RESTLESS LEGS
steve
THAT I AM UNDER THE IMPRESSION FROM MY DOCTOR THAT HE CAN DO NOTHING
BUT GIVE ME SOLUMEDROL TO HELP EASE MY PAIN/NUMBNESS. HE DOES NOT
BELIEVE THAT I HAVE RESTLESS LEGS OR EVEN THAT I HAVE FM. THEN AGAIN HE
DOUBTED I HAD MS UNTIL HE SAW MY TAP RESULTS
MY QUESTION TO YOU GUYS IS WHAT CAN BE DONE FOR RESTLESS LEGS ASIDE
FROM REQUIP AND WHAT CAN BE DONE ABOUT MY NUMB/BURNING LEGS. MY LEG HAS
NOT HAD FEELING IN OVER 2 MONTHS. MY DOC KNOWS THIS BUT IT IS DEALT
WITH BY HIM SAYING "STEROIDS OR DEAL WITH IT". ANY SUGGUESTIONS, I NEED
SOME SLEEP AND SOME CONTROL OVER MY BODY. IT IS ALMOST LIKE YOU HAVE TO
CONSTANTLY BE MOVING AROUND AND IF YOU STOP YOU CRAMP UP. I AM A
MAINTENANCE MAN FOR A COATING COMPANY AND I NEED TO BE VERY CAREFUL
WITH WHAT I WORK ON. ALSO I CAN NOT MISS WORK. I HAVE YET TO SLEEP.
PLEASE HELP ME RELAX AND SLEEP. THANK YOU.
STEVE
st...@tropheus.demon.co.uk
wrote:
> MY QUESTION TO YOU GUYS IS WHAT CAN BE DONE FOR RESTLESS LEGS ASIDE
>FROM REQUIP AND WHAT CAN BE DONE ABOUT MY NUMB/BURNING LEGS.
I found that Pycnogenal worked quite well.
--
Steve Wolstenholme Neural Planner Software
EasyNN-plus. The easy way to build neural networks.
http://www.easynn.com
QQ...@webtv.net
medical problem can have it. it is neurological based and your pcp can
write script for the new med for it's treatment.... why you stay with
this doc baffles me:-( not to be mean spirtid but you leave me wonder if
your into playing the victim role. on the bright side your capitol
letters made it a whiz ro read..... dory
......." There is so much good in the worst of us and so much bad in
the best of us that its rather hard to discern which of us ought to
reform the rest of us"...........
.........Alain Fournier.........
rose
steve wrote:
> MY QUESTION TO YOU GUYS IS WHAT CAN BE DONE FOR RESTLESS LEGS ASIDE
> FROM REQUIP AND WHAT CAN BE DONE ABOUT MY NUMB/BURNING LEGS.
Steve, my neuro gave me a script for generic Tegretol for what he'd
originally thought was RLS, but later decided was something else
M.S.-related. The carba-whatever (Generic Tegretol) worked for the
spazzy night time legs, and also helps a *lot* with the nerve-burn I
get in my limbs sometimes.
ReQuip is the big new drug, I know, but sometimes the older, generic
versions of meds work as well or even better than the new-fangled,
expen$ive stuff.
In my case, Tegretol definitely made me sleepy, LOL -- if you're only
taking them at bedtime, you may have a little "hangover" feeling in the
a.m.s while your body's getting used to it. Again, in my case, taking
them on a regular, all-day schedule, tends to turn me into a total
zombie, although I've heard from folks who don't have this reaction.
all the best to you, no sleep + burning legs is enough to take it outa
ya, for sure. Hope you can get some relief soon!
best,
rose
QQ...@webtv.net
awful. i take generic neurontin for burning and other crazy awful
sensation in my legs.
my non ms daughter in law has the worst case of restless legs i have
ever ever seen. it's got to wear i only look at her head while visiting.
sound mean don't i? but just watching the constant 24/7 continouse
movement of her legs makes me feel miserable for her.
i had it so bad when i was younger and one memory of it i still can't
forget was sitting in the back seat of car on a12 hour trip. the driver
was a big guy so the seat was pushed all the way back. i could not move
my legs. it was sheer torture. the back seat window just rolled out a
tiny bit which was good or i would of jumped out.
i've read your other replies today and enjoyed them so will respond
later.... dove if you read this a cyber hug is headed your way and also
to you rose..... dory
itazuke
Also, finding out if you are eating/drinking allegens which can cause
leg spasms.
Worked/works for me
John
Peace Dove
and rose ---
what is restless legs -- i do not mean to be stupid - but - my legs have
been driving me crazy and i keep ignoring them best i can -- and
swearing undrer my breath at the ms ---
be safe - be well ---- dove
fingers and brain not great either --- sorry for no caps
John Husvar
"rose" <rosedaw...@yahoo.com> wrote:
> steve wrote:
> > MY QUESTION TO YOU GUYS IS WHAT CAN BE DONE FOR RESTLESS LEGS ASIDE
> > FROM REQUIP AND WHAT CAN BE DONE ABOUT MY NUMB/BURNING LEGS.
