When The Light We Couldn 39;t See Anything

[Cecelia Seiner]

Idon't know where else to go, and was hoping someone could please help me. I'll start off by saying I'm a 23 year old Caucasian female. Going on 5 months now, I have had absolutely debilitating symptoms which have hindered my daily life. I feel these symptoms every moment of every day.

It started with dizziness and a persistent brain fog. I just thought I had a bug, and tried to go on about my life. However, my symptoms have never gone away. This "brain fog" I am talking about is a feeling of complete mental confusion, I have no memory, I cannot concentrate on anything, it feels like there's a dark blanket on my brain clouding all my thoughts. I have extreme disorientation and haziness. I feel like I'm always in a dream like state.

I am constantly dizzy and feel a pulling sensation, as if I'm ready to fall over at any moment. It feels like there's air inside my head, and I'm always very lightheaded. Whenever I try to drive I feel this pulling sensation pulling me down.

Another problem I have is with my vision. I am having very blurred vision and have double vision. Everytime I look at something up close it is extremely blurry and I cannot see at all. My perception on things has completely changed. I feel like everything looks very odd and strange and I don't have the right depth perception. It's like I'm in a horrible dream like state all the time.

I have been having headaches and head pressure as well, and having horrible pains behind my eyes. The pin starts from the back of my head close to my neck and continues up my head and the sides of my temples. My eyes hurt so bad, and it feels like knives are jabbing my eyes. My head also feels extremely heavy all the time.

All these symptoms have been causing me severe anxiety, and I have been having panic attacks from them and feel like I'm dying. It is causing a strange disrespity sensation, where I feel like I'm not even here anymore and there's a detachment from myself and my body. I have had to drop all my classes at college and quit my job because these symptoms make me lay in bed all day long. I have been unable to drive for months and can barely get up to walk around. If anyone could please help me or know anything as a suggestion to try.

I have been to my general doctor, 2 ENTs, 1 neurologist, have had 2 MRIs, a hearing test, VNG, multiple blood tests, and no one knows what is wrong. I can't live like this anymore. Any help is greatly appreciated.

I am currently not taking anything because every doctor has told me a different possible diagnosis, and refers me to someone else. So no one will prescribe me any medication. Is there any medication you take? How long have you had these symptoms? I went to the ER a few times and they gave me a 10 day prescription for meclazine but it didn't help at all.

Hi everybody I'm Sherry I also suffer from extreme dizziness headaches child pain exedra I've had this 24/7 for 8 years now and the only thing that has helped the dizziness is Valium it has really been a godsend for me and I also noticed sometimes when I have a bad dizzy spell that is like I can hear the wind blowing through my ears and my ears feel stopped up I feel weird I can't describe it

If you have been exposed to aspergillus or stachobotrus black mold, they can cause an allergic reaction that can lead to chronic inflammatory response syndrome. The inflammation will cause the intraocular pressure in your eyes to go up, which will lead to photosensitivity, blurred vision or double vision. If the intraocular pressure is high, then at night you won't be able to close your eyes all the way, which will lead to the cornea of the eye becoming dry. You will wake up feeling like someone has thrown sand in your eyes. You then need to replenish the moisture in your eyes. It can also cause the intracranial pressure to elevate. This will restrict the brain from absorbing the necessary nutrients needed to function. The brain uses cerebrospinal fluid. With the inflammation, what the brain doesn't use can't be reabsorbed. This will lead to an elevation of intracranial pressure. I understand what you are going through. My doctor continues to tell me that it is just allergies. Internal inflammation will hinder the kidneys from filtering properly, which will allow your creatinine level to elevate. It can also hinder the liver from properly filtering. I hope that each one of you can get your health back on the right track!

I hope this can help someone out there. I know when I was suffering, there were so many people on these forums that felt hopeless, and so did I. If anyone has any questions for me about this, I am more than happy to help. Between the chiropractor and craniosacral therapy, these are methods that are not generally even mentioned by a regular doctor. Please please please give it a try, I am confident that many of you can really benefit from this.

