2008 ANNUAL POST POLIO CONFERENCE
leeb...@gmail.com
18th Annual Conference on PPS--April 12-13, 2008
Registration and complete information at www.njpolio.org
Mark your calendar! The Polio Network of New Jersey will hold its 18h
Annual Conference on PPS on Sunday, April 13, at the Bridgewater
Marriott Hotel, from 8:30 am to 3:00 pm.
You MUST register in advance.
Speakers and Workshops:
"The Role of Exercise in Post-Polio Health"
Frederick M. Maynard, MD, specialist in physical medicine and
rehabilitation
"What's New in Our Post-Polio World?"
Joan L. Headley, MS, Executive Director of Post-Polio Health
International (PHI)
A trio of workshops (choose one)
"A Polio Survivor's Guide to Balance and Swallowing"
S. Thomas Westerman, MD, specialist in otolaryngology (ear,
nose, and throat)
"Making Your Home Accessible"
Jack Purvis, AIA, Architect
"Chasing Stress with Chair Yoga"
Marie Gagliardi, teacher of Integral Yoga and Cardiac Yoga
A registration form is available online by e-mail via
leeb...@njpolio.org, or by calling 201-845-6860
ekh
waste this great resource.
In article <14c7f587-dd1e-420b-9358-0527b16fcae1@
13g2000hsb.googlegroups.com>, leeb...@gmail.com says...
Mariah Kaze
--
Mariah Kaze
"The wind is like the air, only pushier."
"ekh" <ekhe...@sbcglobal.net> wrote in message
news:MPG.224a0325d...@news.dallas.sbcglobal.net...
red
it is full of junk......ken@polioworld.com
Mariah Kaze
waste the space.
Did you have polio?
I am wondering if I didn't. Am having lots of problems and Drs. haven't
been much help. They've said I have fibromyalgia.
I would like to know how to go about being diagnosed - live in a small rural
town with Doctors who think if a pill or surgery won't fix you, then you
aren't "really" sick.
Thanks for your reply
--
Mariah Kaze
"The wind is like the air, only pushier."
"red" <redk...@ntlworld.com> wrote in message
news:eSsJj.24326$Re3....@newsfe4-gui.ntli.net...
Ron Shaw
it use 2 be very informative
are we all dead? ppser's
--
I Am a Criminal created by the US Government
A Medical Cannabis Advocate, User & Engineer.
I Designed your Space Shuttles, Cars & Software.
"Everybody should be included in everyday life." Team Hoyt
take a few secs.Help Breast Cancer http://www.thebreastcancersite.com/
"red" <redk...@ntlworld.com> wrote in message
news:eSsJj.24326$Re3....@newsfe4-gui.ntli.net...
Ron Shaw
honeyell and owned 2 Electronic/computer repair centers, when Bingo wiped
out by post-polio. fought it from mich to florida hospitals, clinics
galore..now i wear a glove (arthritic) on right hand it hurts continuously
but pressure alleeviates some ofthe pain, both hands & feet numb / fuzzy
fingers and toes very sensitive 2 touh usually hurts 2 type (computer next 2
bed) legs, chest, face arms etc spasm constantly so i'm on a vibrating bed,
sheet, heating blanket and a heavier blanket agai pressure (and heat) seems
2 help. on multiple meds had a morphine poump in stomache had it removed
after having more problems. now on morf a muscle relaxor and pot (only when
it gets real bad) oh yeah and 2 T.e.n.s units one 4 arms one for body
trunk.. All docs have given up. me too a few years ago after a trip 2 the
post polio clinic in new jersey. very good doctor Dr Richard Bruno - very
intelligent..Writes a lot of articles on pps (well it seems a lot 2 me) i
enjoy them - and book or more on the subject too. We hit it off immediately,
he has pps, and real experience
here's a bit
April 12, 2008: ENGLEWOOD, NEW JERSEY USA -- Today, the 52nd anniversary of
the development of the injectable polio vaccine, the International
Post-Polio Task Force (IPTF) announced National Immunization for Polio
Prevention in Infants and Toddlers - or "NIPP IT" -- WEEK, April 19-26.
--------
tired gotta stop. wish we could get this group together..
Wonder how many ppser's out there?
RTShaw
"Mariah Kaze" <maria...@bresnan.net> wrote in message
news:o6CdnR7EWcK6Z2fa...@bresnan.com...
ekh
I had polio in 1954 at age 12. Some people call it upside-down polio
where the arms are paralyzed and the legs are undamaged. I joined a
computer software company after leaving college; and have been a
software developer since.
I was really slammed 2 years ago by PPS; but I have been able to
continue working thanks to the marvel of tele-commuting. I lack the
endurance that I had previously; but compensate to some degree by
spreading my schedule over a longer day, with rest stops in between.
There is a PPS group on yahoo that claims to have over 600 members; it
is somewhat helpful; but also a bit restrictive wrt subject matter. I
think that most people don't know about Usenet because it is not the
popular medium.
This is so frustrating with all of the advances of medical science over
the past 50 years. It seems that they would have figured some of this
out.
I have Dr Bruno's book and have read parts of it. But it is a matter of
time and energy for me. I spend almost all of my time and energy on my
job.
In article <u8GdndVmFqae-prV...@comcast.com>,
rts...@comcast.net says...
Mariah Kaze
Thanks for posting. I would like to see more posts here too. I am still
looking for a diagnosis - the Drs. here think I am a hypochondriac - I have
weakness and balance problems. Have had carpal tunnel surgery and now
peripheral nueropathy in all 4 extremities. I fall down a lot and when I
have one of those jarring falls, flu-like symptoms for days. Insomnia is
the worst problem.
Have been tested for MS and Parkinson's - negative. In fact all the tests
are "in the normal range". I have stumbled on PPS from reading the Net.
My family remembers me having a child-hood illness during which I was
hospitalized right after having the polio vaccine - but those medical
records are gone - destroyed, so I can only "guess" that I possibly had
polio from the vaccine. Frustrating not to be "old" (58) and feel so old.
I am talking with a naturapathic DR. now who has me taking SAM-e and some
other supplements for chronic fatigue and am muddling by. What I've read
about the polio vaccines has made me take a second look at vaccines and is a
bit scary - maybe we all have it - from the vaccines. Dunno.
I like your sig - I am a medical cannibis supporter too.
--
Mariah Kaze
"The wind is like the air, only pushier."
"Ron Shaw" <rts...@comcast.net> wrote in message
news:K56dnaL-dfTz35rV...@comcast.com...
Top Shot
I just dropped in while listening to Bill Gates speak to Rotary
International about the committment to eradicate polio. I'm onboard.