Thyroid Site Information + Other stuff LOTS OF IT .
ateas...@aol.com
I am posting this as I am sure Robert won't mind I know he is quite busy at the moment.
The following is a list of WEB related resources for thyroid related
illnesses. Please feel free to e-mail me resources I have missed, and I
will continue to try to improve this list.
The first place to look is at the ALT. SUPPORT. THYROID URL, so if your
browser can remember
http://www.geocities.com/Athens/3626
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Check out one of best personal pages I have seen. You have to scroll
down to the orbiting eyeballs to get the stories of people with Graves
Disease. The personal accounts are very useful to get a feel for the
range of effects this disease can have.
http://netnow.micron.net/~deecee/
This page also refers to other thyroid sites.
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The Thyroid Foundation of America has it's own home page now. You can
go straight to it by clicking on
Back issues of the BRIDGE, their news letter are online, as well as
links to other resources, including alt.support.thyroid, as well as a
list of local support groups in the united states and Canada!
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This is a Graves Disease Support page, featuring it's own bulletin board
(sort of a proprietary alt.support.thyroid news group and live online
IRC chat support groups. They also have information on Local Support
groups. A good place to begin.
support-group.com/links/graves/index.htm
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Some (gruesome) images of exophthalmos, digital clubbing, deratophy, and
onycholys (separation or loosening of a fingernail or toenail from its
nail bed). Part of a med student home page. These pictures change from
time to time.
http://www.medstudents.com.br/image/endoc/imagend.htm
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Mayo Graves' Disease Patient Information
http://www.mayo.edu/Mayo_Ophtho/Graves_info.html
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The Internet Doctor: Information for patients by Canadian Journal of
Continuing Medical Education.
http://amita.montrealnet.ca/netdoctor/cmethyroid.html
An overview of thyroid disease intended for distribution to paitents.
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1992-1993 THYROID CASES by County for the state of KY
http://web.kcr.uky.edu/ar93/thyr93.cnty.html
Not very usefull, but an excellent example of how the web can be used to
present information. Thyroid disease seems to be location related?
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Donald Gordon, M.D. has what looks to be a teaching module, with color
graphs, and color coded to identify which areas are for student,
resident or attending.
http://www.meddean.luc.edu/lumen/MedEd/medicine/endo/thyroid/thycont.htm
More related to the way the hormones interact for a given condition,
than about disease symptoms and treatment. Interesting.
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The American Association of Clinical Endocrinologists and the American
College of Endocrinology has a page "Clinical Practical Guidelines for
the evaluation and treatment of hyperthyroidism and hypothyroidism"
With clinical features, Diagnosis, and Treatment Information.
http://www.aace.com/guidelines/thyroid_guide.html#mission
Brought to you in part by the fine makers of SYNTHROID! It says so at
the bottom!
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A very detailed Resistance to Thyroid Hormone (RTH) Registry is
maintained as a gopher site by Drs. Samuel Refetoff and Roy Weiss of the
Endocrinology Section of the Dept. of Medicine, Univ. of Chicago.
http://xanadu.mgh.harvard.edu/receptor/grth.html
This is an academic study page, and may have little value to the users
of this list, but I stick it in, just in case I am wrong!
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The Oregon Health Sciences University has a page dedicated to links to
other teaching institutions. Some links are informative pages, designed
for the public, others are teaching modules intended for the use of
budding physicians.
http://www.ohsu.edu/cliniweb/C19/C19.874.html
Overall its a great resource, with lots of links related to various
thyroid conditions.
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It will be able to link to all the following sites. This URL was created
and is maintained by the folks who know about the disease from the
receiving end. The above is a great place to start!
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This site has a description of the thyroid hormone replacement
medications their common names, and other information (consumer
oriented) about these drugs. Almost, but not quite a PDR with hyper
links.
http://www.ami-med.com/mhc/scr/001865sc.htm
Applied Medical Informatics sells products to consumers and health care
professionals.
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Endocrinology case studies and teaching files from various resources.