Did you do anything specifically when your symptoms started? Mine all started after an antibiotic I took in February 2017. I have had neck/back issues for many years though too. Did you ever have any dizziness/disorientation? I have had all your symptoms but also lots of lightheaded/unsteady issues, as well.

The day before my symptoms started, I had driven a fairly long distance to meet with friends, where we bar-hopped for a good portion of the day. This is not something I normally do, and while I will have a drink here and there, I don't ever drink all day. In addition, I have always dealt with hypoglycemia, so when I do have a drink, I make sure it is low in sugar (which I did not do that day). I initially thought what I was experiencing was a hangover, but it just never went away. So originally I was going in with the thought that it was somehow related to my adrenals, but now I'm wondering since I've responded well to the chiro and cranio therapies if it had to do with the long car ride. I am short, and the head rest always pushes my head forward into an awkward position. A couple other factors that I now think contributed: I have always been a stomach sleeper, which now I know is terrible, and I slept with TWO pillows. Also, I suffered a concussion last summer. My theory is that my neck was very messed up and maybe the car ride just pushed me over the edge. The "reverse curve" that I have is essentially a straight neck that is just slightly curved in the opposite direction from which it should be.

For the craniosacral therapy, I saw a massage therapist. I will say, the first day my symptoms felt worse, like I was spacey beyond belief. But it was the next day that I noticed I was markedly better. I felt great for about a week, and then the pressure set back in a little bit, so I went in for a subsequent treatment. The therapist told me that this would probably be the case, as the bones she realigns want to navigate back to the position they were used to.

I have dealt with lightheadedness my whole life, most likely from the hypoglycemia, but I haven't noticed it getting any worse since I have been having the other symptoms. It is just the spaciness, which I feel like causes some disorientation especially when I'm driving. I had noticed that the pressure and spaciness were the worst for me when I was either driving, conversing with someone, or trying to solve some kind of problem. Basically whenever I had to focus.

I just had another CS treatment today! As before, my symptoms feel a little worse today, but I am counting on them to feel better tomorrow. I will let you know The therapist I see specializes in massage and "wellness", and she has a separate certification for this.

One thing I wanted to mention to you that I saw on another forum a couple months back: There was a person posting that described all the same exact symptoms I was having and suffered for several years. He tried everything, but nothing worked until he went to the headache clinic at the University of Michigan. He had a nerve in his neck that they needed to "kill" because it by itself was causing all of his problems. Once he had that done, he felt completely better. I'm wondering if I found relief from the chiropractor because my nerve was simply getting pinched, but maybe yours has had more severe damage? I'm not sure what kind of doctor you would see about this (a neurologist maybe?), but from everything you said, it sounds like that might be the answer!

I am so sorry you are going through this, it is so frustrating and makes it so hard to live life. I had my ears checked and everything came back fine. From my experience, my suggestion would be to see a chiropractor or an osteopath and see if it may be some type of pinched nerve. While I am not 100% yet, I have seen much improvement since going, so I'm convinced this is the problem. The problem is, almost no regular doctor will tell you this or to go see a chiropractor. The only other thing I've seen that I have not investigated is a possible virus that I can't shake. But I have had every test possible and everything comes back normal. I hope this helps a little, best of luck to you and don't give up! The biggest lesson I've learned in all of this is that you have to be your own advocate, do your own research, and keep digging

Hi Bonnie, sounds like I am in the same boat as you. I am dizzy, brain fog, disorientated. I have seen ENT, Neuro, and a Chiro. With no luck at this point. When I seen my Chiro he told my vertabrae 1 never fused together also my neck is not curved it is straight as well. I only did 2 adjustments with him as I didn't want to make matters worse.

Well after dopplar ultrasound on my veins, a 72 hour EEG and a 30 minute EEG they still have not found anything that could be the cause of my dizziness... Neurologist did suggest a low dose (10mg) of Amitriptyline to help with migraines. However the whole point of this started when my ENT suggested I see a neuro doc for vestibular migraines. That she thought I was having dizziness from a vestibular migraine even though I was not having paid with these migraines.

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