Google Groups no longer supports new Usenet posts or subscriptions. Historical content remains viewable.
Dismiss

"Hypotonic" face - a question. (I asked It, but I didn't get an answer.)

0 views
Skip to first unread message

Ayelet

unread,
Nov 2, 1999, 3:00:00 AM11/2/99
to
All,

People say that Autism (and all the other disorders in the spectrum) is an
invisible disorder.

I especially have a thing that shown like Hypotonia, on my face, and I'm
generally Hyperflexic. (It's (Hyperflexion) wroten in mine mdical repport.)

I was suspected to be Hypotonic / Marphan's by my psych at age 14, (she saw
me playing with my fingers instead of listening her most of the time. and I
have the most "typical body structure" for Marphan's Syndrome people.) but I
negativated(?) / almost negatived(?) the Marphan's by showing her that I
have no elbow's overflexibility(?).
I had many tests after It and there were no founded physical / chromosomal /
metabolic pathologies at that time exccept being very thin. (I believe that
those checking really completely negatived(?) the Marphan's Syndrome.)

But I have a special faces - the doctor agreed with me in this point, like
all the muscles in the face are relatively weak, and It creates an
impression of mentl retarded / childish person.
I don't know why, but most of the mentaly retarded person that I saw had a
face with such weak mscles. I TBI persons, even not mentally retarded, and
most or all of them had this character.
It's like Hypotonia, but mainly in the face.

The results of all my checking were normal, includes EEG. and maybe MRI or I
don't know what.

I don't know why, but I believe this character is more common in retarded /
brain demaged persons than in the normal population.
Is It common in Autism / AS more than the general population also?
My AS boyfriend doesn't have It, but It's prove NOTHING.

It's really bother me. I asked the doctor If a surgery can help, he said
maybe. he doesn't recommand on It. he agreed that people which see me at
first think I'm mentally retarded, but he said that If they start to talk
with me for 5 minutes only they would see that I'm gifted.

Are there any Autistics / AS / other PDD(s) persons that have It also?
Is anybody know what the exact cause / s for It?
I think It can help me to know.
Thank you very much.

--
Ayelet.


jbowden

unread,
Nov 2, 1999, 3:00:00 AM11/2/99
to
My child has this. Have you seen a genetics specialist?
Abbie when a Infant was described as "Downey in Looks"
When she was lying on her back she looked different than sitting and that is
how I first noticed this.
This is caused by muscle tone and as she is getting older it is not as
evident.
I know exactly what you mean and not all children have this with autism. At
her school I of over 110 and noticed SOME do.
Low Muscle Tone is caused by some brain thing (boy am I a doctor)
that is not quite right.
The part of your brain that controls muscle tone is most likely a little
miswired or damaged or something.
I would not worry about it since those that love you like you that way.

Ayelet

unread,
Nov 4, 1999, 3:00:00 AM11/4/99
to
Jbowden,

*Actually, I have mild AS, not exactly Autism. I talked about this spectrum
in general.
*I'm sorry for the letter being so long. I just recalled somethings.

I thought It's related to brain demage, but I also knew that the checkings /
screenings were negative in that aspect. (I had many EEGs and maybe one MRI,
I don't know.) maybe some of the brain demages / different structures of the
brain are impossible or hard to be detected by the regular checking devices?
anyway, from the learning aspect, I have learning disabilities (which I
don't know which!) and from their deviation, one psych and one neurological
(or something) team suggested, or gave a diagnosis (I'm not sure) of Right
Hemisphere Disunction, althought It's not typical to be good in math. (I'm
good in math.)
The neurologic (or something) team checked me for some hours (I couldn't
come to 2-3 days as they wanted me to do) because they made a research - our
family case very interested them. (they care my brother because of Elective
/ Selective Mutism and Autistic like behavior up to they thought he might be
Autistic instead.) my brother and I had a similar picture, an we still
didn't get a diagnosis at that time. (he is not Autistic / AS, but he
probably has "traits". he got much better. now his state is much better than
mine. his name is Avraham.)

(I got a mild (from the result aspect) head injury at age ~3 years, but was
checked in the hospital with no result and discharged immediately after
scanning. I came to the hospital becuse I partially lost my consciosness for
a very very little time, and I vomited twice after It. but this injury was
result of my Hyperactivity and maybe from my previous ignorant(?) from the
rest of the world too. (I crushed other child in his ferohead. not in
purppose. I just run as usual, in the building, not just in our home. I
think my behavior was very difficult to controll on, to make It be less
dangerous.) I was at that age worse then I'm todays, so I can tell It didn't
caused my condition. I was "Hypotonic-like" at that age as I belive, becuse
I know I was hyperflexic at that age, and I think It's related.)

Yes, from unknown reason It's tend to get better over the years from the
early childhood, but I think that It was stoped from getting better in my
age, actualy It may be slitely worse than the state before about 1/2 year
ago. but It may be related to the fact that I got totally weak generally
recently, because of my bad nutrition.

I'd rather not being like this. just imagine - even closing my mouth is not
natural to me.

