Re: neuropathy and supplements
george
"omegaman" <omeg...@heston.org> schreef in bericht
news:4a78bc77$1...@news.x-privat.org...
> Are any of these harmful to the kidneys when taken at reasonable
> recommended dosages, taking to combat neuropathy in my feet.
>
> bitter melon
> american ginseng (small amount)
> chromium yeast derived
> alpha lipoic acid
> multivitamin for seniors
> acetyl-l-carnitine
> ginkgo biloba
> red yeast for cholesterol control
> cq-10
>
> occasionally I have lower back pain on awakening that seems to be kidney
> pain as opposed to cervical pain. When I sweat my shirts leave a white
> stain which I read somewhere could be sign of early kidney disease. Have
> not had creatine levels checked in two years, last time they were
> "normal" I was told. Recently, I stopped taking all supplements for
> several days and my urine output dropped to about 1/2-1/3 previous
> amounts.
>
> I have high normal bg HgAc1 levels, no high BP.
>
>
>
>
>
>
>
>
>
george
george
kidneyfailure I have been taking 8 to 10 pills of 30 mg Q10 daily for the
past 12 weeks. And he, the pain has gone away, I can walk again and have
started interval training and cycling to strengthen muscle and function.
As a general rule of thumb most extra vitamines are ok but you will have
tot verify medication against supplements.
Ron D
seeing a Nephrologist. If you suspect kidney disease I would not take a
lot of these supplement without conferring with a medical doctor
preferably a Nephrologist.
You need to have a work up which is done primarily with blood lab work.
A lot can be done if caught early. Creatine levels can change fairly
quickly if there is a problem
The white on your clothing after sweating can be sodium residue from the
sweat.. Do you get it on your arms after sweating & drying?. If so it
could be UREMIC FROST a sign of kidney failure.
This is not something to fool around with or try to diagnose here.
Please try to see a Nephrologist & soon. This is the same advise I was
given here some 3 years ago & YES..I had & have stage 3 kidney failure
but my Nephrologist & I are working to keep it @ stage 3 for the rest of
my life. Thus far we are succeeding. We have lowered my creatine to just
high normal level. GOD bless.. Ron in Fl. (feel free to Email me).
mainframetech
And remember to learn as much as you can about all the things that
might affect yopu and your kidneys. I went to 4-5 nephrologists and
none of them gave me the critical information I needed to delay or
avoid dialysis, or even mentioned that 1 out of 4 die during the first
year of dialysis. I had to find it out myself on the internet. It
has worked for 3-4 years now, and will for a while longer.
You have to get involved in your health and be cautious about what
the 'medical community' has in mind for you. I have stage 3 kidney
disease, and the doctors at one facility were ready to give me an MRI
using contrast dyes. When I said that is contra-indicated for my
disease, they said, "it will be fine". I got out of there. I have
many studies and trials that have concluded that contrast dyes for any
procedure can cause major problems for kidney patients.
The medical community is used to dealing with difficult diseases
and they have to stay separated to keep from getting involved in
people's feelings so they can do their job. But when you need someone
that cares so they think about the problems you face, you better
depend on yourself.
Good luck,
Chris
Ron D
DR
"mainframetech" <mainfr...@yahoo.com> wrote in message
news:c3404460-ae7b-47b8...@p36g2000vbn.googlegroups.com...
>
or even mentioned that 1 out of 4 die during the first
> year of dialysis. I had to find it out myself on the internet.
Please provide link or reference for this.
kidren
I'm probably repeating earlier comments but here it goes.
If you suspect kidney failure, see your doc and if needed see a
nephrologist or two or three.
If you want to confirm whether or not your supplements have the
potential to react badly with your kidneys, then research and ask your
family doctor.
If you want to make extra sure, research using Google with keywords
such as "<insert supplement", "kidney failure", etc.
somebody
47b8-9cb2-4...@p36g2000vbn.googlegroups.com:
All I have to say to this is that 100% of patients who NEED dialysis but
don't get it die. Just a fact. Whether some doctors try to start
patients a little early is another question. At any rate, doctors
cannot start a patient legally until there bloodwork [Creatinine & BUN,
for 3 months consecutively, with a few exceptions] reaches a certain
point. These are Medicare regulations. They are not negotiable.
One other thing, A patient can be transplanted before they actually go
into clinical failure, but only with a living donor.
