Endo on the news
~Carey~
news to talk about endometriosis. It was a wonderful experience. My
mother went with me and we got to watch the entire noon news broadcast from
inside the studio. I was very nervous before I got started, but when we
actually did the interview, I was ok. We did have people call in, so I
wasn't prepared for that, but it was ok, because both questions were about
whether endo is hereditary.. then the second caller changed her question to
whether endo causes tumors or other reproductive problems. I didn't get to
say all that I prepared, however, the ERC's phone number and website address
were posted on screen for someone to call for more info. Heather emailed me
to let me know that just within 5 minutes of my appearance, the ERC had 7
calls, so that is terrific. And that was earlier today, so I don't know how
many more calls were received after that time. So all that nervousness was
worth it. Just wanted to share that with everyone.
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
RMK
Robin
I am *not* a Medical Doctor (MD) or *any* other type of Medical Professional.
PLEASE consult your own Dr. for medical advice. The information posted is
information I have learned from researching or learning from my own disease.
Birgit O'Rourke
Hugs,
Birgit
Jennifer L'Hirondelle
you know of any way to get a copy of it?
Congratulations!!
Jennifer
~Carey~ wrote in message ...
Stephanie
KIMROBZAK
Congratulations! I am sure you did a fantastic job!!!!
Kimb
~Carey~
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"RMK" <robi...@aol.comnospam> wrote in message
news:20000627193929...@ng-fk1.aol.com...
~Carey~
I don't know of a way at this point to get a copy. If I figure out a way to
get it on my webpage or something, I'll be sure to let you know.
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Jennifer L'Hirondelle" <je...@telusplanet.net> wrote in message
news:drc65.21855$FQ.11...@news0.telusplanet.net...
> Carey, is there any way for those of us who didn't get to see it, see it?
Do
> you know of any way to get a copy of it?
> Congratulations!!
> Jennifer
> ~Carey~ wrote in message ...
> >Well.... it's done !!! Today was the day I was a guest on the WINK TV
noon
> >news to talk about endometriosis. It was a wonderful experience. My
> >mother went with me and we got to watch the entire noon news broadcast
from
> >inside the studio. I was very nervous before I got started, but when we
> >actually did the interview, I was ok. We did have people call in, so I
> >wasn't prepared for that, but it was ok, because both questions were
about
> >whether endo is hereditary.. then the second caller changed her question
to
> >whether endo causes tumors or other reproductive problems. I didn't get
to
> >say all that I prepared, however, the ERC's phone number and website
> address
> >were posted on screen for someone to call for more info. Heather emailed
> me
> >to let me know that just within 5 minutes of my appearance, the ERC had 7
> >calls, so that is terrific. And that was earlier today, so I don't know
how
> >many more calls were received after that time. So all that nervousness
was
> >worth it. Just wanted to share that with everyone.
> >
~Carey~
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Birgit O'Rourke" <git...@ameritech.net> wrote in message
news:39595780...@ameritech.net...
> Way to go Carey!!!! I am proud of you!!! =)
> Hugs,
> Birgit
>
> ~Carey~ wrote:
>
~Carey~
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"KIMROBZAK" <kimr...@aol.com> wrote in message
news:20000627222449...@ng-fs1.aol.com...
~Carey~
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Stephanie" <Stepha...@worldnet.att.net> wrote in message
news:395957A0...@worldnet.att.net...
> Good job, Carey! :)
Nancy
I think what you did was fabulous. Every effort like the one
that you made helps to increase public awareness and
understanding of this disease. Hopefully, that will eventually
lead to more funding for Endometriosis research. With enough
research, maybe someday there will be a solution to the
seemingly endless and sometimes debilitating symptoms that so
many of us face. Plus, I bet you helped at least one woman to
find a name for what she has been going through - and that can
make such a difference in the life of someone in pain - to just
know that there is a name for what they have and an explaination
for their pain.
How did you arrange the interview? Do you have suggestions of
ways that we can raise awareness in our own areas?
Thanks and Congratulations!
Nancy
Got questions? Get answers over the phone at Keen.com.
Up to 100 minutes free!
http://www.keen.com
RMK
Call the Station and ask them if you can get a copy of the segment. They
should be able to give you one. I know when I did the stuff on Chronic Pain,
and then on Endo, it was offered to me, but I taped it when it aired instead.
Since you didn't have the opportunity (unless you set your VCR before leaving),
they might be able to give you one.
HTH
RMK
>Subject: Re: Endo on the news
>From: "~Carey~" blo...@strato.net
>Date: 6/28/00 10:25 AM Eastern Daylight Time
>Message-id: <eTn65.17495$l_1.3...@news-east.usenetserver.com>
>
>Thanks Robin.
>
>Carey
RMK
I know you didn't ask this question of me, but thought I would butt in...again
;o)....
When I wanted the local news to do a segment on Chronic Pain and another one on
Endo, I spoke with the MD that does the pieces. He told me he would love to do
the stories, and to please call his producer. I did that, and the segments
were done. As far as doing newspaper articles, you can call the Editor of your
local newspaper, and ask them to do the same thing.
HTH.
Robin
>Subject: Re: Endo on the news
>From: Nancy drew-nanc...@worldnet.att.net.invalid
>Date: 6/28/00 11:08 AM Eastern Daylight Time
>Message-id: <00095df0...@usw-ex0103-018.remarq.com>
>
>Carey -
>
>I think what you did was fabulous. Every effort like the one
>that you made helps to increase public awareness and
>understanding of this disease. Hopefully, that will eventually
>lead to more funding for Endometriosis research. With enough
>research, maybe someday there will be a solution to the
>seemingly endless and sometimes debilitating symptoms that so
>many of us face. Plus, I bet you helped at least one woman to
>find a name for what she has been going through - and that can
>make such a difference in the life of someone in pain - to just
>know that there is a name for what they have and an explaination
>for their pain.
>
>How did you arrange the interview? Do you have suggestions of
>ways that we can raise awareness in our own areas?
>
>Thanks and Congratulations!
>
>Nancy
I am *not* a Medical Doctor (MD) or *any* other type of Medical Professional.
Ruthie
Ruthie
"~Carey~" <blo...@strato.net> wrote in message
news:CUn65.17506$l_1.3...@news-east.usenetserver.com...
Darcy
never would be able to. Thank you so much for all you do to spread
awareness.
Darcy
~Carey~ <blo...@strato.net> wrote in message
news:zga65.6044$l_1.1...@news-east.usenetserver.com...
Nancy
I always feel so proud when I hear of someone who has taken
their time to make appearances, write articles or be interviewed
about endometriosis. The amount of people that these activities
must reach is amazing. It makes me think, "there is a person
who is giving of herself to make a difference for all of us."
It's not easy to go in front of a camera or a tape recorder and
talk about very personal and sensitive issues, especially after
(at least for many of us) being dismissed by doctors and/or
family/friends who didn't believe or didn't understand what you
were going through.
While I have made no great strides in Endo Awareness, I try to
do what I can in my everyday life to let people know about this
disease. For instance, when people ask me if I am sick or if I
need help, I always make it a point to not say "oh, my stomach
just hurts" but to say that "my endometriosis is really
bothering me today". When they ask me how far along I am, I
will tell them that it is Endometriosis and not a baby that has
made my stomach so distended. They will often ask followup
questions and I am always willing to share what I know. People
will sometimes come up to me days later, telling me that they
have been thinking about "my problem" and have I tried XYZ? I
could get annoyed because normally the answer is, "yes I already
tried that", but I figure that, for each additional person that
has been prompted to start thinking about the disease, we
increase our chances that one day the *right* person will be
thinking about the disease and will come up with a true solution
to the disease. (At least I can hope, can't I!)
Thanks again!
RMK
You are very welcome!!!! Glad to help ;o)....
Robin
~Carey~
What I did to get on the segment was this... our local news does a
"talkback" segment at the end of the news program. I emailed the news
anchor woman, explained what I would like to do, come on the segment and
talk about endo, and she passed it on to her producer. She gave me the
producers name and number and I contacted her and she was interested. It
was only about 3 minutes, but was enough to get the basic info out and the
contact information for the ERC (Endometriosis Research Center)
http://www.endocenter.org . If you are looking to do some volunteering in
anyway, please contact the
ERC and let them know you are interested. There are many ways you can help
out with endo awareness from home. The ERC also has a yellow ribbon
campaign and you can ask to have some ribbons sent to you that have a
business card size card attached, explaining the yellow ribbon. By wearing
the ribbons, we get people to ask what the ribbon stands for and it's an
opening we can use. Also I've used the "Letter to the Editor" section of
our newspaper to get out tons of endo information. It's kind of a free way
to advertise. The ERC also has a gift catalog where you can purchase items
with endo awareness in mind. Just click on the gift catalog link on the
bottom of the ERC's home page. I wish you the best in your efforts.
In regards to your question about endo specialists, I traveled to an out of
network doctors as well, Dr. Andrew Cook, http://www.drcook.com and it made
all the difference in the world for me. There is a doc list of favorably
mentioned docs around her on my web page, address below (Carey's Endo
Window) and it has Dr. Metzger's info on it as well as Dr. Adams, and many
more. I've met Dr. Metzger in person and she is extremely knowledgeable
about endo and indeed cares very much about finding solutions to endo. If
you would like to hear her speak on endo, the ERC hosted the first annual
Endometriosis Symposium in March of this year and Dr. Metzger was one of the
speakers. You can see the symposium on Broadcast.com and hear what she has
to say about endometriosis, which may give you a little more info about her.
You can get the link to the symposium by clicking the link on the ERC's
homepage and that link will take you right to the symposium's broadcast
site.
If I can help in any way, please let me know. I'm moving to NC this weekend
and will be offline for a couple of weeks, but you'll find lots of info on
the ERC's pages. Good luck to you and I wish you the best.
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Nancy" <drew-nanc...@worldnet.att.net.invalid> wrote in message
news:00095df0...@usw-ex0103-018.remarq.com...
> Carey -
>
> I think what you did was fabulous. Every effort like the one
> that you made helps to increase public awareness and
> understanding of this disease. Hopefully, that will eventually
> lead to more funding for Endometriosis research. With enough
> research, maybe someday there will be a solution to the
> seemingly endless and sometimes debilitating symptoms that so
> many of us face. Plus, I bet you helped at least one woman to
> find a name for what she has been going through - and that can
> make such a difference in the life of someone in pain - to just
> know that there is a name for what they have and an explaination
> for their pain.
>
> How did you arrange the interview? Do you have suggestions of
> ways that we can raise awareness in our own areas?
>
> Thanks and Congratulations!
>
~Carey~
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Ruthie" <repf...@home.com> wrote in message
news:M8p65.24279$dF.9...@news1.rdc1.il.home.com...
> Carey, that is great! Congrats!
>
> Ruthie
>
> "~Carey~" <blo...@strato.net> wrote in message
> news:CUn65.17506$l_1.3...@news-east.usenetserver.com...
> > Thanks Stephanie.
> >
> > Carey
> >
> > --
> > John's page: MENDO - Men and Endometriosis:
> > http://www.geocities.com/HotSprings/Spa/8449/
> >
> > Carey's Endo Window with Endo Sister's Survival Kit:
> > http://www.geocities.com/HotSprings/Spa/8509/
> >
> > "Stephanie" <Stepha...@worldnet.att.net> wrote in message
> > news:395957A0...@worldnet.att.net...
> > > Good job, Carey! :)
> > >
> > > ~Carey~ wrote:
> > >
~Carey~
that, but it went very well and now I'm very glad I was able to go thru with
it.
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Darcy" <pine...@execpc.com> wrote in message
news:395a24bf$0$33693$726...@news.execpc.com...
> Great Job Carey!!! Big pat on the back for you! You've done something I
> never would be able to. Thank you so much for all you do to spread
> awareness.
>
> Darcy
>
>
> ~Carey~ <blo...@strato.net> wrote in message
> news:zga65.6044$l_1.1...@news-east.usenetserver.com...
Nancy
Bless You! You have given me so much wonderful information, it
will be hard to decide what to start with first!
I had been planning on joining the ERC but right before I did, I
started a new job and it has very strict rules about political
activities. Given some of the lobbying done by ERC, they seem
to fall into the group of organizations to which I am not
allowed to have a membership. I am still trying to sort out
exactly what I can and can't do according to my employment
contract. :}
Do you try to time your activities around any special events or
holidays so that the media is more likely to pick up on it?
