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Ileostomy and fatigue

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JOHNFTRACY

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Aug 20, 2001, 8:12:05 AM8/20/01
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Ileostomy in March of 2000...reconnect in December of 2000 failed...another
ileostomy put in a week later. Since then I seem to be totally fatigued all
the time...used to be awake until 11 - 12 at night...now fall asleep in LazyBoy
lounger at 9 or 10...56 yrs. old.

I take a small amount of tincture of opium in the morning to control flow into
the bag...particularly after 2nd cup of coffee (I know! I know! But I just
gotta have it!)

Any folks here have the same problem with fatigue...and haow have you dealt
with it?

Thanks

Dick Elliott

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Aug 20, 2001, 9:24:30 AM8/20/01
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Hello John. I suffered from the very same things you wrote! I am 55 yrs old
and my ileostomy is 25 yrs old. My sleep problems began about 10 yrs ago.
Two years ago my wife saw a show on "health watch" about sleep apnea. I
went to the doc and got tested. Sure enough I had sleep apnea and got a
machine with an air mask to wear at night. People with sleep apnea quit
breathing several times at night and toss and turn all night. The machine is
not sexy but my nights are restful. Another reason might be allergies. This
summer I went to an allergy specialist and found out the reason I sneeze and
blow the nose quite a bit was due to allergies. I am allergic to most trees
and any type of grasses. Now I am on an anti-allergy program and life is
getting back to normal. Go ask your doc for a sleep test and have the doc
recommend a good allergist.

An Ostomy Is For Living!!!
"JOHNFTRACY" <johnf...@cs.com> wrote in message
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stephen.logan

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Aug 20, 2001, 9:18:49 AM8/20/01
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I had 9 hours of surgery to have my large bowel removed and 48hours later
had another 7 hours of surgery to deal with the complications and an MRSA
infection on top of that. It took me about a year too feel totally normal
again and I was as weak as a kitten for months. I was 29 when I went through
all this ,31 now.
Your body has taken a helluva battering John, I took my operation early so I
did not have to do it in my 50s like you because it would have taken even
more out of me. What your feeling is normal it just takes time and should go
away, try going for short walks to build up your fitness a little, you don't
have to be Karl Lewis that's what I done and it helped me. Take plenty of
vitamin rich foods like pure orange juice etc. I know some people watch what
they eat strictly but I don't, I reckon I have been through enough and eat
what I like and just deal with the output when it comes.
Take care
Stephen

"JOHNFTRACY" <johnf...@cs.com> wrote in message
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Earl

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Aug 20, 2001, 12:43:33 PM8/20/01
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I was very fatigued all one summer. I changed doctors and insisted we get to the
bottom of it. After many tests, finally a CAT scan caught the kidney infection
(Pyelonephritis). I have been active and energetic since that was cured. I was 79
at the time.

Earl (U)

Charlie Steak

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Aug 20, 2001, 2:48:21 PM8/20/01
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I had my Ileostomy in December 2000, and I still feel as tired as I did
before the surgery. I'm irritable and my concentration levels are low. I put
this down to the operation, and the fact that I can count on one hand the
number of times I've slept through an entire night without waking (in the
hospital doesn't count because I was doped up on morphine !)

My Doc told me it would be up to a year before I'm over it, and slowly I do
feel better. At the moment though I don't seem to get much out of sleep, I
wake feeling drained and tired, usually after 8 hours in bed, if I try to
take longer it's a fight and I end up feeling worse.

Then again, I'm a lot more active than I was before, I'm happier and I don't
rattle when I fall over !

--
_________________________________________________________
Visit The Famous Steak Mansion
www.charliesteak.btinternet.co.uk
"Dick Elliott" <elli...@netusa1.net> wrote in message
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Mark Barber

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Aug 20, 2001, 4:28:13 PM8/20/01
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I take 1 Centrum (multi-vitamin multi-mineral) tablet each morning and this
really helps me fight the fatigue problem www.centrum.com for more details.
I tried a similar product made by seven seas I think they were called multi
bionics or something similar but did not find these to be as good


Mark

"Charlie Steak" <The_Ste...@BTInternet.com> wrote in message
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StanHS