Dave
mainframetech
> "mainframetech" <mainframet...@yahoo.com> wrote in message
DR...
Here's the first link I came across. The quote from it is:
"The first-year mortality rate for dialysis patients is approximately
30 percent, according to the 2008 USRDS report."
The link is:
http://www.renalbusiness.com/articles/kcp-plans-cut-first-year-mortality.html
Here's the next quote:
"The mortality in this crisis situation can be as high as 25%. "
The link is:
http://www.annals.org/cgi/content/full/121/1/62
Here's the next quote:
"One-year mortality after starting dialysis was 12.8% among the clinic
group, compared with 22.6% typically seen in the Midwestern Network"
The link is:
http://www.medscape.com/viewarticle/590451
I could go on all day with these numbers and links, but I'd rather
you did the work yourself so that you will believe the links, rather
than think I made them up. I have quoted these statistics to a number
of physicians and only one of them corrected me by saying it was "1
out of 5". And he admitted he was splitting hairs.
There are a number of reasons for the loss of life during the first
year of dialysis, but the stats for mortality stay up there for second
and successive years. To me, dialysis is to be delayed or avoided for
as long as is practical. Obviously, waiting too long can be dangerous
too, so see a good nephrologist and work it out. I went through 4
guys before I got to one that would tell me the truth and work with
me, and even he didn't tell me there was a way to avoid or delay
dialysis until I found it myself.
Good luck,
Chris
Good Luck,
Chris
mainframetech
> mainframetech <mainframet...@yahoo.com> wrote in news:c3404460-ae7b-
> 47b8-9cb2-41117348d...@p36g2000vbn.googlegroups.com:
>
> - Show quoted text -
Dave,
Yes, for most of us it isn't news that after a certain point without
dialysis we die.
The 3 months is part of the diagnosis of CKD. If your eGFR (from
Serum Creatinine) is less than 60 for 3 months, you have Chronic
Kidney Disease. I have it, so I'm familiar with the measurement, but
I've had CKD for over 3 years where if I didn't do anything to delay
dialysis I would have gone into it 2 years ago. That's 2 extra years
of guaranteed life to my way of looking at it. Sure, I might not die
in my first year of dialysis, and then maybe I might... :)
Yes, some doctors start patients on dialysis sooner than
necessary. I had a nurse tell me that some nephrologists make a
certain amount of income sooner by doing that.
I'm happy to hear that Medicare won't dialyse someone who does not
have CKD. As a Medicare recipient, I feel safer already... :)
Good Luck,
Chris
Jason
<bede879d-8b35-4aaa...@l31g2000vbp.googlegroups.com>,
mainframetech <mainfr...@yahoo.com> wrote:
> On Aug 10, 10:10=A0am, somebody <someb...@someplce.com> wrote:
> > mainframetech <mainframet...@yahoo.com> wrote in news:c3404460-ae7b-
> > 47b8-9cb2-41117348d...@p36g2000vbn.googlegroups.com:
> >
> >
> >
> >
> >
> >
> >
> > > =A0 And remember to learn as much as you can about all the things that
> > > might affect yopu and your kidneys. =A0I went to 4-5 nephrologists and
> > > none of them gave me the critical information I needed to delay or
> > > avoid dialysis, or even mentioned that 1 out of 4 die during the first
> > > year of dialysis. =A0I had to find it out myself on the internet. =A0It
> > > has worked for 3-4 years now, and will for a while longer.
> >
> > > =A0 =A0You have to get involved in your health and be cautious about wh=
> at
> > > the 'medical community' has in mind for you. =A0I have stage 3 kidney
> > > disease, and the doctors at one facility were ready to give me an MRI
> > > using contrast dyes. =A0When I said that is contra-indicated for my
> > > disease, they said, "it will be fine". =A0I got out of there. =A0I have
> > > many studies and trials that have concluded that contrast dyes for any
> > > procedure can cause major problems for kidney patients.
> >
> > > =A0 =A0The medical community is used to dealing with difficult diseases
> > > and they have to stay separated to keep from getting involved in
> > > people's feelings so they can do their job. =A0But when you need someon=
> e
> > > that cares so they think about the problems you face, you better
> > > depend on yourself.
