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Rosie
Dec 11, 2013, 4:00:20 PM12/11/13
to
I've had tinnitus for 6/7 months now. It started soft and infrequent, and
gradually
cranked up, till it became constant. loud and distressing. Now I've read up
a bit more on it,
I'm coming to terms with it a little bit. First couple of months I was in
tears almost
every day. Six months in and I forget about it for an hour or two every day,
so I figure that's pretty good progress from what I've read on the internet
(and I've read
a lot!) I don't feel quite so despairing any more. Needless to say, I'd
still probably pay
a lot of money even just for five minutes of the silence I enjoyed for 50
years, and took
for granted.
It was a double whammy really, because I've always been comfortable in my
own
company, especially at the end of the day - quietly listening to a play on
the radio as
I wade through a day's worth of washing up and kitchen mess, and then
reading at
the kitchen table for an hour, in a velvet and joyous silence, whilst the
family
are abed and sleeping. It was 'my' time.
An enjoyable and calming time that refreshed me for the rigours and
challenges of the
next day. My eldest daughter has learning difficulties, so the challenges
are manifold.
And it has been RUINED! By the tinnitus.
I now sit and read to the accompaniment of 5,000 crickets chirruping in my
left ear.
The silence has gone. The joy has gone. It's not relaxing. It's stressfull.
So it's quite a big issue for me really. Never listened to loud music or had
a noisy
job. No idea where it came from or why it came. Just my age, I think.
Came across this newsgroup, was disappointed to see that it's not highly
inhabited,
but it SHOULD be. I can imagine that if someone new looks in they might see
that there are not many posts, and so they might not bother posting their
own
story (Like I almost didn't) But it's a really very important issue to ME,
and I am
in no doubt that there are fellow 'sufferers' that might pop in and then
just pop out
again when they see that there is not much activity here.
Well I thought it extremely important, that I should leave this message
here, to encourage
anybody who has read thus far, to throw caution to the wind and post their
own story
or experience. We need to share. Sharing lessens the burden. It really does!
I don't knit my own muesli sandals, I'm not a social worker, I'm not here to
do my
bit for society. I just know the distress that tinnitus can cause, because I
have it myself
and it's pretty awful and I need some support, and I WANT to support others
who
are only halfway to where I am now.
So anybody reading thus far. Fess up? Help this tinnitus support forum to
do what it
says on the tin? Tell your story. Tell us if it went away eventually, or if
you've suffered it
for 30 years and it's still driving you nuts.
We will never know, if nobody goes out of their way to tell us.
And I, for one, want to know!
Rosie
gradually
cranked up, till it became constant. loud and distressing. Now I've read up
a bit more on it,
I'm coming to terms with it a little bit. First couple of months I was in
tears almost
every day. Six months in and I forget about it for an hour or two every day,
so I figure that's pretty good progress from what I've read on the internet
(and I've read
a lot!) I don't feel quite so despairing any more. Needless to say, I'd
still probably pay
a lot of money even just for five minutes of the silence I enjoyed for 50
years, and took
for granted.
It was a double whammy really, because I've always been comfortable in my
own
company, especially at the end of the day - quietly listening to a play on
the radio as
I wade through a day's worth of washing up and kitchen mess, and then
reading at
the kitchen table for an hour, in a velvet and joyous silence, whilst the
family
are abed and sleeping. It was 'my' time.
An enjoyable and calming time that refreshed me for the rigours and
challenges of the
next day. My eldest daughter has learning difficulties, so the challenges
are manifold.
And it has been RUINED! By the tinnitus.
I now sit and read to the accompaniment of 5,000 crickets chirruping in my
left ear.
The silence has gone. The joy has gone. It's not relaxing. It's stressfull.
So it's quite a big issue for me really. Never listened to loud music or had
a noisy
job. No idea where it came from or why it came. Just my age, I think.
Came across this newsgroup, was disappointed to see that it's not highly
inhabited,
but it SHOULD be. I can imagine that if someone new looks in they might see
that there are not many posts, and so they might not bother posting their
own
story (Like I almost didn't) But it's a really very important issue to ME,
and I am
in no doubt that there are fellow 'sufferers' that might pop in and then
just pop out
again when they see that there is not much activity here.
