Chronic Fatigue Syndrome Electronic Newsletter
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No. 57 April 30, 1996 Washington DC
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OCTOBER CFS MEDICAL CONFERENCE IN SAN FRANCISCO:
AGENDA, REGISTRATION FORM AND AACFS MEMBERSHIP
CONTENTS
>>>1. October CFS medical conference in San Francisco
>>>2. Tentative conference schedule
>>>3. Hotel and conference registration form
>>>4. AACFS membership
[This special edition of CFS-NEWS is devoted to providing information
about and registration forms for the upcoming AACFS medical
conference being held in October. -- Editor]
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>>>1. October CFS medical conference in San Francisco
The American Association for Chronic Fatigue Syndrome (AACFS) will
hold a major medical conference on CFS research and clinical issues
during October 13-17, 1996 in San Francisco. The articles below
contain a tentative schedule of conference events, the conference
registration form, and AACFS membership information.
General information about AACFS can be obtained by visiting their web
page at:
http://weber.u.washington.edu/~dedra/aacfs1.html
Thanks to Leslie Boyer and Doctors Paul Levine, Mark Demitrack, David
Bell and Michael McGoodwin of AACFS for assistance with the
information in this edition of CFS-NEWS.
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>>>2. Tentative conference schedule
The following is a tentative schedule of the five days of conference
events. It is subject to many changes, and is shown here only to
give a sense of the intended breadth of the conference. A revised
schedule will appear in a future edition of CFS-NEWS, after the
presenters have been chosen.
---------------
Sunday, Oct. 13
---------------
Special Session: Satellite Symposium in
Conjunction with American College of Nutrition
Panel Discussion: Controversies in the
Nutritional Management of CFS
------------------------------------------------------
AACFS Scientific Program Opens
Opening Remarks: Paul Levine, MD; Mark Demitrack, MD
Keynote Address: TBA
Scientific Session I - Epidemiology
Co-chairs: Paul Levine, MD; Andrew Lloyd, MD
Plenary Address -- New insights into the Epidemiology
of CFS: Andrew Lloyd, MD
[Presentations of peer-reviewed research]
Scientific Poster Sessions - Moderated Exhibit of
Selected Scientific Studies
Co-Chairs: Dharam V. Ablashi, DVM; Murray Gardner, MD
Discussion Breakout Groups: TBA
---------------
Monday, Oct. 14
---------------
Scientific Session II - Interdisciplinary Studies
Co-Chairs: Mark Demitrack, MD; Iris Bell, MD
Plenary Address - Multiple Chemical Sensitivity and
Clinical Ecology: Iris Bell, MD
[Presentations of peer-reviewed research]
Luncheon Workshops
1: Immunology
Co-Chairs: Nancy Klimas,MD; Jay A. Levy, MD
2: The Quest for Homogeneity in the Case Definition
Chair: Benjamin Natelson, MD
Scientific Session III - Microbiology and Immunology
Co-Chairs: Jay Levy, MD; Theresa Whiteside, MD
Plenary address: TBA
[Presentations of peer-reviewed research]
Scientific Poster Sessions
Co-Chairs: Dharam Ablashi, DVM; Murray Gardner, MD
Discussion Breakout Groups: TBA
Dinner Workshops
3: International Clinical and Research Perspectives
Co-Chairs: Paul H. Levine, MD;
Kenny de Meirlier, MD
4: NIH Research Grant Opportunities: Application and
Review Process
Chair: Marcel Pons, MD
---------------
Tuesday, Oct.15
---------------
Scientific Session IV - Physiology
Co-Chairs: James Jones, MD; Peter Behan, MD
Plenary Address: Muscle studies and
organophosphates
Peter Behan, MD
[Presentations of peer-reviewed research]
Luncheon Workshops
5: Environmental Toxicology
Chair: Iris Bell, MD
6: Neuropsychological Functioning in CFS
Chair: John DeLuca , MD
Karen Schmaling, PhD
Paul Marshall, MD
Jordan Grafman, MD
Scientific Session V - Clinical Studies
Co-Chairs: Dedra Buchwald, MD; Michael Sharpe, MD
Plenary Address - Cognitive Behavioral Therapy:
Implications for CFS:
Michael Sharpe, MD
[Presentations of peer-reviewed research]
Banquet
Speaker: David Spiegel, MD
Interface of Mind and Body: Lessons learned
from breast cancer patients regarding
long-term outcomes and treatment strategies
Sometime during the Research Conference there will be a talk by
Janice Kiecolt-Glaser, MD on "Psychological Influence of
Immunoendocrine Interactions", and by Ronald Glaser, MD on
"Stress-associated Immune modulation: Implications for Health".