> >
> > > Good luck,
> > > Chris
> >
> > All I have to say to this is that 100% of patients who NEED dialysis but
> > don't get it die. =A0Just a fact. =A0Whether some doctors try to start
> > patients a little early is another question. =A0At any rate, doctors
> > cannot start a patient legally until there bloodwork [Creatinine & BUN,
> > for 3 months consecutively, with a few exceptions] reaches a certain
> > point. =A0These are Medicare regulations. =A0They are not negotiable.
> >
> > One other thing, A patient can be transplanted before they actually go
> > into clinical failure, but only with a living donor.
> >
> > Dave- Hide quoted text -
> >
> > - Show quoted text -
>
> Dave,
> Yes, for most of us it isn't news that after a certain point without
> dialysis we die.
>
> The 3 months is part of the diagnosis of CKD. If your eGFR (from
> Serum Creatinine) is less than 60 for 3 months, you have Chronic
> Kidney Disease. I have it, so I'm familiar with the measurement, but
> I've had CKD for over 3 years where if I didn't do anything to delay
> dialysis I would have gone into it 2 years ago. That's 2 extra years
> of guaranteed life to my way of looking at it. Sure, I might not die
> in my first year of dialysis, and then maybe I might... :)
>
> Yes, some doctors start patients on dialysis sooner than
> necessary. I had a nurse tell me that some nephrologists make a
> certain amount of income sooner by doing that.
>
> I'm happy to hear that Medicare won't dialyse someone who does not
> have CKD. As a Medicare recipient, I feel safer already... :)
>
> Good Luck,
> Chris
Chris,
I enjoy reading your excellent posts. I just wanted to add that every
person that has any stage of kidney disease or thinks they may have some
sort of kidney disease should read this book:
"Coping With Kidney Disease" by Mackenzie Walser, M.D.
mainframetech
> In article
> <bede879d-8b35-4aaa-8d82-ec9705757...@l31g2000vbp.googlegroups.com>,
>
> - Show quoted text -
Jason,
Yes, I definitely agree. The book is a winner. I have used it's
wisdom for 3-4 years now.
Good luck,
Chris
mainframetech
> In article
> <bede879d-8b35-4aaa-8d82-ec9705757...@l31g2000vbp.googlegroups.com>,
>
>
>
>
>
>
> - Show quoted text -
Jason,
Yes, definitely a winner of a book! I've used it for 3-4 years now
and swear by it.
Good luck,
Chris
Somebody
news:Jason-15080...@67-150-1-237.lsan.mdsg-pacwest.com:
I have another comment here. I don't disagree that the death rate on
dialysis is what you have said. It is rather logical to expect to have
a higher death rate in the dialysis population than in the general
population.
However, There is no study anywhere by anyone that could diffinitively
say that the death rate on dialysis is CAUSED by the dialysis treatment.
Not to say that there are none. But the incidence of dialysis causing
the death are few and far between. 90+% of dialysis patients die from
heart disease. Most of the rest die from co-morbid conditions that
existed prior to dialysis. More than 30% of dialysis patients are over
the age of 65. Some were even terminal when they began dialysis. There
is even a small percentage that chooses to end dialysis.
Another factor is the patients themselves. I have been doing dialysis
for 22+ years. If you had talked to and observed as many patients as I
have, you would realize that most don't come even close to staying
compliant with the diet and fluid restrictions necessary for long term
survival on dialysis. I'll add here that it is my opinion, as well as
most of the experts in the industry, that the diet and fluid control are
the most critical aspects to a long life on dialysis.
Not to mention the number of patients that choose to end treatments
early or to skip treatments all together. Even if they don't get sick
immediately, the accumilative effects can lead to a shorter life span on
dialysis.
So what I am trying to get across is this. For reasonably healthy (for
a CKD patient) starting dialysis, the risk is relatively low, provided
that the patient is diligent in learning the restrictions necessary and
then follows them. The biggest dangers for these patients are from the
miriad of viral and bacterial infections that, to the general public,
would be of little concern. These same infections can mean a premature
death to a dialysis patient (almost all dialysis patients are
immunosuppressed by the nature of the condition). Most severe
infections can be avoided or minimized by the juditious use of vaccines
and adherence to good heigenic methods.
The biggest point new patients have difficulty with is that they HAVE to
change their lifestyle, that the treatments by themselves will only get
you so far. From what I have seen here, those of you that have gone to
such extremes to avoid dialysis altogether will have little trouble with
the lifestyle change needed on dialysis. In fact, many of you will need
to change in the OTHER direction.