They seem to have weeks or days for every cause now. While I
know there is an Endo week, I wonder if there are also things
like Women's Health week that could be used as a tie-in. Or
this a topic that the media is pretty willing to handle now? It
does seem as though I've seen a lot more articles on it in the
last year or so, but I've only been diagnosed for just over two
years and I can't recall hearing the word Endometriosis before
that. (Maybe I am just noticing the articles more because now
they seem to have a more direct relationship to me!)
I am very glad to hear about the Broadcast.com video segment
with Dr. Metzger. I am a bit scared to go to a new doctor as I
saw too many doctors before my diagnosis who thought it was all
in my head. I felt like going back and asking them how cysts
ranging in size to as big as almost 2 grapefruit could be "in my
head"! It will be nice to be able to "see" her before putting in
any requests to get an official consultation approved.
Good luck in your move and thank you for all the wonderful
information.
Merrily109
nightmare of endo!!!!
Hugs, Merrily
Dionne Guinn
Congratulations!!!!!
Thank you for all you do for the benefit of endo suffers. You are a
living angel..
We appreciate all your efforts.
Dionne
DREAM BIG!
HCG915700
job and it has very strict rules about political activities. Given some of the
lobbying done by ERC, they seem to fall into the group of organizations to
which I am not allowed to have a membership.<
The ERC is not a political organization. It is a 501(c)3 nonprofit
organization dedicated to education, support, awareness, and facilitation of
research concerning Endometriosis.
The only "lobbying" done by the ERC, if one can call it that, is in support of
AB 2820 by testifying (at the invitation of the Assemblyman who authored the
Bill) before the California State Legislature. AB 2820 is a consequential Bill
which will require feminine hygiene product makers to submit to independent
tests of their products, to determine the levels of dioxin in their tampons,
pads, etc. and the subsequent risks this toxin poses to women and their
children. The Bill passed out of Suspense by majority vote and will be heard
by the Senate Committee on Health & Human Services next Tuesday.
This is an important issue for women with Endometriosis, because research has
shown that dioxin and other environmental hazards are catalysts for the
disease. Every endometriosis-oriented organization has taken a stand against
dioxin, as have many other health groups.
Aside from that issue, which every woman who has ever worn a pad or tampon
should support, the ERC does not get involved in any so-called "radical"
activities.
I am not quite sure what lobbying you are referring to and why you think it is
political?
-Heather
Nancy
You hit the nail on the head! That was the exact thing I was
thinking of. I work in Sacramento and the testimonial was
scheduled to take place during my second week of work at the new
job. Since my employer is *definately* in a position to know
about that sort of thing, I was worried about how they would
feel about my being a member of the organization. Since I got
three different copies of the company policies about "political
activities" during the first week, I figured I had better wait a
while and then see if it would be ok.
I didn't realize that this was the *only* lobbying the ERC had
done. I had thought it was something they did on a regular
basis. In that case, it probably would be OK for me to join!
Thank you for setting me straight!
Nancy
-----------------------------------------------------------
~Carey~
Thank you very much for your kind words. Yes, we do try to time our
activities to make the most of it. But we don't wait for any special time
to be involved. We have many ways of taking advantage of certain events,
and times, etc... I see Heather addressed the ERC political issue. We are
not a political organization by any means. And I don't consider the AB 2820
to be "lobbying" by any means. We were there in order to provide data and
information in order to show how these dioxins were harmful. To me that
isn't lobbying. I hope you are able to join as you will find out what a
wonderful organization it is and will enjoy being a member of. I wish you
all the best.
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Nancy" <drew-nanc...@worldnet.att.net.invalid> wrote in message
news:163430c4...@usw-ex0103-018.remarq.com...
> Carey -
>
> Bless You! You have given me so much wonderful information, it
> will be hard to decide what to start with first!
>
> I had been planning on joining the ERC but right before I did, I
> started a new job and it has very strict rules about political
> activities. Given some of the lobbying done by ERC, they seem
> to fall into the group of organizations to which I am not
> allowed to have a membership. I am still trying to sort out
> exactly what I can and can't do according to my employment
> contract. :}
>
> Do you try to time your activities around any special events or
> holidays so that the media is more likely to pick up on it?
> They seem to have weeks or days for every cause now. While I
> know there is an Endo week, I wonder if there are also things
> like Women's Health week that could be used as a tie-in. Or
> this a topic that the media is pretty willing to handle now? It
> does seem as though I've seen a lot more articles on it in the
> last year or so, but I've only been diagnosed for just over two
> years and I can't recall hearing the word Endometriosis before
> that. (Maybe I am just noticing the articles more because now
> they seem to have a more direct relationship to me!)
>
> I am very glad to hear about the Broadcast.com video segment
> with Dr. Metzger. I am a bit scared to go to a new doctor as I
> saw too many doctors before my diagnosis who thought it was all
> in my head. I felt like going back and asking them how cysts
> ranging in size to as big as almost 2 grapefruit could be "in my
> head"! It will be nice to be able to "see" her before putting in
> any requests to get an official consultation approved.
>
> Good luck in your move and thank you for all the wonderful
> information.
>
> Nancy
>
HCG915700
I understand where you're coming from and I totally see your concerns. But
believe me, it's a peaceful organization. =) And you can get involved on any
level, any way you want. Thanks for clarifying your concerns...I hope to see
you in the ERC community. =)
- Heather
Nancy
I have definately not heard anything about ERC that would make
me not want to join, in fact the opposite is true. Each
additional thing I hear about the organization makes me want to
join even more.
It's all just a matter of wanting to keep my job. :} I
guess that political organizations just have to be extra careful
about what their employees do that could be
considered "political" in nature. I don't even think I can
attend a rally without permission. But, it did say that if my
supervisor determined that the activity/organization was not
political in nature and said that my activities would not
violate my employment agreement, that I could proceed without
fear of repremand. I plan on talking to my supervisor about
this soon so that I can get permission to join the ERC.
Nancy
-----------------------------------------------------------
HCG915700
Hope it all works out!
I am just curious...and you can answer me privately if you'd like...would they
prevent you from attending something like the EndoWalk too? That's sad. =( I
hope whatever "requests to participate" (for lack of a better expression =) you
express to them are met.
Good luck with it all, I do hope it comes out in your favor. =)
-Heather
susa...@my-deja.com
It's three weeks today that I've had my endometriosis removed. Dr.
Ahluwalia says the growths were "very extensive" and included numerous
endometriomas and a fibroid on the outside of my uterus. He believes he
got everything, though, and does not feel that I will need to go on any
hormone suppressing drugs. I credit his surgical skills (laparoscopic
laser excision) for the successful removal of the disease, without
taking the organs too. He did have to remove the one fallopian tube and
restructure the ovary.
So, here are a few questions for you ladies that have had all this
done. Being the only surgery I've ever had I'm not sure just how we're
supposed to feel three weeks later! I took my first little walk outside
today. There is still considerable discomfort on the side that the
ovary needed the most work. Would you all say those scary little pains
do fade away? And how about the tiredness?
Doctor says I'm a bit slower than usual recovering -- got an infection
the first week that needed antibiotics -- but I'm thinking it might
take me a little longer because I was sick and for a long time before
the surgery. Some of you have mentioned having CFS and Fibromyalgia.
Well, that me also. I'm very anxious to see how much of this will get
better after having the endometriosis taken care of. Is there any good
news out there in that regard?
So long for now. I just want to say again that I feel greatly indebted
to this group for all the information I've gathered. It's an
inspiration to see so much unselfish sharing among sufferers. Please
count me in if there is ever anything I could contribute.
Yours in the journey,
Susan Lapp
Sent via Deja.com http://www.deja.com/
Before you buy.
Lisa
That's great! Are you going to make copies for everyone and autograph
them? What was it like to go to the "big city" and see a real live
newscast?
God, you are so cool, Carey!!! Just think of all the women you are
helping. I know there are many who will want a copy of your debut on
television. Maybe you and Darva Conger can get together and create
your own television show!!!
I feel SO GOOD after surgery and I just want to pass on all that
positive energy. You go Carey!!!
Lisa
Atlanta, GA
~Carey~
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Merrily109" <merri...@aol.com> wrote in message
news:20000628190936...@ng-fn1.aol.com...
~Carey~
Carey.
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Dionne Guinn" <dionn...@webtv.net> wrote in message
news:6752-395...@storefull-165.iap.bryant.webtv.net...
~Carey~
Thanks for the sarcastic response. I thought you weren't going to address
me anymore, at least not negatively. If you have nothing nice to say, then
say nothing ok? Don't follow my posts! The energy you are passing along to
me isn't positive Lisa, it's nasty and I don't want nor need it, thanks.
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Lisa" <lac...@worldnet.att.net> wrote in message
news:ait75.1713$cR2.1...@bgtnsc05-news.ops.worldnet.att.net...
Tricia Rodgers
ya know that article on Endo in Women's Day a few months ago? Well, I happened
to pick up a WD issue down in Ohio when I was visiting with David and there was
a follow up letter from a reader in there...
The article has been known to have helped at least one person! Halleluiah! (I
still haven't been able to find a copy to read it but someone has been
helped.....thank goodness)
Had to share, wantedt o share a few days ago and got too lazy...
Tricia (t.f.o.)
~Carey~ wrote:
> Thanks Merrily.
>
> Carey
>
> --
> John's page: MENDO - Men and Endometriosis:
> http://www.geocities.com/HotSprings/Spa/8449/
>
> Carey's Endo Window with Endo Sister's Survival Kit:
> http://www.geocities.com/HotSprings/Spa/8509/
>
> "Merrily109" <merri...@aol.com> wrote in message
> news:20000628190936...@ng-fn1.aol.com...
> > Way to go CAREY!!!!! You are the best !!!! Keep being our bright light in
> this
> > nightmare of endo!!!!
> > Hugs, Merrily
--
***************************************************
* http://dragon.emich.edu/~prawski ****************
* http://dragon.emich.edu/~gwaltney/KDP.html ******
* http://www.geocities.com/HotSprings/Spa/1808 ****
* http://www.geocities.com/Heartland/Cottage/5495 *
***************************************************
* The best ways to get to know me, besides asking *
***************************************************
Lisa
~Carey~ wrote in message <8kjbi...@enews4.newsguy.com>...
>Lisa,
>
>Thanks for the sarcastic response. I thought you weren't going to
address
>me anymore, at least not negatively>>
I never said that Carey, nor did I say it publicly. You must be
getting your private e-mail concerning me mixed up with what has been
posted. If I know you, you'll post the private e-mail if needed,
correct?
It's just hilarious that you are more interested in touting YOURSELF
on a local news channel on behalf of the ERC (Which Dr. Andrew Cook
leads) and I just bet you promoted him heavily on your little 15
minutes of fame, or at least slipped his name in somewhere, as you
always do in most of your posts Nothing against Dr. Cook at all, but
it's sickening to watch someone try to bluff other women into
believing she's a "saint" when it comes to helping women with Endo,
Carey..
I went to look at the ERC website and it seems that you have now
become some sort of "Publicity Director" for this supposed
"non-profit" organization, correct?
Now, do you receive a salary from this position, or is this done out
of the goodness of your heart???
Funny that YOUR surgeon runs the ERC. How can it be in impartial,
non-profit that is supposed to serve the needs of those women needing
un-biased info on Endo, etc. if one surgeon is prominently at the head
of it, Carey, with direct links to his website???
Gee, are you doing all of this on a volunteer basis??? That's
admirable. I'm happy for you if you finally got a job, but I sure do
wonder about your motives and the true motives of the ERC, other than
to be a PR center for a few "specialists."
I see that the Center for Endo Care's PR representative is on the
staff, also.
I find that really interesting, Carey. So, do you get paid by the
ERC to be the new Publicity Princess? Does that include PR for Dr.
Cook, also?
Inquiring minds want to know.
<<If you have nothing nice to say, then
>say nothing ok? Don't follow my posts!>>
Well, you keep on posting when you have nothing nice to say, so why
should I say nothing, Carey? Why is it that you continue to live your
life via this newsgroup, when you have been CURED of Endo, Carey?