Thank you very much for your answer.

--
Ayelet.


jbowden <jbo...@capecod.net> כתב בהודעה לקבוצת
דיון:8xzT3.30414$YB4.5...@typ12.nn.bcandid.com...

jbowden

unread,
Nov 4, 1999, 3:00:00 AM11/4/99
to
Abbie has nothing that shows up in any tests. She did have very low tone as
an infant and then as she is getting older it seems to be disapearing. It is
caused I am sure by something to do with the formation of the brain or the
miswiring of the brain etc.
She also has the foot thing ( a foot that is clubbing)
She has a mouth that does not open very wide. The genetics specialist said
it was most likely the muscle tone issue again and told me the term at the
time and I cannot remember it. Her palette is kind of high arched.
She was a very strange looking little infant but now she is getting more NT
looking and is very cute and elegant with her long willowy legs and
slender figure. She is just 12 years old. She also had a crossed eye when an
infant and this was also a hypotonic face issue . I think all of this
improves with age. Her new school has lots and lots of physical education
(that is the most important part of the program) and this has gotten her
into shape and calms her.

Missy A

unread,
Nov 4, 1999, 3:00:00 AM11/4/99
to
Jean:

My 12yo NT, Katie, had a very high palate. It was caused by her being a
mouth breather--the tongue didn't rest on the roof of the mouth (especially
at night) to keep things spread out and, as a result, it arched up into her
sinus area. We had two split palate appliances put in (the first one
worked, but then as soon as they cut back the time she should wear her
retainer it went right back where it wasn't supposed to go), and now we're
doing braces. Next Friday she gets her top braces on--please say a prayer
and have a glass of wine for me after about 3:00 p.m. You don't know misery
until a 12 year old isn't happy! Bless her heart, she has to make sure that
Mommy understands to the nth degree her dissatisfaction with anything. And
lately, that's just about everything.

Sorry, guess I went off topic.......

Missy

jbowden wrote in message ...

mom2u42

unread,
Nov 4, 1999, 3:00:00 AM11/4/99
to

Missy A <alex...@thebee.net> wrote in message

>You don't know misery
> until a 12 year old isn't happy! Bless her heart, she has to make sure
that
> Mommy understands to the nth degree her dissatisfaction with anything.
And
> lately, that's just about everything.
>
> Sorry, guess I went off topic.......
>
> Missy
Yea though I walk through the valley of death I shall fear no evil. Honey I
have been through this and autism is easy compared to teenagers. Hang in
there.
--
Amylee, mom to Paul (a sweet kid) and Shaker (who has gotten really big and
is getting mean)
www.homestead.com/paulandshaker/page1.html

Ayelet

unread,
Nov 4, 1999, 3:00:00 AM11/4/99
to
Jbowden,

I'm a bit confused. so the letter might be more confused than the usual. I'm
sorry for It.

I have no other neurological "features" / signs, except the (mild) AS,
(severe) ADHD, LDs and my right hemisphere issue, and coordination /
motorical problem (I don't know It's related to the LDs, becuse no one ever
told me which LDs I have, but all told me that I have those motorical /
coordination issues. both fine and grose motorical problems.) (I have more
things that are not related to here)
So I DON'T have any clear / specific neurological sign, but I probably have
neurological problems. maybe I have a non spesific possibly neurological
sign. (I remeber that one of the expert said that he think so - that my
problems are pure neurological.) I don't know for sure. (people say that AS
and ADHD are, for instance, from a neurological problem / s.)
AND I understnd It can be possible for me to have a brain demage or a
different structure that effects on this part of the brain, even without
being discovered by the checks.

Actually, and I'm sorry to write those "details",
(you can stop reading from here If you want,)
y mouth is always slightely opened If I don't notice to It, that's the
natural mode of my mouth,

BUT when I talked once to my partner (a girl, named Gali or Gili. I couldn't
understand and didn't ask again.) to a chemical experiment in the lab at the
Open University, (I had learned some courses, but did not finish the degree.
I was just at the start and then stoped.) that was almost completely deaf,
(BTW, she had this "feature" also on her face! she born as a deaf after her
mom had a virus in her pregnant. (I can't say It in English.) she's very
smart.) she said that she can understand the most of the people by reading
their leaps, and she can't read my leaps well. (then I wrote her the
things.) I asked the home assistance, (I don't know the word) Lili, If
there's a problem, and she said that I open my leaps in a too narrow way
when I talk, and I say some of the vauels and the letters in a non usual
way. I asked my boyfriend, nd he said she was right.

I think It's weird when combined with the first problem.

(*I have another weird problem sometimes when I think or doing something
alone, or just stay alone while doing nothing, I even make some sounds
unvoluntarily from "careless". I meant that I can controll It when I think
about It (It's not a tic, I have a full control on It If I think about It
all the time.) but I don't notice to It at such times. I just forget. I'm
embarast to think about It. (my boy friend told me that I'm doing so mainly
when I try to play in the piano. we both don't like It, off course. but "It"
is not me. and I'm not doing It in purppose. so he accepts me and loves me
as I am.))