My advise to those who are facing the decline in their kidney function
is to learn as much as you can about kidney disease, and pay especially
good attention to the known cause of your own failure, if known. Also,
talk to patients who are already on dialysis because of the same cause
as you to get an idea of the difficulties that they face on dialysis
related to having that condition. There are hundreds of possible causes
for kidney failure, and the expected outcome can vary widely depending
on the underlying cause.
Also, remember this. No matter how much you want to believe it, the
medical professionals have nothing to gain by giving you wrong
information. The doctors and the dialysis facilities are entirely
different entities. The doctor is reimbursed from Medicare or your
insurance at the same rate for one months dialysis as he is for one
monthly visit to his office for a pre-End Stage patient. This by the
way was set up on purpose so that doctors wouldn't try to lead patients
to start dialysis earlier, including by not treating or managing Pre-
ESRD patients well.
In the end, I would have to say that I wouldn't wish the fate of
dialysis on even my worst enemy. It is not the end of the world,
though. It can be tolerated well, and provide a fairly good quality of
life, with the proper knowledge and attention from the patient. Will it
make you 100% well? No, absolutely not. Will it make you well enough
to have a long and fruitful life? All I can say there is maybe. This
for the most part depends on you, the patient, and the circumstances
that you find yourself in. The doctors and the rest of the
priofessional staff are there to help you survive. Use them. Ask
questions, most won't mind at all. If you don't like the answer, ask
somebody else. Eventually you will figure out what is right. My
experience is that you will learn the most from other patients, but
remember that not all patients are in the same situation as you. Use
the knowledge you gain from patients to develop inquiries to the staff.
You should be able to figure out what is right, which may be somewhere
in the middle.
Maintaining an active lifestyle while on dialysis will go along way to
making you feel better. Work if you physically can. Volunteer if you
can. But stay active. It makes a huge difference.
I'll end this here. If anybody has any comments or questions about what
I have written, please feel free to respond here. I don't expect to
have everybody agree with what I have written. A frank discussion about
opposing views is not a bad thing.
Dave.
mainframetech
Dave,
Quite a lot to speak to there, but I'll give it a try. The nurse
I spoke to that mentioned that some doctors profit by moving patients
to dialysis mentioned that it had something to do with them being
reimbursed for the patient, though not having to do the same work.
See if that makes any sense from your standpoint or knowledge.
You mentioned that many people die in dialysis because they won't
properly follow the instructions, diet, etc. I doubt we can magically
cause the patients to suddenly do these things properly, so for that
group, avoiding dialysis will prolong their life.
I agree that there are many causes for death during the first
year of dialysis. What has to be considered is what percentage of
people die in the year just before dialysis. Dialysis puts a burden
on the system and is not perfect. We can discuss this reason and
that, but the death rate is an appalling 1 out 4 in the first year of
dialysis, and much lower before dialysis. If you say, well, they are
healthier before they get to the point of needing dialysis, you've
made my point. With the very low protein diet and supplements you
have kept yourself 'healthier' than when on dialysis and your chance
of dying in the first year is less.
You said: "There is no study anywhere by anyone that could
diffinitively
say that the death rate on dialysis is CAUSED by the dialysis
treatment".
Yet you have given reasons that the dialysis DID cause deaths. If you
say that people didn't follow the instructions that are integral to
dialysis and so they helped along their own death, you've said
Dialysis causes some quantity of deaths by being too difficult for
saome to follow. The key point is still that when you Google
"dialysis mortality" you get many answers, most within the parameters
I've mentioned. Yes, many causes, but dead is dead no matter the
cause.
My experience with myself and what some people here say as to their
experiences is that the low protein diet has definitely been a help
and that they actually WANT to avoid or delay dialysis. I'm glad to
see that a life of 22+ years can be had on dialysis, but I'm not going
to rush down and get set up for it. If I put off dialysis for 4
years, the I can add that to the 22+ and get 26+... :)
I believe one person here tried the Walser diet and their numbers
went almost back to square one before kidney disease. I would wait
for them to jump in to verify that, but I seem to remember his
nephrologist was amazed and said, 'keep doing what you're doing'.
mainframetech
Sorry, I hit the 'post' key too soon. Let me try and pick up from
where I left off above.
