Help with a science project

[Crystal]

My daughter, an 8th grader who has Celiac disease herself, is doing her science project on the advantages of living a gluten free lifestyle.  She has composed a list of questions that she is trying to get as many people to answer as she can.  Please take a moment and complete the following questions for her.  Thanks so much for your assistance!

 

1. What was the purpose of going on the gluten-free diet?

2. How long after going on the diet did you see results?

3. If you saw results,  were they negative or positive results?

4. How old is the person that went on the diet

5. Was the diet worth it?

6. What was the greatest benefit of going on the diet?

7. What was the biggest drawback of the diet?

8.  Did you try going off the diet?  If so, what changes did you see?

9. On a scale of 1-10, how big were the changes you saw?

10.  Have you see major improvements in your health?

 

[Donna Russell]

I am answering for my 15 year old son Dylan

 

1- Celiac Disease

2-really noticed big changes within a few months

3-all positive

4- diagnosed at age 10 and started GF immediately

5-YES

6- no stomach pain, no nausea, no migraines, no feeling bad all the time

7- getting used to others not knowing about Celiac and having to explain why you can't eat the cookies, pizza, etc.

8- never been tempted to go off GF diet- not worth the pain

9-   10

10- yes - started gaining weight, feeling better overall

---

From: celi...@googlegroups.com [mailto:celi...@googlegroups.com] On Behalf Of Crystal
Sent: Tuesday, February 05, 2013 10:50 AM
To: celi...@googlegroups.com
Subject: [Celi-Act] Help with a science project

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[Wendy Hicks]

I am answering for my son and myself.

Response for my son

1. What was the purpose of going on the gluten-free diet?  diagnosed with Celiac disease

2. How long after going on the diet did you see results?  he was in Vanderbilt Children's Hospital, was 18 months old and had an NJ tube. When his formula was changed we saw a difference in less than 2 HOURS!  He was released from the hospital approximately 8 hours after his formula was changed to GF.

3. If you saw results,  were they negative or positive results? Life altering positive results

4. How old is the person that went on the diet  18 months old

5. Was the diet worth it?  YES

6. What was the greatest benefit of going on the diet?  He lived!  The hospital staff had prepared us for his passing.  His biopsy result was "total villa atrophy".  We were unsure how well he would heal or develop.

7. What was the biggest drawback of the diet?  That was February 2006. There weren't many "kid friendly" options then.

8.  Did you try going off the diet?  If so, what changes did you see?  NO

9. On a scale of 1-10, how big were the changes you saw?  10 being the best - we saw a difference of 10.

10.  Have you see major improvements in your health?  He is now a healthy, happy eight year old boy (almost nine), who is very successful at school and sports.

Response for myself

1. What was the purpose of going on the gluten-free diet?  diagnosed with Celiac disease

2. How long after going on the diet did you see results?  within days

3. If you saw results,  were they negative or positive results?  positive

4. How old is the person that went on the diet  36

5. Was the diet worth it?  yes

6. What was the greatest benefit of going on the diet?  overall improvement in health

7. What was the biggest drawback of the diet?  The biggest drawback was and still is eating socially (Sunday school lunches, lunch meetings, meals with extended family, dinner out with friends)

8.  Did you try going off the diet?  If so, what changes did you see?  Yes, very negative changes with digestion, confusion, aches, pains, etc.

9. On a scale of 1-10, how big were the changes you saw?  8

10.  Have you see major improvements in your health?  yes

 

 

[Angie]

1. To improve the health of my son who was 7 months at the time

2. He improved within 3 days

3. They were positive. He stopped crying and diarrhea stopped

4. He is 5 now

5. Absolutely, iI believe it saved his life

6. He became a happy child
7. Fitting in socially, and cost

8. When he turned 1, i put him back on gluten. 5 weeks later the diahreea started and his liver started shutting down

9. 10 they were becoming life threatening

10. Yes, besides what i just said he also does not get sick as often

ent from my Samsung Epic™ 4G

[Shana Margrave]

Hi Crystal, See answers below by questions.  Tell your daughter good luck on her science project.  Hope this helps. Shana Margrave Will be 45 in April and have been on the diet for 13 years this coming July. --- On Tue, 2/5/13, Crystal <cmnor...@hotmail.com> wrote:

From: Crystal <cmnor...@hotmail.com> Subject: [Celi-Act] Help with a science project

To: celi...@googlegroups.com Date: Tuesday, February 5, 2013, 9:50 AM

My daughter, an 8th grader who has Celiac disease herself, is doing her science project on the advantages of living a gluten free lifestyle.  She has composed a list of questions that she is trying to get as many people to answer as she can.  Please take a moment and complete the following questions for her.  Thanks so much for your assistance!