------------------------------------------------------
AACFS Clinical Conference Opens
------------------
Wednesday, Oct. 16
------------------
Clinical Session I
Welcoming Remarks: David S. Bell, MD
Review of Research Conference: Anthony Komaroff, MD
Overview of the Clinical Approach to CFS:
Current Treatment Strategies in the US and Abroad
Chair: Dedra Buchwald, MD
Panel: Jonathan Rest, MD; Kenny DeMierlier, MD
Q & A Session
Clinical Session II
Role of Psychotherapy and Psychotropics:
Chair: Mark Demitrack, MD
Panel: Michael Sharpe, MD; others TBA
Gulf War Illness and CFS: speaker TBA
Q & A Session
Clinical Keynote Address: TBA
Luncheon Workshops
1: Doctor-to-doctor (MD's only)
Co-chairs: Nancy Klimas, MD; Mark Loveless, MD
2: The relationship between CFS and "chronic fatigue"
Chair: Jonathan Rest, MD
3: The CFS Experience
Co-chairs: Patricia Fennell, CSW;
Fred Friedberg, PhD
Clinical Session III
Rehabilitation Strategies - Panel Discussion
Co-Chairs: Sue Ann Sisto, PhD;
Gloria Furst, OTR/L, MPH
Panel: TBA
The Determination of Disability - Panel Discussion
Co-Chairs: Daniel Peterson, MD; Peter Manu, MD
Panel: Barry Make, MD; Thomas Lane, MD;
Jordan Grafman, MD
Discussants: Tom Gloss, MD; Marcia Scott, MD
Q & A Sessions (Separate Areas for the speakers in
the 2 sessions above. Extended timeframe for
individual questions)
AACFS Business Meeting
Break
Dinner Workshops
4: Long-Term Prognosis of CFS
Chair: Dedra Buchwald, MD
5: Complementary Medicine and Nutritional
Controversies
Chair: Paul H. Levine, MD
Panel: TBA
-----------------
Thursday, Oct. 17
-----------------
Clinical Session IV
Silicone Implants and CFS: An Ongoing Controversy
Henry Claman, MD
Q & A Session
Clinical Session V
Autonomic Nervous System and Fibromyalgia,
Neuroendocrine Abnormalities and Neurally Mediated
Hypotension in CFS
Panel: Daniel Clauw, MD; Peter Rowe, MD;
Stanley Schwartz, MD
Q & A Session
CFS in Adolescents
Co-chairs: David Bell, MD; James Jones, MD
Panel: TBA
Q & A Session
Luncheon Workshops
7: Cognitive Dysfunction - When to Evaluate?
Panel: Daniel Peterson, MD; Jordan Grafman, MD
8: Individual Case Review (MD's only)
Panel of clinical experts
Clinical Session VI
Long-Term Patient Management
Panel: Nancy Klimas, MD; Patricia Fennell, PhD;
Michael Sharpe, MD; James Jones, MD
Clinical Session VII
Ask the Experts - Panel Discussion
Moderator: Anthony L. Komaroff, MD
Panel: TBA
Concluding Remarks: David S. Bell, MD
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>>>3. HOTEL and CONFERENCE REGISTRATION FORM
AACFS Chronic Fatigue Syndrome Research & Clinical Conferences
Sun-Thurs, October 13-17, 1996 Sheraton Palace San Francisco
Name _________________________________________________________
Last First
Title ________________________________________________________
Affiliation __________________________________________________
Address ______________________________________________________
City ________________________________ State ____ Zip _________
Country ______________________________________________________
Work Phone ___________________________________________________
Fax ____________________________ Home # ______________________
E-mail _______________________________________________________
_ _
Send correspondence to |_| Work or |_| Home address
----------------------------------------------
HOTEL RATES (EXCLUDING TAXES) IN US FUNDS:
1-night deposit required, payable by check or credit card
Sheraton Palace
_
|_| $175 per room/per night, single
_
|_| $195 per room/per night, double
Howard Johnson Pickwick
_
|_| $89 per room/per night, single or double
_
|_| $99 per room/per night, triple or quad
_
_______ # of people in your party |_| (1 bed)
_ _ _
|_| (2 beds) |_| (3 beds) |_| (4 beds)
Arrival date _____________ Departure Date _______________
________ # of nights
For third or fourth adult occupying guest room at the Sheraton
Palace, add $20 per person. Group rates extended to conference
participants three days before and after conference, based on
availability of space. Deposit of $175 for the Sheraton Palace or
$89 for the Howard Johnson per room is required to secure a
reservation.