I'm glad to read that Abbie no longer has this prolem.
I hope that her foot will be better also.
does she show some Hyperactivity - like signs? (you wrote that she like the
physical education and that It makes her calmed.)
(*I'm severly ADHD person. includes Hyperactivity, impulsivity, and
inattention. I have the combined type. I got this diagnosis before I got the
AS, but even when I got the AS diagnosis, this diagnosis was stayed.
(I believe most of the ASD people shows some ADD / ADHD like behavior, and
so they should not be diagnosed in dual diagnosis (ADHD / ADD along with
their ASD diagnosis) unless some special condition are met. in my case, I'm
definitely ADHD person and It's not all covered by my AS diagnosis.)

--
Ayelet.


jbowden <jbo...@capecod.net> כתב בהודעה לקבוצת

דיון:E2eU3.38366$YB4.7...@typ12.nn.bcandid.com...

Ayelet

unread,
Nov 5, 1999, 3:00:00 AM11/5/99
to
Missy,

I hope It's OK for me to answer you too.

I didn't know what is arched or palate, (I thought (that) It's related to
colors... I don't know why.)
But now I can imagine.

I have a high (thing I don't know how It's called. It's inside the mouse,
above the tunge, closer to the nose.)
And It was told (to) my mom right after I was born. It was so from the first
in my case.

I had a difficult to say the letter L up to age 4 years, althought I talked
before age 1 year. maybe It's related. I don't know.

I said some letters (like S, SH,(less, and weirdly) TS(?), Z) while the
tunge is outside obviousely untill maybe age 18 (It was cared. It's better
now.)
I had to care It before my ortodentic therapy will completely fail. It took
many years (I didn't cooperate well in the orthodentical therapy) and the
comunication clinitian or something like that, succeeded in reducing the
tunge issue. (I had to do many boring stupid and frustrating atudes /
excercises. and to eat in a close mouth which was very difficult to me. (I'm
sorry. but I think It's related.)

and I tended to breath from the mouth at first untill a very old age. (I can
put the point in which age I stoped It.) now It's not the state.

So I still have the high "think", but now I have none of the side problems,
as I think.

Unless It's related somehow to my "Hypotonic" - like face.

--
Ayelet.


Missy A <alex...@thebee.net> כתב בהודעה לקבוצת
דיון:7vs64n$2c...@enews3.newsguy.com...


| Jean:
|
| My 12yo NT, Katie, had a very high palate. It was caused by her being
a
| mouth breather--the tongue didn't rest on the roof of the mouth
(especially
| at night) to keep things spread out and, as a result, it arched up into
her
| sinus area. We had two split palate appliances put in (the first one
| worked, but then as soon as they cut back the time she should wear her
| retainer it went right back where it wasn't supposed to go), and now we're
| doing braces. Next Friday she gets her top braces on--please say a prayer

| and have a glass of wine for me after about 3:00 p.m. You don't know


misery
| until a 12 year old isn't happy! Bless her heart, she has to make sure
that
| Mommy understands to the nth degree her dissatisfaction with anything.
And
| lately, that's just about everything.
|
| Sorry, guess I went off topic.......
|
| Missy
|

| jbowden wrote in message ...

Missy A

unread,
Nov 5, 1999, 3:00:00 AM11/5/99
to
Thanks, Amylee. Just keep the stories coming about you and Clyde and Paul
and Shaker and my life will always have a bright spot!

Your "Fluffy" friend,
Missy

mom2u42 wrote in message <#pIt0q0J$GA.252@cpmsnbbsa03>...


>
>Missy A <alex...@thebee.net> wrote in message

>>You don't know misery
>> until a 12 year old isn't happy! Bless her heart, she has to make sure
>that
>> Mommy understands to the nth degree her dissatisfaction with anything.
>And
>> lately, that's just about everything.
>>
>> Sorry, guess I went off topic.......
>>
>> Missy

mom2u42

unread,
Nov 5, 1999, 3:00:00 AM11/5/99
to
Your welcome fluffy a.k.a. Missy A

Missy A <alex...@thebee.net> wrote in message
news:7vuqnf$1d...@enews2.newsguy.com...

Larry Arnold

unread,
Nov 6, 1999, 3:00:00 AM11/6/99
to
My ex girlfreind tells me it is easy to spot "one of them" by which she
means people with a mental disability be it retardation or a mental illness
are discernable by there physical apperance

personally I find that kind of talk from her offensive especially as she now
lumps me into the category of "one of them"

I do not have anything noticable about my features however I do have very
flexible joints and this is mentioned somewhere as being a feature of people
with AS.

One of my habits is waggling my fingers in and out of joint making them
click. which she finds annoying.

Larry

Ayelet <aye...@newmail.net> wrote in message
news:7vlri4$q96$1...@news.netvision.net.il...

Kalen

unread,
Nov 6, 1999, 3:00:00 AM11/6/99
to
Larry Arnold wrote:
> One of my habits is waggling my fingers in and out of joint making them
> click. which she finds annoying.