>
>
> all the best to you, no sleep + burning legs is enough to take it outa
> ya, for sure. Hope you can get some relief soon!
>
> best,
> rose
Man, you folks are describing my life to a "t!"
The last several months my legs have been like they're on fire and jump
around constantly. Who knows where they're going, but they're not taking
me with them or not waiting for me to catch up.
Usually I can handle it as just another condition of life. Heck, I even
joked with the people at the hospital when they asked me to rate the
pain in another, unrelated incident. "About an 8" i'd say," but you have
to remember I live at 5. I have a building lot there at 665 5th Street,
right across from The Beast."
Lately it's not been any joking matter. It's getting worse almost daily
with no signs of slowing.
And, Damn, it hurts!
My neurologist's Nurse Practitioner said she'd see about getting me an
appointment at the Cleveland Clinic's Pain Center, but no news from her
or CC yet.
<WARNING! Ramble Alert! WARNING!>
I hope they don't get much into all the New Age-ish Meditation,
Relaxation, etc. etc.
Hmph. New Age? Yeah, right. :)
I was doing Kundalini and Tantric Yoga, Third Eye Visualization, and
miscellaneous meditation techniques before most of my medical providers
were born. Still do them in fact.
I decided it was all useful in its various ways, but most, if not all,
of the religious and Hoodoo trappings were unnecessary.
What is the sound of one hand clapping? Depends on what the hand is
clapping against.
The really fun, and surprisingly beneficial, exercises are the Japanese
Zen Bhuddist meditations, the koans and the meditations like Drinking
Tea From An Empty Cup and Watching Stones Grow. I was taught those by a
visiting Japanese friend years ago, and was pleasantly surprised to see
them appear in Clavell's "Shogun."
That was like running into an old friend in an out-of-the-way place
you'd never, ever, think to find them.
One of the things that surprises me is how Zen-like much Christian
mysticism is, especially some of the Roman Catholic liturgy and
meditative practices. Or is it how Catholic much Zen seems? :)
Only answer to that is: Mu.
--
Bring back, Oh bring back
Oh, bring back that old continuity.
Bring back, oh, bring back
Oh, bring back Clerk Maxwell to me.
GT Tick
Mu.".....
---
---
Well Grasshopper, yes/no/maybe. :-)
*****Don't Cry Because It's Over...Smile Because It Happened.*****
John Cawston
Hi there,
I have found Clonazepam good value for restless legs at night.
Nothing is worse than no sleep at night :( I have had "burning"
and tingling feet for years, but it's certainly not painful, just
always there. Years ago, one leg used to "jump" suddenly, while
sitting, and a toe used to bend upwards inside a shoe, but that
hasn't happened for a long time, so don't know why that should cease?
Heather
John Husvar
OLT...@webtv.net (GT Tick) wrote:
> John, possibly sake soaked, states....."Only answer to that is:
> Mu.".....
> ---
> ---
> Well Grasshopper, yes/no/maybe. :-)
LMAO
Moo!
GT Tick
---
---
Re: RESTLESS LEGS
Group: alt.support.mult-sclerosis Date: Sat, Sep 16, 2006, 3:40am
(CDT+5) From: jhu...@sbcglobal.net (John Husvar)
*****Don't Cry Because It's Over...Smile Because It Happened.*****
rose
QQ...@webtv.net wrote:
> hi rose:-) that tegretol was the worst med i ever took. lordy i felt
> awful. i take generic neurontin for burning and other crazy awful
> sensation in my legs.
hi Dory! :-> Yeah, Tegretol and I do not play well together. On the
up-side, in my case, Tegretol *works*! There was a time when I had the
nerve-burn bad, and on a daily basis. It was the only time since I was
a little kid that I thought seriously about suicide, it was *that* bad.
I knew I didn't really want to die, though, I just wanted the ability
to take a break from the unrelentingness of the nerve burn, it was just
horrible. That's when the doc told me to take daily, high-dose
Tegretol. I always hated the side effects, but when the choices are bad
and worse, I go for just plain bad, over worse. Thankfully, after a
while it started to ease up a bit, and now the neuro and I have agreed
on a plan -- he writes regular prescriptions for Tegretol, which I
don't fill, unless and until I get the nerve burn (or occasionally,
other weird sensory symptoms), and then I take them PRN, rather than 4X
a day. The night time dose is often all it takes, which means I'm not
so Zombiefied as when I'm taking it durin the day too.
Back then, Neurontin had not yet gone generic, so the neuro gave me two
weeks' worth of free samples. I've heard that the sample dosages may be
too low, but not sure, I do know it didn't do jack for me, where
Tegretol did, so why would I consider a $200-per-month med, when I had
a $30-per-month med that worked better, you know?
