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need California doctor recommendation

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Mary MacTavish

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Feb 3, 2001, 3:13:23 PM2/3/01
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I've got (most likely) severe (probable) osteoarthritis in my knees,
and mild OA in my wrists, probably due to rather atypically
"symptomatic" thyroid disease -- Hashimoto's thyroid disease,
specifically.

Though my energy and mental acuity are improving, the pain in my knees
and hands gets worse, and my skin's getting nasty and dry. It's always
been dryish, and I've always had some eczema, but it's getting much
much worse, and lubrication, which used to help a lot, is just giving
me itchy temporarily-moist skin, rather than itchy dry skin.

I'm also starting to develop stabbing pains in my muscles and around
my ligaments. Aches and pains and sore joints aren't uncommon with
Hashi's, but my doctor, though he knew to get my TSH well below 2, is
kind of a numbers guy. I'm at 0.79 now, which is great, except that my
symptoms persist. He thinks a combination of Synthroid (I'm on 175
mcg/day now) and symptom relief such as Lubriderm and Arthrotec is the
perfect regimen for me indefinitely.

I'd like to try to either add Cytomel, or switch to Armour, to see if
my physical symptoms improve. I don't see the point of symptom relief
if there's an opportunity to treat their *cause*.

So the upshot of this is that I'm shopping for a new doctor in the San
Francisco Bay Area. Ultimately, I'll need someone my insurance covers,
but I'll do that research myself. Any recommendations for docs who are
experienced in treating the physical symptoms, rather than just the
TSH results, of Hashimoto's thyroid disease are welcome.

Replies on the newsgroup are fine, or email ir...@prado.com if you'd
rather keep it off usenet.

Thanks :)

.
Mary MacTavish
http://www.prado.com/~iris

Maureen Richardson

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Feb 3, 2001, 6:50:45 PM2/3/01
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Get them to rule out DISH Mary for the pains in ligaments etc. Best wishes
Maureen
"Mary MacTavish" <ma...@removeleftoftheWwrexham.net> wrote in message
news:3a816497....@nntp3.tsoft.net...

Mary MacTavish

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Feb 3, 2001, 7:54:34 PM2/3/01
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On Sat, 3 Feb 2001 23:50:45 -0000, "Maureen Richardson"
<mau...@mo-mentum.fsnet.co.uk> said:

>Get them to rule out DISH Mary for the pains in ligaments etc. Best wishes

Thanks ... but what's DISH?

Maureen Richardson

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Feb 3, 2001, 8:25:03 PM2/3/01
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Its a rare disorder - you hopefully and proably won't have. But it stands
for Diffuse Idiopathic Skeletal Hyperostosis. It was discovered in 1948 and
name Forestiers Disease after one of the docs who 'found' it. However it is
not a modern day disease. Basically it was reclassified after it was decided
that part of the diagnoisis must be at least four vertebro on the upper
thoracic spine fuse and you get giant osteophytes building up eventually
causing a hump which also veers more to the right side. In addition it can
calcify and ossify tendons, muscles and ligaments especially at joint sites.
You can be asymptomatic or have stiffness and pain - theres no cause and no
cure ...but its suspected to be a gene and may well be metabolic/hormonal
with some link or preponderance to having Diabetes Mellatus though not all
Dish sufferes go on to develop this. It can co-exist with other illnesses
(in my case with OA VBI(thats Vertebro Basilar Artery Insuffiiciency and as
well as this the dish 'hump' building up and dish in my beck too compound
the problem with slight compression) and Sjorgrens.
Many people don't get any signs (on X Rays) of Dish until they are in their
70s and its much more prevalent in men than women. I am 57 and have had
this disease for many years maybe as long as I have had my OA. Its hard to
tell at time which is causing the chronic and sometimes acute pain.

It may not be as rare as they think. It may not be looked for even known
about. Its thought that about 22% of people are bone formers. Of these a
far smaller percentage will develop dish.

It is just a possible outside chance that it might be what is affecting your
ligaments. If it is then I would think it would be showing on X Rays -
often as sharply defined bone growth and as fuzzy looking clusters of white
where bone is formed and can seem like dripping candlewax has cooled.

Anyway Mary if your consultant hasn't heard of it he can look it up though
there are not many good sites . One of the leading authorities is Donald
Resnick who is the main musculo-skeletal radiologist at the verts hospital
in San Diego and he has written about it.

(((Mary)))I hope that you won't have DISH and that you get the help you
deserve and may be more comfortable and less limited etc. let me know how
you get along when you can please. Maureen Nottingham UK


"Mary MacTavish" <ma...@removeleftoftheWwrexham.net> wrote in message

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cyli...@my-deja.com

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Feb 3, 2001, 10:13:11 PM2/3/01
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In article <3a816497....@nntp3.tsoft.net>,
Mary,

I don't live in California, so I don't have a doctor's name. For the
dry itchiness, you may want to check out a website at
www.johnsonemu.com. They have some wonderful natural creams that I
find to be better than lubriderm in terms of the itchiness, thyroid
issues, and even seems to soothe some of the pain and stiffness--not a
cure-all but makes life more comfortable.

Sent via Deja.com
http://www.deja.com/

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