1. What was the purpose of going on the gluten-free diet?  I was originally diagnosed as having a food allergy to wheat, barley, rye and oats.  The allergist did not send me to be scoped but recommended that I stay away from these. 2. How long after going on the diet did you see results?  6 months or so.  I felt worse before I felt better. 3. If you saw results,  were they negative or positive results?  Positive; felt like I was going to live. 4. How old is the person that went on the diet  32 years old 5. Was the diet worth it?  Yes 6. What was the greatest benefit of going on the diet?  Opened up a whole new world of foods that I didn't know existed. 7. What was the biggest drawback of the diet?  There were 2:  1.  Having to bake everything for myself and 2.  the misunderstanding of family and friends, especially those who know how to cook and use flour in their cooking on a regular basis. 8.  Did you try going off the diet?  If so, what changes did you see?  I haven't really tried going off of the diet, but have unknowingly fallen off of it a couple of times.  The changes I've seen are a foggy headache that lasts for days, and my hives and eczema come back.  Usually I feel better after a couple of days and try to be more wiser in my choices.

9. On a scale of 1-10, how big were the changes you saw?  10

10.  Have you see major improvements in your health?  Yes.  My main problems before going gluten free were breaking out in hives for no real reason, could not get pregnant (had a partial hysterectomy when I was 29), and had lots of cavities as a kid.  The minor problems I had included headaches, nausea, dizziness, some diarrhea and constipation.  I'm sure I'm forgetting more minor problems that I had over the years.  I think my personality changed for the better also.

[STANLEY'S AUTO REPAIR]

From: Crystal

Sent: Tuesday, February 05, 2013 10:50 AM

To: celi...@googlegroups.com

Subject: [Celi-Act] Help with a science project

My daughter, an 8th grader who has Celiac disease herself, is doing her science project on the advantages of living a gluten free lifestyle.  She has composed a list of questions that she is trying to get as many people to answer as she can.  Please take a moment and complete the following questions for her.  Thanks so much for your assistance!

 

1. What was the purpose of going on the gluten-free diet? I had severe stomach issues and had seen an allergy doctor and found out I had a dairy and corn allergy.  I did a 2 week elimination test that still didn't fix all my concerns.  I had about given up.  My son had an appointment with the gastro Dr and found out he had celiac.  I thought, hmm... maybe that is what wrong with me (my problems first started when I was pregnant with him) after eliminating gluten and the other allergies I was almost better. 

2. How long after going on the diet did you see results? It took my son about 2 weeks, it took me about 6 weeks to be completely symptom free

3. If you saw results,  were they negative or positive results? positive

4. How old is the person that went on the diet My son went on the diet when he was 4, I was 30

5. Was the diet worth it? completely worth it!

6. What was the greatest benefit of going on the diet?I have energy, I am not sick every day, I have normal bowel movements

7. What was the biggest drawback of the diet? Not eating gluten and getting my family to understand the importance of the gluten free diet

8.  Did you try going off the diet?  If so, what changes did you see? Yes, stomach issues became just as bad as before, muscles would lock up, headaches, dizziness, fatigue

9. On a scale of 1-10, how big were the changes you saw?10

10.  Have you see major improvements in your health?yes, I had been told I could be diagnosed with Fibromyalga if I wanted my Doctor to diagnose me with it (I refused to be diagnosed with something that can't be improved).  My son was finally potty trained 3 months after going on the diet (he has some growth delays and is behind but, with the celiac he couldn't control his bowel movements and therefore didn't try to potty train) Pretty much... I went from not hardly functioning as a human to being fully functional again.

 

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[Tresa Childs]

Good luck with your Science Project!  Thank you for using this opportunity to educate others about gluten and gluten intolerance.
1.  diagnosis of Celiac
2. 3 days
3. very positive
4. 42
5.  absolutely!
6. felt completely normal for the first time in almost 20 yrs! (no more migraines, no more muscle/joint/bone aches and pains, no more g.i. issues, no more 'fog' (improved concentration, ability to process information - receptively and expressively), no more fatigue, no more low blood sugar, much more nutritious diet)
7.   figuring out what was and was not gluten free; finding gf products that were tolerable and not too expensive (mostly just ate easy to digest proteins, fruits and vegetables)
8.  not on purpose.  When I've accidentally gotten gluten, I have gotten very 'foggy' - great difficulty holding onto information and responding to ppl,experienced significant fatigue, stomach upset
9. 10
10. Absolutely!!

 

--

[Janet Michel]

1. What was the purpose of going on the gluten-free diet?

To see whether it would diminish my migraine headaches.  About a month after being on the diet, I was test by the GI doctor and celiac was confirmed through genetic testing and confirmation of symptoms.

2. How long after going on the diet did you see results?

A few months.

