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2nd RFD for uk.people.support.cfs-me
Changes since 1st RFD
Change of name from *.me-cfs to *.cfs-me, to reduce confusion if
"M.E." is read as "me", the objective first person.
Revised rationale.
New newsgroup line.
Reference to "Topics not directly relevant to ME/CFS" removed as
superflous and likely to attract spam.
Section on binaries re-written.
Rationale
There is a growing awareness, in the UK and globallly, of Myalgic
Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS)
Existing groups are:
alt.health.cfids-action
alt.health.cfs
alt.med.cfs
alt.med.cfs-chat
alt.med.cfs.info
alt.med.cfs.open
bit.listserv.cfs.newsletter
The term CFIDS is not used in the UK. There is no newsgroup with
ME in its title.
These newsgroups have a US bias. There are basic references to UK
charities within the large body of text in their FAQs, but the
information given is hard to find and out-of-date. The recognition of
the illness, and opinions on treatment and medication can vary widely
between the USA and the UK.
The pursuit of the above information was very tiring for a
person with ME.
The proposed newsgroup allows for contact and discussion amongst
people with ME and discusison of UK- relevant issues. A regular FAQ
will be posted, so that readers can get hold of basic information
quickly and without too much effort.
Newsgroups line:
uk.people.support.cfs-me chronic fatigue/ myalgic encephalomyelitis
Charter:
This unmoderated group is for discussion of Myalgic
Encephalomyelitis (ME)/ Chronic Fatigue Syndrome (CFS), and for the
mutual support of sufferers and their carers, in the U.K.
This allows for specific and general discussion of the illness,
support services, treatment, and similar topics, together with
personal concerns where these will interest other readers.
Announcements relevant to ME/ CFS are permitted (e.g. forthcoming
meetings, local support group details, charity contacts).
Commercial advertising is forbidden, but readers may post
requests for commercial information to be sent to them via e-mail.
With the exception of PGP signatures, all encoded binaries (eg
pictures, word processor files, .zip files etc), HTML, or similar non-
plaintext postings are *forbidden*; such material should be placed on
a web or FTP server and the URL posted.
Posters to the group are expected to be considerate of other readers.
Personal abuse, flames, and posting of personal information without
permission are forbidden.
Postings are welcome from people outside the U.K. provided they are
relevant to U.K. readers.
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