New York Endometriosis
Lee Detar
then she has been on a diet avoiding yeast and candida. She swears by the
diet, but now her endo is back. We live in New York and there doesn't seem
to be any resources here in the north east.
1) Does anyone have an idea as to the effectiveness of such a diet?
2) Does anyone know of any good endo doctors in the north east, or am I
moving to Oregon or Atlanta?
Please help,
Boyfriend Lee
Gena
Lee,
I did a search here on alt.support.endometriosis and found this post:
From: SAWLynch (sawl...@aol.com)
Subject: Re: Dr Nezhat
Newsgroups: alt.support.endometriosis
Date: 1999/01/11
Lisa,
I had surgery in Atlanta . . .
which might be helpful...it is a long post so I didn't want to paste
it in here. She mentions a Dr. Reich in NYC. Just go up to the top
of the google page and make sure the circle is filled in next to the
"search only alt.support.endometriosis" so you find her post faster.
I hope this helps! Plus I keep reading if you take your girlfriend to
Atlanta or Oregon (and CA)it may just be the last surgery and
therefore trip :)
Hope this helps,
Gena
Suzanne
RPine12
There is a Dr Harry Reich in NYC
If you need more information , you can email me
Ronna
Jillian
general surgeon. Both are advanced laprascopic surgeons. They are limiting
their practice to endo and adhesions. They both operated on me this past
June. Previously Dr. Reich had taken down my adhesions in May of 1999.
Very caring doctors, not arrogant (Dr. Reich is the shy one), and very
skilled and committed to their work. They are also very honest about all
the risks and ramifications of surgery. They provide tons of info to help
you make your decision, including published works of their own as well as
others. In short, they respect their patients. Be aware they are not
primary care doctors, but surgeons, and, as such, do not do routine exams,
discuss diets or prescribe pain meds. Generally a patient is referred to
them. In my case, I referred myself the first time. My PCP here in Ohio
referred me the second time.
My surgery was at St. Vincent's but they also have an adhesion center in
Shavertown, PA called R&R Adhesion Center. The procedure required
determines where surgery would be performed, if indicated. You can e-mail
Dr. Redan at jar...@epix.net. I did and he personally called me back that
very same day. Since surgery both doctors have called me several times and
their office nursing staff call every other day.
For me, diet and even a hysterectomy were useless. Pain meds took the edge
off the horrific pain, but only the lap gave me full relief. Even though it
only lasted 2 years. Maybe this last one WILL be my last one.
Jillian
"Suzanne" <add...@scnews.com> wrote in message
news:3B585B80...@scnews.com...
Suzanne
about you. I am happy to hear your surgery is behind you and I hope you are
enjoying life once again! I am now 6 months post op from my adhesion surgery
and doing fantastic!
Take care,
suzanne
Murphy1991
Hi Ronna,
You do?! I don't need one but it comes up sometimes. Would you mind sending
it to me too, just so I'd have it on hand? That'd be great :)
Murphy
Ashes221
CHildrens Hospital.
Take care,
Ashley
Carey
I hope this surgery will be your last as well. I'm glad to hear this
surgery went well.
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Jillian" <jhum...@voyager.net> wrote in message
news:3b589898$0$62147$272e...@news.execpc.com...
Carey
Can't help on the diet question, but you are near a couple of good endo
docs. Dr. Harry Reich in NY and PA, as well as Dr. Husami who is at
Columbia hospital I believe. I was able to hear Dr. Husami speak at the
ERC's 2001 symposium in Washington DC and he is on the right track regarding
endo and should be up to date on the latest treatment options and
techniques. Good luck and thanks for being a caring bf. P.S. My hubby has
a page for the significant others of endo sufferers called MENDO if you are
interested. The addy is below.
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Lee Detar" <lde...@nyc.rr.com> wrote in message
news:jjM57.37750$16.40...@typhoon.nyc.rr.com...
Mel
Lee asked about. I'm really interested in finding out more. Anyone know
anything????
Mel
a.hutchinson2
you'll be inundated. Basically, you have to cut out any sugar, yeast, mould
(don't go ick, we're talking cheese, mushrooms ;-) wheat and dairy... The
Dian Mills diet also seems to be highly recommended. To me, although I am
sure they help, I do not have the patience or the stamina to stick to such a
thing.
--
Donna
*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*
www.neendo.homestead.com/home.html
"Mel" <ar...@ihug.com.au> wrote in message
news:9jh0q8$fsg$1...@bugstomper.ihug.com.au...
Sherry
Hi'Boyfriend' Lee
It's wonderful that you are so supportive and willing to help your
partner :o)
I am responding to this post.. only because people only 'advertise'
here... but.. if you have had less than a great experience with the
'advertised' doctor here... you will be chatised, ridiculed,
berrated.. as well.. as possibly have your medical condition
interfered with.. as did happen to me.. which caused me grave medical
harm.
