Here is a report that found psoriatic patients cleared with gluten-free
diet.
1: Michaelsson G, Gerden B.
How common is gluten intolerance among patients with psoriasis?
Acta Derm Venereol. 1991;71(1):90. No abstract available.
PMID: 1676232; UI: 91281375
It has observed, for a couple years, six patients with moderate to
severe psoriasis vulgaris plus one with severe palmo-plantar that
completely cleared without the use of any other treatment. More than
half of the patients have use methotrexate (MTX), retinoids, and
retinoids+PUVA for an extended length of time without success. Although
the study is limited in scope, it does indicate that gluten-free diet
can be an effective treatment alone when other traditional drugs have
failed to show any sign of clearance.
--
Will Brittian Harrison
Sent via Deja.com http://www.deja.com/
Before you buy.
I hope you typed in this abstract after having actually *read* it.
1) http://www.pinch.com/skinny?medline=1676232. No abstract under
Medline at all, even though your entire attribution (even "No
abstract available.") is the Medline format, including the PMID.
2) The Medline listing for this says it is a letter, not a 'report',
although even a letter can report things.
3) The first line is remarkably similar to that of another gluten
report: http://www.pinch.com/skinny?medline=8286249 which was
published two years later in another journal by the same authors
(plus a few). This abstract actually says that psoriatics have
higher mean levels of serum antibodies to gliadin, but that only
16% of us have levels above the 90th percentile (I suppose normal
would be 10%, wouldn't it, so there's not a large difference, but
I find it odd that the authors only discuss certain levels, and
don't, in the abstract, state the actual mean values).
4) Just as a double-check (not that I haven't triple-checked this
stuff already), I found *one* Medline abstract which contains the
words 'methotrexate', 'retinoids', and 'scope'. It is
http://www.pinch.com/skinny?medline=7726592 and has nothing to
do with gluten-free diets.
5) With only 7 patients, the part of the abstract that says "more
than half" just doesn't sound right. 4, 5, 6, and 7 are "more than
half" of 7, and I am genuinely surprised that the authors wouldn't
simply state the number (even with a million patients, they usually
qualify things like "more than half" with a percentage value).
6) The abstract above is the worst I've ever seen, grammatically,
except for, perhaps, the all-exclamation-point abstract.
Acta Dermato-Venereologica only has issues back to 1993 on their
Web site ( http://www.dermato-venereologica.c.se/index.html ), and
ingentaJournals only has the last two years of Acta Derm.
Anyone know of another place to read Acta Derm online?
Guess what I'm saying is, if you read the letter in the paper
version of the journal, or if you ordered it, then tell us that.
There's no reason to make it look like you found it on Medline,
which you obviously did not.
Anyway, if someone's psoriasis is triggered by gluten, then
yes, a gluten-free diet might clear it up. It is not clear how
many psoriatics this would include. I suspect, due to the
keywords on the Medline listing for the letter, that those 7
psoriatics all had Celiac Disease, where gluten damages or
destroys intestinal villi. Note that psoriasis is not associated
with CD: http://www.celiac.org/happen.htm Also note that
suspected psoriasis genes may be near neighbors of the
suspected CD genes, in the HLA area of chromosome 6. It's
even possible that the two diseases share a gene or two in
common.
- Dave W.
http://members.aol.com/psorsite/
> --
> Will Brittian Harrison
>
>
> Sent via Deja.com http://www.deja.com/
> Before you buy.
>
Hi,
I tried a gluten free diet many years ago but
unfortunately it didn't help my P at all. I also
underwent a course of desensitising injections(for
gluten sensitivity). I guess it works for some,but not
me.
George.
I tried the gluten free diet about 10 years ago. My P never improved <damnit>
BUT I did lose 30lbs and a small fortune buying gluten free products.
This is not to say that some people may have great success with this or any
other Diet geared at clearing up P. I honestly don't belive there is any one
way or one diet that will work for everyone, as we don't all share the same
bodies or genetics.
I do like hearing about all the different things that do help some people. The
way I figure it is, it can't hurt to try. As long as it's a safe diet or
altenative. {I amnot talking about meds, those can hurt to try}.
Anyway I am rambling been a while since I have had tiome to post.