Well I thought it extremely important, that I should leave this message
here, to encourage
anybody who has read thus far, to throw caution to the wind and post their
own story
or experience. We need to share. Sharing lessens the burden. It really does!
I don't knit my own muesli sandals, I'm not a social worker, I'm not here to
do my
bit for society. I just know the distress that tinnitus can cause, because I
have it myself
and it's pretty awful and I need some support, and I WANT to support others
who
are only halfway to where I am now.
So anybody reading thus far. Fess up? Help this tinnitus support forum to
do what it
says on the tin? Tell your story. Tell us if it went away eventually, or if
you've suffered it
for 30 years and it's still driving you nuts.
We will never know, if nobody goes out of their way to tell us.
And I, for one, want to know!
Rosie
BP
Dec 12, 2013, 11:36:27 AM12/12/13
to
Rosie explained on 12/11/2013 :
ago and found this site. It was then fairly active and populated with a
number of doctors, audiologists and others who would explain the
condition, sympathize, and offer suggestions. Other "ordinary" people
would just be supportive of each other. But no one could offer a real
cure - only the future possibility of habituation. Then came the
trolls and scammers. Some may have been driven by the frustration.
They (I guess all of us) wanted a cure and in its absence they'd look
to any suggestion - which the trolls, scammers and people who just
wanted it to be so would offer. The scientific types were said to be
merely seeking clients, hiding "truths," etc. - and were "driven" from
teh group. This, that or the other supplement was held out as a "cure,"
or this that doctor in Isreal or elsewhere was said to have cured it
(but the power-that-be were suppressing the knowledge). Those who
questioned the new orthodoxy were attacked. In due course the group
became very unplesant and I stopped visiting. That was years ago.
I've I've only recently started to periodically revisit the group. I
don't know when the change to it's current state happened, but it would
seen that the trolls have moved on and there is a chance the group can
be rediscovered.
I've gotten used to the tinnitus. I usually notice it only when I
listen for it or in a few other instances. I miss the absolute quiet
I'd experience when I'd go on the patio during a new, heavy snow and
just watch those heavy flakes fall - but I can go to sleep or walk,
whatever the time of year, to the relaxing sound of cicadas. In the
early years I learned the pleasure of a shower (I couldn't hear any
tinnitus there) or a dentist visit (the water and vacum noises in the
office masked the tinnitus). It's taught patience - the person I'm
talking to may not know they have to talk over the sound of a 747 that
is in my head - and I may not have correctly heard them. I've learned
the wonders of an mp3 player and good music and of white noise on the
radio as I go to sleep. And it's taught me to relax - if I'm rested and
the stresses of daily life are reasonable under control - or at least
in perspective - it's not so noticible. But mostly, I've learned the
tinitus is an annoyance only. It won't hurt me and with that
realization it has - not disappeared - become less intrusive.
Peter Perros
Dec 20, 2013, 5:21:25 PM12/20/13
to
Same experience similar thoughts. I got it during a period of high
stress and sinusitus combined. November 2010. I was there on my first
ever trip to New York (from Australia).
I have only one "ear" or auditory nerve affected though the other
"ear" whistles briefly, but seems to respond to relaxation training
(I'm a psychologist) . The noise is actually due to middle ear damage
and is being generated by the auditory and non-auditory centres of the
brain. It's as if the noise is there to provide balance to the
auditory system because of damage to auditory pathway that we don't
fully understand.
As an aside there is some research work with transcranial magnetic
stumulation that looks promising. TMS uses magnetic fields to quieten
focal parts of the brain. The effects are temporary. Check out
http://www.tmsneuro.com/neurohealth/transcranial-magnetic-stimulation-a-breakthrough-treatment-for-migraine-relief/
At least this treatment has some empirical scientific support. But it
is far from a cure.
Perhaps most importantly, it's good to see some action on this list.
It serves a very important function. And I also agree with the
comments about scams.
