Wondering where everyone is at with Biliary Atresia?

[dou...@gmail.com]

Have you had the Kasai procedure?
Have you had to have a transplant?
How far along are you - a couple of months or years.

Feel free to make a page, or start any kind of discussion.

[tforbey]

Hi Doug,

Thanks for the invite via the yahoo group.

My son Isaiah had the Kasai on Monday July 28.
Today Saturday Aug 2nd, he finally got his drain out.
He was 3 weeks early and jaudice at birth. Had 3 days of phototherapy,
causing indirect bili to go down, direct was still elevated. Direct
did go down, he had normal colored stools until 3 weeks old, stools
went pale yellow. At month checkup, direct elevated and was sent to
Dupont Children's Hospital. Had Hida scan (gallbladder not easily
visualized), us of abd and liver. All roads were pointed to BA, but
not definitely until they operated.