While there are a number of 'off-the-books' incentives issued to
doctors by the medical industry, I can't speak to details, only the
human urge to greed, often at its worst within corporations. I can
tell you this, that they did studies in France and then Italy and
Sweden and found that it was worth having nephrologists recommend the
low protein diets to patients to delay dialysis. The U.S. did no such
thing, though they were aware of the European decisions. One wonders
if it relates to the same situation with various drugs successfully
used in Europe that the FDA refuses to approve even though they've
been used for many years. On that subject, look into the stories of
'Stevia' and 'Aspertame'. It's enough to make you paranoid about
medicine in the U.S.
Watch how the HealthCare bills that could save millions their much
needed rent money are trashed by the Insurance and Drug lobbies. If
there is money to be made on dialysis (and there is) and all the
prescriptions needed along with it, then you can be sure that they
have already found a path to the doctors that do the prescribing and
are busy convincing them the way they want them to go. If
nephrologists prescribe dialysis, and the patient usually goes to a
facility that the physician is associated with, then there is a
connection between them. How tight the connection depends on the two
entities.
In a study that was done on people in end stage kidney failure,
they found that U.S. nephrologists hadn't mentioned it to many of
their patients, and over 10% had prescribed NSAIDS and similar
medicines harmful to the patients on top of that.
Sorry, I'm a little bent at the U.S. medical community, please
don't let it taint your image of your physician, they may be very well-
meaning.
Good luck,
Chris
Ron D
almost back to square one before kidney disease. I would wait for them
to jump in to verify that, but I seem to remember his nephrologist was
amazed and said, 'keep doing what you're doing'."
_ (sorry, I don't know how to smallify)_
.
That was from me. 2 1/2 years ago I was diagnosed with stage 3 CKD with
a GFR of 51, My KCL was severely elevated & my hemoglobin was 9.2. I
came to this group & received lots of info. One of the best was the
WALSER diet found in his 12 step book. I took it to heart. I REALLY cut
all proteins dramatically, started on Essential Amino Acid Supplements.
Reduced high KCL foods, went off Maxide & on Terazosin instead. The
anemia was acute & required an injection of Aranesp (100mcg) sub Q every
2 weeks to stay between 11 & 12 on my hemoglobin.
The diet resulted in a 10# weight loss over the 2 1/2 years. My last
eGFR was 57. My creatine & KCL are in normal ranges. My hemoglobin only
drops below 11 about every 3 months requiring 1 Aranesp injection to
correct. I do have some problems about 2 weeks after Aranesp. (it takes
the bone marrow 2-3 weeks to make the mature RBC's & the blood volume is
supported with other fluids to prevent Hypovolemic Shock. When the RBC's
enter the blood stream these extraneous fluids are push out into the
bodies tissues to be eliminated). A 7 day course of HCZT 25 mg a day,
takes care of the edema..My BP is way down except during the brief edema
periods. My Nephrologist is happy, My internal medicine Doc & my
pulmonologist are also happy about how thing are going. I just turned 70
I have some medical background & do a lot of research. Both my
Nephrologist & myself feel I can live out my life never leaving stage 3.
That's my story. I'm certainly blessed in many way's & thank GOD every
day for his grace. Ron
.
PS: I URISTIX my first morning voiding @ leat 3 times a week & don't
have even a trace of protein leakage.
Jason
<119f5205-e0a2-4474...@g23g2000vbr.googlegroups.com>,
mainframetech <mainfr...@yahoo.com> wrote:
> On Aug 16, 1:17=A0am, Ja...@nospam.com (Jason) wrote:
> > In article
> > <bede879d-8b35-4aaa-8d82-ec9705757...@l31g2000vbp.googlegroups.com>,
> >
> >
> >
> >
> >
> > mainframetech <mainframet...@yahoo.com> wrote:
> > > On Aug 10, 10:10=3DA0am, somebody <someb...@someplce.com> wrote:
> > > > mainframetech <mainframet...@yahoo.com> wrote in news:c3404460-ae7b-
> > > > 47b8-9cb2-41117348d...@p36g2000vbn.googlegroups.com:
> >
> > > > > =3DA0 And remember to learn as much as you can about all the things=
> that
> > > > > might affect yopu and your kidneys. =3DA0I went to 4-5 nephrologist=
> s and
> > > > > none of them gave me the critical information I needed to delay or
> > > > > avoid dialysis, or even mentioned that 1 out of 4 die during the fi=
> rst
> > > > > year of dialysis. =3DA0I had to find it out myself on the internet.=
> =3DA0It
> > > > > has worked for 3-4 years now, and will for a while longer.