That can make you get arthritis. I was always told not to play with
my double joints (not that I listen).

--
Kalen

** End of message. Randomly selected tagline follows **
I love dragons, good men, & other fantasy creatures. (sorry Ian)

~~ Tricia

unread,
Nov 6, 1999, 3:00:00 AM11/6/99
to
A bit OT, but interesting.

There was an article in the paper recently about "faced-ness", and how we
subconsciously turn one side of our faces toward a camera based on who the
photograph is intended for. Seems we have a more social side of our face:
the left side. Here's a bit of the article. I have several family pictures
on my fridge, and in every one, my face is turned toward the left.


Left side of face holds eye appeal for artists

By GUY GUGLIOTTA
Washington Post


Is it the eyes? The light? The sort-of smile? What is it that makes the Mona
Lisa one of history's most memorable portraits - so compelling, even in its
creation, that the young Raphael sat at Leonardo's knee just to watch him
paint it?

Scientists, like most of the rest of mankind, do not have the answer, but
they have noticed that Leonardo, like most portrait painters for the past
500 years, favored the left side of his subject's face and put her eye
almost exactly on the canvas's centerline.

The reason for turning left, suggests Australian researcher Michael
Nicholls, is that the right cerebral hemisphere, the side most responsible
for emotion, controls the left side of the face. If someone wants to look
warm, cuddly and personable - and most people do - there's only one cheek to
turn.

At the same time, San Francisco visual expert Christopher W. Tyler says in a
separate study, portraits by 165 masters from Van Eyck to Picasso show the
artist focusing on one eye - not the mouth, not the chin, not the bridge of
the nose - and putting it on the painting 's north-south axis to draw the
viewer's to a single point.

The effect of these twin techniques, one might say, is to bring viewer and
subject into intimate contact so the subject's sunny left side can impart a
feeling of friendliness and emotional kinship.

Done properly - and no one questions whether Leonardo, Rembrandt or Picasso
could do it properly - the canvas has the impact of a thunderclap.

The curious thing about all this, however, is that neither the Nicholls team
nor Tyler could find any evidence that artists studied these phenomena or
deliberately set out to make use of them - even though Leonardo, for one,
was as renowned a scientist as he was a painter.

"It's such an odd thing," said Nicholls, a psychology professor at the
University of Melbourne.

"You've got portraits through history, and they seem to have this remarkable
(leftward) bias. You go across the generations and the styles of painting ,
trying to think of explanations."

Exploring left sides

In its article in the August edition of the British journal Proceedings:
Biological Sciences of the Royal Society, the Nicholls team first explored
the possibility that artists went left because most were right-handed. They
preferred to paint left sides so they wouldn't have to peer at the subject
over their painting arms.

Except that Holbein and Raphael, like Leonardo, were noted lefties - and
they painted left sides. So did Picasso, who was also supposed to be
left-handed, Nicholls said, even though "he's always right-handed in
photographs."

But then there was Rembrandt: 57 self-portraits, most of them with the right
cheek turned. Exception to the rule?

Probably not: "He used a mirror," Nicholls said. Like everyone else, he
turned his left side to the mirror, but when he painted the mirror image,
left was right.

In all, the Nicholls team found that 58 percent of 361 portraits it examined
were left-sided. The team also noticed that the percentage of left cheeks
rose sharply for portraits of women - to 78 percent.

"That's what made us start thinking about all this," Nicholls said,
especially after one member of the team scanned a catalog of portraits from
the Royal Society, the British equivalent of the National Academy of
Sciences, and found no leftward bias whatsoever.

"We came up with the thought that the side of the face was perhaps more
closely tied to a desire to express or conceal emotion," Nicholls said.

Leonardo's Mona Lisa wanted to look nice for her merchant husband. Einstein
wanted to look heavy-duty.

So the team devised an experiment to test the hypothesis: It was the
subject, not the artist, who was responsible for turning one cheek or the
other.

The experiment invited 165 Australian psychology students (122 women, 43
men) to sit for "portraits" in front of a video camera. Neither the subjects
nor the proctor in charge of the experiment knew the purpose of the test.

Half the subjects received a script telling them they were "going overseas
for a year" and wanted to leave a portrait for their "close-knit family" as
a reminder "of how much you love them."

The others were told "you are a successful scientist at the pinnacle of your
career." The Royal Society "has just accepted you for membership" and wanted
a portrait. "You want to give the impression of an intelligent,
clear-thinking person, but don't want to look at all smug or proud."

Then the students looked at the camera. Fifty-eight percent of the
"close-knit family" women and 64 percent of the men turned their left
cheeks.

Fifty-seven percent of both sexes turned right for their Royal Society
portraits. Three subjects refused to turn their faces one way or the other.

"It was kind of neat," Nicholls said.