3. If you saw results, were they negative or positive results?

positive

4. How old is the person that went on the diet

60

5. Was the diet worth it?

yes

6. What was the greatest benefit of going on the diet?

No more trips to the ER for out-of-control migraines and also the headaches are GONE!! I had them since I was 20!

7. What was the biggest drawback of the diet?

Difficulty going on vacation and eating out. Accidentally being served food with gluten in it and becoming VERY SICK and losing days of vacation. And, every meal out becomes an unwanted ritual of educating and dealing with the servers, etc about what I can and cannot eat.  There are gluten-like proteins in traditionally classified gluten-free foods, including rice, corn, oats, etc. Many who have problems with wheat gluten also have problems with these foods too. I am grain free, except for small portions and infrequent portions of 100% buckwheat and quinoa.

8. Did you try going off the diet? If so, what changes did you see?
9. On a scale of 1-10, how big were the changes you saw?

10

10. Have you see major improvements in your health?

No other changes, but I have MANY other health issues -- some of which (I believe) are the result of having undiagnosed celiac for so long.  Bacterial overgrowth, rapid transit of food, poor absorption of nutrients, candida overgrowth in gut and more.

[dcanter...@aol.com]

dcanter...@aol.com

-----Original Message-----
From: Crystal <cmnor...@hotmail.com>
To: celi-act <celi...@googlegroups.com>
Sent: Tue, Feb 5, 2013 10:50 am
Subject: [Celi-Act] Help with a science project

My daughter, an 8th grader who has Celiac disease herself, is doing her science project on the advantages of living a gluten free lifestyle.  She has composed a list of questions that she is trying to get as many people to answer as she can.  Please take a moment and complete the following questions for her.  Thanks so much for your assistance!

 

1. What was the purpose of going on the gluten-free diet? To get rid of the constant digestive problems.

2. How long after going on the diet did you see results?  One week.

3. If you saw results,  were they negative or positive results? Positive.

4. How old is the person that went on the diet  76

5. Was the diet worth it? Definitely.

6. What was the greatest benefit of going on the diet?  It stopped the noisy stomach and the pain.

7. What was the biggest drawback of the diet?  I miss some of the cakes, pies and sweets that were so easy to obtain.

8.  Did you try going off the diet?  If so, what changes did you see?  No.

9. On a scale of 1-10, how big were the changes you saw?    10

10.  Have you see major improvements in your health?  Yes

[Karlyn Simcox]

1. What was the purpose of going on the gluten-free diet? I was diagnosed with Celiac.
2. How long after going on the diet did you see results? About two weeks later.
3. If you saw results, were they negative or positive results? Positive
4. How old is the person that went on the diet I was diagnosed at age 11. I am now 12.
5. Was the diet worth it? It has its drawbacks, but overall yes.
6. What was the greatest benefit of going on the diet? I didn't have to stop eating my food after a few bites, and I could enjoy eating again.
7. What was the biggest drawback of the diet? Not being able to fit in and eat junk food like a normal kid. I constantly have to tell my friends I can't accept any of the food they are offering. Another thing is that some restaurants claim to have GF food but it is just awful, and I end up getting very frustrated.
8. Did you try going off the diet? If so, what changes did you see? I once ate a hot dog with a bun a month after being diagnosed. The result was an awful stomach ache much worse than any others I had gotten.

9. On a scale of 1-10, how big were the changes you saw? 10

10. Have you see major improvements in your health? Yes! I am not unhealthy looking stick I was a year ago!

Karlyn Simcox
Sent from my iPad

[B.N.A.]

1. What was the purpose of going on the gluten-free diet?

Diagnosed with celiacs

2. How long after going on the diet did you see results?

UTI's and kidney issues went away immediately. Other results took
several months (abdominal distress) to a year (mood stabilized and
better concentration)

3. If you saw results, were they negative or positive results?

all positive

4. How old is the person that went on the diet

22 when I started, 28 now

5. Was the diet worth it?

absolutely

6. What was the greatest benefit of going on the diet?

Having my life back! I was in and out of e.r.s once a month or more before.

7. What was the biggest drawback of the diet?

You have to get used to a different way of eating. Instead of finding
substitutes for bread etc, it's better to just try new foods, like
curries, that are naturally gluten free. It's also important to get
enough fiber.

8. Did you try going off the diet? If so, what changes did you see?

Accidentally, multiple times. UTI within 24 hours, fatigue, loss of
concentration, night sweats, back pain, abdominal discomfort, anxiety.

9. On a scale of 1-10, how big were the changes you saw?

10 - huge

10. Have you see major improvements in your health?

Yes.