Peace and Love
Lorraine
Hi,
When I had my first *real* flare of P about 15 years ago (I didn't know
what it was back then), the Naturopath I went to put me on a gluten free
(among other things) diet.
It started with a *complete* cleanse of my innards and then went on to a
very strict diet of vegetables and fruit for a month. After this, I went
back to eating most foods with the exception of wheat, gluten, dairy etc.
Funnily enough, once I had cleared for about 6-12 months, I drifted off the
diet.
Now, I seem to be at the tail end of a much larger flare over my hands and
feet (I hope).
Richard.
--
It works better if you plug it in.
> Now, I seem to be at the tail end of a much larger flare over my hands and
> feet (I hope).
Richard,
Your post wasn't clear as to whether you feel the diet he put you on cleared
your P for that 6 mo. to a year period. And also your comment above caused me
to wonder if you are trying that diet again and getting some results?
Scott
--
[Remove the spam TRAP to reply via email]
Sorry, I can't have been quite clear enough in my post.
I had been going through life oblivious to the flaky patches on my knees &
elbows.
I have been pseudo-vegetarian (eat fish, eggs & dairy) for about 19 years
now. No particular reason.
About 15 years ago @ age 25 I started getting little itchy blisters on the
palms of my hands which developed into sores in time and as I scratched
them.
No-one told me what it was (can't remember the GP's comments) and it got
worse.
I was using an Osteopath for a bad back at the time and he suggested that I
went to the Naturopath in the practise. He put me on the regime described
earlier and I cleared with in 2-3 months as I remember.
After about 6-12 months of trying to be gluten, etc. free I drifted off the
diet.
I went back to going through life oblivious.
Occasionally the flaky patches on my knees & elbows came and went. Even one
on my head I remember. Funny how when I think, I can remember all sorts of
bits of skin coming off at various times in my life <g>.
About 1 year ago the blisters returned!!!!! And also on my feet!!!!!
Again my GP (another one) was next to useless.
After managing to abate the worst of the flare with Calendula cream, I
finally went and saw a Dermie. She was good but matter-of-fact about it
"You've just got Psoriasis, Here's a script for daivonex. I'll also put you
onto PUVA".
The PUVA made me ill, the daivonex made little improvement.
I heard about Psoriasis oil and have been using it to "nearly clear" on my
hands and "who cares" on my feet.
richard
If the gluten-free regimen worked (seemingly from your post) why don't you do
it again?
erin
Erin,
The reason I stopped doing it in the first place! It's boring and horrible.
:)
But, seriously, I have been considering doing it again, but it's harder now
as we have 2 kids to feed, and, as you may know, it's pretty hard to do
special food around kids. (it's hard enough getting them to eat what I *do*
cook.)
Good question erin! Richard's post had me scratching my head also. I was
under the impression, that a "gluten-intolerance" is not to be taken lightly.
There are serious health concerns for someone with this condition, and PS is
not one of the major ones. If my memory serves me correct, this "gluten
intolerance" is a chronic condition that will not go away over time. In order
to maintain good health the sufferer must maintain a gluten free diet.
Richard,
If you pick up on this thread, please get yourself to a doctor and find out for
sure if you have this condition.
If any of the thoughts I have posted here are erroneous, feel free to correct
me. I am relying on memory from research carried out in days gone by, and
that's a scary thought.
Cheers Tim
http://hometown.aol.com/nesielheum/
Easier said than done.
> Richard,
> If you pick up on this thread, please get yourself to a doctor and find
out for
> sure if you have this condition.
I find that GPs tend to be a bit skeptical when I go to them and tell them
that I have been diagnosed by a naturopath.
> If any of the thoughts I have posted here are erroneous, feel free to
correct
> me. I am relying on memory from research carried out in days gone by,
and
> that's a scary thought.
I have been re-evaluating my lifestyle over the last 3 years with regard to
inproving health, but it is hard to change the habits and tastes of a
lifetime.
I just read about it recently. At least, partly. I'm unsure if "gluten
intolerance" is or is not another name for Celiac Disease, where gluten
causes an autoimmune response which damages or destroys the
intestinal villi. It's fairly uncommon, though (for every person with CD,
there are, on average, *eight* psoriatics). http://www.celiac.org
I believe it! I also beleive that perhaps another one of those 4 is dairy
intolerant.
