MOST Need the Treatment AGAIN?!!!
Linda Freeman
I DID read that most do have to take it again because the viral load is
okay for only a short time after the first round. NOT GOOD
Um...What to do?!!!
Anymore info on that?
I did speak to a cabb driver who said that hes been clean for 5
years--Now that's encouraging!
Waterspider
"Linda Freeman" <lfreemanli...@webtv.net> wrote in message
news:19875-4B2...@baytvnwsxa001.msntv.msn.com...
Wherever you read that most people have to do treatment the second time,
don't go there again! It's wrong. Most people have no viral load whatsoever
after the first round (their only round) because there is no more virus
left. It's dead and gone.
Most people who frequent this and other hep C groups, forums and message
boards are in the unlucky minority who do not succeed in clearing HCV
(hepatitis C virus). Others, like me, who attained SVR (Sustained Viral
Response or "Yipee, I'm cured!") are interested in the virus and the
disease, have friends here and are happy to share their knowledge about hep
C, treatment and whatever else relates to Dragon Slaying (fighting hepatitis
C).
You've told us very little about yourself, and it would be helpful if we
knew where you were coming from. For example, how long have you had hep C,
do you have other medical problems, did you have a liver biopsy, etc. So,
I'm only guessing that you are considering treatment and not really sure why
or why not.
Waterspider
Sara
wrote:
yikes! where are you getting this information? I went through
treatment ONCE, for 48 weeks, and
I have been HepC free for 3 years now, and I am finally believing that
I am CURED. :)
Believe it or not, a good reference book to read is "Hepatitis C for
Dummies"... if you look on Amazon I bet you
could find it used pretty cheap. There are a couple other really good
ones, but the titles escape me now...
anyone?
There are a couple really good websites too..... CJ? what was that
one you like so much?
sorry that I'm not being more helpful with book titles and/or links to
good info, gotta get some
breakfast into me tho :) The info is out there though, and there are
much better sources than
your local cab driver :))
Sara
Char
> "Linda Freeman" <lfreemanli...@webtv.net> wrote in message
> news:19875-4B2...@baytvnwsxa001.msntv.msn.com...
>> One of you mentioned those not being able to take it the second time and
>> I DID read that most do have to take it again because the viral load is
>> okay for only a short time after the first round. NOT GOOD
>>
>> Um...What to do?!!!
>>
>> Anymore info on that?
>>
>> I did speak to a cabb driver who said that hes been clean for 5
>> years--Now that's encouraging!
>>
> Hi Linda,
>
> Wherever you read that most people have to do treatment the second time,
> don't go there again! It's wrong. Most people have no viral load whatsoever
> after the first round (their only round) because there is no more virus
> left. It's dead and gone.
Let's be honest though. For the most common type 1 the chance of
clearing hep c is only about 60% which technically is *most people* but
not a very high number by any means.
You tend to sugar coat things quite a bit which worries me because
people are actually listening to what you post here. I'm hoping that by
reining you in a bit you will at least try to be more factual. It's not
a good thing to lie to people looking for answers.
Cactus Jammies
be taking the tx again. Most everything new I have seen in the 'pipeline'
being evaluated depends on using Interferon as well, including the new,
super-lowering viral load agents. And the standard of care for treatments
involving these new agents currently is being suggested as 48 weeks.
Yes, most genotype ones (60%) either do not complete or don't respond/clear,
or they relapse after clearing. So yes, 'most' HepC tx patients (genotype
ones) don't get the cure first time out. And the liklihood of previous
responders who have relapsed getting the cure on the second go at it... only
about 30% get the SVR.
cactus jammies
"Sara" <norminf...@aol.com> wrote in message
news:85a7f85d-240a-48d6...@c3g2000yqd.googlegroups.com...
Linda Freeman
knowledge of the statistics of Interferon patients (AND DON'T SOUND LIKE
THEY WORK FOR THE MEDICAL ESTABLISHMENT OR A PATSY) are barking up the
wrong tree?
Lets see the stats, Spidey.
Char
> Until they somehow shorten the length of time you're on Infereron, I
> won't be taking the tx again. Most everything new I have seen in the
> 'pipeline' being evaluated depends on using Interferon as well,
> including the new, super-lowering viral load agents.
I guess you haven't read this then.
http://www.latimes.com/news/nationworld/nation/la-sci-hepatitis-c4-2009dec04,0,1848983.story
This sounds real promising.
Linda Freeman
National blah, blah, blah. I'm ready to go! I was going to the
Netherlands, either Amsterdam or the island of Aruba (a territory of the
Netherlands) where I could get heroin for pain relief. Last year I
lost 50 lbs, an indication of the last stage/s of the liver dis-ease.
I'm on an upswing now for I have gained back 30 of it. I talked to a
woman who told me they put her brother in a hospital where he couldn't
be heard screaming because they didn't want to kill him with the
morphine. Morphine is like a wet dream compared to heroin.
Char
> How do I get in touch with Thomas Maugh, the biologist or the Danish
> National blah, blah, blah. I'm ready to go!
The organization he's with is a part of the Danish government. Did you
try Googling him?