> >
> > > > > =3DA0 =3DA0You have to get involved in your health and be cautious =
> about wh=3D
> > > at
> > > > > the 'medical community' has in mind for you. =3DA0I have stage 3 ki=
> dney
> > > > > disease, and the doctors at one facility were ready to give me an M=
> RI
> > > > > using contrast dyes. =3DA0When I said that is contra-indicated for =
> my
> > > > > disease, they said, "it will be fine". =3DA0I got out of there. =3D=
> A0I have
> > > > > many studies and trials that have concluded that contrast dyes for =
> any
> > > > > procedure can cause major problems for kidney patients.
> >
> > > > > =3DA0 =3DA0The medical community is used to dealing with difficult =
> diseases
> > > > > and they have to stay separated to keep from getting involved in
> > > > > people's feelings so they can do their job. =3DA0But when you need =
> someon=3D
> > > e
> > > > > that cares so they think about the problems you face, you better
> > > > > depend on yourself.
> >
> > > > > Good luck,
> > > > > Chris
> >
> > > > All I have to say to this is that 100% of patients who NEED dialysis =
> but
> > > > don't get it die. =3DA0Just a fact. =3DA0Whether some doctors try to =
> start
> > > > patients a little early is another question. =3DA0At any rate, doctor=
> s
> > > > cannot start a patient legally until there bloodwork [Creatinine & BU=
> N,
> > > > for 3 months consecutively, with a few exceptions] reaches a certain
> > > > point. =3DA0These are Medicare regulations. =3DA0They are not negotia=
> ble.
> >
> > > > One other thing, A patient can be transplanted before they actually g=
> o
> > > > into clinical failure, but only with a living donor.
> >
> > > > Dave- Hide quoted text -
> >
> > > > - Show quoted text -
> >
> > > Dave,
> > > =A0 Yes, for most of us it isn't news that after a certain point withou=
> t
> > > dialysis we die.
> >
> > > =A0 =A0The 3 months is part of the diagnosis of CKD. =A0If your eGFR (f=
> rom
> > > Serum Creatinine) is less than 60 for 3 months, you have Chronic
> > > Kidney Disease. =A0I have it, so I'm familiar with the measurement, but
> > > I've had CKD for over 3 years where if I didn't do anything to delay
> > > dialysis I would have gone into it 2 years ago. =A0That's 2 extra years
> > > of guaranteed life to my way of looking at it. =A0Sure, I might not die
> > > in my first year of dialysis, and then maybe I might... :)
> >
> > > =A0 =A0Yes, some doctors start patients on dialysis sooner than
> > > necessary. =A0I had a nurse tell me that some nephrologists make a
> > > certain amount of income sooner by doing that.
> >
> > > =A0 =A0I'm happy to hear that Medicare won't dialyse someone who does n=
> ot
> > > have CKD. =A0As a Medicare recipient, I feel safer already... :)
> >
> > > Good Luck,
> > > Chris
> >
> > Chris,
> > I enjoy reading your excellent posts. I just wanted to add that every
> > person that has any stage of kidney disease or thinks they may have some
> > sort of kidney disease should read this book:
> >
> > "Coping With Kidney Disease" by Mackenzie Walser, M.D.- Hide quoted text =
> -
> >
> > - Show quoted text -
>
> Jason,
> Yes, I definitely agree. The book is a winner. I have used it's
> wisdom for 3-4 years now.
>
> Good luck,
> Chris
Chris,
I had a friend that had kidney disease for over 15 years. He died of heart
disease--not kidney disease. He told me that he met many different kidney
disease patients while getting treatment for kidney disease. He told me
that lots of them died at young ages and he told me the reason that most
of them died at young ages. Of course, some of them died as a direct
result of kidney disease. However, he told me that most of them died
because they told him that they did NOT want to spend the next 20 or more
years getting dialysis. In other words, they stopped getting dialysis and
died soon after stopping dialysis. I seem to recall that Dr. Mackensie
Walser discussed this subject in his book. Do you have any comments or
opinions on this subject? Do you believe my former friend was telling the
truth? I do
jason
mainframetech
Jason,
Yes, I've heard that occasionally that someone has decided they
don't want to go through the difficulty of dialysis, or they are
afraid of it. Sitting in one spot for 4 hours or more may not be
everyone's cup of tea. Me, I'll do it when my time comes. Until
then, the longer I hold off, the better the chance they will have
found a solution for us. I suspect it will be in the exciting new
area called 'epigenetics'. For possibilities look up FT-11 in
Australia and FG-3019 in Canada. Will be a few years, but they may
come up with something.
