Arts For Autism - Corporate Sponsorship Team Meeting

Kelly Hughes-Gorman

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Sep 28, 2015, 3:23:50 PM9/28/15

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Jennifer Ann Brown

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Sep 28, 2015, 3:41:13 PM9/28/15

to Kelly Hughes-Gorman, arts-fo...@googlegroups.com

Hi Kelly! I'm an Android so this won't let me open it!
Can you please resend the information?
Thank you!
Jen

On Mon, Sep 28, 2015, 3:23 PM Kelly Hughes-Gorman <kellyarts...@gmail.com> wrote:

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Jennifer A. Brown
410.340.8808

Elizabeth Roy

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Sep 28, 2015, 3:44:10 PM9/28/15

to Jennifer Ann Brown, Kelly Hughes-Gorman, ASNV Arts for Autism

Hi Jen,

The Arts committee will be meeting Tuesday, October 6, at 7pm to discuss corporate sponsorship outreach and a few other items that we want to get a head start on. Hope you can make it!

Elizabeth

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Elizabeth Roy

Development & Communications Associate

Autism Society of Northern Virginia

(571) 328-5792

devel...@asnv.org

Don Shipley

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Sep 28, 2015, 3:47:35 PM9/28/15

to Elizabeth Roy, Jennifer Ann Brown, Kelly Hughes-Gorman, ASNV Arts for Autism

I can make it.

Don Shipley

Shipley Communications LLC

www.shipleyconsulting.com
571/212-7492

Kelly Hughes-Gorman

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Sep 28, 2015, 6:16:22 PM9/28/15

to Don Shipley, Elizabeth Roy, Jennifer Ann Brown, ASNV Arts for Autism

Thanks Don!

Courtney Fulmer

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Sep 29, 2015, 9:56:58 AM9/29/15

to Kelly Hughes-Gorman, Don Shipley, Elizabeth Roy, Jennifer Ann Brown, ASNV Arts for Autism

I’m sorry I have another commitment that night.

Kelly Hughes-Gorman

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Sep 29, 2015, 9:16:41 PM9/29/15

to Courtney Fulmer, Don Shipley, Elizabeth Roy, Jennifer Ann Brown, ASNV Arts for Autism

Hi Courtney,

Thanks for your response – we understand!

Would you like to be involved in trying to help ASNV capture corporate sponsorships? Please let us know and then we can talk after the meeting.

Take care.

Kelly

Paola Quiroz

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Sep 29, 2015, 9:44:17 PM9/29/15

to Kelly Hughes-Gorman, Courtney Fulmer, Don Shipley, Elizabeth Roy, Jennifer Ann Brown, ASNV Arts for Autism

Hi Kelly and friends,

I can attend and look forward to seeing everyone.

Best wishes,

Paola

Victoria Mechlin

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Sep 30, 2015, 9:00:25 AM9/30/15

to Kelly Hughes-Gorman, Courtney Fulmer, Don Shipley, Elizabeth Roy, Jennifer Ann Brown, ASNV Arts for Autism

Dear Arts for Autism Committee,

I wanted to let you all know that thanks to the support of the ASNV community and my Guardian Angel Sarah Peterson, little Sebastian Mechlin today met his new nursing assistant Lisa. Lisa is part of the EDCD state agency system. She will be working with my family as full-time as a carer for Sebastian.

If it hadn't been for Sarah's coaching, encouragement and loving devotion to the true mission that ASNV is all about, this never wouldn't have happened!!!! Last year, I was told twice by Medicaid and the EDCD waiver folks that Sebastian did not qualify for assistance. Even though Seb was having daily seizures and passing out in random locations (at Giant, the car, in school, in the middle of the road, at Tysons Corner Mall), no one heard us!! No one except Sarah. She helped me build a case to demonstrate to the government drones of the county that Seb did indeed qualify. Completely!

And now I am happy to report - a year later - that Sebastian is registered on Medicaid - under the long-term care category. This means that no matter what happens to anyone else in his family, Sebastian will not be ignored. He now has a one-to-one in home nurse to help manage his health and well being. Now our little guy can just be his happy, gentle self and be able to live life safer and with far less tension around him. He can just be a boy. And our time with him will be so much more enjoyable.

Meanwhile, the rest of my family, is keenly aware that our lives are about to completely change for the better. Four year old Steffie will finally see what it's like to have outings with her parents, regular kid activities and all the things mainstream children get to experience, without the constant limitations and interruptions she has experienced thus far. Although it might take him awhile, 18 year old Maximilian will get used to not having to play the role of third parent to his little brother - Max matured faster than we would have liked because he always felt responsible for joining the adults in the responsibility of caring for a special needs member of the family. It is our hope that Max will soon learn to let ago a little and concentrate instead on just being a young adult and new college student. And of course, Robert and I are beginning to exhale a bit, at the prospect of being more relaxed as a couple and more focused parents. We have been living in a state of emergency and high tension for so long now, that we can only wonder what it will look like to stop waiting for the other shoe to drop, every second, and just starting LIVING!

I just need a bit of time to get grounded with this enormous life change- but please know that I really want to be part of Arts for Autism this year, in some way - not sure how just yet.

God Bless You All ! I look forward to seeing all of you soon.

Kindest Regards,

Vix Mechlin

Sarah Peterson

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Sep 30, 2015, 11:27:09 AM9/30/15

to Victoria Mechlin, Kelly Hughes-Gorman, Courtney Fulmer, Don Shipley, Elizabeth Roy, Jennifer Ann Brown, ASNV Arts for Autism

Victoria,

I am so happy for you. Thank you for your kind words, though I think you deserve most of the credit. It was your persistence and perseverance that got Sebastian the help that he needs. Good luck with your new nurse! I'm glad you'll be joining us again for Arts, but I'm mostly overjoyed that you are going to have some help on a regular basis and that you and the other members of your family can find ways to meet your own needs instead of being constantly on the edge of emergency. Congratulations! Thank you! and sending *BIG HUGS*! I am so happy for you.

Best,

Sarah

Sarah Peterson | Executive Director

Autism Society of Northern Virginia

*** Please note our new address and update your contact info. ***

10467 White Granite Dr. #324

Oakton, VA 22124

Office: 703-495-8444 | Desk: 571-328-5793 | Cell: 571-402-2804

fax: 703-563-6099 | www.asnv.org

Autism Awareness * Acceptance * Appreciation

Please consider designating ASNV for United Way # 8095 and/or Combined Federal Campaign (CFC) # 33589. Thank YOU!

This message may contain confidential information and is intended only for the individual named. If you are not the named addressee you should not disseminate, distribute or copy this e-mail. Please notify the sender immediately by e-mail if you have received this e-mail by mistake and delete this e-mail from your system.

Kelly Hughes-Gorman

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Oct 1, 2015, 12:52:02 PM10/1/15

to Paola Quiroz, Courtney Fulmer, Don Shipley, Elizabeth Roy, Jennifer Ann Brown, ASNV Arts for Autism

Thanks Paola – look forward to seeing you too!

Kelly

Kelly Hughes-Gorman

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Oct 1, 2015, 12:58:34 PM10/1/15

to Victoria Mechlin, Courtney Fulmer, Don Shipley, Elizabeth Roy, Jennifer Ann Brown, ASNV Arts for Autism

Hi Vix,

I am so happy for you and your family – that’s wonderful news!!!

Thank you for reaching out and telling your story – it is so inspirational. also very happy that you want to be involved in next year’s Gala – it will be fun. I called you a couple of days ago, but take your time responding I understand.