You are a very interesting individual, Carey, to say the least and I
personally am sick and tired of seeing your BS when it comes to
Endometriosis.
<< The energy you are passing along to
>me isn't positive Lisa, it's nasty and I don't want nor need it,
thanks.>>
The energy you've passed on to me--as I waited for surgery--was very
NASTY, and this little facade you keep perpetuating that you are some
sort of altruistic individual who comes here to "help" hurting women
with Endo is a joke.
So, I hope you'll answer my questions so I know whether I'm wrong
about your lack of character or your reasons for showing up on this
newsgroup daily and posting your obvious misinformation about the
suitable treatment of Endo.
Women with Endo don't need a PR rep for a surgeon patting herself on
the back for showing up on a local tv show, Carey. Women with Endo
need allies that aren't connected to any surgeon, but those allies who
are truly interested in being an impartial and unbiased support system
for women who are looking for help.
So, your silly little "look at me" post about being on a local news
show seems (to me) to be more about publicity for the organizations
you are working for and less to do with helping women combat Endo.
Again, I think you and the other "victim" Darva Conger have a lot in
common...publicity for other reasons than what you proclaim.
Of course, these are all my own opinons and assumptions based on my
ever-growing research into the organizations for which you are a part,
so I thought before I start assuming to much I'd let you explain
yourself on a public newsgroup.
I wonder if that reporter from MSNBC would be interested in doing a
story on the business of Endometriosis. One about how different women
hang around newsgroups, acting as if they are here to help, but in
reality doing PR for certain surgeons??
I think it's a fasciniating topic.
Lisa
I just want to make sure you know that what I'm saying is strictly my
opinion and that is why I am asking you questions so you can explain
yourself.
I think it's admirable if you are--indeed--strictly volunteering your
time to publicity for the ERC, etc., however --for me--it raises
questions in my mind when your surgeon is the director of the ERC.
At any rate, your behavior with me privately and publicly made me want
to research some of the groups you are involved with, further, and it
made me question so much about what you say here.
I'm sure you will set me straight on my assumptions, without resorting
to this becoming another Jerry Springer episode (I hope).
Wishing you and Darva continued success!
Lisa
~
HCG915700
>on behalf of the ERC (Which Dr. Andrew Cook leads)<
Dr. Andrew Cook does not "lead" the ERC. Dr. Andrew Cook, along with several
other respectable members of the Endo Community, is an Advisor. Most
organizations have such positions.
>you have now
>become some sort of "Publicity Director" for this supposed "non-profit"
organization<
Carey is the Director of PR, correct. She's been doing a wonderful job getting
Endo awareness, and has been doing so on her own since long before she joined
the ERC. As for your inference that the ERC is only a "supposed" non-profit,
you are free to obtain a copy of the 501(c)3 registration anytime you wish to
lay any questions to rest as to the organization's status.
>Now, do you receive a salary from this position, or is this done out of the
goodness of your heart???>
Not that it's your or anyone else's business, but I don't think Carey will mind
me telling everyone that she does it out of the goodness of her heart and is
not salaried.
>Funny that YOUR surgeon runs the ERC.>
Once again you are mistaken. Andrew Cook is one of many advisors. He "runs"
nothing - he shares his advice from time to time. That is what Advisors do.
Most organizations have Advisors/Board Members/Consultants to share their
knowledge and expertise in certain areas from time to time. Should I
mistakenly assume and announce that Camran Nezhat "runs" the EA because he sits
on their advisory board?
>How can it be in impartial,
>non-profit that is supposed to serve the needs of those women needing
>un-biased info on Endo, etc. if one surgeon is prominently at the head
>of it, Carey, with direct links to his website???>
Considering that NO surgeon is prominently anywhere near the head of the
organization, I guess that answers your question.
>Gee, are you doing all of this on a volunteer basis???<
This has already been addressed.
<That's admirable.>
I agree.
<I'm happy for you if you finally got a job, but I sure do wonder about your
motives and the true motives of the ERC, other than to be a PR center for a few
"specialists.">
You must have the ERC confused with other Endo advocacy organizations. The ERC
is in no way, shape or form a PR center for ANYONE and does not even provide
doctor references to members.
>I see that the Center for Endo Care's PR representative is on the staff,
also.<
I see that the Center for Endo Care's Program Director - a woman with
Endometriosis who has been speaking to and educating the Endometriosis
community for years - is on the "staff" also, as an unpaid advisor. I don't
know who the CEC's PR rep is, sorry. Actually, I didn't even realize they had
one.
>Women with Endo need allies that aren't connected to any surgeon, but those
allies who are truly interested in being an impartial and unbiased support
system for women who are looking for help.>
I don't think Carey's positive experience with her surgeon makes her any less
of a supporter to an Endo woman than someone who has had a miserable experience
with their surgeon. If anything, she can share a positive story about her
experience and offer advice on where to get help - not directives, advice.
Women are free to make up their own mind as to where to seek treatment. I've
known Carey for many years and am well aware of her experience with Dr. Cook,
but at no time did I ever decide to seek treatment there for myself - she never
"shoved it down my throat" as has been said before. However, I did appreciate
that she got help for her Endo and was very happy for her. My contact with
Carey has never been based on whether she could sell her doctor to me, nor do I
see her selling him to anyone else. This is a free country, women can see
whomever they want. And I'm quite sure Omega is not in need of advertising.
>these are all my own opinons and assumptions based on my ever-growing research
into the organizations for which you are a part<
Everyone is entitled to their opinion, but please get - and state - the facts
before you start making public assumptions about a legitimate organization
based on your hatred (misplaced) for one individual.
>I wonder if that reporter from MSNBC would be interested in doing a
>story on the business of Endometriosis. One about how different women
>hang around newsgroups, acting as if they are here to help, but in
>reality doing PR for certain surgeons??<
Actually - I agree with you there. I think there is an enormous amount of that
going on in the Endo community. Payoffs, politics, cover-ups,
less-than-truthful promotions about "star surgeons," etc. However, Carey and
the ERC are the wrong place to look for details on any of those sordid
activities.
I trust that will clear up any concerns and misunderstandings you might have
about the ERC and Carey's role in it. Please feel free to email the Executive
Director anytime at End...@aol.com with any further questions. I'm sure she'd
be happy to help.
-Heather
HCG915700
Again, I must clarify - "director" means, in this instance, "member of the
Board of Directors." Andrew Cook, MD is not "in charge of" nor does he "run"
the ERC. He shares his knowledge from time to time. Please stop propagating
erroneous information.
-Heather
DGIRLZ
How did your endo surgery go ? I hadnt seen you on this board for
awhile...Maybe I missed your post concerning your surgery.
What did they find ? Have you gotten pain relief ? I remember how nervous
you were before the surgery... Hope you got some relief.
Eileen K
Lisa
Where do all the "non-profit" donations to the ERC go??? Or is that
something I can ask the Executive Director??
Anytime you have an Endo doctor (or doctors) affiliated or as an
"advisor" to a supposed "Non-Profit" group, it raises several
questions. Especially when patients of his spend their days on a
"support" newsgroup and mention in every post about their surgeon.
Is just like the Nezhat's giving thousands of dollars to the EA in
contributions...you wonder about things.
However, I see that I may have been wrong in my assumptions. As far
as "hate" goes, Heather: Is it possible for you to keep drama out of
anything you say?
I don't "hate" anyone, least of all Carey. I'm just tired of seeing
what goes in in the name of "support" here.
It seems like a big, drama filled place, Heather. Watching the
discussions over the Nezhat brothers gives me more drama than watching
re-runs of "Knots Landing."
It's amazing to watch the misinformation about the law, lawyers,
suits, etc. from women who seem to think they are authorities on Endo
and the judicial system because they watched an episode of Judge Judy.
I don't think it's just a coincidence that Carey, or you are involved
with the ERC and that you stay on this newsgroup a lot. Nor do I
think it's coincidence that Carey is a satisfied customer of Dr. Cook,
either.
However anyone wants to interpret that is up to them, and it in no way
casts Carey or yourself in a bad light at all. I just find it
interesting, that's all. It may be nothing to be interested about,
but it's interesting to me nontheless.
I find a lot of things about this newsgroup interesting when it comes
to true support, etc.
Thank you, however, for explaining things to me. It's been a few
weeks since I looked at the ERC website, so I think I'll look at it
again to see where I made my mistakes in judgement.
Lisa
HCG915700
>Newsgroups: alt.support.endometriosis
>Sent: Tuesday, July 25, 2000 11:19 AM
> Where do all the "non-profit" donations to the ERC go??? Or is that
> something I can ask the Executive Director??<
Lisa, you may feel free to send a formal request for information to the ERC
headquarters anytime.
> Anytime you have an Endo doctor (or doctors) affiliated or as an
> "advisor" to a supposed "Non-Profit" group, it raises several
> questions. Especially when patients of his spend their days on a
> "support" newsgroup and mention in every post about their surgeon.<
I don't think it raises any questions at all. Who else should be advising an
Endo group? Telephone operators? Or the professionals who are involved in the
disease? Should the EA, the ERC, the Nat'l Endo Society and all the other Endo
groups not have advisors from the medical profession? As for Carey, she posts
here on her own volition, not as an ERC rep.
> Is just like the Nezhat's giving thousands of dollars to the EA in
> contributions...you wonder about things.>
I WOULD wonder also, if Dr. Cook was given as a reference to everyone that
called the ERC. However, as I've already told you, the ERC does not give
doctor reccomendations. In fact, doctor names are not even allowed to be
mentioned in full on the ERC Listserv.
> However, I see that I may have been wrong in my assumptions. As far
> as "hate" goes, Heather: Is it possible for you to keep drama out of
> anything you say?>
My responses to your inquiries have always been even-keeled and frankly, mild.
I don't see any drama in them at all, nor was that my intention, but you are
entitled to your opinion (of course).
> I don't "hate" anyone, least of all Carey. I'm just tired of seeing
> what goes in in the name of "support" here.>
It is clear to me - and I'm sure many others who read this group - that you
have a vendetta against Carey. If "hate" is too strong a word then I
apologize, however, I don't think it is too off the mark to state that you have
a clear dislike of her. It comes through loud and clear in every single one of
your sarcastic, nasty posts to her. Why else would you come here and insult
her and those she is affiliated with every chance you get? I don't think your
posts to Carey have exactly been "in the name of support," but of course, that
is just my opinion.
> I don't think it's just a coincidence that Carey, or you are involved
> with the ERC and that you stay on this newsgroup a lot. Nor do I
> think it's coincidence that Carey is a satisfied customer of Dr. Cook,
> either.>
Both Carey and I have been involved in this newsgroup since before the ERC was
even founded. What's your point? We're not allowed to participate in support
groups because we are affiliated with an organization? Neither Carey nor
myself post as ERC reps - we post as members of the Endo community. I see
several members here who are either involved with or are officers of
organizations. My information has never been biased because of my affiliation
- including the information I sent you right before your surgery.
> I find a lot of things about this newsgroup interesting when it comes
> to true support, etc.>
I agree you with there!
> Thank you, however, for explaining things to me. It's been a few
> weeks since I looked at the ERC website, so I think I'll look at it
> again to see where I made my mistakes in judgement.>
You're welcome. For any further information, please feel free to address the
headquarters directly with a formal request.
-Heather
~Carey~
You have repeatedly posted publicly that you weren't going to respond to me
anymore, that I wasn't worth it, etc... yet you just can help yourself for
some reason.
What IS your problem? Obviously I was right when I said you were obsessed
with me. The news show that I did was about 2 minutes long, and I spoke
only of endometriosis, what it is, etc... and gave the ERC's contact
information. That is what my JOB is ! I am the Publicity & Media Relations
Coordinator for the ERC, yes, and proud of it. I get NO pay for what I do,
but I do get a great deal of personal satisfaction out of the fact that I am
doing something to further endo education and awareness and helping to make
a difference and helping in any way I can to make finding a cure more of a
reality in our lifetime.
What are YOU doing for the cause of endo? And btw Lisa, you never said what
the results of your surgery were.... do you have endometriosis Lisa? I
would have to say since you haven't come back here and said you did have
endo, that you must not have endo and IF that is the case, then why do you
continue to hang around this newsgroup, doing nothing more than harassing
me? You offer no support, encouragement, few kind words, and a whole lot of
sarcastic crap.
