TSH Dropped like a rock
Rahn
16 a year ago when I was put on Levo 50. At that time I was feeling like
death and really ready to die. I had to go off levo for a few months to do
a nuclear uptake exam. That exam was clear and I went gradually up to 150
of levo. Now after a few months at levo 150 I feel really good. I lost 50
lbs since oct 08. Since then I've been lifting weights and running about 1-
2 miles a day. Can't say I feel bad at all except the occasional power nap
of no more than 10 minutes a day. My last blood test shows a TSH of
.009!!!! My concern is my doc will want to decrease my levo and I don't
want to since I feel I'm optimal at 150. I need some good arguments,
please!
--
Rahn
Rodney Pont
>Docs made me aware of my hypo situation for over a year. My TSH was about
>16 a year ago when I was put on Levo 50. At that time I was feeling like
>death and really ready to die. I had to go off levo for a few months to do
>a nuclear uptake exam. That exam was clear and I went gradually up to 150
>of levo. Now after a few months at levo 150 I feel really good. I lost 50
>lbs since oct 08. Since then I've been lifting weights and running about 1-
>2 miles a day. Can't say I feel bad at all except the occasional power nap
>of no more than 10 minutes a day. My last blood test shows a TSH of
>..009!!!! My concern is my doc will want to decrease my levo and I don't
>want to since I feel I'm optimal at 150. I need some good arguments,
>please!
TSH should drop when you are taking Levothyroxine. TSH goes high when
you do not have sufficient hormone and lowers when you have more. Your
Doc is more likely to want to drop your Levo, he/she certainly won't
want to increase it.
--
Regards - Rodney Pont
The from address exists but is mostly dumped,
please send any emails to the address below
e-mail ngpsm4 (at) infohitsystems (dot) ltd (dot) uk
RMD
I would ask for your Free T4 to be tested.
Many find they have a low TSH but only a mid-range Free T4.
I set my thyroxine dose by my Free T4.
I've found by experience that I need my Free T4 to be 18-24 in an
allowable Free T4 range of 9-25.
My TSH has varied from 0.001 to 0.6 for my Free T4 to be in my "sweet
spot" range. For me TSH is not a good indicator for thyroxine dosage.
Many are like me.
Ross
Alan B. Mac Farlane
wrote on 1/15/09 7:21 PM:
> My last blood test shows a TSH of
> .009!!!! My concern is my doc will want to decrease my levo and I don't
> want to since I feel I'm optimal at 150. I need some good arguments,
> please!
>
>
> --
> Rahn
\
Dear Rahn ...
Please consider that you have other problems then just a 'concern' .. being
'worried' ... or future 'mind foxing' about things that have not happened as
you are a drug addict.
I feel good with what I got and I want to keep it and I want to argue my MD
down as my body weight image thingy is back on par for my mirror work of
narcissism. (narcisis fell in love with his image thinking he was hot shit,
and every one thought he was the fairest one of all .. .even killed his
brother to get the beauty prize ... it is that toddler tantrum stuff from
childhood not handled well).
Sooooo ... if you have gotten this far in the missive.
What this is all about ... is me trying to get you to bark up another
medical tree to get what you want.
Right now you want to fight your doctor ... argue with him ... pre-emptively
strike agaist the medical profile that you fear is happening.
Well that fear is the problem.
That fear is coming from your toddler tantrum that was not handled correctly
in your childhood.
That fear is what is killing you .. it is foxing up your thyroid condition
.. and you are going to grave faster and in a more ugly way.
Go fix that fear ... have the love burn though it.
Now .. with this last sentence about about love ... that is the door to go
though ... and that is where you have to do some learning.
If what I have written here interests you .. .then do some more reading.
Google me up and read.
If what I have said here ... well just turns you off and you are not
interested at all ... toss this away and keep doing what you are doing.
You will keep getting the same results you always got thinking it will turn
out differently.
Jonestown koolaid is made of such things.
All hail President Obamabush and his transparent change - ka-ching,
ka-ching, ka-ching for him and his Bush buddies.
sumbuddie wear blind sea
:)
kgrh...@alum.mit.edu
I'd suggest you have free-T4 and Total-T3 measured, first thing in the
morning
BEFORE taking your thyroid dose. So long as those numbers are BOTH
in range, TSH being suppressed can be ignored.
You may find free-T4 out of range HIGH, and Total-T3 out of range LOW
or
just barely in range but very low. That is common on T4 only
replacement.
The doctor should NOT base dosing decisions on TSH alone. While that
is taught as 'standard practice" it is based on UNTESTED assumptions.
Setting dose by TSH was NEVER TESTED. Let alone proven to work.