Luramao

unread,
Nov 6, 1999, 3:00:00 AM11/6/99
to
My doctor comments regularly about my "blank expression" in the waiting
room. Other doctors have commented about my lack of expression too. On
one medical report I was described as "looking vaguely about the room,
no eye contact." I am told this is why I often have difficulties with
people in person, because when I have no expression or a blank look, (a)
NTs tend to project things onto me (i.e. that I'm scarey to them or
"bad" or such stuff) or (b) NTs will think that I am retarded. (One of
my first real memories of people outside of myself was of how I was
mercilessly and constantly taunted by my NT teenage peers as "retard!")

The first person to "reach" me specifically told me that one of the
things I needed to work on was that I was totally expressionless (face
and body language)

I have in fact worked on that for several decades, but even I know one
is supposed to show expression and even tho I often attempt to have some
sort of expression when I think of it, it still remains an area to be
worked on.

However, I do know that when I am talking with my doctor, I DO show
expressions, and pretty well. And I th ink I do ok at it often in other
direct encounters when I have to interact with another person one on
one.

I guess my biggest problem is that my "normal" expression is NO
expression, which is compounded by the fact that when I am doing such
mundane things as sitting in a waiting room or eating lunch in a
cafeteria, or walking or that kind of stuff, I really don't know what
kind of expression you"re SUPPOSED to put on your face. I haven't
figured it out yet. Evidently a blank expression is incorrect
though.....

I also have problems connecting some inner feelings to the proper outer
expression or degree of expression. I can smile ok nowadays, and I th
ink I can pretty much express "happiness," but stuff like anger, pain,
frustration, friendliness, etc, I have problems with. Often if I feel
something inwardly I'll have no idea of how to express it outwardly.
(This also I think would incline people to project "retard" on me,
because I'd seem nonreactive, insensitive, cloddish, doltish, etc...)
There may be a lot going on in the inside, but outwardly they see
nothing. So they assume there is nothing inside. Which is wrong.

I've mentioned before how at one point I joined Mensa (a high IQ society
- which I dropped out of when I discovered its a SOCIAL club!). Yet, as
a teen, my peers thought I was retarded. Even now, I still run into it.
I have a weekend, per diem job as a nurse's aide. Last year, I was sent
into a new place, and the nurse in charge looked at me, turned to the
other nurse, and said, "Do you think someone like this can do this work?
This one doesn't look very bright." To which the other nurse said,
"It'll be ok, we'll help out." (!! And, although I am not a "nurse,"
through my various college courses and jobs and "interests," I've
probably forgotten more about medical subjects than these nurses EVER
learned in the first place.) And of course this little conversation
took place right in front of me too, as if I was too dumb to either
comprehend or too dull to have any feelings that could be hurt!


Cybermaurn

unread,
Nov 7, 1999, 3:00:00 AM11/7/99
to
On "favoring" turning one side of face toward another:

I can remember neither the scientific basis nor the source, but one true expert
explained that this (for some of us) is due to aural input being more easily
processed from one side (not the more simple superior hearing acuity in one ear
factor). This might only happen, or be more pronounced, when there is a visual
overload, making aural info more difficult to deal with. Now you will really
think I'm nuts, but if you have ever tried to sit perfectly still for 30+
minutes, modeling in an art class, you get a vivid perspective on how hard it
is to be *perfectly* still, without fidget or cramp. I wonder if it is easier
for the NT brain (God only knows how to categorize mine!) to keep the body
still if the key sensing organs (eyes/ears) are in a particular peripheral type
posture (not directly receiving input)? Do please forgive my odd questions.
Maureen in MO

Missy A

unread,
Nov 7, 1999, 3:00:00 AM11/7/99
to
Ayelet:

I'm just about the least formal person you'll ever meet, so it's
_always_ okay for you to chime into any conversation I'm having!

The thing you're referring to is the palate, so your information is very
relevant. When the doctor told your Mom that you had it when you were very
small, did he suggest why it was that way? Your indicating that you were a
mouth breather suggests that your high palate was caused from your mouth
breathing.

Are you from Israel? I am very interested in weather and climate. Can
you tell me what yours is like?

Missy

Ayelet wrote in message <7vuqok$mec$6...@news.netvision.net.il>...

>| and have a glass of wine for me after about 3:00 p.m. You don't know


>misery
>| until a 12 year old isn't happy! Bless her heart, she has to make sure
>that
>| Mommy understands to the nth degree her dissatisfaction with anything.
>And
>| lately, that's just about everything.
>|
>| Sorry, guess I went off topic.......
>|
>| Missy
>|

michelle

unread,
Nov 7, 1999, 3:00:00 AM11/7/99
to
In article <11476-38...@storefull-297.iap.bryant.webtv.net>,
lur...@webtv.net (Luramao) wrote:

> I have in fact worked on that for several decades, but even I know
> one
> is supposed to show expression and even tho I often attempt to
> have some
> sort of expression when I think of it, it still remains an area to
> be

> worked on. [snip]


> I guess my biggest problem is that my "normal" expression is NO
> expression, which is compounded by the fact that when I am doing
> such
> mundane things as sitting in a waiting room or eating lunch in a
> cafeteria, or walking or that kind of stuff, I really don't know
> what
> kind of expression you"re SUPPOSED to put on your face. I haven't
> figured it out yet. Evidently a blank expression is incorrect
> though.....
> I also have problems connecting some inner feelings to the proper
> outer
> expression or degree of expression. I can smile ok nowadays, and
> I th
> ink I can pretty much express "happiness," but stuff like anger,
> pain,
> frustration, friendliness, etc, I have problems with. Often if I
> feel
> something inwardly I'll have no idea of how to express it
> outwardly.

