9 year old on Trileptal - advice needed
one. He is now 9 years old and weighs 65 pounds. He's on trileptal
twice daily, 150 mg morning and another in the evening. anyway, we do
EEG's 1x a year. they always come out w spikes. so i went to the
neuro today and he said we had 3 choices 1) stop giving him Trileptal
and hope that he doesn't have another seizure since he only had 1 and
has not had a recurrence in 5 years 2) keep doing the same thing since
he has not had another recurrence which is 150mg Trileptal in the
morning and another in the evening or 3) increase his dosage to 300mg
in the morning and 300mg in the evening which is the dosage he is
supposed to be taking. he said either decision would be fine since he
has not had a recurrence in 5 years. it's a tough call bc his EEG
still shows spikes. it's a risk to take him off the meds bc he may
have a recurrence but we'll never know if we don't try. from my side,
i don't want another seizure, but i also don't like him on meds. he's
been on the them 5 years and he's never had another seizure. it's a
difficult decision for me. just wanted to get your advice. thanks!
G.
> hi all, my son had a grand mal seizure at 4. He's never had another
> one. He is now 9 years old and weighs 65 pounds.
He's on trileptal
> twice daily, 150 mg morning and another in the evening. anyway, we do
> EEG's 1x a year. they always come out w spikes.
so i went to the
> neuro today and he said we had 3 choices 1) stop giving him Trileptal
> has not had a recurrence in 5 years 2) keep doing the same thing since
> he has not had another recurrence which is 150mg Trileptal in the
> morning and another in the evening or 3) increase his dosage to 300mg
> in the morning and 300mg in the evening which is the dosage he is
> supposed to be taking. he said either decision would be fine since he
> has not had a recurrence in 5 years. it's a tough call bc his EEG
> still shows spikes. it's a risk to take him off the meds bc he may
> have a recurrence but we'll never know if we don't try. from my side,
> i don't want another seizure, but i also don't like him on meds. he's
> been on the them 5 years and he's never had another seizure. it's a
> difficult decision for me. just wanted to get your advice. thanks!
A little late possibly, but most of the 'olde' readers who used to be
here don't appear to be reading the group any longer, or as
frequently.
I don't know why the Dr. would want to *increase a dose when he's
*controlled now with what he's taking? He's still showing spikes, so
I'd assume there is still activity? (*I'm not a Doctor, just someone
who used different pills.)
Under Option 1 at top, did they consider *reducing the pills
slowly, with view to stopping them (as you wanted?) but while watching
that there aren't new seizures.
Did that Doctor, or whoever first prescribed the pills, say why
they'd start him on a prescription after *only the one seizure and at
Age 4 ? I had thought (again non-medical thought), that many of the
Anti Seizure pills were difficult to configure and monitor for
Children vs. Adults who are more stable Metabolism and Body weights,
but that's just from what I had read *here more than 5 years ago. G./