On Thu, 12 Dec 2013 11:36:27 -0500, BP <brcph...@hotmail.com>
wrote:
stress and sinusitus combined. November 2010. I was there on my first
ever trip to New York (from Australia).
I have only one "ear" or auditory nerve affected though the other
"ear" whistles briefly, but seems to respond to relaxation training
(I'm a psychologist) . The noise is actually due to middle ear damage
and is being generated by the auditory and non-auditory centres of the
brain. It's as if the noise is there to provide balance to the
auditory system because of damage to auditory pathway that we don't
fully understand.
As an aside there is some research work with transcranial magnetic
stumulation that looks promising. TMS uses magnetic fields to quieten
focal parts of the brain. The effects are temporary. Check out
http://www.tmsneuro.com/neurohealth/transcranial-magnetic-stimulation-a-breakthrough-treatment-for-migraine-relief/
At least this treatment has some empirical scientific support. But it
is far from a cure.
Perhaps most importantly, it's good to see some action on this list.
It serves a very important function. And I also agree with the
comments about scams.
On Thu, 12 Dec 2013 11:36:27 -0500, BP <brcph...@hotmail.com>
wrote:
rosie
Jan 21, 2014, 7:33:53 PM1/21/14
to
"BP" wrote in message news:mn.62b87ddc71...@hotmail.com...
>I've gotten used to the tinnitus. I usually notice it only when I listen
>for it or in a few other instances. I miss the absolute quiet I'd
>experience when I'd go on the patio during a new, heavy snow and just watch
>those heavy flakes fall - but I can go to sleep or walk, whatever the time
>of year, to the relaxing sound of cicadas.
shortly
after I sent my post. I'm just in the process of setting up a brand spanking
new one,
and it's taking some time.
I forget my tinnitus sometimes, when I'm concentrating, or writing.
Unless I'm writing about tinnitus, I've discovered!
I'll pop in here on a regular basis in future, and see what develops.
Rosie
rosie
Jan 21, 2014, 7:37:10 PM1/21/14
to
"Peter Perros" wrote in message
news:ote9b99gaeha2i5gs...@4ax.com...
>Perhaps most importantly, it's good to see some action on this list.
>It serves a very important function. And I also agree with the
>comments about scams.
community here.
Rosie
scub...@gmail.com
Apr 24, 2017, 7:45:37 PM4/24/17
to
Just found this forum. Lost essentially all hearing in my left ear Christmas Eve, replaced by tinnitus that gets louder under exercise, stress, or concentration. I am having a real, real hard time coping. Seeing a specialist Thursday, but have little hope. Just glad to find a space where others understand. Take care and hang in there, all.
Slim Shady
Jun 27, 2017, 4:00:23 PM6/27/17
to
On 2017-04-25 01:45, scub...@gmail.com wrote:
> Just found this forum. Lost essentially all hearing in my left ear Christmas Eve, replaced by tinnitus that gets louder under exercise, stress, or concentration. I am having a real, real hard time coping. Seeing a specialist Thursday, but have little hope. Just glad to find a space where others understand. Take care and hang in there, all.
>
For best possible tinnitus support experience, please visit Tinnitus
> Just found this forum. Lost essentially all hearing in my left ear Christmas Eve, replaced by tinnitus that gets louder under exercise, stress, or concentration. I am having a real, real hard time coping. Seeing a specialist Thursday, but have little hope. Just glad to find a space where others understand. Take care and hang in there, all.
>
Talk web forum:
https://www.tinnitustalk.com/
It's the best and the biggest tinnitus support forum on the Internet.
It's completely run by tinnitus patients and volunteers.
Slim Shady
Jun 27, 2017, 4:04:59 PM6/27/17
to
On 2017-04-25 01:45, scub...@gmail.com wrote:
> Just found this forum. Lost essentially all hearing in my left ear Christmas Eve, replaced by tinnitus that gets louder under exercise, stress, or concentration. I am having a real, real hard time coping. Seeing a specialist Thursday, but have little hope. Just glad to find a space where others understand. Take care and hang in there, all.
>
For the latest information on treatment and research into inner ear
>
disorders, be sure to visit this site:
https://cochlearpro.com/
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