Luramao,

Have you tried using a "Feelings Chart" (a big poster with lots of
different faces showing various emotions, which are labeled beneath
each picture) and a mirror? Another strategy would be to really *look*
at other people in the waiting room or wherever and then go home and
try to imitate *their* expressions in the mirror. These strategies do
help some people; I hope you'll find them useful.

BTW, I'm sorry those nurses were so insensitive. People can be really
cruel without intending it (not to mention those that *do* intend it).

Best,

Michelle W


* Sent from RemarQ http://www.remarq.com The Internet's Discussion Network *
The fastest and easiest way to search and participate in Usenet - Free!


Ayelet

unread,
Nov 7, 1999, 3:00:00 AM11/7/99
to
Larry,

I like to do It also. If I understand correctly the word "joint", then I
know I have very flexible jonts.
My boyfriennd told me that I'l got infection (I'm not sure If that's the
word in English,) of them, they will be destroyed faster, and I'll can't
move them properly, or at all, I will have pains, and saking hands.
He says also that the noise cause him to feel uncomfortble up to mad... :)
(not really. but he dousn't like the noise. It very bothers him. but he
still loves me. :o) )

Is It's true?

BTW, you and your girlfriend agree, as I understood It, that your face and
your appeariance generally look "normal".

So she can't easily spot "one of them" (her words) and / or she think you
are not one of them...

Don't notice to her.

--
Ayelet.


Larry Arnold <La...@larry-arnold.com> כתב בהודעה לקבוצת
דיון:80196q$8fi$2...@lure.pipex.net...


| My ex girlfreind tells me it is easy to spot "one of them" by which she
| means people with a mental disability be it retardation or a mental
illness
| are discernable by there physical apperance
|
| personally I find that kind of talk from her offensive especially as she
now
| lumps me into the category of "one of them"
|
| I do not have anything noticable about my features however I do have very
| flexible joints and this is mentioned somewhere as being a feature of
people
| with AS.
|

| One of my habits is waggling my fingers in and out of joint making them
| click. which she finds annoying.
|

Ayelet

unread,
Nov 8, 1999, 3:00:00 AM11/8/99
to
Missy,

I really don't remember exactly what mom said to me, but I think she said to
me that the doctor said that I born like that, and so It's not from mouth
breathing. maybe the things are going so - that thing may cause a difficult
to breath from the nose somehow. It might be a magic circle (but still can
be broken), but can It be just the cause instead of being the effect of
mouth breathing?
I don't know. off course, I still have this high palate(?), but now I breath
naturaly in the regulr way.

(*When I'll feel more comfortable with my mom again, I'll talk to her and
ask her. I don't know why, I just can't talk with my parents sometimes, even
without anger. (like now.)
I talk with other people: my boyfriend and the lovely home assistant(?) and
when I have duties or things feel I want to do that required talking, (i.e.
I managed my hearing check! I asked to do It in myself, talk to the family
doctor and another person in my own. It was really very hard! or I can ask
for information.), and sometimes I talk with the seller with the super
market that I know. and off course I read and write letters. so I'm not
really newly limited. and It's not really new either.)

Yes, I'm for Israel.
My boyfriend and Lili the lovely home assistant(?) said It was warm today.
warm even relatively to Israel in this session (the winter is just about to
start, but didn't really start.), while the climate is generaly not so cold
and maybe even warm relatively to the countries of most you all in that
session, as I think.
but I felt that It's very cold, and my hands were cold in themselves. maybe
It's because I'm very thin and anemic. (It's not serious at all. I'm not
ill.)

The temprature today was about 20 Celcius degrees, maybe even a bit more, in
the daylight(?). I don't know exactly, and I don't know at all what was the
temperature in the night. thhere was no wind that I noticed, but I was
outside only once, (when I had to go to the super market,) there was a very
weak rain about twice - I heard and saw It through the window, the street
was wet. and It made me a bit depressed. there was pretty dark but not much,
and the sun still was shown. this winter will probably be less wet than
usual - and that's good for me (for the short term) BUT very bad generaly.
I'm not an expert with climates and weathers, but I can say that I don't
know If in my area ever (from the country founding) was some snow. I can say
that If was, It's was very rarely and in a very little amounts. I even think
that specificly in my small area there wasn't snow at all since the founding
of the country.

I wish It would be even more warm than now. I like the spring, an even the
summer. (althought I prefer the hoter and dry (sometimes there is a weak
rain in the spring.) days of the spring on the summer.)

--
Ayelet.