----------------------------------------------
I will be attending the:
_
|_| Research Conference Only
_
|_| Clinical Conference Only
_
|_| Both Conferences
Registration Fees (Please circle appropriate fee)
(Pre-registration Deadline August 30, 1996)
MDs/Other All Other
Professionals -- CLINICAL ONLY -- Attendees
$150 Pre-registration Members $85
$200 On-site Members $100
$200 Pre-register Non-members $100
$250 On-site Non-members $150
_____________________________________________________________
-- RESEARCH ONLY --
$250 Pre-registration Members $150
$300 On-site Members $200
$300 Pre-register Non-members $200
$350 On-site Non-members $250
_____________________________________________________________
-- BOTH CONFERENCES --
$300 Pre-registration Members $175
$350 On-site Members $225
$350 Pre-register Non-members $225
$400 On-site Non-members $275
_____________________________________________________________
$30 Keynote Dinner Tues 10/15 $40
__________ __________
TOTAL REGISTRATION FEES TOTAL
MDs/Professionals Other Attendees
includes CME credit
Registration will be refunded to CFS patients cancelling due to
illness. If your support group has joined AACFS, you may use the
member discount.
----------------------------------------------
Hotel deposit $ _______ + Registration fees $__________
( + Membership $ __________ ) = TOTAL DUE _______
Amount paid by enclosed check $ ______
Amount paid by credit card $ ______
TOTAL PAID ______
_ _
|_| Visa |_| Mastercard
Card Number ______________________________________________
Expiration Date __________________________________________
Signature ________________________________________________
Make all checks payable to CERTIFIED TRAVEL. Mail form to Certified
Travel at 21 Aviation Road, Albany, New York 12205 ...
or FAX form to 1-518-437-0699. Hotel deposit is non-refundable if
cancelled 72 hrs or less before arrival.
CERTIFIED TRAVEL guarantees lowest possible discount airfares for
AACFS conference attendees. For more information, call
CERTIFIED TRAVEL at (800) 237-1517 or (518) 437-0691.
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>>>4. AACFS Membership
The American Association for Chronic Fatigue Syndrome (AACFS) is a
non-profit organization of research scientists, physicians, licensed
medical care professionals, and other individuals and institutions
interested in promoting the stimulation, coordination, and exchange
of ideas for CFS research and patient care as well as periodic
reviews of current clinical, research and treatment ideas on CFS for
the benefit of CFS patients and others.
There are three membership categories:
Regular membership -- for qualified research scientists, physicians,
and other licensed healthcare personnel professionally engaged in CFS
activities. The bi-annual fee for Regular membership is $50.00.
Support membership -- for individuals, organizations, institutions
and commercial establishments contributing financially to the AACFS,
supporting national research meetings, or helping with membership
drives or programs of the Association. CFS patient support groups
are eligible for the category of membership at an annual fee of $100.
The annual fee for non-profit institutions or organizations is
$500.00. The annual fee for other institutions and organizations is
$1,000.00.
Honorary membership -- those persons recognized for their special
contributions to the battle against CFS by at least a two thirds vote
of the Board of Directors. No fee is required for honorary members.
Current leadership:
* Paul H Levine, M.D., President
George Washington University Medical Center, Washington, D.C.
* Dedra Buchwald, M.D., Vice President
Harborview Medical Center, Seattle, WA
* Dharam V. Ablashi, DVM, Secretary
Georgetown Univ, Washington, D.C.