Dr. Andrew Cook does not run the ERC, Michelle Marvel runs the ERC. Dr.
Cook is an advisor, as well as on the Board of Directors, as are many
others. If you had any clue what you were talking about you'd know that
organizations have Medical Advisors/Directors, etc... on board. That would
include organizations like the EA as well. And you have no problem with
them it appears. You keep saying you have nothing against Dr. Cook, yet you
attempt to trash him or rag on him or his patients ANY chance you get or
should I say take !! Again I say what IS your problem? My opinion on Dr.
Cook as my surgeon has nothing to do with the ERC in any way. Dr. Cook is
my doctor, yes, and I'll continue to tell others of my experience with him,
but that in no way has anything to do with the ERC. Dr. Cook was on board
with the ERC before I was ever thought of as PR person. I don't do PR for
anything other than endo awareness and the ERC. When I talk of Dr. Cook,
that comes from Carey Blondin, the person who's had surgery with a wonderful
endo doc, not the PR Coordinator for the ERC. The ERC does not recommend
any physicians, however, as an individual, I can speak about my physician to
anyone I please.
> I see that the Center for Endo Care's PR representative is on the
> staff, also.
First, Donna Laux is the Program Director for the Center for Endo, whose
doctors are Drs. Albee and Lyons, not a "PR representative". So what is your
point?
> Well, you keep on posting when you have nothing nice to say, so why
> should I say nothing, Carey? Why is it that you continue to live your
> life via this newsgroup, when you have been CURED of Endo, Carey?
What are you talking about? I post when I have nothing nice to say to whom?
Why do you continue to come to this ng to do nothing but bitch and complain
about me? And you really need to review ALL of your facts... would you
please tell me where you keep getting this "cured" stuff on me? It shows
just how LITTLE you know about endometriosis or me Lisa. I don't live my
life on this newsgroup, however, you tend to take time out of yours to come
here to do nothing but add negativity and attack and make false assumptions
about me. Why is that Lisa?
> You are a very interesting individual, Carey, to say the least and I
> personally am sick and tired of seeing your BS when it comes to
> Endometriosis.
I must be VERY interesting to you Lisa since you've decided to devote so
much time and energy into trashing me and trying to get the "goods" on me.
And what BS am I dishing out about endo Lisa? Please share with me, not
your opinion, but hard facts Lisa.
> The energy you've passed on to me--as I waited for surgery--was very
> NASTY
Here's my post to your regarding your surgery Lisa...how is that "NASTY" ??
Subject: Re: Finally found a good doctor, Lap set up
Date: 05/09/2000
Author: Lisa <lac...@worldnet.att.net>
~Carey~ wrote in message
<_tJR4.3624$Up6.6...@news-east.usenetserver.com>...
>I wish you the best and hope it isn't endo but that you get answers and
painfree.
>
>Carey>>
Thanks Carey! I wish that for you too, with all you have gone
through. I hope it isn't Endo either, but if it is at least I will finally
know.
Lisa
Atlanta, GA
That was PRETTY NASTY I must say !!!! <rolling eyes>
> So, I hope you'll answer my questions so I know whether I'm wrong
> about your lack of character or your reasons for showing up on this
> newsgroup daily and posting your obvious misinformation about the
> suitable treatment of Endo.
What "obvious misinformation about the suitable treatment of Endo" is that?
Please tell me how my opinion of endo treatment is obvious misinformation.
Please show me what you are talking about. Don't make accusations that you
can't back up Lisa. You seem to think you know so much about endo, so please
share with the rest of us. Please give me your experience with endo Lisa.
> Women with Endo don't need a PR rep for a surgeon patting herself on
> the back for showing up on a local tv show, Carey.
You THINK you know so much Lisa.... you haven't a clue what was said on that
news show... and once again you make assumptions that make you look
ridiculous. I'm very proud of the fact that I was able to share info about
endometriosis and info about the ERC. I am also quite proud of the fact
that we made contact with over a dozen women because of that 2 minute
program. And yes I know this because I spoke with these women personally.
So you can make your asinine comments about my "silly" news program, but I
really could care less what you think of it. It had the results I set out
to accomplish and that is something I'm proud of. Too bad you don't have
something good to do with your life. Too bad you can't turn something that
has been a negative in your life into a positive.
>Women with Endo
> need allies that aren't connected to any surgeon, but those allies who
> are truly interested in being an impartial and unbiased support system
> for women who are looking for help.
I guess that would mean that anyone that has had surgery with any doctor,
should NOT speak publicly or to other women about endometriosis, is that
correct? Gee, how many women would still be in horrible pain if that were
the case. NO ONE would be treated for endo, and we'd all have to suffer
because we couldn't share our experiences with each other. There would be
no Alt.Support.Endo either, or any other group for people like you to find
others to talk to about your pain. That's great Lisa... what a great idea
!!!!! You seem to STILL think that my problem with you started with you not
wanting to see Dr. Cook... you seem to conveniently forget what really
happened. I could care less if you saw Dr. Cook or not, but I knew how much
he has helped me and others and I wanted to share that info with you. It's
no skin off my teeth if you don't see him. You are the one who is so caught
up with that ridiculous train of thought. My problem with you was over your
behavior towards me regarding the Endo Walk and Dr. Perloe's speaking there.
Stop trying to make it something else.
> So, your silly little "look at me" post about being on a local news
> show seems (to me) to be more about publicity for the organizations
> you are working for and less to do with helping women combat Endo.
My "silly" little show WAS about the ERC and endo awareness.... as a matter
of fact, I never spoke about the ERC because of time limitations. As I said,
I had about 2 minutes... I spoke about endo, what it is, and answered a
couple of on air questions. Then the ERC contact info was put on screen.
Now PLEASE tell me where I was not helping women? Isn't getting info on
endo out to women helping them? And since I was doing the news program as
an ERC representative, I would think you'd understand that YES, I was
publicizing the ERC. Isn't that what PR people do for the organizations
that represent? Doesn't the EA do that with all of their TV programs? That
is the norm Lisa... or don't you know that?
> Again, I think you and the other "victim" Darva Conger have a lot in
> common...publicity for other reasons than what you proclaim.
Since I don't watch as much TV as you apparently do, what does "Darva
Conger" have to do with me or anything?
> Of course, these are all my own opinons and assumptions based on my
> ever-growing research into the organizations for which you are a part,
> so I thought before I start assuming to much I'd let you explain
> yourself on a public newsgroup.
Well I guess your opinions and assumptions are pretty OFF BASE, wouldn't you
say? Since you don't have ANY of your facts straight and you could really
care less to, you'll believe whatever makes you happiest. And please if
you are so obsessed with me, go right ahead and research all of the
organizations I'm a part of... and I hope you have fun doing it. I'm not
ashamed of any of my affiliations and have nothing to hide. I don't have to
explain myself to anyone on this group, however, I thought since you are so
interested in me, I'd set you straight on your warped opinions, and
misguided assumptions. Hope I've helped you get to the bottom of WHO CAREY
REALLY IS because you keep saying you don't know me, yet you keep telling me
what kind of person I am, and you keep telling everyone else what kind of
person I am !!! Strange, coming from someone who says "BEFORE I START MAKING
ASSUMPTIONS"... whoops... too late !!!!!! You've already done it.
> I wonder if that reporter from MSNBC would be interested in doing a
> story on the business of Endometriosis. One about how different women
> hang around newsgroups, acting as if they are here to help, but in
> reality doing PR for certain surgeons??
> I think it's a fasciniating topic.
I wonder if the MSNBC reporter would be interested in doing a story on how
women who may not even have endo, hang around endo newsgroups doing nothing
more than harassing the ones that are here to share their real experiences
and offer support to others, and how women who may not have endo stay in a
group about endo, to insult and attack those who are doing something
positive in the fight against endo and the fight to find a cure, and gain
awareness for this disease. Hmmm.... now THAT would be a fascinating topic,
don't you agree?
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Lisa" <lac...@worldnet.att.net> wrote in message
news:Qm%e5.6320$RG6.5...@bgtnsc05-news.ops.worldnet.att.net...
>
> ~Carey~ wrote in message <8kjbi...@enews4.newsguy.com>...
> >Lisa,
> >
> >Thanks for the sarcastic response. I thought you weren't going to
> address
> >me anymore, at least not negatively>>
>
> I never said that Carey, nor did I say it publicly. You must be
> getting your private e-mail concerning me mixed up with what has been
> posted. If I know you, you'll post the private e-mail if needed,
> correct?
>
> It's just hilarious that you are more interested in touting YOURSELF
> on a local news channel on behalf of the ERC (Which Dr. Andrew Cook
> leads) and I just bet you promoted him heavily on your little 15
> minutes of fame, or at least slipped his name in somewhere, as you
> always do in most of your posts Nothing against Dr. Cook at all, but
> it's sickening to watch someone try to bluff other women into
> believing she's a "saint" when it comes to helping women with Endo,
> Carey..
>
> I went to look at the ERC website and it seems that you have now
> become some sort of "Publicity Director" for this supposed
> "non-profit" organization, correct?
>
> Now, do you receive a salary from this position, or is this done out
> of the goodness of your heart???
>
> Funny that YOUR surgeon runs the ERC. How can it be in impartial,
> non-profit that is supposed to serve the needs of those women needing
> un-biased info on Endo, etc. if one surgeon is prominently at the head
> of it, Carey, with direct links to his website???
>
> Gee, are you doing all of this on a volunteer basis??? That's
> admirable. I'm happy for you if you finally got a job, but I sure do
> wonder about your motives and the true motives of the ERC, other than
> to be a PR center for a few "specialists."
>
> I see that the Center for Endo Care's PR representative is on the
> staff, also.
>
> I find that really interesting, Carey. So, do you get paid by the
> ERC to be the new Publicity Princess? Does that include PR for Dr.
> Cook, also?
>
> Inquiring minds want to know.
>
> <<If you have nothing nice to say, then
> >say nothing ok? Don't follow my posts!>>
>
> Well, you keep on posting when you have nothing nice to say, so why
> should I say nothing, Carey? Why is it that you continue to live your
> life via this newsgroup, when you have been CURED of Endo, Carey?
>
> You are a very interesting individual, Carey, to say the least and I
> personally am sick and tired of seeing your BS when it comes to
> Endometriosis.
>
> << The energy you are passing along to
> >me isn't positive Lisa, it's nasty and I don't want nor need it,
> thanks.>>
>
> The energy you've passed on to me--as I waited for surgery--was very
> NASTY, and this little facade you keep perpetuating that you are some
> sort of altruistic individual who comes here to "help" hurting women
> with Endo is a joke.
>
> So, I hope you'll answer my questions so I know whether I'm wrong
> about your lack of character or your reasons for showing up on this
> newsgroup daily and posting your obvious misinformation about the
> suitable treatment of Endo.
>
> Women with Endo don't need a PR rep for a surgeon patting herself on
> the back for showing up on a local tv show, Carey. Women with Endo
> need allies that aren't connected to any surgeon, but those allies who
> are truly interested in being an impartial and unbiased support system
> for women who are looking for help.
>
> So, your silly little "look at me" post about being on a local news
> show seems (to me) to be more about publicity for the organizations
> you are working for and less to do with helping women combat Endo.
>
> Again, I think you and the other "victim" Darva Conger have a lot in
> common...publicity for other reasons than what you proclaim.
>
> Of course, these are all my own opinons and assumptions based on my
> ever-growing research into the organizations for which you are a part,
> so I thought before I start assuming to much I'd let you explain
> yourself on a public newsgroup.
>
> I wonder if that reporter from MSNBC would be interested in doing a
> story on the business of Endometriosis. One about how different women
> hang around newsgroups, acting as if they are here to help, but in
> reality doing PR for certain surgeons??
>
~Carey~
>Especially when patients of his spend their days on a
> "support" newsgroup and mention in every post about their surgeon.
Talk about DRAMA????? Lisa you are the queen of drama here. Every post I
talk about Dr. Cook huh? Wow, that's funny, I must not can read the
invisible ink that you can.
> I don't think it's just a coincidence that Carey, or you are involved
> with the ERC and that you stay on this newsgroup a lot. Nor do I
> think it's coincidence that Carey is a satisfied customer of Dr. Cook,
> either.