Missy A <alex...@thebee.net> כתב בהודעה לקבוצת

דיון:804iff$5...@enews4.newsguy.com...

Larry Arnold

unread,
Nov 9, 1999, 3:00:00 AM11/9/99
to

Ayelet <aye...@newmail.net> wrote in message
news:805ikc$p1n$5...@news.netvision.net.il...

> Larry,
>
> I like to do It also. If I understand correctly the word "joint", then I
> know I have very flexible jonts.
> My boyfriennd told me that I'l got infection (I'm not sure If that's the
> word in English,) of them, they will be destroyed faster, and I'll can't
> move them properly, or at all, I will have pains, and saking hands.
> He says also that the noise cause him to feel uncomfortble up to mad... :)
> (not really. but he dousn't like the noise. It very bothers him. but he
> still loves me. :o) )
>
> Is It's true?
>
> BTW, you and your girlfriend agree, as I understood It, that your face and
> your appeariance generally look "normal".
>
> So she can't easily spot "one of them" (her words) and / or she think you
> are not one of them...
>
> Don't notice to her.
>
> --
>
She is not my girlfreind any more, we only see each other about once a week
or a fortnight sometimes. She seems to prefer NT's these days.

She does not think my face is odd but my expression is. Particularly on the
photos she has taken of me. On them I do look a bit distant and far away, I
don't look this way on the other pictures though.

Larry
>
>

Ayelet

unread,
Nov 13, 1999, 3:00:00 AM11/13/99
to
Larry,

I lesser tend to understand the NT, (than the ACs) and they generally don't
understand me. maybe this is your state relate to NTs also.

BTW, I fill I'm not belong to the NT, I'm too Autistic for them, (mild AS,)
BUT also not to the ACs, I'm too normal and atypical for most of them, as I
think now. (BTW, my boyfriend have mild AS and he's less Autistic than me,
but he's still Autistic. It's weird.) I would want to become really more
Autistic, but still high functioning. from the two groups, I would choose
the AC group as the group I would want to belong to, and I hate to don't
really fit to any group as my state now!!!

but the ACs tend to more understand me! (I don't like this feeling of not
being able to categorized myself well althought I got a diagnosis, (I
thought I will.) It's really hurt.)

My face expression is very odd too, and BTW, you ex-girlfriend is not
logical at all. (unfortunately I'm also not so logical. I want to be more
logical because I hate inconsistance! and I think It can bring more order to
the world, and make It more certain with less surprises.)
I think It's good for you that you are not her boyfriend anymore.

BTW, sorry for my wrong English. I can talk hebrew well, but still not
English.

--
Ayelet.


Larry Arnold <La...@larry-arnold.com> כתב בהודעה לקבוצת

דיון:80a5j0$p2h$1...@lure.pipex.net...

Larry Arnold

unread,
Nov 14, 1999, 3:00:00 AM11/14/99
to
If I were able to understand NT's then I would not be autistic. I do not
really know how far into the autistic spectrum I am other than that I am
dx'd AS.

Other than on the internet I do not know any other AC's other than that my
pyscologist is trying to start a group locally. I do not feel that I belong
to the NT world anyhow. People in the Autism NG's have helped me more than
anything to understand my autism and there is one regular poster in
particular I feel especially grateful to.

BTW your english is very good, far better than my knowledge of any foreign
language.

Larry


Ayelet <aye...@newmail.net> wrote in message

news:80k00f$3j6$1...@news.netvision.net.il...

Ayelet

unread,
Nov 17, 1999, 3:00:00 AM11/17/99
to
Larry,

I think you are right, and that's what I tried to say that I think so.
I know I'm mild. I know my boyfriend is mild.

I have a mild AS boyfriend, (higher functioning from me,) who doesn't want
me to say to much about him, so i respect his request, but I can say I love
him.
I write for many time to a very smart and wise Autistic person (AS / HFA
person) that is not from this list - and he helps me very much. actually, I
think he seems milder than me, when I think about It. but I can't be sure of
It just from e-mails. It's shallow. I can't say who is that person because
It might be unkind to do It - I don't know If he would agree. I never saw
him face to face. I never saw other at the high functioning end of the
Autism spectrum face to face other than me and my boyfriend. I saw LFA, or
people that are Autistic and look like LFA. (I know It's hard to measure.)
And I know other kind persons from the list, ACs and NTs. basically this NG
is full of good people.

Generally the Autistic person here helped me more than the NTs, but some NTs
helped (or tried to help) me also and was very kind to me.
Generally the Autistic person understood me better, and said more things (I
meant more frequently said things) that made me feel better somehow. Some of
the NTs said such things also.

Thank you.
But English is a language that should be known by most of the people, while
consider as an (or even the) accepted (and standard) international language,
that open the ability to communicate with most of the world in one language.
(BTW, why not Chinize instead of English?) It's a state that build Itself.
and It should be so from the point that the standard was "aproved".
Esperanto was not SO succeeded as such language, and (off course) Hebrew is
totally not.
And my English is still bad relatively to what It should be as an ( / the)
accepted standard international language.