[McCoy, Barbara E]

1. What was the purpose of going on the gluten-free diet?
Diagnosed with celiac

2. How long after going on the diet did you see results?

Few days

3. If you saw results, were they negative or positive results?
Positive

4. How old is the person that went on the diet?
10 yrs. old

5. Was the diet worth it?

Yes very much

6. What was the greatest benefit of going on the diet?

No more throwing up after eating. Gaining weight, growing and no more dark circles under eyes

7. What was the biggest drawback of the diet?

Having to eat different. Having to try new foods.

8. Did you try going off the diet? If so, what changes did you see?

Accidentally ingested wheat..immediate stomach ache, vomitting, bad headache, dark circles under eyes again.

9. On a scale of 1-10, how big were the changes you saw?

10-major difference
10. Have you seen major improvements in your health?
Yes! Actually gaining weight, growing and no dark circles under eyes. Now 11 yrs. old..4'2" and finally 60 lbs. (Over coming "failure to thrive") :)


________________________________________
From: celi...@googlegroups.com [celi...@googlegroups.com] on behalf of B.N.A. [thedancin...@gmail.com]
Sent: Tuesday, February 05, 2013 9:42 PM
To: Celi-ACT Listserv
Subject: Re: [Celi-Act] Help with a science project

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[Tresa Childs]

an addition to my previous response:
#7 What was the biggest drawback?  Being able to take communion with both the bread and the cup when offered by intinction (dipping bread into cup).  Some churches offer gf bread, but not a dedicated gf cup.

 

--

[Terry Higgins]

1. What was the purpose of going on the gluten-free diet?

 It is thought to be helpful for those on the Autism Spectrum

2. How long after going on the diet did you see results?

We saw results after about 6 weeks but the changes weren't very evident at first. 

3. If you saw results,  were they negative or positive results?

Positive. The biggest and best result was that my son, 4 years old at the time, began speaking complete sentences instead of 1 or 2 word incomplete sentences. E.g. It went from "Milk, please" to "Can I have milk, please"

4. How old is the person that went on the diet

41 (been GF since age 36)

5. Was the diet worth it?

Yes, if someone is diagnosed with Celiac, you know that you can't have Gluten, but when you learn that you have are just intolerant, you don't realize until after the fact that you shouldn't have been eating Gluten for so slow and that you have been "suffering".

6. What was the greatest benefit of going on the diet?

I would say that my overall diet has improved because I am eating less junk food. Not saying that Gluten Free is inherently healthy, but it has been easier to make my diet healthier

7. What was the biggest drawback of the diet?

Eating out. Biggest problem is finding food while traveling. However, the more experience you have, the easier it is to know which restaurants have a decent menu. It is an advantage to just be intolerant because when things do get cross-contaminated, it is easier to handle.

8.  Did you try going off the diet?  If so, what changes did you see?

No. The times that we have accidentally have had something with Gluten, our minds become foggy and we get very fatigued and cranky. Our technical term is "Gluten Zombie"

9. On a scale of 1-10, how big were the changes you saw?

10 - The totally affected our ability to function during the day

10.  Have you see major improvements in your health?

Yes, I have been overall healthier since going GF but I believe that some of the improvements are not a direct result of removing gluten from the diet because there are plenty of Gluten Free items out there with non healthy ingredients. However, there are a good number of GF items that are a much better choice than its Gluten counterpart. Also, since GF items are more expensive, it makes me try to eat less, there by controlling portion control. 

--
Cheers,
Terry

[Janet Michel]

http://www.glutenfreesociety.org/gluten-free-society-blog/is-corn-gluten-really-safe-for-those-with-gluten-sensitivity/?inf_contact_key=7cfe2db7ca8995dc28b546b4939a21bf7d021ad071f20c5307d95f77be3727ad

Is Corn Gluten Really Safe For Those With Gluten Sensitivity?
Corn Maize (Gluten) Found to Cause Harm Again�

[Lesley Swann]

I'm glad this is also coming out, as I am sensitive to both and in other countries celiacs/gluten intolerants are also pulled off corn.  If it's not corn free, it's not truly gluten free.  Sadly most of the packaged gluten free foods out there contain corn.

---

From: Janet Michel <jrmi...@tds.net>
To: celi...@googlegroups.com
Sent: Wednesday, February 6, 2013 11:41 AM
Subject: [Celi-Act] Is Corn Gluten Really Safe For Those With Gluten Sensitivity? Corn Maize (Gluten) Found to Cause Harm Again…

http://www.glutenfreesociety.org/gluten-free-society-blog/is-corn-gluten-really-safe-for-those-with-gluten-sensitivity/?inf_contact_key=7cfe2db7ca8995dc28b546b4939a21bf7d021ad071f20c5307d95f77be3727ad

Is Corn Gluten Really Safe For Those With Gluten Sensitivity?

Corn Maize (Gluten) Found to Cause Harm Again…