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occlusion suits

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JMerr93229

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Nov 13, 1998, 3:00:00 AM11/13/98
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My doctor suggested I buy and occlusion suit...has anyone ever used one of
these? What is it like? I have P pretty much all over although I am not
covered thick with it , I just have a lot of spots all over my body. I have
recently tried the saran wrap dressings around the elbows and knees and find it
really works but am curious about the suit because of the areas on the torso
and the rest of my legs. If you have used one before, where did you buy it and
do they make more than one kind of these things?
JM

Valerians1

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Nov 13, 1998, 3:00:00 AM11/13/98
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Hey JM,

Well my derm told me to buy one as well and I did. Although I have heard some
people realy like them I didn't. They are not suppose to absorb the topical
meds you use, but mine did. I still find that plain old Handi-wrap, and bread
bags work the best for me. Good luck either way. :)

Peace And Love
Lorraine

JetJock300

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Nov 13, 1998, 3:00:00 AM11/13/98
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I am not a doc but it would seem to me that if you have it all over that you
would want to try sumthing like methotrexate or soriatane. Also maybe uvb or
puva. I use meth. I had it all over. It is gone now. I could tell from one day
to the next. If you really still want to use the suits you can just get a rain
suit otr a sweat suit. Good like hope it helps some Vic

Abilena

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Nov 17, 1998, 3:00:00 AM11/17/98
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I used to wear the occlusin suit about 11 years ago. I bought it at the
sporting goods store. I think I used it with ...was it Anthralin? I think so.
good luck,
erin

Dr. Joe

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Nov 17, 1998, 3:00:00 AM11/17/98
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This is a time-honored occlusive technique, used in rotation as one
of a series of anti-psoriasis measures, like the others mentioned
below in this thread. The best is one called "Sleep Sauna" which
can be ordered from:

Sleep Sauna
211 Nevin Lane,
Lower Gwynedd, PA 19002
215-646-5211

Runs in my mind that the patients need a Dermatologist's
prescription for this.

Dr. Joe


Roger

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Nov 22, 1998, 3:00:00 AM11/22/98
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I have used an occlusion suit occasionally for the last 15 years. I go to Wallmart
and get the cheapest sauna suit they have in the sporting goods department. I get
the cheap plastic ones. I generally use some sort of cortisone creme - which ever
the doctor writes the prescription for. They are very hot and slippery inside but
when you are covered with p over 70% or more of your body, it definitely helps to
get things back under control. I have used this method while being on
Methotrexate, Sandimmune and Neoral. The good thing about the suit is that if you
use it each night and sleep in it, you will generally be so much better within 2 or
three days you can stop using it.

The technique was suggested to me by a derm resident as an alternative to
hospitalization.

To clean the suit the next day:
1) Turn it inside out and put it in a bathtub with a few inches of water.
2) Add laundry detergent or dishwashing detergent to clean it with.
3) Rinse well under the shower, drip dry.

I hope it can help you.

By the way, does anyone else feel like they are being burned with fire when the P
gets really out of control. When mine gets bad enough to need the sauna suit the
burning is agonizing. My derm gave me a prescription for Hydroxyzine (brand name
Atarax) to use during these times and it really helps. It also puts me to
sleep...ahh sweet relief.

Roger

Steve Cassidy

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Nov 23, 1998, 3:00:00 AM11/23/98
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In article <36517AFC...@dermconsultants.com>,
DrB...@dermconsultants.com (Dr. Joe) wrote:

> Runs in my mind that the patients need a Dermatologist's
> prescription for this.
>
> Dr. Joe
>

a) guess who....

b) it should be pointed out that there's a burgeoning kinky market in
suits which occlude; those with P who want a sleep suit and find it's the
thick end of $500 should remember that some people wear stuff like that
because it turns them on!

c) a strange world with strange people in it: *very* infrequently I will
be found wearing leggings made of latex, and hanging around in bohemian
london haunts looking (at least in theory) toned and polished. After ten
hours of dancing and schmoozing in these damn things I have sweated god
knows how much - and the P areas so occluded are flattened into
submission. Not chafed, not wetted destructively, not damaged: flat as the
surrounding skin.

Steve (neither toned nor polished, thankee very much, right now...)

Steve Cassidy

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Nov 23, 1998, 3:00:00 AM11/23/98
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In article <36579ACA...@bellsouth.net>, kish...@bellsouth.net
(Roger) wrote:

> By the way, does anyone else feel like they are being burned with fire
> when the P
> gets really out of control. When mine gets bad enough to need the
> sauna suit the
> burning is agonizing. My derm gave me a prescription for Hydroxyzine
> (brand name
> Atarax) to use during these times and it really helps. It also puts me
> to
> sleep...ahh sweet relief.

Only when the humidity gets very low. Are you in a dry climate?

Ed Anderson

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Nov 23, 1998, 3:00:00 AM11/23/98
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Steve Cassidy <mrb...@netcomuk.co.uk> wrote:
> b) it should be pointed out that there's a burgeoning kinky market in
> suits which occlude; those with P who want a sleep suit and find it's the
> thick end of $500 should remember that some people wear stuff like that
> because it turns them on!


It's not really my thing, but I saw that *latex body paint* is now
fashionable among rubber fetishists. "Liquid Latex", I think it's called.

My first thought was, what a convenient occulsion method it would be. Then
I wondered how many people find out they are allergic after applying it.

-- Ed "sounds like fun" Anderson

Steve Cassidy

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Nov 23, 1998, 3:00:00 AM11/23/98
to
In article <36591f6b$0$12...@nntp1.ba.best.com>, e...@pinch.com (Ed
Anderson) wrote:

> It's not really my thing, but I saw that *latex body paint* is now
> fashionable among rubber fetishists. "Liquid Latex", I think it's
> called.
>
> My first thought was, what a convenient occulsion method it would be.
> Then
> I wondered how many people find out they are allergic after applying
> it.

Wotcher ed....

It's available alright. If the latex doesn't get 'em, the ammonia, in
which the latex is dissolved, will! It's a pretty pongy and chemically
active mixture. Personally, I avoid it.

Steve

Roger

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Nov 24, 1998, 3:00:00 AM11/24/98
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I'm in North Carolina (USA). In the summer it is usually ok, but the winters
are very dry. I try to keep a humidifier going in the winter.

Roger

Steve Cassidy

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Nov 25, 1998, 3:00:00 AM11/25/98
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In article <365A172C...@bellsouth.net>, kish...@bellsouth.net
(Roger) wrote:

> I'm in North Carolina (USA). In the summer it is usually ok, but the
> winters
> are very dry. I try to keep a humidifier going in the winter.
>
> Roger
>

Well, going from the SF coast to Yosemite recently was a good experiment;
by the time I got to Mammoth Mountain, two things happened:

a) the pressure differential was enough that when I unscrewed the lid of
my ball deodorant, the ball zipped out and ping-ponged around the shower
stall like some spy murder weapon from the Iraqi Secret Service

b) my P lesions on the inner sides of my knees started aching/hurting;
even the shower didn't help. slapping on the moisturizer there kept it
under control until we got out of the high country a couple of days
later...

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