Exhausted...again, still,AAARGH
Dan McCandless
I just spent the weekend in bed most of the time, except when eating a little
bit. When this happens, I feel like my life is slipping away. I want so much
to be more of a participant, but alas, sometimes, many times, it is not to be.
I have started physical therapy, which has helped my sense of balance, but the
fatigue was probably triggered in part by some of the medication I am trying to
get used to. I find myself taking medication for one symptom, which creates a
side effect that then requires another drug to counteract. I'm definitely going
to go to the doc and review all the meds and see if I can do without some.
Anyway, I just needed to vent to my MS family. You are all so patient and kind,
and it helps to know you have lived through the debilitating fatigue also. I
always look for some other reason for it, but I know it could just be the MS and
not the meds (after all Symmetrel is supposed to help with that, right?)
I have an exhibit of my watercolor paintings coming up on the 29th and I fear I
don't have the strength to mat and frame the paintings or finish my latest one.
I'll just have to let some others in my artist group hang a couple extras and
recycle some old paintings. I keep having to tell myself that I cannot measure
my self worth by what I do. Just being is (should be) enough. Hard for a life
long overachiever to believe. But I working on that part.
Hugs and love to all of you,
Lois in Michigan
Elizabeth Ann Woldt
a real problem. I think you're smart to get your meds reviewed and make sure
you're not defeating their purpose by crossing one with the other. I've had
no luck with the drugs usually prescribed for the fatigue, and just have to
deal with it as best I can -- which usually means crashing in bed.... Ann
Max Leggett
sclerosis,A86821,&rt=NA
Lois in Michigan;
Try ginseng. I swear by the stuff. Korean Red. Has the same
effect as a couple of cups of coffee without the side effects
and without the come-down. Any Health food store.
Max Leggett
I use [and swear by] ginseng. Korean Red works best for me -
try different types. It has the same effect as a couple of cups
of coffee w/o the side effects ot the come-down.
Claude A. Du Bois
Lois,
Have any of the medications you are taking made you better?
Remember that there are no medications to Cure or for that matter make
MS stop. You are sticking pills in your body for no reason other then
because your Neurologist has told you to.
You are most likely feeling the way you are because of the STRESS
of the show you are preparing for, and the side effects of the drugs
you are taking. Find an Internist and tell him/her what you are
feeling, and tell him/her that you do not want to take any medication
that does not have proven results with MS! I would also suggest that
you take the 2 medications that WORK for MS (1) Valium 5mg. X 4 and (2)
either Darvon/darvocet or Vicodin.
The Valium stops the spasms and the Darvon/darvocet or Vicodin
stops the Pain and also helps eliminate the fatique.
Claude
pla...@ix.netcom.com
Brian Epstein
>By evening I was thoroughly disgusted with myself and really doing a
>number on how lazy I was. This morning I felt better and realized
>that it was not a character defect or laziness, but just the MS
>asserting itself.
>Kate
Ouch! That pushed a button! For years I have dealt with mind-numbing fatigue
by bulling ahead, thinking that I was weak-willed. I was diagnosed just three
weeks ago, and I'm not quite so hard on myself now. I still have to deal with
self-judgment sometimes.
Brian
b_ep...@msn.com
Gary L. Stone
>Hello, Gary. Fellow Michiganian. I'm from East Lansing. I lived in Ann Arbor
>1970-77 then moved up here. I went to that other school, you know UofM but I
>have to whisper that around here. The Spartans are not very tolerant. Lois
>
GO BLUE! I'm a U of M fan. But I do not dislike that Uhmmmm....other school.
Boo! OHIO.
Gary
Dan McCandless
"Nancy Cridland, Library" <CRID...@UCS.INDIANA.EDU> wrote:
>Lois, are you feeling better yet? Most of us can empathize with that
>frustration about time slipping away "just resting." (snip)
Thanks, Nancy, Denise, Brian, Kate, Gary,
I went to the doctor about the meds (on Depakote to prevent migraine) and he
said to try cutting it down by one-third. I did and wound up with a two day
migraine :-(. The exhibit got done though and looks good :-) actually VBG!
now, I have a cold and have upped the dose of Depakote (anti-seizure type med).
Makes me really empathize with epileptics who have to take even higher doses.
At this point I'm hoping my body will adjust and the usual MS fatigue, which
I've lived with OK for several years will be all I have to deal with. I caught
a cold and am having lots of homemade chicken soup (had it made up and frozen
just for such an occasion). Between that and hot lemonade, I'll get through
this. Anyway, what's a cold compared to a migraine, which thankfully has run
its course. Sometimes we think that everything is MS related, but I know
several of you deal with multiple health problems. You are an inspiration to
me. Thanks again for all the support. I haven't posted in a while because I
was sleeping. Nice to be back!
(((Hugs))) and sunshine to all of you ( the snow will melt someday!)
Lois :-)