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DS baby with hypoxia

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Mp...@aol.com

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Aug 15, 1995, 3:00:00 AM8/15/95
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We have an 8 month old baby boy with DS.

He had AV canal repair at 3 months which went very well, but has been on home
oxygen for the last few weeks because of hypoxia.

The cath showed pulmonary hypertension and the cardiologist has informed us
it could go "either way" but we won't know for several months.

Does anyone have a child who has been through a similar experience?

Mp...@aol.com

JHarm...@aol.com

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Aug 16, 1995, 3:00:00 AM8/16/95
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My son had an AV canal repair at 8 months and was on oxygen for two months
after. At his six month check up he still showed pulmonary hypertension but 1
year after surgery everything looked good. He still has regular check-ups but
even the Dr.s are impressed at his recovery. Hang in there it gets easier.
Julie (mom to Nicholas-3 years and starting school in two weeks!!!)

Frank Pitt

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Aug 25, 1995, 3:00:00 AM8/25/95
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Not exactly the same :-)

Our son, Ben, had an AV and a septal defect, to such an extent that
his heart basically only had two chambers and one valve.

It took us two years on the waiting list to get an
operation, so by the time the op took place Ben was over two.

By then his heart had expanded to cover the deficiency, so much so that
his breastbone protruded over an inch

The surgeon worked for about 8 hours creating two valves out of the one
and rebuilding the walls and Ben spent several days in an oxygen tent.

Afterwards they found he still had a small septal defect and quite a bit
of spurious liquid that they managed to drain off.

However, after being flown home in one of those portable oxygen tents
the airlines have, he recovered very well.

He's had to go into hospital twice since mainly for heat-related
hypoxia, but has recovered pretty quickly.

He's now six, and has just appeared on stage for the first time in the
local school's operetta.


Frankie

Frank G. Pitt | Motif/Solaris/C++ | <fra...@mundens.equinox.gen.nz>
Christchurch | Trunked Networks | 3:770/140.0
New Zealand | Tait Electronics | (064)(03)358-0146 (Munden's Bar)

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