It is a crime that weeding those factors out isn't standard practice. Standard
practice seems to be to say, "You have an incurable disease and will have to be
on drugs the rest of your life."
erin
What? Dave is unsure of something? Say it isn't so! ;-)
I do believe that they are the same thing.
erin
> Why is the sky blue?
>
> Why can't I win the lottery?
>
> Ah, never mind. What is gluten?
Whatsa-matta-wit-you Ava, this is the year 2000 and you don't own a bread maker
yet?
Gluten is one of the compounds found in flour. I guess yeast feeds on it and it
also makes dough more elastic, because if you make bread you are supposed to use
"Bread Flour" which is higher in gluten than just plain white baking flour.
If you owned a bread maker, you would know this, Ava. It's in the manual.
Rocky, contact the Server Administrator where Ava works, have him get a hold of the
company's CEO, and tell him Ava needs a bread maker.
Scott Kneadsnomore
I'd rather send her MY CEO! But I've gotta warn you, Ava, he looks really
silly in one of those big white baker's hats when he's making bread!
Rocky
"S.A.M." <sdjj...@allways.net> wrote in message
news:389BA3F1...@allways.net...
Pbbbbbbbbbt! :)
>I do believe that they are the same thing.
The reason I am unsure is that everyone and their sisters seem to be
gluten intolerant, but only 1-in-300 to 1-in-500 people has Celiac
Disease.
I wonder now if maybe the gluten intolerance is more of a benign sort
of allergy, where no real intestinal damage is done (one just feels sick).
That could explain a higher rate for intolerance than for true CD. But
this is all just guesswork.
Thanks for the info. Do you happen to know the general rate for
Crohn's? If it's somewhere around 1-in-100 people, that 1-out-of-4
"misdiagnosis" figure would 'fit' really well with Celiac's rate.
Good grief. You post a link three, four times, and people *still* don't
follow the danged thing. :)
These two pages ought to answer your first question:
http://www.celiac.org/what.htm
http://www.celiac.org/cure.htm
The rest of the Web site, plus medical testing, ought to answer your
other questions.
>Why is the sky blue?
Rayleigh scattering.
>Why can't I win the lottery?
Because the odds are stacked *massively* against it.
>Ah, never mind. What is gluten?
Oh, forcryingoutloud! You still didn't read the pages I haven't yet
posted? Dangit, Ava, you're getting on my nerves by not reading my
message as I'm typing it. Pbbbbbbt!
What the heck is gluten and what products have it in them? I never heard of the
stuff before these posts, so how can I find out if I am one of the everyone and
their sisters? How can I find out if my sisters have it?
Why is the sky blue?
Why can't I win the lottery?
Ah, never mind. What is gluten?
Ava
Yeah but, those links (not the information contained there, the link itself)
don't say nothing 'bout no gluten! Jeez, I already know what "celiac" is. Its
the green crunchy stuff with no calories unless ya dip it in peanut butter!
>>Why is the sky blue?
>
>Rayleigh scattering.
Well that's very informative! What is Rayleigh? Why does it scatter? Is it
named after Sir Walter Rayleigh?
>>Why can't I win the lottery?
>
>Because the odds are stacked *massively* against it.
Ya, but somebody has to win. Why not me? I win all the damn disease contests,
don't I?
I'm sending myself to my room this time, Dave. You're a big ole mean teacher.
I'm reporting you to the principal Mr. Sitonmylap. He's gonna kick your butt
for treating me like this!
Innocent School Girl,
Ava Lou
Darlin, bread is very high in calories. I don't like calories. Calories are
very, very bad. Therefore, bread is very, very bad.
No bread. No butter. No sweets. No pizza. No cheese. No steak. No chile. Nope.
Just yummy-in-the-tummy Slimfast bars, and ya don't even have to make them your
own sef!
Okay, everyone please try the new, scientifically proven, psoriasis and
everything else cure, Slimfast! You'll be dead in no time and whoops, no skin
to worry about in an even shorter time!
WARNING!!!
*Mixed with Prednisone you will bulk up like freakin circus attraction!
Ava
Help me I'm starving and I'm still getting very, very fat.........