I just want to add... that I saw Dr. Reich, and it is a fact that this
man let me suffer for over a year from May(despite promising surgery a
year ago May)until February of this year fully knowing that I had a
complex, hemorraghic (spelling?) cyst on my left ovary... for over
months... and.. then.. he also had full knowledge that it burst while
I was his patient... WAITING for surgery. He then scheduled surgery
and cancelled it the day before it's schedule last August. I found
his office staff to be detrimental to my health. I mean this
sincerely. I wish it weren't true.. but it is.. and I suffered
needlessly in progressive pain for over a year a half directly due to
Dr. Reich.. I have had continued contact with Dr. Reich and he "said"
he was going to help me... up until as recently as this past
January... and never came through. I found the man to be dishonest and
extraordinarily cruel to make me suffer so for so long... and it would
have been indefinite.... apparently. However.. I became
non-functioning from the pain for over 7 months. This did not bother
Dr. Reich.
Surgery revealed that I had Severe Adhesive Disease, and my colon was
attatched to my pelvic and abdominal wall and completely obscurred my
left ovary... obviously from the burst cyst (which was still in place
on my ovary when I came to him). I was also forced into a
hysterectomy.. Nonetheless, much of my suffering.. and almost ALL of
my severe inability to function from pain would have been prevented..
if 'Dr. Reich'.. was a man of his word.. and.. he is not.
Sincerely,
Best of Luck to your girlfriend.
Sherry
ps... the women on this board usually try to start a webwar with me,
and have tried to say that I am a liar every time I post. I have
never lied.. and just offer the truth about this man... who 'may' be a
decent surgeon... but.. was a horrible beast of a man to me and caused
severe destruction in my life.
Sherry
> Hi Lee,
>
> Can't help on the diet question, but you are near a couple of good endo
> docs. Dr. Harry Reich in NY and PA, as well as Dr. Husami who is at
> Columbia hospital I believe. I was able to hear Dr. Husami speak at the
> ERC's 2001 symposium in Washington DC and he is on the right track regarding
> endo and should be up to date on the latest treatment options and
> techniques. Good luck and thanks for being a caring bf. P.S. My hubby has
> a page for the significant others of endo sufferers called MENDO if you are
> interested. The addy is below.
>
> Carey
> --
> John's page: MENDO - Men and Endometriosis:
> http://www.geocities.com/HotSprings/Spa/8449/
>
> Carey's Endo Window with Endo Sister's Survival Kit:
> http://www.geocities.com/HotSprings/Spa/8509/
>
This requires posting so that ALL can know.. who don't already.
Husami again 'may' be a fine surgeon.. However, he is another
unethical Doctor in this 'loop of advertised doctors' on this board.
Husami DID abandon me while in urgent care when he 'found out' that I
went to see Dr. Reich..
Husami promised surgery... but would not schedule it. I 'HAD' to seek
another Doctor. Unfortunately.. I didn't realise the extent of the
lack of ethics practiced in apparently most of the doctors.. in this
'loop'.
I'm am truely sorry to have to tell the truth about these men. Sorry
because my life came to severe compromise secondary to being a patient
of 'doctors' on this loop, and it is not pleasant or easy for me to
post. However,.. I am NOT sorry to be telling the truth. Please be
careful with the doctors found on this loop.
Best Wishes to All
Sincerely,
Sherry
May All Beings be free of suffering and be health and happy.
Mel
these doctors, and I have been posting here for a very short time. I am also
from Australia, so I don't know any doctors outside this country.
However, I have come to notice that there is a selection of doctors who seem
to bring relief to many women, and perform fabously work. The fact that
there may be ONE case that has gone wrong out of hundreds is no reason to
brand a doctor. I am sure that every doctor has had a patient where things
have gone wrong, and that there is someone like you Sherry for every doctor
out there.
Please do not blame this doctor for your bad experience, they are only
human, and when it comes to this disease we must take control of our care
ourselves. At all times you had your own choice to find another doctor etc.
This is my opinion, I remain impartial.
Mel
Sherry
Hi Mel,
1) You are far from impartial. You may not be trying to start a
webwar.. but you sure have been opinionated, judgemental (without
knowing much) and arrogant towards me.
2) I don't have endometriosis. I was just led to believe by several of
the Doctors in this loop and by the 'support' groups that I had
Endometriosis. I had a painful leaky hemorrhagic cyst on ovary for
over 5 months which finally burst cyst and reaked havoc all over my
insides which caused severe adhesive disease resulting in my colon
being attatched to my pelvic and abdominal side wall and and
completely obscured the left ovary. I also had large intramural
fibroids in my uterus and lost my uterus on a diagnostic lap. I
became deathly ill due to the negligence of Husami, Evanko and Reich.
