Restricted Data Files

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Sebastian Karcher

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May 9, 2017, 2:33:27 PM5/9/17
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I have two questions on restricted files in Dataverse:
1. I understand correctly that they are _not_ encrypted on the server, right?
2. We're planning to use just the built-in access restrictions for low-risk, de-identified data with a small but non-zero chance of re-identification. Has anyone ever done this and produced language for an IRB/ethics committee they'd be willing to share?

Thanks!
Sebastian

danny...@g.harvard.edu

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May 9, 2017, 5:04:27 PM5/9/17
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Hey Sebastian,

The files are currently not encrypted on the server. This will be a requirement for work later this year towards the support of sensitive data. 

We have a sample DUA here:


Other folks from the community may have thoughts as well.

Cheers,

Danny

Eugene Barsky

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May 10, 2017, 12:14:51 PM5/10/17
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We have been using our Abacus Dataverse with the purpose you describe, Sebastian, for quite a while.

Here is one appropriate study - http://hdl.handle.net/11272/10432

We ask researchers to work with us on a specific language for REB. Here is the blurb for that study:

Secondary use of this data must be approved by an ethics committee/ institutional review board, to comply with our university ethics committee and Canadian tri-council guidelines.
Data is available in several formats, including csv and SPSS (version 23). Please contact XXXXX at XXXXX  or XXXXX  at XXXXX  if you would like access to the data. For your information, the original ethics application number at the University of British Columbia was H12-02418. 

Does it help? 

Eugene

Sebastian Karcher

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May 10, 2017, 12:21:32 PM5/10/17
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Thank you both, this is very helpful. I was particularly also looking for language describing how the files are protected within Dataverse to give the depositor's IRB -- something like SSL during transmission and password protected, but ideally more formal.

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Sebastian Karcher

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May 12, 2017, 11:32:49 AM5/12/17
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One follow-up, if I may: Does Dataverse log file downloads by authenticated users? I.e. would I be able to track who downloaded a (restricted) file and when?
If not, is that planned for 5.0?
Thanks again,
Sebastian

On Wed, May 10, 2017 at 12:21 PM, Sebastian Karcher <kar...@u.northwestern.edu> wrote:
Thank you both, this is very helpful. I was particularly also looking for language describing how the files are protected within Dataverse to give the depositor's IRB -- something like SSL during transmission and password protected, but ideally more formal.
On Wed, May 10, 2017 at 12:14 PM, Eugene Barsky <eugene...@gmail.com> wrote:
We have been using our Abacus Dataverse with the purpose you describe, Sebastian, for quite a while.

Here is one appropriate study - http://hdl.handle.net/11272/10432

We ask researchers to work with us on a specific language for REB. Here is the blurb for that study:

Secondary use of this data must be approved by an ethics committee/ institutional review board, to comply with our university ethics committee and Canadian tri-council guidelines.
Data is available in several formats, including csv and SPSS (version 23). Please contact XXXXX at XXXXX  or XXXXX  at XXXXX  if you would like access to the data. For your information, the original ethics application number at the University of British Columbia was H12-02418. 

Does it help? 

Eugene


 

On Tuesday, 9 May 2017 11:33:27 UTC-7, Sebastian Karcher wrote:
I have two questions on restricted files in Dataverse:
1. I understand correctly that they are _not_ encrypted on the server, right?
2. We're planning to use just the built-in access restrictions for low-risk, de-identified data with a small but non-zero chance of re-identification. Has anyone ever done this and produced language for an IRB/ethics committee they'd be willing to share?

Thanks!
Sebastian

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Kraffmiller, Stephen E

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May 12, 2017, 11:38:37 AM5/12/17
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Hi Sebastian,

Dataverse does log file downloads by authenticated users that are done via the interface.  Administrators have the option of setting up a custom guestbook with which to ask for additional information at the time of the download. If there is no custom guestbook, basic download data (user, file. time of download) are collected by default.

Steve


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Sebastian Karcher

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May 12, 2017, 11:40:04 AM5/12/17
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That's great, thanks Stephen.

On Fri, May 12, 2017 at 11:38 AM, Kraffmiller, Stephen E <skraff...@hmdc.harvard.edu> wrote:
Hi Sebastian,

Dataverse does log file downloads by authenticated users that are done via the interface.  Administrators have the option of setting up a custom guestbook with which to ask for additional information at the time of the download. If there is no custom guestbook, basic download data (user, file. time of download) are collected by default.