Well... since I was a member of this newsgroup before I even heard of the
ERC... what does THAT say? You seem to know what these things mean Lisa,
please share.
Since I haven't heard personally of anyone that has been to Dr. Cook for
surgery that wasn't "a satisfied customer of Dr. Cook".... I guess I'm just
one of the crowd ! MAN... what a coincidence !!! I was a satisfied
customer of Dr. Cook before I or Dr. Cook was involved with the ERC, hmmmm
what does THAT mean???
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Lisa" <lac...@worldnet.att.net> wrote in message
news:5eif5.8176$RG6.6...@bgtnsc05-news.ops.worldnet.att.net...
> Heather?
>
> Where do all the "non-profit" donations to the ERC go??? Or is that
> something I can ask the Executive Director??
>
> Anytime you have an Endo doctor (or doctors) affiliated or as an
> "advisor" to a supposed "Non-Profit" group, it raises several
> questions. Especially when patients of his spend their days on a
> "support" newsgroup and mention in every post about their surgeon.
>
> Is just like the Nezhat's giving thousands of dollars to the EA in
> contributions...you wonder about things.
>
> However, I see that I may have been wrong in my assumptions. As far
> as "hate" goes, Heather: Is it possible for you to keep drama out of
> anything you say?
>
> I don't "hate" anyone, least of all Carey. I'm just tired of seeing
> what goes in in the name of "support" here.
>
> It seems like a big, drama filled place, Heather. Watching the
> discussions over the Nezhat brothers gives me more drama than watching
> re-runs of "Knots Landing."
>
> It's amazing to watch the misinformation about the law, lawyers,
> suits, etc. from women who seem to think they are authorities on Endo
> and the judicial system because they watched an episode of Judge Judy.
>
> I don't think it's just a coincidence that Carey, or you are involved
> with the ERC and that you stay on this newsgroup a lot. Nor do I
> think it's coincidence that Carey is a satisfied customer of Dr. Cook,
> either.
>
> However anyone wants to interpret that is up to them, and it in no way
> casts Carey or yourself in a bad light at all. I just find it
> interesting, that's all. It may be nothing to be interested about,
> but it's interesting to me nontheless.
>
> I find a lot of things about this newsgroup interesting when it comes
> to true support, etc.
>
> Thank you, however, for explaining things to me. It's been a few
> weeks since I looked at the ERC website, so I think I'll look at it
> again to see where I made my mistakes in judgement.
>
> Lisa
>
>
>
>
>
Lisa
I would answer your question publicly, but I was treated so rudely
here and I was questioned as to whether I was truly having surgery or
just "making it up" which when you think about it, is really sick to
think of any woman, so I'm a little afraid to talk about my surgery
here.
Therefore, I won't answer questions about my surgery on this
newsgroup. If you'd like to hear about the outcome of my surgery,
please feel free to e-mail me privately (as others have) and I will
fill you in.
I can say that I feel 100 percent better and so far for the Lap, the
hystrescopy(sp) and for a gall bladder removal, it's only cost me
623.00 thus far. That's for the endo surgeon. The general surgeon
who removed my very diseased gallbladder will get around 200 or so
dollars after insurance. Both surgeons were in my PPO plan, thank
God.
From what I read here, I was thinking I'd have to pay tens of
thousands of dollars for surgery. It seems my biggest bill will be
for the surgery center which is out of network in my PPO. They have
already discounted me because I chose to have surgery with them, but
that will be the biggest bill, I'm sure.
I certainly appreciate you asking me about my health, but I'd rather
not be harassed about whether I am lying about my surgery or not here,
so I will clue you in on what the surgeons found and what was wrong
besides my gall bladder privately if you want to know.
Thanks for the nice inquiry, however.
Lisa
Atlanta, GA
Lisa
~Carey~ wrote in message <8lkip...@enews2.newsguy.com>...
>Lisa,
>
>You have repeatedly posted publicly that you weren't going to respond
to me
>anymore, that I wasn't worth it, etc... yet you just can help
yourself for
>some reason.
>What IS your problem?>>
< Obviously I was right when I said you were obsessed
>with me.>
I've responded to one stupid post you left, where you so want to pat
yourself on the back for being a "local tv star" so I hardly think
that makes me obsessed with you, Carey. ha ha.
<The news show that I did was about 2 minutes long, and I spoke
>only of endometriosis, what it is, etc... and gave the ERC's contact
>information. That is what my JOB is ! I am the Publicity & Media
Relations
>Coordinator for the ERC, yes, and proud of it. I get NO pay for what
I do,
>but I do get a great deal of personal satisfaction out of the fact
that I am
>doing something to further endo education and awareness and helping
to make
>a difference and helping in any way I can to make finding a cure more
of a
>reality in our lifetime.>>
Should I start playing "The Battle Hymn of the Republic" in the
background while you go on and on about how wonderful you are?
>What are YOU doing for the cause of endo?>>
Actually, I'm helping the Atlanta chapter of the Endo Association form
a new support group, and I spent most of Saturday with the membership
list calling members in Atlanta to make them aware that there is a new
support group available. I went to the organizational meeting last
month and I'm getting ready to go to this month's meeting this coming
Sunday. I'm actually picking up another woman, who is scared to drive
that far, to go with me since she is in constant pain.
<< And btw Lisa, you never said what
>the results of your surgery were.... do you have endometriosis Lisa?
I
>would have to say since you haven't come back here and said you did
have
>endo, that you must not have endo and IF that is the case, then why
do you
>continue to hang around this newsgroup, doing nothing more than
harassing
>me? You offer no support, encouragement, few kind words, and a whole
lot of
>sarcastic crap.>>
I offer plenty of encouragement in PRIVATE and prefer to do so instead
of trying to offer it on this circus where you seem to think you are
the ringleader, Carey. And as far as the outcome of my surgery, why
would I tell you?
After all, wasn't it you and your "loving, supportive" pals who told
me I was not even having surgery and that I didn't deserve to be
remembered on the support list???
Why would I come back here and talk about my diagnosis? However, a
few "inquiring minds" e-mailed me privately, so I'm sure you already
know the outcome of my surgery. It was very successful. :) I would
think--no matter what the outcome of my surgery--you'd be happy that
I'm not in pain that much anymore.
Thanks for caring so much <gag> to want to know about my surgery,
Carey!!! It just proves to me how unbiased and "caring" you are to
everyone who comes here.
>
>Dr. Andrew Cook does not run the ERC, Michelle Marvel runs the ERC.
Dr.
>Cook is an advisor, as well as on the Board of Directors,>>
Yes, and his website is plastered all over the ERC website.
<< as are many
>others. If you had any clue what you were talking about you'd know
that
>organizations have Medical Advisors/Directors, etc... on board. >>
Oh, Carey how mean and "nasty" to tell me I have no clue!!!! I'm well
aware that organizations have Medical Advisors/Directors, but when
that happens there should be checks and balances to make sure that the
"non profit" organization isn't a front for getting more patients,
Carey.
If you had a clue as to what you keep throwing around here as
"support" which is truly NOT support, you wouldn't have the hubris you
have in spouting off most of your BS, Carey.
<<That would
>include organizations like the EA as well. And you have no problem
with
>them it appears. >>
Never said that I didn't have a problem with the EA, Carey. I think
any organization funded by doctors and drug companies should be
watched very carefully, Carey. It's obvious you have to personalize
everything, when indeed I'm simply asking questions.
<< You keep saying you have nothing against Dr. Cook, yet you
>attempt to trash him or rag on him or his patients ANY chance you get
or
>should I say take !!>>
Trash him??? I've never trashed Dr. Cook, Carey. Questioning his
involvement with a "non-profit", etc. is "trashing" him??? Wow.
I haven't "ragged" any of his patients and I've referred some to him
for answers to their questions. I only "rag" those women who push him
like an opiate drug on a woman in pain, looking for answers, and if
that woman decides that's not the choice for her, or has questions
about him, they are ripped apart and told "goodbye" by those who claim
to only want to give "support" Carey.
If you fall into that category, or feel that I'm "ragging" you,
personally, then that is your problem not mine. I've never said
anything bad about Dr. Cook. I question any organization with
"advisors" who stand to gain new patients by their involvement, Carey,
or that gaining new patients might be the reason FOR their
involvement, Carey.
<< Again I say what IS your problem?>>
Too many to mention, Carey.
<<My opinion on Dr.
>Cook as my surgeon has nothing to do with the ERC in any way. Dr.
Cook is
>my doctor, yes, and I'll continue to tell others of my experience
with him,
>but that in no way has anything to do with the ERC. Dr. Cook was on
board
>with the ERC before I was ever thought of as PR person. >>
And how did you get involved with the ERC???? Via Dr. Cook??? Or did
you just wake up one morning and decide to do that???
<< I don't do PR for
>anything other than endo awareness and the ERC. When I talk of Dr.
Cook,
>that comes from Carey Blondin, the person who's had surgery with a
wonderful
>endo doc, not the PR Coordinator for the ERC. >>
The same ERC that Dr. Cook happens to have a lot of influence with,
correct?
<< The ERC does not recommend
>any physicians, however, as an individual, I can speak about my
physician to
>anyone I please.>>
And I can question things to anyone I please, too. I haven't ever
said Dr. Cook is a bad surgeon, or anything. How would I know that??
I don't. I'm simply asking some questions, Carey. Your reactions say
a lot more about you than they do about me.
>> I see that the Center for Endo Care's PR representative is on the
>> staff, also.
>
>First, Donna Laux is the Program Director for the Center for Endo,
whose
>doctors are Drs. Albee and Lyons, not a "PR representative". So what
is your
>point?>>
Just notice that she gets paid by Dr. Albee and Lyons for her job as
Program Director, so I wondered if you do too by the ERC. Gee, sorry
that bothers you so much.
>What are you talking about? I post when I have nothing nice to say
to whom?
>Why do you continue to come to this ng to do nothing but bitch and
complain
>about me?>>
I came to this NG for the same reasons you did, Carey. I didn't just
show up on this newsgroup to attack you, when I DON'T EVEN KNOW YOU,
nor did I when I first came here.
It was YOU that turned on me privately, trashed me privately and
publicly then cried "Victim" when I fought back to your stupidity.
Then, if that wasn't enough, you start your own e-mail thread and post
private e-mail THAT I DIDN'T EVEN SEND TO YOU, with the tagline
"Here's what Lisa thinks about this NG"
Did I ever do that to you, Carey? Nope. And yet you sit back and act
as if you are being crucified by me, when indeed it's your own
nastiness that has caused you the grief with me. I've never had an
issue with you--publicly--until you tried to humiliate me by posting
private e-mail.
So, I truly love how you turn things around to make me some evil
"basher" when you know good and well when I first came here that was
NOT my intent or purpose of being here. I'm tired of seeing you and
your total misinformation plastered all over this newsgroup as if it
is gospel.
<< And you really need to review ALL of your facts... would you
>please tell me where you keep getting this "cured" stuff on me? It
shows
>just how LITTLE you know about endometriosis or me Lisa. I don't
live my
>life on this newsgroup, however, you tend to take time out of yours
to come
>here to do nothing but add negativity and attack and make false
assumptions
>about me. Why is that Lisa?>>
I don't find questioning your involvement with the ERC, etc. attacking
you, Carey, although I conceed that my response to your "I'm the new
Darva Conger" post was smartass indeed.
>I must be VERY interesting to you Lisa since you've decided to devote
so
>much time and energy into trashing me and trying to get the "goods"
on me.
>And what BS am I dishing out about endo Lisa?>>
I've devoted a total of 60 minutes to you and the ERC in the past
month or so, that's it. I don't think that's lots of time, Carey.
I'm sure the amount of time you've spent trashing me privately adds up
to a lot more than 60 minutes, don't you think?
It's too long to go into the BS you dish out concerning some aspects
of Endo, and it would be lost on you to even try to go into it, Carey.
I know in your little mind you will see that as some sort of "victory"
but I really don't have all the time in the world to go on and on
about it.
>Here's my post to your regarding your surgery Lisa...how is that
"NASTY" ??>>
Carey, why is it that you always drag some post or e-mail up in my
face? Look at the date on the post....I do recall that the nastiness
really intensified right after that....I think your "What Lisa thinks
of this NG" post came after your oh, so nice (and obviously fake) post
about my surgery.
