He had AV canal repair at 3 months which went very well, but has been on home
oxygen for the last few weeks because of hypoxia.
The cath showed pulmonary hypertension and the cardiologist has informed us
it could go "either way" but we won't know for several months.
Does anyone have a child who has been through a similar experience?
Not exactly the same :-)
Our son, Ben, had an AV and a septal defect, to such an extent that
his heart basically only had two chambers and one valve.
It took us two years on the waiting list to get an
operation, so by the time the op took place Ben was over two.
By then his heart had expanded to cover the deficiency, so much so that
his breastbone protruded over an inch
The surgeon worked for about 8 hours creating two valves out of the one
and rebuilding the walls and Ben spent several days in an oxygen tent.
Afterwards they found he still had a small septal defect and quite a bit
of spurious liquid that they managed to drain off.
However, after being flown home in one of those portable oxygen tents
the airlines have, he recovered very well.
He's had to go into hospital twice since mainly for heat-related
hypoxia, but has recovered pretty quickly.
He's now six, and has just appeared on stage for the first time in the
local school's operetta.
Frankie
Frank G. Pitt | Motif/Solaris/C++ | <fra...@mundens.equinox.gen.nz>
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