They are intended for use by health care professionals. This site has
references to thyroid modules, some of which are old friends. Check it
out, the Thyroid Function Test page is worth looking at. Excellent use
of the WEB.
http://www.geocities.com/HotSprings/2255/endocrine.html
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Dr. John A. Allocca, of Essential Nutrition has a page on
Hypothyroidism. Backing up to his home page lets you look at some
nutritional slants. Check it out at
http://the.quickpages.com/essential.nutrition/hypothy.htm
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One of my first sites to visit was
http://www-med.stanford.edu/MedSchool/DGIM/Teaching/Modules/
There are sections on hyperthyroidsim, and hypothyroidism available.
These are well written teaching modules, intended for medical students,
but not too advanced.
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http://www-med.stanford.edu/MedCenter/Communications/Stanmed/Summer95/thyroid.html
This 6 page document, "Unmasking Thyroid Disease" by Alana Mikkelson
talks about symptoms that masquerades as a myriad of medical and mental
disorders, and how thyroid disease often eludes diagnosis.
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http://www.healthtouch.com/level1/leaflets/106384/106384.htm
This is Healthtouch's Thyroid related information modules. The modules
appear to be complements of the Thyroid Foundation.
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http://www.io.org/~thyroid/Canada.html
This excellent page has several links to other thyroid related
resources. If you can get to this page, you can get just about anywhere
related to Graves / Thyroid related illness.
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http://www.yahoo.com/Health/Diseases_and_Conditions/Thyroid_Disease/
This is the thyroid section of Yahoo's search engine, and has pointers
to about 6 other sites.
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http://www.icsi.net/medical/chest/med50715.txt
This is one of the sites pointed to by Yahoo, and is a concise overview
of the thyroid and related conditions.
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http://www.concentric.net/~psychmom/
Paula Ehler has put lots of links to sites re Graves' and other
thyroid problems on her web site. There's lots of stuff out there! This
page has a personal perspective
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http://www.hsc.missouri.edu/medicine/thyroid/
David W. Gardner M.D. Has put together some information on thyroid
conditions, as well as included images of persons suffering from some
conditions. This appears to be a teaching module and includes a thyroid
quiz that gives a case history and Function test results, from wich the
reader can choose a diagnosis. The index is a little cryptic, but an
otherwise interesting site.The site also has a Thyroid and Endocrine
link to other resources.
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http://www.thyroid.com/
A Commercial site that is a marketing tool for a clinic that specializes
in thyroid related problems. They have some resource links, and and an
area for thyroid jokes. The thyroid joke area is empty.There are some
weird thyroid related web links as well..
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The American Thyroid Association
Not be be confused with thyroid.com, a commercial site, this is the web
presence of the professional society. They keep indexes of their
newsletter, and have overview information available in the patient
information area.
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http://www.social.com/health/nhic/data/hr2300/hr2302.html
Is the home page of the Thyroid Foundation of America They are
rebuilding theyr web site at the time of this writing, expect address
and content to change without any notice!
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Health Direct is sort of an on line health magazine, with it's own
resources as well as links to other sites with current news on health
related issues. The thyroid Page can be reached at
www.healthdirect.com/usechk/thyroid.htm
and has a quick overview of thyroid disease..They occasionality have
thyroid related articles, Hopefully AST will get notification of such
events.
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New York Online Access to Health has a section on thyroid cancer. The
informaion is intended for health care professionals. That does not mean
you should not read it. just take more time.. Try
http://noah.cuny.edu/cancer/nci/cancernet/101252.html
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Ed Friedlander, M.D., Chairman, Dept. of Pathology University of Health
Sciences, KC, MO.. He has posted a lecture on the thyroid that is
pretty extensive (that translates to several pages), and challanges the
reader to explain why some things are. Obviously intended for Medical
students, you can get the lectures at
http://worldmall.com/erf/lectures/thyroid.txt
Robert Tait 02-05-97
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Plus a little bit from me
To anyone who is interested and lives in Britain
The British Thyroid Foundation was registered as a charity in 1991. They
aim to provide support and information to sufferes of Thyroid disorders,
to
promote greater awearness or these disorders amongst the general public
and medical profession, to help set up regional support groups and to
raise funds for research. They are in the process of setting up
new local groups. There are already many established groups in various
areas They also have a help line Number for children with Thyroid problems
and one for Thyroid Cancer. I am sorry I can not give any numbers out as I
haven't asked yet if they would object.