I certainly saw you jump onto to all of the flame threads concerning
me to add your two cents in, Carey, nor did I ever see you be unbiased
about any support to me with my surgery in June. So, don't even try
to play the "sweet victim" crap with me, because you know it's BS and
so do I, Carey.
>
>Please show me what you are talking about. Don't make accusations
that you
>can't back up Lisa.>>
Grow up, Carey. I'm simply asking questions and if I made an
assumption that was wrong, you have my apologies. However, I think
there is a little bit of truth to my accusations, but that is my
opinion only.
<< You seem to think you know so much about endo, so please
>share with the rest of us. Please give me your experience with endo
Lisa.>>
Oh, gosh you know I bet you were the type of girl who picked fights
constantly in school.
>You THINK you know so much Lisa.... you haven't a clue what was said
on that
>news show... and once again you make assumptions that make you look
>ridiculous.>>
Well, will you send me an autographed copy of your 2 minutes of fame,
so I'll know what I missed???
<< I'm very proud of the fact that I was able to share info about
>endometriosis and info about the ERC. I am also quite proud of the
fact
>that we made contact with over a dozen women because of that 2 minute
>program. And yes I know this because I spoke with these women
personally.>>
So, why do you have to keep broadcasting what YOU do for Endo and ERC?
It sounds like you like patting yourself on the back and getting
attention, more than truly helping.
>So you can make your asinine comments about my "silly" news program,
but I
>really could care less what you think of it.>>
Which is why you took the time to respond to me, correct? Because you
could care less what I think of it, correct???
<< It had the results I set out
>to accomplish and that is something I'm proud of. Too bad you don't
have
>something good to do with your life.>>
Oh, how nasty, Carey. I have plenty to do with my life and my
volunteer habits would be too long to list here, nor am I the type to
want to draw attention to myself for all of my "good deeds" just to
shove it in other people's faces, Carey. That's the fundemental
difference between us, Carey. Maybe that's why you irritate me so
much.
<< Too bad you can't turn something that
>has been a negative in your life into a positive.>>
Well just like you like to repeat over and over, Carey, "you know
nothing about my life" nor would I feel comfortable listing all of the
positive things I do on a public newsgroup to garner favor or
sympathy from others. That's not why I volunteer, Carey.
>I guess that would mean that anyone that has had surgery with any
doctor,
>should NOT speak publicly or to other women about endometriosis, is
that
>correct?>>
Boy, you really twist issues don't you, Carey? I think it's fine to
talk about a surgeon that you like, but when it becomes a sales pitch
I think it's a bit much, Carey.
<<Gee, how many women would still be in horrible pain if that were
>the case. NO ONE would be treated for endo, and we'd all have to
suffer
>because we couldn't share our experiences with each other.>>
I thnk you should change your name to "Mother Theresa-Carey"....
<< There would be
>no Alt.Support.Endo either, or any other group for people like you to
find
>others to talk to about your pain. That's great Lisa... what a great
idea
>!!!!!>>
Reccommending doctors is one thing, running sales pitches is quite
another.
<< You seem to STILL think that my problem with you started with you
not
>wanting to see Dr. Cook...>>
I never really thought that, but since you are so "tight" with
BlessingsDebbie--who conveniently dumped me after I told her I wasn't
going to Dr. Cook, with whom I never had a cross word for in private
e-mail ever--it kind of became apparant to me when you made the
comment "if you only knew what other people think of you here" when we
had our private tiff, that there's lots of talking that goes on behind
the scenes and a lot of catty, nasty, and dangerous back biting that
goes on.
For someone--like yourself--who keeps think you are giving Endo some
serious face, you seem to want to engage in the lowest form of back
biting I've ever seen. Maybe that's what irritates me, Carey.
<< you seem to conveniently forget what really
>happened. >>
What really happened is I questioned you about the Endo Walk, you got
mad and told me I was crazy and that everyone else thought I was
crazy, I apologized to you, you ignored my e-mail, then I posted
something that really had nothing to do with you--personally--you
made a smartass comment to me, I responded with smart ass comments,
and then you started posting private e-mail.
That's what happened. Then, our resident "victim" RMK got involved
and attacked me--unprovoked--on a thread about Fibromyalgia, you two
joined forces and I became the "evil basher" of the newsgroup..ha ha
ha. That's what happened Carey.
Think back to 7th grade, Carey, because it's about the same thing 7th
grade girls do to each other.
<< I could care less if you saw Dr. Cook or not, but I knew how much
>he has helped me and others and I wanted to share that info with you.
It's
>no skin off my teeth if you don't see him.>>
How many times have you said that??? I think I got it, Carey.
<< You are the one who is so caught
>up with that ridiculous train of thought. My problem with you was
over your
>behavior towards me regarding the Endo Walk and Dr. Perloe's speaking
there.
>Stop trying to make it something else.>>
I've never made it anything else, Carey, see my above comments
concerning the "fight." Your reaction to it was to declare all out
war on someone you don't even know, and to try and hold/post private
e-mail over my head to intimidate me.
I've never done that to you, Carey.
And as far as "JettRink"...that was NOT me, but a friend of mine that
used my computer when I was out of town before my surgery. I found
that behavior wrong, and I took care of that. However, you spared no
time in posting private e-mail--again--with the intent to embarrass me
in some way.
I've never done that to you, Carey.
It's too dumb and silly.
>My "silly" little show WAS about the ERC and endo awareness.... as a
matter
>of fact, I never spoke about the ERC because of time limitations. As
I said,
>I had about 2 minutes... I spoke about endo, what it is, and answered
a
>couple of on air questions. Then the ERC contact info was put on
screen.
>Now PLEASE tell me where I was not helping women?>>
Oh, well good for you, Carey. Seriously.
<< Isn't getting info on
>endo out to women helping them? And since I was doing the news
program as
>an ERC representative, I would think you'd understand that YES, I was
>publicizing the ERC. Isn't that what PR people do for the
organizations
>that represent? Doesn't the EA do that with all of their TV
programs? That
>is the norm Lisa... or don't you know that?>>
I've worked in PR, Carey, but usually I'm working to get someone else
on television, or get a PSA aired. Seldom--if ever--am I posting to
newsgroups saying "look what I did."
>Since I don't watch as much TV as you apparently do, what does "Darva
>Conger" have to do with me or anything?>>
If you don't get it, then I would waste time explaining it to you,
Carey.
>Well I guess your opinions and assumptions are pretty OFF BASE,
wouldn't you
>say?>>
No, not really.
>I wonder if the MSNBC reporter would be interested in doing a story
on how
>women who may not even have endo, hang around endo newsgroups doing
nothing
>more than harassing the ones that are here to share their real
experiences
>and offer support to others>>
Are you talking about yourself, Carey?
<<and how women who may not have endo stay in a
>group about endo, to insult and attack those who are doing something
>positive in the fight against endo and the fight to find a cure>>
Interesting. Whether I have Endo or not, I can't believe that you
would want to ban someone who wants to volunteer for Endo sufferers,
Carey.
That's pretty petty don't you think? I don't have the need to explain
to you what I'm doing for the local EA chapter, etc. but just know
that you aren't the only "saint" around.
I just don't feel the need to post to the newsgroup daily to pat
myself on the back, Carey.
I also don't have a sales pitch for any surgeon, and I only talk about
my surgery with those women who ask in private to avoid petty
squabbles on a newsgroup.
<< and gain
>awareness for this disease. Hmmm.... now THAT would be a fascinating
topic,
>don't you agree?>>
So, just because I defended myself against your intentional nastiness,
somehow you are "good" and I am "evil" and my whole purpose in coming
to this newsgroup from day one was to attack you,Carey, correct???
And you are the true saint and I am the lowly sinner, correct???
That's a fascinating twist on reality, Carey.
Lisa
dean...@my-deja.com
news.ops.worldnet.att.net>,
"Lisa" <lac...@worldnet.att.net> wrote:
> Oh PS,
>
> I just want to make sure you know that what I'm
saying is strictly my
> opinion and that is why I am asking you
questions so you can explain
> yourself.
>
> I think it's admirable if you are--indeed--
strictly volunteering your
> time to publicity for the ERC, etc., however --
> questions in my mind when your surgeon is the
director of the ERC.
>
and publicly made me want
> to research some of the groups you are involved
with, further, and it
> made me question so much about what you say
here.
>
> I'm sure you will set me straight on my
assumptions, without resorting
> to this becoming another Jerry Springer episode
(I hope).
>
> Wishing you and Darva continued success!
>
> Lisa
> ~
the *Jerry Springer* method of *your*
communication, Lisa, is going to be abolished,
why do you mention Darva Conger, again... does
she have endo? Not that I have heard... anyway,
the ERC is a wonderful *moderated* support forum
for women who care to be supported and cherished
by their endo-sisters. We do not sling mud or
chastise anyone for not being dx, yet...if
anything we hold them more gentler in our hearts,
because they do not know- and that Lisa, is the
worst, as |I am sure you felt that way pre-op.
Now, I happen to care about Carey very much, but
I am not influenced to go see any dr. other than
my own that I have seen for 8 yrs and *does not*
have *any* affiliation with the ERC. This is a
travesty what is going on here. We should all be
supporting each other in our endeavors to *win*
this battle with endo, not knock someone down
because they got to go promote another group.
Does it all not lead to the fact that endo is
here? Lisa, I was not going to post, because I
have no use for childish games. I have *suffered*
with endo for 17 years, since I have been 13-
this is just tiresome and getting old. Let it go,
and while you do, think of all the honestly
positive things you could do with your time
instead of trash talk a wonderful lady, and an
honestly admirable group of *637* women! Think
about it... okay?
Lisa
>I don't understand this last remark, because if
>the *Jerry Springer* method of *your*
>communication, Lisa, is going to be abolished,
>why do you mention Darva Conger, again... does
>she have endo?>>
Do I know you? You left no signature at the bottom of your "Lisa is a
big meanie" post.
No, Darva Conger is a publicity monger...hey, that rhymes...and she's
constantly saying she's not looking for the limelight, or promoting
herself, and then she does everything she can to stay in the
limelight. She also likes to act as if she's a victim and gets highly
defensive and nasty if anyone challenges her.
>the ERC is a wonderful *moderated* support forum
>for women who care to be supported and cherished
>by their endo-sisters. We do not sling mud or
>chastise anyone for not being dx, yet...if
>anything we hold them more gentler in our hearts,>>
Oh, then you are a more adult group of women, correct? So, I guess if
I was having surgery you wouldn't be *childish* enough to not include
me on the support list for surgery, correct? Especially, if you
didn't agree with me on any given topic, correct?
Don't you think that's pretty *childish* and indicitive of mud
slinging? And how does that help other women who come here to this
newsgroup when they see such *childish* behavior?
>because they do not know- and that Lisa, is the
>worst, as |I am sure you felt that way pre-op.>>
Wow, you seem to know a lot about the *childish, mud-slinging* that
goes on here, for someone that claims she doesn't involve herself in
*childish* things....
So, would I be welcome on your moderated list??? I have belonged to a
moderated list--WITSENDO--for quite a long time and I really like it.
The moderator doesn't allow private e-mail to be posted, flames, ad
nausem sales pitches for surgeons.
Is the ERC group the same way?
>Now, I happen to care about Carey very much, but
>I am not influenced to go see any dr. other than
>my own that I have seen for 8 yrs and *does not*
>have *any* affiliation with the ERC. This is a
>travesty what is going on here. We should all be
>supporting each other in our endeavors to *win*
>this battle with endo, not knock someone down
>because they got to go promote another group.>>
Interesting that you don't mention how I have been *knocked down* by
your dear, sweet friend Carey, or *knocked down* by some--notice I
said SOME--of the other *childish* women here, simply because I posted
about my diagnosis with Fibromyalgia. Or because I had a petty
disagreement with your dear, sweet friend Carey, culminating in her
calling me "crazy" (great and supportive word to say to a woman with
Endo or endo symptoms) and then posting private e-mail.
Funny that you don't seem to mention those things in your "Lisa is a
Meanie" post.
I agree with your empassioned plea that we should all be supporting
each other in our endeavors to win the battle against Endo, but you
are preaching to the wrong choir, dear heart.