Setting dose by TSH seems to work for some people. IT CLEARLY
DOES NOT WORK FOR OTHERS. Do not let your doctor use
just TSH to set dose. If your doctor refuses to use free-T4 and
Total-T3 as part of his input for decision making, then RUN to
another doctor.
MHOO -- YMMV
disclaimer - my doctorate is in engineering NOT MEDICINE
Rhonda Lea Kirk Fries
Kevin, have you read this:
http://thyroid.about.com/od/relatedconditions1/a/alzheimers.htm
I haven't read the study, just the synopsis, so I have no idea what, if
anything, has been lost in translation.
I find it odd, however, that this doesn't seem to affect men.
> Setting dose by TSH seems to work for some people. IT CLEARLY
> DOES NOT WORK FOR OTHERS. Do not let your doctor use
> just TSH to set dose. If your doctor refuses to use free-T4 and
> Total-T3 as part of his input for decision making, then RUN to
> another doctor.
>
> MHOO -- YMMV
> disclaimer - my doctorate is in engineering NOT MEDICINE
--
Rhonda Lea Kirk Fries
"You know you can indict a ham sandwich if you want to."
William J. Martini, Judge, United States District Court
Annie Woughman
"Rahn" <x...@xkjdfj.com> wrote in message
news:Xns9B94E3A0FD1...@127.0.0.1...
Don't argue with your doctor. I got off that merry-go-round a long time
ago. Just stop taking your levo three to four days before your test. That
way your TSH "numbers" will look good--high enough to satisfy the labs and
medical world that your aren't a raving hyper and let you stay at your
present dose. After you leave the lab, take your levo and get on with your
life.
Rod
Which might be OK if going off levo for a few days is bearable. Some
people seem to be able to without much of an issue; others suffer
dreadfully if they feel they are under by just a few micrograms!
--
Rod
Hypothyroidism is a seriously debilitating condition with an insidious
onset.
Although common it frequently goes undiagnosed.
<www.thyromind.info> <www.thyroiduk.org> <www.altsupportthyroid.org>
Annie Woughman
"Rod" <poly...@ntlworld.com> wrote in message
news:6teln2F...@mid.individual.net...
It really does save one a lot of grief in the long run if you only feel
right with a very low TSH. The doctors are not comfortable if your TSH is
almost completely suppressed, so they always insist on lowering your
dose--thus the merry-go-round of too small a dose and arguing with your
doctor, getting tested and retested, etc. Once you've found the best dose
for YOU, a few days of misery is so much easier, than the roller coaster
ride of constantly changing doses to please the doctors and the labs--not to
mention the cost and inconvenience. IMHO.
Rod
I don't for one minute suggest that isn't the case for you and some,
possibly many, others. However, I am utterly convinced that my partner
would be unable to do so. At most she might be able to shave a few
micrograms (say 12.5mcg) off her usual dose for a day or two. (Not
talking about feeling not quite so well. But seriously unable to function.)
We don't know why she is like this. It appears to be unusual to be quite
so extraordinarily sensitive to tiny changes - up or down.
--
Rod
kgrh...@alum.mit.edu
> Annie Woughman wrote:
>
> > "Rod" <polygo...@ntlworld.com> wrote in message
> >news:6teln2F...@mid.individual.net...
> >> Annie Woughman wrote:
>
> >>> "Rahn" <x...@xkjdfj.com> wrote in message
> >>>news:Xns9B94E3A0FD1...@127.0.0.1...
> >>>> Docs made me aware of my hypo situation for over a year. My TSH was
> >>>> about
We tried the go off for a few days. Didn't do much.
While arguing with your doctor is bad, lying to him/her is also bad.
And
playing with your dose to get a "good" TSH to satisfy a TSH-happy
doctor, well, it may be helpful in the short term, but there are other
issues.
If that approach works for you, and you are comfortable lying to your
doctor, I shan't try to convince you otherwise. However, it is
analogous
to light skin colored blacks "passing" (i.e., passing for white). It
gets
that person what they want. But it does nothing to advance the
interests
of the group. The more patients who make their doctors uncomfortable
about setting dose by TSH the more likely the medical community
will start dealing with it. As it is now, doctors spout "most
patients
find it adequate, you are a rare exception". Yeah, right, exception
in that we are willing to push back on inadequate medical care.
So, I agree with Rod, it is better to have the actual numbers in
your chart and a doctor who will dose you properly in spite of
low or suppressed TSH. If you can't get that, then there's
a choice. Our choice was to argue and switch doctors until
we found someone willing to work with us. But that IS a
lot of work. So I can see why someone could choose the
other option.
Best wishes
Kevin
[ Yes, I am back from Alaska and making noise again ...]