Would love to talk with others who might have daughters who have been
diagnosed with Turner Syndrome and offer any advice I can of talk with
women who have had similar experiences to mine.
I have tried the chat group estblished by the Turner Syndrome Society
and either 1--no one was in it and 2- I found it very user unfriendly.
This is why I am propsoing starting an informal chat session. If you are
interested in organizing a more informal chat session e-mail me at
DFost...@aol.com so we can establish a time a place (probably in a
private room through people connection on America Online)
Looking forward to hearing from you.
I also want to thank all the parents who encouraged me to go with my
feelings and change Dr's. Just having your support made all the
difference. By the way her new Dr. is seeing her every 3-4 months and
adjusting her RX as she grows whereas the first Dr. saw her every 6 months
and left her on the same dosage for the first year. Brita is also more
comfortable with Dr. # 2 and she is only an hour away!. I am very glad to
get out of the teaching hospital atmosphere also. Her new Dr. trained
under Dr. #1 so there is a link to that facility if needed!
Thanks you all for always being willing to share information and offer