Re: 2 new messages in 1 topic - digest

[Efstathia G]

Joy I can see how you are feeling b/c I my self felt that way in 2000 before i went for my surgery. I was at the breaking point of no return wanting out and felt surgery was going to be the light at my end of the tunnel when my Dr actually mentioned it. 2002 I eneded up having my surgery and now this 4th of July will be my 2 yr aniv. of being sz free. See it still took some med adjustments/ and relaxation on my part to control my sz as well as the surgery....I know we were talking about VNS in this topic but i felt this fit in here.

Effie

 

On 3/15/06, Epilepsy group <nor...@googlegroups.com> wrote:

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Today's topics:

* FROM EPILEPSY: Re: Vagus Nerve Stimulator - 2 messages, 1 author
http://groups.google.com/group/Epilepsy/browse_thread/thread/def66de9c6a35bfc

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TOPIC: FROM EPILEPSY: Re: Vagus Nerve Stimulator
http://groups.google.com/group/Epilepsy/browse_thread/thread/def66de9c6a35bfc
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== 1 of 2 ==
Date: Tues 14 Mar 2006 11:25
From: "Joy Gangadharan"


Hi craig,
Thanks for sharing the info and I guess it's worth a try if my neurologist gives the nod. Very often due to the changes in drugs, the side effects shows off distinctly. The difficult part is to explain to the neurologist about the side effects, for they seldom understand what the patient undergoes as it is all related to the brain. Seizures vary and so do the side-effects depending on the patients body chemistry. There were times when I experienced suicidal tendencies. Speech was hampered to a great extent and I could not even sign a cheque leaf. I gradually lost total control over my movements and used to fall whenever I climbed stairs. Weight gain of 16 kgs in 8 months was disturbing. Iwish I could sue the docs here in Bombay, India. The docs get away easily due to lack of strict laws yet to be imposed on the medical fraternity. U gotta
be lucky to get a doctor with ethics here in Bombay. All indian docs are very well qualified and have enough experience in UK and US during their post graduation there. But on returning to India, its the moolah that counts. They can easily earn much more than what they earn anywhere abroad. And a city like Bombay is where they go for the kill. But all these drawbacks is applicable to majority of the upcoming docs. Those grand old professionals with ethics still exist.
I'll definitely go 4 the VNS as I do not want my 2 month old baby to grow up watching his dad in a helpless situation. My wife dread those moments and have put on a brave front. I've been suffering from this dreaded disease for past 20 yrs since age 13.
Thanx once again.
Due regards..............joy





== 2 of 2 ==
Date: Tues 14 Mar 2006 11:35
From: "Joy Gangadharan"


My doctor has advised me against any operation due to multiple injuries which means high risk. Moreover with regards to my wife and a 2 month old baby, going for an operation could demand highly skilled professionals who seem confident enough. I have always been brave enough to go forward with an operation if that could cure me of this dreaded disease.
Thx for the info shared
due regards .............
--joy





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