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Aug 20, 2001, 10:42:47 PM8/20/01
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I don't practice what I'm about to preach very well, but regular exercise helps
me sleep and I have the worst nights' sleep when I'm sedentary all day. Any
kind of exercise-- long walks are great. Stan.
Delete "nospam" when replying

Dean Dancey

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Aug 21, 2001, 9:56:32 AM8/21/01
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I am having more and more problems in dealing with the fatigue. I had
my first ileo when I was 30, my last one was in '96, and I am now 42.
There are days that I am so tired and depressed I can barely get
dressed.
I have other health problems that compound or are compounded by the
ileo.
I think if I pass out at work one more time, I may get fired. I get
little or no help for ANY of several doctors that I am seeing. One even
suggested that I file for disability. Yup, that and a bottle of wine
would put me right out on the street at my age... -Deano

Dick Elliott

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Aug 20, 2001, 11:40:49 PM8/20/01
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Hi Stan. Ditto on your post. I forgot to add in my post that I should be
able to stop using the airpack at night if I loose a ton of weight. Lost 30
lbs since Christmas. Feel better but not where I should be.....

An Ostomy Is For Living!!


"StanHS" <sta...@aol.comnospam> wrote in message
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Pearl L

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Aug 21, 2001, 1:05:41 PM8/21/01
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Are you on an anti-depressant? Your symptoms are indicative of a clinical
depression. Certainly we all have several chronic illnesses and we wouldn't
be normal if we wern't depressed. We have to treat what we can and what is
objective as well as treat the subjective, treating one without the other is
pointless.

Yes, many of us qualify for disability. You can access the disability blue
book on the internet to see if you qualify. If you belong on disability by
all means investigate it. Being on disability does no mean that you cannot
work at all. You can still earn $700 per month.

A decision of that magnitude should be made in consultation with a doctor
you trust.

This is the Disability Blue Book--
http://www.ssa.gov/disability/disabilitynotes/29.htm#bluebook
Pearl L
pear...@hotmail.com
"Dean Dancey" <dt...@sympatico.ca> wrote in message
news:3B826890...@sympatico.ca...

Dean Dancey

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Aug 21, 2001, 6:48:22 PM8/21/01
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Pearl L wrote:
>
> Are you on an anti-depressant? Your symptoms are indicative of a clinical
> depression. Certainly we all have several chronic illnesses and we wouldn't
> be normal if we wern't depressed. We have to treat what we can and what is
> objective as well as treat the subjective, treating one without the other is
> pointless.
>
> Yes, many of us qualify for disability. You can access the disability blue
> book on the internet to see if you qualify. If you belong on disability by
> all means investigate it. Being on disability does no mean that you cannot
> work at all. You can still earn $700 per month.
>
> A decision of that magnitude should be made in consultation with a doctor
> you trust.
>
> This is the Disability Blue Book--
> http://www.ssa.gov/disability/disabilitynotes/29.htm#bluebook
> Pearl L

Thanks for the info, Pearl. Too bad none of it applies to me, here in
Canada. You know where they TELL us how good our health care system
is...
And DI is like finding chicken's teeth. I have a friend who was on
welfare and she got docked for the amount she was given to pay for
ostomy supplies!! And, as for MORE pills, no thanks. They would only
compound my problems. Thanks again. ;-Deano

Rob Hooper

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Aug 21, 2001, 4:08:35 PM8/21/01
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In article <3B826890...@sympatico.ca>, Dean Dancey <dt...@sympatico.ca>
writes:

Dean,
Do you take multi-vitamins with minerals? If not try that. If you do take
them make sure it is in a form which is broken down before it passes through
your ileo. Potasium is important, so you may also want to try eating a
banana once a day. Just make sure it is ripe! If I don't take my vitamins
I feel fatigued and can also feel depressed. I smoke also so I need more
Vitamin C. Right now I am taking K-marts 'Therapudic M' brand.
Rob

Never eat anything bigger than your head.

Brenda

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Aug 21, 2001, 2:48:10 PM8/21/01
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One thing that is often overlooked and will cause fatigue is water. You
need to drink lots of water...I forget and I can feel it when I do


"JOHNFTRACY" <johnf...@cs.com> wrote in message
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