goodies shop around the corner.

I sat down in there feeling a little discouraged by how difficult I found the short journey.

An old friend happened into the store.

After exchanging catch-up conversation, she told me that she's now palliative. She was walloped by ovarian cancer less than a year ago.

I offered her suggestions of free medical services and help to make things more comfortable. It was great to see her up walking around and told her so.

 

I told her that for me, Coconut water was helpful for giving me some energy when I felt bad. Did she want a sip to see how it is for her? 

She told me that she won't be able to taste a morsel of food again or a taste of anything for the rest of her life because of the way the cancer has travelled and what has happened since the recent surgeries she's had.  This woman was so extraordinary with food. It was a big part of her life.

This woman was a caterer for toronto rock shows. 

If you think of your favourite concerts from the 80's, it was likely this woman made delicious food to nourish the musicians backstage.

It made me reflect on how very lucky I am to have the concerns that I have.

 

I will think of this woman and to honour her, I will enjoy everything in my world, just a little bit more robustly. I hope you do too. 

We all have our challenges. She was talking about someone she knows that is in worse shape that she was in.

 

I send you love.

 

 

I am off to a restaurant to order a chicken and an egg to see which will come first.

Happy Easter.

 

 

Erella Ganon

 

 

blog: www.erella.net

web: www.erella.com

 

 

 

 

 

 

 

 

 

 

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Erella Ganon

blog: www.erella.net

web: www.erella.com