I was going to the
> Netherlands, either Amsterdam or the island of Aruba (a territory of the
> Netherlands) where I could get heroin for pain relief. Last year I
> lost 50 lbs, an indication of the last stage/s of the liver dis-ease.
> I'm on an upswing now for I have gained back 30 of it. I talked to a
> woman who told me they put her brother in a hospital where he couldn't
> be heard screaming because they didn't want to kill him with the
> morphine. Morphine is like a wet dream compared to heroin.
>
You think the treatment pain would be that bad that you need heroin?
There is only a tiny percentage that hurt that badly. I did fine on
Vicodin but of course it has acetaminophen in it which you want to stay
away from or at least limit. Or are you in pain from something else?
I haven't read all your posts so I may be asking something you've
already mentioned but have you had a liver biopsy? That's the only sure
way to know the extent of the liver damage.
Char
Linda Freeman
price... . I don't have any pain yet and I am a master at keeping my
land and my home in tip top order but I have to move my ass when I get
the energy. I hand wash everything except bedding, feed the dogs, hand
wash dishes, take care of the yard which is beautiful by the way and it
appears as if though I will miss that sense of accomplishment.
I was reading that FibroSure IS more exact than the needlestick and
needlesticks ARE NOT GOOD for your liver, no matter if it doesn't hurt
or you don't bleed to death. (The chance is miniscule.)
Don't let folks talk you into accepting what one doctor or train of
thought propounds. Examine and weigh all the possibilities.
Depression is useless, so don't let folks like, "you know who" talk you
into such nonsense.
Remember that for everything that you do there can be a serious
complication and you could be turning a mountain into a moehill.
History has shown us that medical malpractice is COMMONPLACE. Vampires
are everywhere you could say and their assistants are petty-bougeosie
pattsies that make their livings by hanging on to the coat tails of
these sell-outs. I don't have to prove myself either, all you have to
do is READ, watch the news and be informed. I saw a sign during the
campaign for propositions that read, "Drug criminals, it works!" We all
know that it is par for the course, for example, for a wife to accuse
her husband of being a molester or a wife beater so there are many
normal people who are in danger of loosing their minds. This is what
you call THE TYRANNY OF THE MAJORITY, also exhibited in that jobs are
soo desperately needed that torturous and harmful medical practices are
not only ignored but supported by courts. This is known as being for
"THE OVERALL GOOD OF THE PEOPLE," which supercedes the Constitutional
rights of the individual. Children are drugged for being rambuncious,
women have been drugged for a long time now, old people and the
political left-wing.
To shed your mortal frame is not a bad thing. Before a flower grows, a
seed must fall to the ground and die. Christianity is just the same as
Judaism. Not many care to notice the similarity. There is nothing good
in stabbing a child to death to show proove one's love and Abraham
thought he'd try it because that was what the pagans were doing.
Remember the scripture, "YOU DID NOT WANT SACRIFICE FOR SIN, that is why
I said, 'Here I am Lord, I'm coming to do your will.'".
Take all this from a woman who can quote the Bible for 2 hours without
anything written in front of her with beautiful Hebrew and Spainish
melodies. I am a cantor and I have read the books with references
written by almost every Christian religious minister with Bible
references. My father is a Black Jew from Ethiopia. I AM designated to
lead the Christians. I am the only one I know who has had the entire
upper room experience. I was not a Bible thumper. I was Chosen.
I went to college for clerical administration and was a secretary for a
university president and vice president and managed the staff; I worked
as an administrative secretary for a shipping companies lobbiest in
Sacramento, CA; I worked as a legal secretary (Trial Law,
Landlord-Tennant, General Practice) and I had my own business typing for
one of the top Criminal Investigation Firms in a big city, as well as
some other clients. I sued a lawyer myself and won, had my adoption
records opened and found my parents/family. I have 3 generations of
scientists in my family but by adoption I received my name of "Freeman,"
my birthright. I have had no pain in childbirth and I do not live by
the sweat of my brow since I speak the Truth that God is Good and ONLY
GOOD. This is the only thing that makes any difference. The only thing
that is good news. Jesus was just pulling your legs. You have to
understand Jewish humor and sarcasm to understand what he was saying.
I.e., "You'll burn in an everlasting fire!" (Because thats what we have
heard and expect to hear and will not take anything else for an answer.)
Why? Because we are dysfunctional and get some gain from it, each
individually. We must examine what is not said in light of the
inconsistencies in what is said. I traveled through at least 30 major
cities and visited at least l5. I have been to the pyramids in Mexico
and visited French Canada. I speak 5 languages (survival) and play 5
musical instruments.
My mother pulled out the health book frequently and when I worked for
Blue Shield of California I purused the newsletters.
Everything I read I underline, highlight, circle and write in the
margins. I create my own table of contents and read everything as if
though I am researching the litigation of a court case.
john
Linda,
It is different for everyone.I did 3 treatments.My last one being 72
weeks of nightly Infergen with ribaviarin ofcourse.I will be 2 years
virus free in june of 2010..............john
Linda Freeman
You must have been used to it by then?
Did you get damage to your body, like Diabetes, mental or heart, etc.?
How long did you have Hep C?