BrookeEllison, a champion of the rights of people with disabilities, passed away on February 4, 2024, at the age of 45. Her legacy of resilience and advocacy for people with disabilities resonates deeply with us at the Rick Hansen Foundation (RHF).
Brooke was extraordinary. Her long list of accomplishments included author, professor, and passionate advocate. It was clear from a young age that she was a gifted student. When she was 11, her life took a dramatic turn when she was struck by a car while walking home from school. We include this here because Brooke never shied away from telling her life story.
That uncertainty quickly dissipated. Brooke returned to studies with the help of a wheelchair operated by a tongue-touch keypad and a respirator. Her mother was a constant at her side, even rooming with her daughter at Harvard University, where Brooke attended on a full scholarship after graduating high school with honours.
After graduating from Harvard magna cum lude with a Bachelor of Science degree in cognitive neuroscience in 2000, Brooke was awarded a doctorate in sociology from Stony Brook University, New York, in 2012. She then joined its faculty as an associate professor, teaching medical and science ethics and health policy.
At Stony Brook University, she created the Vertically Integrated Projects course (VIP), which brings students from various interdisciplinary fields together to work on solutions to advance accessibility and disability inclusion. RHF funded the VIP program for the 2023-24 academic year with Director of Technical and Program content for the RHF Accessibility Certification Program, Kevin Ng, working with Brooke to develop course objectives and deliverables.
The VIP program equips students with a fundamental understanding of accessibility. The course covered the history of accessibility in relation to human rights and understanding the impetus behind the Americans with Disabilities Act (ADA) and what this landmark civil rights legislation did for disability inclusion for people in the country.
It also showed students the persisting gaps that exist in the accessibility landscape. It introduced the concept of access being a matter of disability inclusion and opportunity rather than from a strictly compliance (and punitive) perspective. As part of teachings around Universal Design, students learned how to use RHFAC, a rating system that measures and certifies the level of meaningful access of sites.
Brooke and her students even enrolled in the online RHFAC Training course taught by Kristen Habermehl at Nova Scotia Community College last November. Brooke passed the course and had been working toward her RHFAC Professional designation with plans to teach the course in the States.
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