I'm not the one with selective support for others. I'm not the one on
the phone, in e-mail, on the newsgroup trying to blackball other women
that I don't like from this newsgroup. I'm not the one doing sales
pitches for doctors and disguising them as "support." (my
interpretation and opinion only).
I'm not the one vilifying attorneys, or women who have a differing
opinion concerning the EA, the Nezhat brothers, etc.
I support women in my area; women who oddly enough don't engage in the
same level of silly, 7th grade antics that seem to take place here
with the ceremonial "princess of alt.endo support."
>Does it all not lead to the fact that endo is
>here? Lisa, I was not going to post, because I
>have no use for childish games. I have *suffered*
>with endo for 17 years, since I have been 13-
>this is just tiresome and getting old. Let it go,>>
I find the above comment rather humorous and ironic. If you have no
use for childish games, then don't engage in them. I love how Carey
gets her "friends" to come over and try to reason with the "evil
basher" when I am not the "evil basher" that you so wish I was.
"Evil basher" to you and your dear, sweet friend means anyone who
qustions her illogical posts, rants, abusive insults, and
misinformation about the treatment of Endometriosis. Or anyone who
gets down to her level to combat her methods of intimidation, when she
decides someone is not worthy of support any longer.
I would think you'd be really concerned that women who ARE in
pain--just as you were--are coming to this newsgroup and thinking that
what is spoken here is gospel when it comes to the many aspects of
Endometriosis.
>and while you do, think of all the honestly
>positive things you could do with your time>>
I'd ask you to think about what you could do with your time, since you
have time to post this to someone you obviously don't like. Doesn't
that smack of *childish* behavior?
Amazingly, my life doesn't exist on this newsgroup only, as you and
others seem to think it does. What do you--someone I've never spoken
to privately or publicly--know about my life, other than the lies
you've been given?
What do you know about what I do when I'm not here posting?
Absolutely nothing. I would never presume to tell you what to do
with your life, etc. It would be very *childish* of me to do so.
>instead of trash talk a wonderful lady, and an
>honestly admirable group of *637* women! Think
>about it... okay?>>
I don't think I've put down 637 women here. And I don't consider
treating Carey the same way she treats me publicly and privately
"trash talk." For her, it's normal conversation.
Really nice meeting you, whoever you are, and maybe I should join the
ERC newsgroup. Do the doctors on the board of the ERC list, monitor
the list?
Thanks,
Lisa
FightEndo
Dont you have anythig better to do than to attack others, weither it be ERC,
Heather, Carey or even me for that matter because I am sure you will sooner or
later.
This is a place for women who have endo to get love and support and it seems as
if you are doing neither. so what is your purpose here?
Just wondering
Mary P.
dean...@my-deja.com
line,so, let's walk, shall we? No, you do not know me, this is the
first time I have posted, so forgive my *rudeness*, I thought my name
was included. I am Denise and *very proud* to be a member of ERC. I
never said you were mean, quite the opposite, I was being nice
considering you are trashing an honestly nice group of women- Heather
included. (I did read some of your other posts trying to *see* where
you are coming from with this nonsense...)I know who Darva is- again I
do not see the corrulation but, okay if you say so...I know nothing of
you not being mentioned for surgery- did you send it to the right
address? Whether I ever agree with anyone, my heart still aches, for
even *meanies* as you put it, with endo, as I said *you do NOT know
me*. I don't involve myself in childish games, I am merely following
your lead and will do so, until you stop writing me- * I always reply*-
btw, what was wrong w/ me mentioning your surgery? Were you not anxious-
wow, I'm impressed if you weren't, you just seem like I shouldn't
have... As far as being welcomed why would you want to join, if you
know that you do not like the people moderating? This puzzles me...you
say you have your own niche of women, do they not support you enough?
If not I am sorry, you really should have been nicer to the people you
cut down, as they are the most wonderful support group you could ask
for. Yes, ERC is the same as far as not allowing any dr.,[my own
included, that *is not* affiliated] be mentioned. Now, I have had 6
women e-mail me personnaly Because I gave them my address in a post,
and I did give them my dr.'s name, as I said *you do not know me* I
would help anyone with endo, this is not something I want to pass
on...as for fibro- welcome to the club, I have it too, big deal if
someone knocked you down for that, I can't count how many people have
told me I was nuts at 13-who cares?! They are not your world, are
they?. Are you not a strong woman fighting and voicing your opinion
now? Seems like you do a great job! Again, I never said you were a
meanie, Lisa, you need to really justify where you are reading that...
I'm not *preaching to the wrong choir* "dearheart"- it seems as if no
one is home in your church, or you would have some compassion and let
thing *GO*. I am being myself, I don't preach, I speak from my heart,
with my shoulders and head high. Again, as it seems we are going in a
circle, what do you find humorus? My endo? Here, let me put words in
your mouth like you did mine, as if you could not tell by now, God gave
me a voice to sing like a mockingbird when I am attacked. I could care
less *who* you are, though even after your reply, which could make an
iceberg shiver, I do care that you have endo. Again, I've had endo 17
years- you're not fooling me with the "what is spoken here is gospel"
garbage, I just don't believe it. I never said I don't like you Lisa,
but you are quite nasty in your letter to me, when I *was not*
attacking you! And finally, you ask what can I do with my time? I can
spend it with my two *miracle children*, one that is only 8 months old
and will proudly be walking with me in DC. I will never give up my
fight to end the corruption of these groups that are here to help
women, then just demean them. One last time, if it was my saying I have
had endo for 17 years, please, know this- I pray for you, and yours, to
know the true meaning of friendship,compassion and love, and *that* is
a dr. willing to do anything to see your dream fullfilled! Lisa, I am
done- if you reply I will be back, if not let it go, let yourself go,
and be free from the hate and the pain that is most definately not
helping your endo or fibro... as always~ Denise
Lisa
"End the corruption of these groups?" Oh, I felt like I was watching
an old movie on American Movie Classics with that "dramatic" line.
Because I refuse to leave this newsgroup, I'm on a campaign to corrupt
this group??? I think it's pretty corrupt on its own.
So, the reason you keep posting to me, is not because you are trying
to be *nice* and *supportive* but to try--in some lame attempt--to get
me to stop posting here??? That's pretty twisted, don't you think?
I think you came here, at the request of Heather and Carrie and if you
don't think calling someone or someone's behavior *childish* isn't an
"attack" (as you so dramatically put it) then I think it's YOU that
needs to learn a little more about compassion.
I certainly have compassion for any woman suffering with Endo, that
includes Carrie, Heather, Robin, etc. I don't have compassion for
petty games and nasty things they have said to me, about me, and about
anyone else that doesn't see eye to eye with them.
And this idea that you'll keep coming back to respond to me as long as
I keep posting to you, seems sort of *childish* don't you think?
Did you not address your silly post to me? Yes. Did you not say
things like "why don't you find better things to do with your time?"
Yes.
So, to turn that around that I am "attacking" you for defending myself
against YOUR "attacks" (the dramatic word used here so much), is about
the same attitude the permeates this newsgroup if Carey decides she
doesn't like someone.
I didn't realize this was a contest, DENISE, to see how long I'd keep
posting. I didn't realize that you were so into control issues that
you have to feel that you "win" if I decide not to respond to you.
<as I said *you do NOT know
>me*. I don't involve myself in childish games, I am merely following
>your lead and will do so, until you stop writing me- * I always
reply*-
>btw, what was wrong w/ me mentioning your surgery? Were you not
anxious-
>wow, >>
Following my lead? To my knowledge, I've never seen you before here,
and I've never posted to you. If you don't involve yourself in
childish games, what are you doing here?
I still don't see your reason for suddenly posting here--out of the
blue--to chide me for dramatic things I've not done. I haven't
"attacked" Heather. Heather--as usual--steps into any situation where
she thinks poor Carey is getting "attacked."
Heather sticks her nose in whenever she feels the need, without really
getting the whole gist of someones post. I have never attacked
Heather, personally, so get your facts straight. I have no problem
with Heather, and I think she explained to me how the ERC works,
supposedly.
I find it awfully noble that you decide to come here to avenge Heather
and Carey, but it's not necessary.
And awfully childish.
And I like how you try, again, to twist your own words to make it look
like I am "attacking" you when you came here to tell me that I
have--in essence-- no life and I need to find something better to do
with my time, yet you seem to get so defensive when I ask you to do
the same.
Little sweet, Mockingbird....if you don't want someone "attacking"
you, then don't rudely ask someone you don't know--who posts LESS than
Carey, Heather, et al--that I need to find something better to do with
my time.
I suppose that's not an attack, correct? So, I suppose if Carey,
Heather, you or anyone else want to slam me here, it's not considered
an "attack" is it?
Only when I respond--the same way--is it considered an
"attack"....gotta love that *childish* logic, don't you?
As far as the ERC. I don't think, little Mockingbird, that I have
ever mentioned trashing the ERC moderated board. Matter of fact, I've
never mentioned it. I was asking about who runs the ERC and the
roles that Carey and Heather play there.
You keep "fluttering your wings" over the ERC moderated board and I
have never mentioned it, nor "trashed" it.
Actually, I don't care about it.
And didn't you tell me I'd be welcome there, and then turn around in
your latest vitriol and say the following:
<<As far as being welcomed why would you want to join, if you
>know that you do not like the people moderating? This puzzles
me...you
>say you have your own niche of women, do they not support you
enough?>>
My my, sweet mockingbird, if I use your logic about what constitutes
an "attack" I would say that you just "attacked" me....
Again, I think I asked you in my previous post were the doctors who
participate in the ERC moderating the list. You never told me, so to
assert that I "know" the people moderating is false.
I also didn't say I had my own "niche of women", Denise. I said I
SUPPORT women locally. And I have gotten plenty of support from
those women, and given the same support.
Don't YOU have a niche of women in your area that support you? If so,
why do you feel the need to be concerned with someone you don't know,
like me, or the posts I leave??? Especially, if you feel that they
are so *childish*?
And do you really expect anyone to respond kindly to you, when you
start posting that you find the behavior of that person *childish* and
when you insinuate via your words that the person you are speaking
with has no life, etc. and needs to find better things to do than to
post--as you are doing yourself here and on the ERC-??
I'm supposed to see those words as kind and supportive?
Interesting.
And I have never laughed at your diagnosis with Endo, so don't start
*putting words into my mouth* that I haven't said. I said I found
your comments concerning the fact that you seem to find my behavior
childish, yet you are engaging in the same behavior, ironic and
humorous.
I never said I found your diagnosis humorous. But didn't you tell me
to "get over" being told that--on this supportive newsgroup--that
having Fibro or Endo, is no big deal and I really don't have anything
wrong with me, and I'm making it up in my head?
Now, I wonder if I turned around and said the same thing to Carrie,
Heather, Robin, would you tell them to "get over it" when they went
screaming to anyone who would listen saying "Lisa just told me that my
Fibro is no big deal and I'm making up all my illnesses in my head?"
No, I have a feeling I'd get tons of posts and e-mail telling me how
awful I am and that I "attacked" them. Funny, how the rules change
depending on who is the real person being *nasty* and *childish* isn't
it?
If you claim not to know the story, or the history behind my reasons
for staying here and not leaving, then don't presume to know the whole
story.
And if you have so much in your life to occupy yourself, why would you
waste time posting to someone you consider so *filled with anger* and
engaging in *childish* behavior?
I'd think you'd not be interested.
I don't know you, Denise, but it seems you came here to fan more
flames at my expense. I have never met you, posted to you, e-mailed
you, yet you come here and make all sorts of comments about why I'm
here, why I shouldn't be here, how you are just following my
*childish* lead, how I must not have much to do with my life if I'm
posting here, and then you try and say that I'm attacking YOU??
Interesting.
By the way, did I ever tell you that my favorite book is "To Kill a
Mockingbird?" Best novel ever.
Take Care,
Lisa
Leslie S.
involved with this new endo group perhaps you can send me more info on
this. I'd be really interested in what your doing to get this whole thing
started.
Leslie
thejacka...@my-deja.com
> Denise,
>
>1) Little sweet, Mockingbird....if you don't want someone "attacking"
> you,
>
>2) I suppose that's not an attack, correct>
> I don't think, little Mockingbird, .
