E-Palli Limited Liability Company (LLC) is registered in Delaware, United States of America, provides publication solutions for journals, conference proceedings, books, and special issues. E-palli publishes articles in a number of peer-reviewed international journals that emphasize research, development, application, and innovation.
E-Palli Limited Liability Company (LLC) is registered in Delaware, United States of America, provides publication solutions for journals, conference proceedings, books, and special issues. E-Palli publishes articles in a number of open-access double-blind peer-reviewed international journals that emphasize research, development, application, and innovation on the different disciplines.
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Background: There is a need for a specific tool that supports healthcare professionals in timely identifying people with intellectual disabilities (ID) in need of palliative care. Therefore, we developed PALLI: a tool for screening deteriorating health, indicative of a limited life expectancy.
Methods: 190 people with ID likely to be in need of palliative care were included. Physicians and daily care professionals (DCPs) completed PALLI and provided information on health outcomes at baseline, after 5-6 months and after 10-12 months. Linear Mixed Models and Generalized Linear Mixed Models were used to test validity.
Results: Feasibility was adequate: physicians and DCPs were able to answer most items with 'yes' or 'no' and within a short amount of time. Construct validity was promising: a higher PALLI score at baseline was related to a higher level of decline in health, a higher symptom burden, a lower quality of life and more ADL-dependency at baseline. Predictive validity: only a higher physician-reported PALLI score at baseline significantly increased risk of death within 12 months.
Every winter season the elderly in the family would get nostalgic about the Palli and dodoh (patted jowar/riceflour/bajra roti) but I never got a chance to cook or taste palli considering that the greens are available only for a short period of time, when in season and I somehow never came across a bunch of it in the local markets. Maybe I never paid enough attention or maybe I had my eyes only on regular ones like Spinach, Fenugreek, Coriander leaves, Mint, Amaranth etc, ignoring gems like Bhathua, Palli, Purslane and more, as I never had good recipes to cook with such leafy greens.
I am now more drawn towards lesser known local seasonal vegetables and leafy greens as I am able to lay my hands on plenty of recipes and can chew the brains of many virtual friends and some eminent bloggers to guide me about using ingredients that I am not familiar with.
The best thing about creating a food group on Fb is that you not only feel motivated to cook elaborate festive meals on festivals or special occasions, but also get a push to cook seasonal food when you see everyone sharing the same. So when it is a Mango season, you feel tempted to take out those glass barnis and make some khatti bheendi, or Ambryun ji khatairn following the herd. Or when Thadri festival approaches, all the discussions about Lola, dhaiwada etc. motivate you to push your limits and cook every possible traditional dish suited for the occasion. Celebrating Chetichand with Tayri/Tayri becomes mandatory when everyone in the virtual group is making it. It is very difficult to resist the temptation of cooking something that you crave for, when you see others sharing the pictures of it. Yes, the pros and cons of virtual world are unfathomable!
I will be sharing some recipes that I learnt from fellow group members and I hope you will find those helpful and if you have some Sindhi food recipes that are not available on this blog, please do share with me and I will make sure to recreate and share the same, on this blog, of course with due credits to you!
And we came back with loads of Swanjhro or Suhanjre ja Gulah and Palli leaves.
Asked few friends from across the border and also read recipes shared by some members in the Sindhi Rasoi Fb group and finally cooked the greens that are very popular in Sindh but less popular in Sindhi families on this side of the border. And when I finally savored the combination I could understand why our grandparents often craved for this.