--
Ayelet.


Larry Arnold <La...@larry-arnold.com> כתב בהודעה לקבוצת

דיון:80l0si$a51$1...@lure.pipex.net...

Amylee

unread,
Nov 17, 1999, 3:00:00 AM11/17/99
to

Ayelet <aye...@newmail.net> wrote in message
> Generally the Autistic person here helped me more than the NTs, but some
NTs
> helped (or tried to help) me also and was very kind to me.
> Generally the Autistic person understood me better, and said more things
(I
> meant more frequently said things) that made me feel better somehow. Some
of
> the NTs said such things also.

Sometimes I feel this way also. I think the autistics here help fill in the
gaps on what my son thinks, and some small glimpse into the future. So I
would have to say the same thing. I think that is because the autistics know
how you feel but the NTs want to feel compassion or to try to know how you
feel. I have seen more fights with nt and autistic and between two or more
nt's. Has there been any between two autistics?

> But English is a language that should be known by most of the people,
while
> consider as an (or even the) accepted (and standard) international
language,
> that open the ability to communicate with most of the world in one
language.
> (BTW, why not Chinize instead of English?)

I have my own theory on this. I use to think because of the number of
population being higher on the english speaking side, I no longer think
that. If you look at most people who have english as a primary language
there hardly is a second language. In Arizona most people that I knew spoke
spanish were taught that as their first language and then learned english in
school or another enviornment. English also has its language in several
roots (where a word is made from another word i.e. latin). By the way your
english is not bad. Did you learn or start to learn at a young age?

Ayelet

unread,
Nov 19, 1999, 3:00:00 AM11/19/99
to
Amylee,

You may be right,
Except in one thing: me and my boyfriend, two mild AS, were fighting. (not
physically.)
In the list I don't want and don't mean to fight with anyone else, and
unlike face to face interaction, I have time to think about what I say. and
to try "listen" to others. I'm not so tauchy by things that usually hurt
others, but when I'm hurt you better not be near me... (I don't hit others
physically, but still this sentence is true.) In those 2 NGs I still wasn't
really hurt, (althought I was overloaded) and I hope I didn't hurt anybody
else. I really tried to not.
But you are still right. and I know that I feel more comfortble with HFA /
AS persons than with NTs.
(Althought I still feel the non belonging feeling. I still think that I'm
closer to the Autistic than to the NTs. althought I'm not sure I'm really
fit in this group also. It's confussing me.)

I know that English is not the first language, from the quentity(?) aspect.
(the number of people who talk each as their first language.)
I have some speculations:
Maybe the number of people who know English at any communicative is the
highest relatively to the other languages. English is taugh as a second
language in many places, and other people also wants NOW to learn It,
because It's NOW such language. so NOW there are a lot of people that know
English at a communication degree. maybe more than in the other languages.
So maybe NOW It's the first spoken (not necessarily as a first!) language. I
don't know If It's true and I don't know why. why the same procedur wasn't
happened to the chinize? maybe It's also related to the alpha - bet. or
maybe because It's more in some (more than 1,200,000,000 people, I think)
cloased countries. small in number of countries (NOT of people!!!), and that
were comonistic and closed to the western. the ltin alpha - bet is common
and easy to learn (also with another accented letters, but still,) not only
in countries that spokes English as their first official language, and the
English speakers are not from some closed and small places, and many people
from the developed countries tend to travel and to communicate with other
people outside their countries from many countries. the internet is still
controlled with English speakers (mainly from developed countries), and that
is a both reason and cause. many non English speaker countries already
"heard about English" as a learned language, and that is a both cause and
effect. there are countries like canada that have two languages that one of
them English. and such things.

I started learning English, involuntarily, at 4th class, as the kids in
Israel do, and I didn't liked It. I was pretty bad in English.
I learned 3 non academical courses of reading comprehension in the
university, passed them with my methode of writing the meanings in my
language, (a bad methode...) and they didn't help. I needed to write the
word's meaning above any word in a text, and then read the Hebrew that I
wrote, otherwise I couldn't understand and remember what I read at all. even
in this methode, I couldn't read even a half of a regular page.

Then I discovered the Internet when I went to my boyfriend's home, maybe
obout one or two years ago, I don't know, and started to understand what I
read. It was like a miracle. I so liked It that I learned It voluntarily in
myself. I already knew the basics (of understanding the writen language,)
before, but couldn't use them from an unknown reason. (I still have some
problems. some of them because of the non native language, and some of them
because of other difficulties in learning styles and taking things too
literally sometimes.)
I have an atraction to computers and to the internet. (no, I'm not an
expert.)

From the writing aspect, I have many spelling and grammar mistakes, my
vocabulary is limited and my expression is awfull and disorganized.
My English is not good at all.
Althought I can say you are not the only one whho said that It's better than
I thought.

Thank you,

--
Ayelet.


Amylee <MOM...@prodigy.net> כתב בהודעה לקבוצת
דיון:80u9p8$1ths$1...@newssvr03-int.news.prodigy.com...

0 new messages