>
>3) You keep "fluttering your wings" over the ERC moderated board
>
4)My my, sweet mockingbird
<<<<<<<<<<and the real winner>>>>>>>>>>>>>>>
>5) By the way, did I ever tell you that my favorite book is "To Kill a
> Mockingbird?" Best novel ever.
>
> Take Care,
> Lisa
>
You sound like a damn nut! Is this a death threat to her? If you ever
write my wife like this, I would report you too- 5 times you call her a
mockingbird, and then state you LOVE that book-"TO KILL A MOCKINGBIRD"
hmmmm, could you be more obvious you idiot!!!!!
Lisa
thejacka...@my-deja.com wrote in message
<8m0eqf$fu6$1...@nnrp1.deja.com>...
> You sound like a damn nut! Is this a death threat to her? If you
ever
>write my wife like this, I would report you too- 5 times you call her
a
>mockingbird, and then state you LOVE that book-"TO KILL A
MOCKINGBIRD"
>hmmmm, could you be more obvious you idiot!!!!!>>
Actually, I doubt I would have anything to worry about from you. What
kind of a man hides behind a fake e-mail address and claims to be so
tough? Why don't you change your name to "thewussyreturns?"
It looks like I definitely have more balls than you do, Mr. Mendo.
Why not sign your name to the bottom of your posts, Wussman?
Whoops...I promised myself I wouldn't come back here, but your "tough"
posts brought me back.
Bye Wussboy. By the way, you sure are whipped.
I think I'd like a "beer" please.
Leslie S.
members here, I feel that in the best interest of my safety to stay far away
from you. Please do not send me anything else reguarding your support group
in Atlanta. I'm not interested. I also have to wonder what kind of support I
would get if there are women in the group who don't even have endo. Leslie
MENDO
Lisa,
I don't have the need to hide behind ANY thing! My posts are signed
with my name JOHN, and my user name shows up as MENDO. Why do you think
everyone is "hiding" behind some other names? Is it because it's something
YOU do? And anyone that posts from Dejanews.com has a dejanews.com address,
so how is that fake?
John
MENDO
"Lisa" <lac...@worldnet.att.net> wrote in message
news:d2Yg5.21961$o71.1...@bgtnsc04-news.ops.worldnet.att.net...
Tricia Rodgers
rights suit about insurance companies refusing to cover BCPs but would cover
viagra.....they mentioned an alternative use for BCPs being endo.
Was pretty impressed and hoping for more but I didn't get it. I also found the one
page article in Women's Day on Endo.....it mentions that a gene has been pinpointed
for this? Anyone else know about that?
Tricia (t.f.o. and missing her hubby)
Tricia Rodgers wrote:
> This subjec tline reminds me...
>
> ya know that article on Endo in Women's Day a few months ago? Well, I happened
> to pick up a WD issue down in Ohio when I was visiting with David and there was
> a follow up letter from a reader in there...
>
> The article has been known to have helped at least one person! Halleluiah! (I
> still haven't been able to find a copy to read it but someone has been
> helped.....thank goodness)
>
> Had to share, wantedt o share a few days ago and got too lazy...
>
> Tricia (t.f.o.)
>
> ~Carey~ wrote:
>
> > Thanks Merrily.
> >
> > Carey
> >
> > --
> > John's page: MENDO - Men and Endometriosis:
> > http://www.geocities.com/HotSprings/Spa/8449/
> >
> > Carey's Endo Window with Endo Sister's Survival Kit:
> > http://www.geocities.com/HotSprings/Spa/8509/
> >
Tricia Rodgers
"Leslie S." wrote:
> Lisa, thanks for your personal reply. But after talking with some of the
> members here, I feel that in the best interest of my safety to stay far away
> from you. Please do not send me anything else reguarding your support group
> in Atlanta. I'm not interested. I also have to wonder what kind of support I
> would get if there are women in the group who don't even have endo. Leslie
I've stayed out of most of this, but this I do have to respond to.....
1. I personally think it would have been more appropriate to make this type of
response to someone in private. It's like playing judge, jury and executioner
all based on heresay. I said my piece, I'm done.
and
2. It is very possible to get good solid support from other people who don't
have endo personally. Many other people are affected by endo in their lives
because their loved ones have it. After all, several of us have supportive SOs
and other family members. I get a lot of support on here but off line three of
my biggest supporters don't have endo....two basically can't as they are men.
Please don't judge non-endo people before giving them a shot. You could be
missing out on a lot of good solid support.
Good luck, support doesn't grow on trees and I wouldn't turn my nose up at where
it comes from when offered.
Tricia (t.f.o.)
--
Lisa
Leslie S. wrote in message <39845580...@knology.net>...
>Lisa, thanks for your personal reply. But after talking with some of
the
>members here, I feel that in the best interest of my safety to stay
far away
>from you.>>
Let me guess who you spoke with....does the name start with a "C?"
It's pretty obvious that you were never interested in a support group,
but only intrested in being immature.
<< Please do not send me anything else reguarding your support group
>in Atlanta. I'm not interested. I also have to wonder what kind of
support I
>would get if there are women in the group who don't even have endo.>>
Then, if you weren't interested then why did you ask me for
information? Sounds like a "C" word set-up to me. It's intersting.
The acting "President" of the EA support group here in Atlanta was the
woman who sent me to the surgeon that ended up helping me. Funny, she
has no problem with the fact that I was told I didn't have Endo and
actually asked me to come to the meetings to support other women.
After making phone calls to members in the Atlanta area, in the
previous two weeks, 10 new women showed up. It was a very good
meeting and it was very good for me to sit and listen--something that
is lost here--to the stories of the different women there and what
they had gone through and still go through.
It's a shame that you are so small and petty in your thinking that you
would turn down a chance for support from anyone. But I see that you
truly weren't interested, but only interested in immaturity.
If you indeed change your mind, let me know. My e-mail was sent only
because I truly thought you were sincere.
Lisa
HCG915700
are men.<
Men can have Endo. Albeit an extremely rare occurrence, there are a handful of
case studies documenting such anomalies. I personally know of one such
gentleman who recently underwent surgery for a suspected disorder - his
surgical team instead discovered Endo.
Rare, but it happens.
-Heather
HCG915700
I assume they are referring to the gene study underway at Oxford. Anyone have
more information on any other similar studies?
-Heather
Suzanne
understand they are giving men estrogen now for alzheimer's disease and
osteoarthritis. Who knows ladies, if many more men get endo, we might just see
more research and possibly a cure to this terrible disease!
suzanne
HCG915700 wrote:
> >three of my biggest supporters don't have endo....two basically can't as they
> are men.<
>
Leslie S.
your business who I have conversations with. Your post on this news group
says a lot about you. Carey does not have to say anyhthing. You do a good
job making your self look like a complete idiot. It is not only what I've
heard from the news group that makes me want to stay away from you. My
husband happens to be a lawyer and after reading the post on this news
group thought it was in my best interest to stay away from you as well as
this news group. I am unsubscribing. As a 4th yr medical student at Emory
University, I can say I've seen a lot of support groups but none as
outragous as this one. It is a shame that women want to use this as a
support group but you ruin it for people with your presence. Why do you
stay? You said your self that you don't have endo!!!! I'm not trying to
put you down when I say this but I think you have some serious mental
issues to deal with. I'm not saying that to be ugly but it sure seems that
way. When I started medical school I took an oath to be honest and help
patients to the best of my ability, even you Lisa. You really might want
to consider getting some help. You are obsessed with this news group.
Leslie
Lisa wrote:
> Leslie S. wrote in message <39845580...@knology.net>...
> >Lisa, thanks for your personal reply. But after talking with some of
> the
> >members here, I feel that in the best interest of my safety to stay
> far away
> >from you.>>
>
> Let me guess who you spoke with....does the name start with a "C?"
> It's pretty obvious that you were never interested in a support group,
> but only intrested in being immature.
>
> << Please do not send me anything else reguarding your support group
> >in Atlanta. I'm not interested. I also have to wonder what kind of
> support I
> >would get if there are women in the group who don't even have endo.>>
>
HCG915700
other men out there with the disease who just don't know it, because of course
it wouldn't be your first suspected diagnosis ("doc, I've got painful cramps")
or something you would look for in surgery. It also blows the retrograde
theory pretty much out of the water...since most men I know don't menstruate.
:)
-Heather
Lisa
Leslie S. wrote in message <3986BBF1...@knology.net>...
>Lisa, It was not Carey who said anything to me. Furthermore, it is
none of
>your business who I have conversations with. Your post on this news
group
>says a lot about you. Carey does not have to say anyhthing. You do a
good
>job making your self look like a complete idiot.>>
As do you. Well, why don't you ask your lawyer husband about your own
words. In your previous post you said you spoke with members of this
newsgroup, and because of those conversations you felt it was best for
your safety that you didn't communicate with me.
So, which story is the true story, Leslie? You seem to lie a bit.
<< It is not only what I've
>heard from the news group that makes me want to stay away from you.
My
>husband happens to be a lawyer and after reading the post on this
news
>group thought it was in my best interest to stay away from you as
well as
>this news group.>>
Well your husband is a smart man for telling you to leave this
newsgroup. I can't imagine a lawyer spending his time on a newsgroup
and telling his wife to be afraid of me because I like the book "To
Kill a Mockingbird."
If you wanted to stay away from me, and you thought I was crazy, I
wonder why you posted and asked me for information on the support
group?
Maybe you ought to ask your husband that.
<< I am unsubscribing. As a 4th yr medical student at Emory
>University, I can say I've seen a lot of support groups but none as
>outragous as this one. It is a shame that women want to use this as a
>support group but you ruin it for people with your presence.>>
Boy, you come here for the first time, post and ask me for info on the
support group, then decide this newsgroup is so outrageous and it is
all my fault that you don't like it here.
Interesting. I would think as 4th year medical student at Emory
University, you'd be much too busy to spend your time on a newsgroup.
Why are you here?
Do you have Endo? (that seems to be the big question these days) Did
you come here to support other women? I find it rather interesting
that you claim to be so level headed, then come here with the express
intent to give me some sort of lecture.
Since your husband is a lawyer, I suggest you talk to him about
freedom of speech and that whether you LIKE me, I can post here
whenever I want to.
<< Why do you
>stay? You said your self that you don't have endo!!!! I'm not trying
to
>put you down when I say this but I think you have some serious mental
>issues to deal with.>>
I always love it when someone starts a derogatory and mean-spirited
cut-down with the words "I'm not trying to put you down"....
It seems I'm not the only one with serious mental issues to deal with,
if you are so outraged by a poster you don't know, and one that you
asked about info on a support group in your area.
It's interesting that you show signs of high drama, when you base
someone's worth on a post on a silly newsgroup.
<< I'm not saying that to be ugly but it sure seems that
>way.>>
I'm not saying this to be ugly, but I think you are full of shit and
that you came here expressly to attack me. I think any woman who is a
4th year medical student and has time to post on a support newsgroup
to someone she clearly disliked before she even posted, says a lot
more about your mental state, than mine.
Even more, if you and your lawyer husband have nothing better to do
than analyze posts on a newsgroup, I wouldn't want either of you as a
doctor or a lawyer.
<< When I started medical school I took an oath to be honest and help
>patients to the best of my ability, even you Lisa. You really might
want
>to consider getting some help. You are obsessed with this news
group.>>
Very ironic, Leslie, since you seem obsessed yourself. Why don't you
post some supportive messages to the women here?
Or have you? I haven't seen you here before.
But I guess you'll be unsubscribing--all my fault of course--so you
won't get to see this.
Lisa
>
Tricia Rodgers
HCG915700 wrote:
> >three of my biggest supporters don't have endo....two basically can't as they
> are men.<
>
> Men can have Endo. Albeit an extremely rare occurrence, there are a handful of
> case studies documenting such anomalies. I personally know of one such
> gentleman who recently underwent surgery for a suspected disorder - his
> surgical team instead discovered Endo.
>
> Rare, but it happens.
>
> -Heather
Interesting, I thought the only known cases were the 3 or 4 guys who had been
treated for prostate cancer. That is why I said basically can't instead of
definitely can't but that's neither here nor there.
Out of curiousity, what the was suspected disorder that originally prompted the
surgery?
T. (t.f.o.)
