Hi Everybody,
First of all, i wish i would never want to write this group like everyone else.
I wish everybody healthy and happy life from now on.
I was diagnosed with CRVO on Jan 2023.
I am a software engineer and was having a certificate exam at 06:00-08:00 on Saturday 21.
Towards to the end of exam, i left grey area on my left eye and though i got effected by hypertension or something like that. It was like you feel after looking at to the light and you feel not good to see.
Later on the day, in the centre of my vision, that foggy view never ended and went to the doctor in the afternoon. The doctor told me to make OCT to check my eye and after having done, she told me to see the retinal doctor on Monday immediately and advised me to get coraspirin.
On Monday, i went to retinal doctor and he did eye angiography and oct as well and identifed that i got CRVO. However, OCT values were better so he told me to wait for eye injection about 3 days and advised me to see a cardiologist and neurologist.
I went immediately to the doctors and had several blood tests and scans on my brain and heart as well. I am 39 and had very sport life until pandemic and had 3 times biontec vaccine. So the doctors couldn't find anything related that CRVO can occur to me. Cardiolog told me that i might have PFO. However, 1 to 4 people have already PFO in the population and advised me to use coraspirin and plavix together for 6 months. I got injection 3 days after the CRVO and my eye was quite good enough to see all the letters to check. Sure not like my right eye but that is acceptable. Now after 9 months, this is my 4th injection because of the edema increased. I also went to the hematology and nothing indeed found as genetics.
I have some questions to help people and identify the real cause:
1) I got injections almost every 100 days, how frequently are you getting?
2) My doctor told me after a year, it might be stabilised, has anybody stabilised state?
3) Are you using coraspirin or plavix which i really don't want to use. Doctors are giving this because they dont know the reason. However, homocysteine was like 15.7 little bit higher than 15 and told that might not be enough to block veins. On the other hand, i see some doctor advices that should be around 6-8, don't know the units.
4) I really don't have anything about my heart and my heart doctor told me even i can climb to everest. Has anybody having troubles doing sport?
My advice for myself and you is to move frequently, do sports, eat healthy and drink really less. I am not a frequent drinker but will really considering stopping drinking at all.
Thank you very much for this group. If possible i really like to have a statistics about patients to find out the common reasons.
Thanks everybody and have a healthy and enjoyable life!
P.S: I am from Turkiye and not a native english speaker, so sorry for the typos and mistakes.