And you would eat it *without* peanut butter? Eeeeewww.
>>>Why is the sky blue?
>>
>>Rayleigh scattering.
>
>Well that's very informative! What is Rayleigh? Why does it scatter? Is
>it named after Sir Walter Rayleigh?
Different Rayleigh. Sun 'rays' hit the Earth's atmosphere, and 'lay'
('leigh' in Old English - raylay, get it?) in different ways depending on
their moods as defined in colorpuncture. Blue is kinda sad and
depressed, and so sort of meanders about the sky instead of being
direct and aggresive like red or green light. Once the blue is done with
its wandering, it's all confused and chaotic, and so seems to be coming
from everywhere, instead of directly from the Sun itself.
Damn, I never could get my "Cliff from Cheers" imitation down pat.
>Ya, but somebody has to win. Why not me? I win all the damn disease
>contests, don't I?
That's different. Anyway, once you get a few more years in of drug
company work, you'll get the secret coded messages which tell you the
lottery numbers to play. What? You thought the state ran the lottery?
How naive. Since the drug companies run the entire country, it should
be obvious that they run the lotteries, too. Oh, dang. I said the quiet
part out loud again, didn't I?
>I'm sending myself to my room this time, Dave.
Why? Did I miss a bad pun somewhere?
>You're a big ole mean teacher. I'm reporting you to the principal Mr.
>Sitonmylap. He's gonna kick your butt for treating me like this!
No he's not. He's actually a cyborg under control of the Clone Rangers.
I'm their president.
>Innocent School Girl,
Bwahahahaha!
You can, of course, assume that there's an invisible smiley at the end
of every sentence I've written in this post - even this one.
They're also different. The 2 million figure works out to 740 or so people
per 100,000 given the US population of around 270 million. 3.5 to 5
times higher than the prevalence rate from the book. They're both
talking about IBD, but perhaps the FAQ is including more than Crohn's
and Colitis?
>Sorry I can't do better than that - hope it helps!
Well, just trying to figure out the 1-in-4 figure for the misdiagnosis. The
rate for Celiac disease, converted to the same notation, is somewhere
between 200 and 333 in 100,000.
The rate for psoriasis, BTW, is somewhere around 2,000 in 100,000,
according to numerous sources.
Okay...I'll get even more specific than my fellow-posters...
Gluten is the protein found in:
Wheat
Oats
Barley
Rye
It is not the part of flour that yeast thrive on. Yeast thrive on sugar, not
protein.
It's extremely ubiquitous and is found in anything made with flour from the
above mentioned grains. It's very difficult to find a [processed] food that
it's not in.
My chiropractor has Celiac's and she can't even eat bacon that was cooked on
a griddle that a pancake was cooked on without experiencing some bad symptoms.
Anyway, the psoriasis link here is that some people find that after giving up
gluten-containing foods, their psoriasis goes away.
And, Dave, I think you're probably right about there being a difference between
gluten intolerance and CD.
peace,
erin
Hey, I'd be curious to know how that Specific Carb Diet is working out for your
Crohn's and, I assume psoriasis.
I tried it for a while and I liked it a lot. Still haven't mastered the art of
yogurt-making, but eventually I'll take it on again.
Feel free to email me!
erin
ck
Here's the abstract for it:
http://www.pinch.com/skinny?medline=8835506
Sure!
The easiest way is to go through Ed Anderson's search tools. Ed's done
a great thing by making all sorts of searchable stuff simple. The tools
are at http://www.pinch.com/skin/
The 9th search down the page is for "NIH MEDLINE abstracts." All
sorts of journal articles (although not all of them) end up here. Type
what you want to look for (in the search I did for you, I typed in "Ebringer
starch" - you can use author's names, university names, just about
anything), and (duh) hit the "Search" button.
You'll be presented with a list of results, usually. The links will all go
to more detailed descriptions of the articles. Ones listed as having "no
abstract available" (duh) don't have abstracts, but you'll usually get a
complete list of authors and whatnot.
Unfortunately, there doesn't seem to be "next" or "previous" abstract
buttons, so use of the "back" button of your browser will be common. :)
You *can* get Medline to list all the titles and abstracts in one big page,
but unless the number of articles your search turns up is small, I'd
advise against it as I find it somewhat confusing and just too danged
large.