Membership Enquiries to:
Mrs B Nevens
Membership Department
The British Thyroid Foundation
PO Box 97
Clifford
Wetherby
West Yorkshire
LS23 6XD
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Subject: New Addison's Support Group
From: a...@work.now (Professor Booty)
Date: Thu, 30 Jan 1997 10:41:16 -0800
if you're interested, there's a new ng for addison's disease -
alt.support.addisons
spread the word!
This is the man to contact about Addisons./|\ But the site isn't there.
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Plus a little more stuff from Robert
Articles Related to The Thyroid
[Feel free to send me updates and corrections, I hope to publish this
list ever couple of months, more if requested]
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"Gouging Patients Taking Thyroid Hormone
Synthroid [Levothyroxine Sodium] by Knoll Pharmaceuticals"
http://www.seamless.com/alexanderlaw/injury/article/gouging.shtml
Site hosted by Personal Injury laywers...
mar...@aol.com
Wrote the following:
"The gist of the article is the assertion that Synthroid's manufacturer,
Knoll, sponsored a research study and, when it found the conclusions to
not be to its taste, (basically, that Synthroid was no different than
other generic versions) -- they embarked upon a campaign of scientific
distortion and legal threats to avoid publication of the results of the
study. The article also suggests that the FDA has essentially permitted
the pharmaceutical industry to regulate itself in this area, with
predictable consequences.
This points up all the more the need for folks who have strange
Synthroid
side effects to report them to doctors, and to insist that the doctor
report them as well. If we all walk around with our hair falling out
from
Synthroid, and no doctors report it, then it'll never become known!
Just my two cents worth of surfing info...
--Mary "
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ASPARTAME AND HYPERTHYROIDISM A PRESIDENTIAL AFFLICTION
RECONSIDERED ABSTRACT
http://www.hol.gr/nuclear/asp5.txt
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A test routinely performed during thyroid surgery to check growths for
signs of cancer is largely useless, misleading, costly and prolongs the
operation, according to Johns Hopkins researchers.
http://infonet.welch.jhu.edu/news/news_releases/frozen.html
From a Johns Hopkins Medical Institutions' news release
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The U.S. government should acknowledge responsibility for "wrongs done"
during thyroid research conducted on humans
in Alaska during the 1950s.
http://www2.nas.edu/whatsnew/2132.html
NATIONAL RESEARCH COUNCIL NEWS
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Tired? Depressed? Check Your Thyroid, a magazine article, by
Paula Dranov, Condensed from American Health (May '94)
http://www.mentalhealth.com/mag1/p51-thyr.html
When This Gland Goes Haywire, Watch Out...
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Cigarette Smoking Can Impair Thyroid Function..
http://www.lhl.uab.edu/intercambio/abst040.html
an abstract from Intercambio Abstracts On-Line
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National Institutes of Health Consensus Development Conference
statement.
http://text.nlm.nih.gov/nih/cdc/www/82.html
Rather dry
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Addresses indications for hyperparathyroidism surgery, monitoring and
management. National Institutes of Health.
http://www.slackinc.com/matrix/specialt/endocrin.html
Also Rather Dry
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Robert Tait 2-5-97
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Plus a little more
The Northern California Cancer Center is doing scientific study of women &
thyroid disease. Any woman in bay area is encouraged to call them (collect
is ok). (510) 429-2500
or 429-2533 M-F 8:30am - 5:00pm. Their address is:
32960 Alvarado-Niles Road, Suite 600,P.O. Box 5033, Union City Calif.
94587. The research director is: Pamela L Horn-Ross, Ph.D.
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If anyone has anymore sites to add or any corrections to make please shout up. Or send them to Robert Tait
From Carol
O O
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####### {}####### My consultant said it was a little
########{} ####### butterfly shaped gland in my neck
####### {}####### I didn't know butterflies could cause
##### {} ###### such a flutter!
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