Good luck,
Chris
Jason
<ba71412f-41ce-4c9f...@p15g2000vbl.googlegroups.com>,
mainframetech <mainfr...@yahoo.com> wrote:
Chris,
We all hope so. I wish you well.
jason
kk
news:c3404460-ae7b-47b8...@p36g2000vbn.googlegroups.com:
>
> And remember to learn as much as you can about all the things that
> might affect yopu and your kidneys. I went to 4-5 nephrologists and
> none of them gave me the critical information I needed to delay or
> avoid dialysis, or even mentioned that 1 out of 4 die during the first
> year of dialysis. I had to find it out myself on the internet. It
> has worked for 3-4 years now, and will for a while longer.
>
> You have to get involved in your health and be cautious about what
> the 'medical community' has in mind for you. I have stage 3 kidney
> disease, and the doctors at one facility were ready to give me an MRI
> using contrast dyes. When I said that is contra-indicated for my
> disease, they said, "it will be fine". I got out of there. I have
> many studies and trials that have concluded that contrast dyes for any
> procedure can cause major problems for kidney patients.
>
The below I agree with 100%. It is sad that our health care system
requires patients to be their own doctors. This is something they never
mention in health care debates, while they are simultaneously trying to
take away our right to sue doctors.
mainframetech
>
> The below I agree with 100%. It is sad that our health care system
> requires patients to be their own doctors. This is something they never
> mention in health care debates, while they are simultaneously trying to
> take away our right to sue doctors.
>
Not only are they taking away the right to sue doctors and have
already taken away some of the ability to sue certain insurance
companies, but the Baucus bill in the Senate is the worst you could
ask for. It pays off the insurance carriers with billions of dollars
from all of us, while offering NO public option and no way to lower
insurance premiums. We will pay more than ever before to the
companies and if the cost is too high, the government will pay it for
the lower income people, meaning you and I will pay that part. The
insurance and drug companies will not have to sacrifice even one
dollar to make a cganged system. To me, 'Reform' means putting the
special interests back to decency instead of making it possible for
them to own the personal islands they are leasing now.
Good luck,
Chris
Jason
<3ae0d657-236f-4414...@g23g2000vbr.googlegroups.com>,
mainframetech <mainfr...@yahoo.com> wrote:
Chris,
A good example related to the lawsuits is related to the swine flu
vaccine. It's also called the H1N1 vaccine. The pharmaceutical companies
frantically rushed the vaccine into production without conducting
long-term clinical trials. If anyone developed major side effects from the
vaccine or even dies as a direct result of taking the vaccine--they are
NOT allowed to sue the vaccine makers. In other words, they will be
testing the vaccine on all of the people that will be getting the vaccine.
One doctor that writes a newsletter advised all of the people that receive
the newsletter to NOT get the H1N1 vaccine unless they have chronic lung
related illnesses. He will not be getting the H1N1 vaccine.
Jason
mainframetech
Jason,
Yep. And now they are planning to start using a 'mist' that is
given by spraying up the nose. They are looking to give the vaccine
to babies. This particular vaccine is a 'live, attenuated' vacine,
meaning that it is alive and weakened. One doctor pointed out that
this version of a vaccine will give flu to babies which will make them
infectious for up to 21 days. Any seniors or susceptible people in
the same household can get the flu from this method. If they get
pneumonia or some other disease from the weakening of the flu virus,
the 'medical community' will actually cause a pandemic and then they
will crow about how their prompt action saved millions. A self
fufilling prophecy.
This live attenuated virus vaccine is the one that health workers
are demonstrating against in NY, where they have made a ruling that
all healthcare workers will get vaccinated, like it or not. A sad
day, but the drug companies want their profits to grow each quarter
and they don't mind making their political friends use these tactics.
Another happy note for kidney disease sufferers is that "Heparin
injections are used to prevent blood clotting mostly in patients
undergoing dialysis or heart surgery. Baxter, which provides about
half the nation's supply, halted production last month after its brand
was linked to hundreds of reports of allergic-style reactions,
including vomiting, nausea and difficulty breathing". This quote is
from the following article:
http://www.msnbc.msn.com/id/23485723/
Good Luck,
Chris