Now, I just stick with what I do know, which is why I take and
recommend Tegretol, even though I hate, detest, and abhor the rotten
stuff -- it's not as bad as the rotten stuff M.S.. throws at me, I know
what to expect, and it's already generic. :->
Good to 'see' you, Dory, hope your summer was bearable!
XO,
RD
rose
GT Tick wrote:
> Our little inside joke...well, er...Rose may get it. :-)
> ---
> (CDT+5) From: jhu...@sbcglobal.net (John Husvar)
> In article <7970-450...@storefull-3236.bay.webtv.net>,
> OLT...@webtv.net (GT Tick) wrote:
> John, possibly sake soaked, states....."Only answer to that is:
> Mu.".....
> ---
> ---
> Well Grasshopper, yes/no/maybe. :-)
> LMAO
> Moo!
Heh, yup Tick, I know all about the Roshi Cows, and the Chinese Commie
Cats.
Mao!
RD ;->
rose
John Husvar wrote:
> Hmph. New Age? Yeah, right. :)
>
> I was doing Kundalini and Tantric Yoga, Third Eye Visualization, and
> miscellaneous meditation techniques before most of my medical providers
> were born. Still do them in fact.
For real, John? Have you ever had L'Hermittes Sign? Did you immediately
"recognize" the sensation as being the exact same sensation as the
"snake in the spine?"
First time it got me, I wondered about all the folks I'd heard describe
it as excruciating, horrendous, the worst type of M.S. pain imaginable,
etc. Felt very familiar to me! I thought the sensation was
*interesting*, as opposed to freaky-bad.
What it did was give me the idea that there are things-people-do --
breathing, posture, meditative exercises, whatever -- that bring about
CNS symptoms; so maybe, just maybe, it could also work vice-versa. I
began trying for symptom control using yogic techniques, and whaddya
know, it worked -- while I was still RR, at least. I'd always wished
and hoped to find someone who wasn't a newage (rhymes with 'sewage')
flake, but who was familiar with the practices, hoping maybe something
un-scientific -- but still *effective*! -- could be hashed out. Didn't
manage to get to the mountain top on my own -- oh well.
One thing I will say for M.S., it brings a definite deepening of
understanding to the Lotus Sutra. Gate, gate, paragate, d00d! ;->
XO,
RD
John Husvar
"rose" <rosedaw...@yahoo.com> wrote:
> John Husvar wrote:
> > Hmph. New Age? Yeah, right. :)
> >
> > I was doing Kundalini and Tantric Yoga, Third Eye Visualization, and
> > miscellaneous meditation techniques before most of my medical providers
> > were born. Still do them in fact.
>
> For real, John? Have you ever had L'Hermittes Sign? Did you immediately
> "recognize" the sensation as being the exact same sensation as the
> "snake in the spine?"
For real, Rose.
Full-fledged member of the Steubenville Zen, Yoga, and Psychic Research
Society once upon a time. Nuttiest bunch of characters you'd ever not
want to meet for the most part, but there were a few serious
experimenters and searchers.
To me, L'Hermittes feels similar, but not the same. The snake stays and
increases in strength. Sonofagun'll bite you in the butt, too, if you
don't watch out. :)
> First time it got me, I wondered about all the folks I'd heard describe
> it as excruciating, horrendous, the worst type of M.S. pain imaginable,
> etc. Felt very familiar to me! I thought the sensation was
> *interesting*, as opposed to freaky-bad.
I have it often, some days I'd rather not bend my neck for any reason.
Yep, those ornery old nerves kicking up their heels. Or, to quote the
Travelocity Roaming Gnome: ":Ooooh, tingly!"
>
> What it did was give me the idea that there are things-people-do --
> breathing, posture, meditative exercises, whatever -- that bring about
> CNS symptoms; so maybe, just maybe, it could also work vice-versa. I
> began trying for symptom control using yogic techniques, and whaddya
> know, it worked -- while I was still RR, at least. I'd always wished
> and hoped to find someone who wasn't a newage (rhymes with 'sewage')
> flake, but who was familiar with the practices, hoping maybe something
> un-scientific -- but still *effective*! -- could be hashed out. Didn't
> manage to get to the mountain top on my own -- oh well.
For me, most of the postures, exercises, meditations, etc. are aids to
concentration and/or ways to aim your mind toward a mental goal, not
ends in themselves. Some explain it as self-hypnosis, but I don't find
it so self centered as expansion of self toward otherness trying to meld
with it while retaining a sense of self and getting a deeper
understanding of self related to the world.
They _do_ help a lot with flexibility and balance though.
>
> One thing I will say for M.S., it brings a definite deepening of
> understanding to the Lotus Sutra. Gate, gate, paragate, d00d! ;->
<Chuckle>