* Edward Taylor, Treasurer
Taylor Communications, Tulsa, OK
* David S. Bell, MD
Lyndonville, NY
* Mark Demitrack, MD
Eli Lilly, Indianapolis, IN
* Sudhir Gupta, MD, PhD
Univ. of California College of Medicine, Irvine, CA
* James J. Jones, MD
National Jewish Hospital and Research Center, Denver, CO
* Nancy Klimas, MD
University of Miami, Miami, FL
* Anthony L. Komaroff, MD
Brigham and Women's Hospital, Boston, MA
* Jay A. Levy, MD
University of California at San Francisco, San Francisco, CA
* Daniel Peterson, MD
Incline Village, NV
- - - - - - - - - - - - - - - - - - - - - - - - -
APPLICATION FOR MEMBERSHIP IN THE
AMERICAN ASSOCIATION FOR CHRONIC FATIGUE SYNDROME
BOX 249 900 CENTRAL AVENUE ALBANY, NY 12206 FAX: 518-435-1765
Name: ___________________________________________________________
(First) (Middle) (Last)
Address: ________________________________________________________
(Street) (Apt.#)
________________________________________________________
(City) (State) (Zip)
Home Phone (____) _____________ Work Phone (____) _______________
Fax (____) ______________ E-mail: ______________________________
Name of Employer: _______________________________________________
Work Address: ___________________________________________________
(Street)
___________________________________________________
(City) (State) (Zip)
Highest Earned Degree: ____ Major field: ________________________
Year Awarded: _____ University: ________________________________
Current Professional License: _________ State Where Licensed: ___
_ _ _
Professional Involvement in CFS: |_| research |_| clinical |_| both
Please note committees of interst: Speakers, Development/funding,
Outreach to specific specialties (ie Family Practise, Rheumatology,
Immunology, Virology, Psychology, Neurology, Nursing, Internal
Medicine, etc.), Insurance/Disability, Other: ___________________
_________________________________________________________________
__________________________________________________________________
| |
| For CFS Support Groups Only: |
| |
| Support Group located in: ______________ Number of members: ___ |
| |
| Support Group Phone Number: (___) ______________ |
| |
| Name of President: ____________________________________________ |
|_________________________________________________________________|
I wish to apply for the following membership category (please check
one box):
_
|_| Regular Membership (Bi-Annual Fee) $50
All memberships include the Quarterly Newsletter, a copy of CFS
Symposium Proceedings, and reduced registration fees at rhe biennial
conference.
Supporting Memberships (Annual Fee)
_
|_| Patient Support Group $ 100
_
|_| Non-profit Institution $ 500
_
|_| Other Institution $1,000
SIGNATURE: _________________ Date:_____ Amount remitted: $ ______
VISA/Mastercard # ___________________ Expiration Date ________
Make checks or money orders payable to "American Association for CFS"
mail form to: Box 249 900 Central Avenue, Albany, NY 12206
===================================================================
CFS-NEWS (ISSN 1066-8152) is an international newsletter published
and edited by Roger Burns in Washington D.C. It is distributed:
through the "CFS echo" (discussion group) on the Fidonet volunteer
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Newsgroup bit.listserv.cfs.newsletter. Back issues are on file on
the Project ENABLE BBS in West Virginia USA at telephone 1-304-759-
0727 in file area 23, and the valuable patient resource file named
CFS-RES.TXT is available there too. Suggestions and contributions
of news may be sent to Roger Burns at Internet CFS-...@LIST.NIH.GOV
or by Fido NetMail to 1:109/432, or at telephone 1-202-966-8738, or
postal address 2800 Quebec St NW, no. 1242, Washington DC 20008 USA,
or post a message to the CFS echo or to the Internet CFS-L group or
to newsgroup alt.med.cfs. Copyright (c) 1996 by Roger Burns. Per-
mission is granted to excerpt this document if the source (CFS-NEWS
Electronic Newsletter) is cited. Permission is also granted to
reproduce the entirety of this document unaltered. This notice does
not diminish the rights of others whose copyrighted material as so
noted may be quoted herein. All trademarks, both marked and not
marked, are the property of their respective owners.
===================================================================
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