Steve

On May 12, 2017, at 11:32 AM, Sebastian Karcher <kar...@u.northwestern.edu> wrote:

One follow-up, if I may: Does Dataverse log file downloads by authenticated users? I.e. would I be able to track who downloaded a (restricted) file and when?
If not, is that planned for 5.0?
Thanks again,
Sebastian
On Wed, May 10, 2017 at 12:21 PM, Sebastian Karcher <karcher@u.northwestern.edu> wrote:
Thank you both, this is very helpful. I was particularly also looking for language describing how the files are protected within Dataverse to give the depositor's IRB -- something like SSL during transmission and password protected, but ideally more formal. 
On Wed, May 10, 2017 at 12:14 PM, Eugene Barsky <eugene.barsky@gmail.com> wrote:
We have been using our Abacus Dataverse with the purpose you describe, Sebastian, for quite a while.

Here is one appropriate study - http://hdl.handle.net/11272/10432

We ask researchers to work with us on a specific language for REB. Here is the blurb for that study:

Secondary use of this data must be approved by an ethics committee/ institutional review board, to comply with our university ethics committee and Canadian tri-council guidelines.
Data is available in several formats, including csv and SPSS (version 23). Please contact XXXXX at XXXXX  or XXXXX  at XXXXX  if you would like access to the data. For your information, the original ethics application number at the University of British Columbia was H12-02418.  

Does it help? 

Eugene


 

On Tuesday, 9 May 2017 11:33:27 UTC-7, Sebastian Karcher wrote:
I have two questions on restricted files in Dataverse:
1. I understand correctly that they are _not_ encrypted on the server, right?
2. We're planning to use just the built-in access restrictions for low-risk, de-identified data with a small but non-zero chance of re-identification. Has anyone ever done this and produced language for an IRB/ethics committee they'd be willing to share?

Thanks!
Sebastian

-- 
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-- 
Sebastian Karcher, PhD
www.sebastiankarcher.com



-- 
Sebastian Karcher, PhD
www.sebastiankarcher.com

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Steven McEachern

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May 14, 2017, 9:04:22 PM5/14/17
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Hi Sebastian,

I would note here that the custom guestbook cannot currently be used with Restricted Access datasets (which is ADA's interest as well).
The Harvard and ADA teams are meeting this week to look at how we can develop this capability.

Regards,
Steve


On Saturday, May 13, 2017 at 1:40:04 AM UTC+10, Sebastian Karcher wrote:
That's great, thanks Stephen.
On Fri, May 12, 2017 at 11:38 AM, Kraffmiller, Stephen E <skraff...@hmdc.harvard.edu> wrote:
Hi Sebastian,

Dataverse does log file downloads by authenticated users that are done via the interface.  Administrators have the option of setting up a custom guestbook with which to ask for additional information at the time of the download. If there is no custom guestbook, basic download data (user, file. time of download) are collected by default.

Steve

On May 12, 2017, at 11:32 AM, Sebastian Karcher <kar...@u.northwestern.edu> wrote:

One follow-up, if I may: Does Dataverse log file downloads by authenticated users? I.e. would I be able to track who downloaded a (restricted) file and when?
If not, is that planned for 5.0?
Thanks again,
Sebastian
On Wed, May 10, 2017 at 12:21 PM, Sebastian Karcher <kar...@u.northwestern.edu> wrote:
Thank you both, this is very helpful. I was particularly also looking for language describing how the files are protected within Dataverse to give the depositor's IRB -- something like SSL during transmission and password protected, but ideally more formal. 
On Wed, May 10, 2017 at 12:14 PM, Eugene Barsky <eugene...@gmail.com> wrote:
We have been using our Abacus Dataverse with the purpose you describe, Sebastian, for quite a while.

Here is one appropriate study - http://hdl.handle.net/11272/10432

We ask researchers to work with us on a specific language for REB. Here is the blurb for that study:

Secondary use of this data must be approved by an ethics committee/ institutional review board, to comply with our university ethics committee and Canadian tri-council guidelines.
Data is available in several formats, including csv and SPSS (version 23). Please contact XXXXX at XXXXX  or XXXXX  at XXXXX  if you would like access to the data. For your information, the original ethics application number at the University of British Columbia was H12-02418.  

Does it help? 

Eugene


 

On Tuesday, 9 May 2017 11:33:27 UTC-7, Sebastian Karcher wrote:
I have two questions on restricted files in Dataverse:
1. I understand correctly that they are _not_ encrypted on the server, right?
2. We're planning to use just the built-in access restrictions for low-risk, de-identified data with a small but non-zero chance of re-identification. Has anyone ever done this and produced language for an IRB/ethics committee they'd be willing to share?

Thanks!
Sebastian

-- 
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-- 
Sebastian Karcher, PhD
www.sebastiankarcher.com



-- 
Sebastian Karcher, PhD
www.sebastiankarcher.com

-- 
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