You can tweak the search parameters right there looking at the list of
articles, or you can always go back to Ed's site and do it there. There's
no real difference, so I tend to use Ed's site as a 'gateway' into Medline,
and then leave the results window up somewhere if I feel I'm going to be
doing multiple searches.
Finally, with any article information, there will be a PMID number for that
article (on the listing or after the abstract). Ed's got a bunch of "skinny"
scripts set up to make linking back to this kind of information easier,
also. To make a link back to a Medline abstract, you take the PMID
number (cut & paste it), and stick it in the following URL:
http://www.pinch.com/skinny?medline=8835506
The big number on the end is the PMID for Ebringer's article, again.
Just stick the PMID of any article you want to link to after the equal sign.
This link will stick Ed's header frame in the resultant page, giving quick
access back to his search page, too, anytime someone looks at the
abstract.
I'm sure Ed would be more than happy to give a more complete tutorial
on the use of the tools he's set up. I've only scratched the surface,
myself.
Thanks for asking! I forgot to 'plug' my own tools page, even though it
isn't nearly as comprehensive as Ed's:
http://members.aol.com/psorsite/tools.html
It does have links to some stuff Ed doesn't have, such as Quackwatch
and the Skeptic's Dictionary. Good stuff, I think.
Thanks for the description, Dave!
My http://www.pinch.com/skin/ page grew as I found useful skin research
tools around the web. For a while, trying to pass on search results to
others was a matter of teaching them how to search, and describing which
keywords to use. Quoting full text usually makes a big mess and has
copyright issues. Using URL's is better, but some search engines have
horribly long strings that make it difficult to point and click.
The http://www.pinch.com/skinny script was developed to make it easy for
folks to pass on info without long complex links. It's a subset of what's
on the skin page. Any search done from pinch/skinny will show up as short
URL that can be pasted into a newsgroup message. Like this:
http://www.pinch.com/skinny?anthralin
Following any of the links on that page will show a frame whose URL can be
used to share the results by using copy and paste. The shared link has the
side effect of leaving a small banner linking to the search tools, and a
posting guide for new arrivals. If that irks you and you'd like to remove
it, either press the no-frames link on the skinny page, or use this page:
Sharing URLS this way has the added benefit of not becoming obsolete if
someone is reading an old post. When search engines change their syntax, I
can easily modify the script.
Using the page is really just a matter of entering the key words you're
interested in. Start with few words, and then add more to narrow the
results. I've tried to arrange it so that ALL the words need to appear in
a result. It's called a boolean AND operation. All the engines have their
own quirks, but most of the engines all appending * as a wildcard to the
tail of a word. I usually link to the help file or search form for each
site. You shouldn't need that unless it doesn't do what you expect.
BTW, there's no real need to edit the url for passing on medline article.
Just copy and paste the article's PMID back into my medline search form.
Multiple medline articles can be shown at the same time:
http://www.pinch.com/hit?medline=10583050+2646159+342554+42654
This is a much nicer way of sharing medline abstracts, since it takes up
less space, and allows more flexibility.
One caveat, don't try to search for something that contains a comma. I
translate them into spaces for readability:
http://www.pinch.com/hit?medline=10583050,2646159,42654
My Deja redirector saves a lot of typing because it automatically filters
for just the skin-diseases groups (besides goofy alt.support.psoriasis).
There's no real need to add the word psoriasis when searching, since the
volume of psoriasis posts far exceeds the other groups.
Everyone is welcome to use the pinch/skinny script. I'd like to hear
suggestions for improvement.
I hope this was the kind of info you're looking for.
-- Ed "maybe not as simple as I thought" Anderson
I'm so glad that the SCD diet is working out for you.
How long before you noticed your drastic improvement?
I have a feeling it will help your daughter.
I'm not sure if it helped me or not. I did start to go into remission after
being on it for a couple of weeks, BUT I did not keep it up. Once I spark a
remission in my body, it sort of goes on auto-pilot and continues despite
possible poor eating, but my psoriasis eventually rears its ugly head again.
Then I go on with dietary experimentation once again.
I'd like to know the best equipment for yogurt-making. Crock pot??? Help.
erin