3) I did, rather HAD to keep choosing another doctor.. and I did. I
have seen most of the doctors in this loop and they got plenty of my
$$$. I was led to believe that I had endo and I was trying to do the
best for myself. The problem was the unethical practices within THIS
loop of doctors.. and their web spies like Debbie Fincher and Carey
Blondin... both who have caused me severe harm.. as well as Victoria
and Rachelle. In fact.. this group will always have a problem with me
when I post. And there is always someone else like you.. who wants to
really give me a hard time. Please do not respond to me. I do not
wish to discuss anything else with you.
4) Have a good life and Best of Luck to you with your endo.
Sherry
May All Beings Be Happy .. And Free from suffering.
Arianna
from reading messages that have been posted for many many months, by the
women who post here, I don't quite understand how just because some women
have posted saying that the doctor who treated them appropriately, can be
blamed for that doctor not treating someone else appropriately. We all
differ, in our lifestyles and medical needs.
I do not want to get into this argument that seems to have emerged, I just
want to say that before anyone follows the advice posted on this board, they
should do some extensive research to find out for themselves whether it's
appropriate action for them to take.
We should not be sitting here posting messages blaming each other for things
or saying who is right and who is wrong...we should all be giving each other
our support.
If someone isn't happy with the advice they found on the board and it didn't
work for them, then by all means let people know because there are two sides
to every story but don't keep this argument going. No one wins that way.
Arianna
"Gena" <vh...@stic.net> wrote in message
news:4a98aa76.01071...@posting.google.com...
Carey
Do NOT mention my name again in any post. I will once again send in your
post to your ISP for troll like behavior. You are in a support group for a
disease which you admit you do not have. Why are you here? To start
trouble again !! You are attempting to start another war when you claim that
others start it with you. Leave me OUT of any of your posts and stop your
lies about me immediately. I have never lied about you but I have found out
the truth behind your lies. This is your only warning.
Carey
--
John's page: MENDO - Men and Endometriosis:
http://www.geocities.com/HotSprings/Spa/8449/
Carey's Endo Window with Endo Sister's Survival Kit:
http://www.geocities.com/HotSprings/Spa/8509/
"Sherry" <sherr...@aol.com> wrote in message
news:d054c7fa.0107...@posting.google.com...
Mel
merely wish to point out that every single doctor out there would have a
patient such as you, with a hard luck story - no matter how GOOD the doctor
is.
Without knowing anything about these doctors, I just feel that you are being
very hard on a whole bunch of doctors. I simply wish to point out, that just
because of your very difficult, harrowing experience (I sincerely feel for
you), does not mean that these doctors will not provide good for someone
else. They may go on to provide relief to thousands of women - you never
know.
For example, I have a problem which no doctor I've seen has ever heard of. I
get severe pain from my partners semen. Now, I do not blame the doctors for
this - it is not their fault that they've never come across it before. I
will keep searching until I find someone who knows what it is. I am
suffering because of this, sex is almost impossible, my relationship with my
partner is strained, and my sex life is totally ruined (to put it mildly).
I DO NOT blame this on my doctors.
Mel
PS: After reading Carey's post, I'm not sure why I'm bothering. I was after
all only trying to be a nice person!
BathGenie
individual...
Months ago you came on here ranting and raving and basically took over the
board with your posting and reposting and reposting the same info over and over
again and copying other individuals posts in their entirity until most put you
in their filters....
Now, you come back and admit you don't even have endo, but yet you still insist
on wasting our time with your posts. This makes no sense to me, but then again
I try to apply logic to your posts which apparently is my mistake....
I'm sure we will see more uninformative posts from you, so therefore I am now
putting you in my filter so I don't need to waste any more of my time reading
your unsupportive posts!
Cathy
RMK
>the Doctors in this loop and by the 'support' groups that I had
>Endometriosis.
Sherry,
Many of us here kept telling you unless you had surgery, there was no way to
know if you had Endometriosis. You insisted you did, along with having it very
severely. We tried to tell you otherwise, but instead of listening to us, you
were certain you had the disease.
So, if you are referring to this support group, you are incorrect. If you are
talking about another support group, take it up with them.
RMK
>Subject: Re: New York Endometriosis
>Path:
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postnews1.google.com!not-for-mail
>From: sherr...@aol.com (Sherry)
>Newsgroups: alt.support.endometriosis
>Date: 25 Jul 2001 10:01:25 -0700
>Organization: http://groups.google.com/
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I am *not* a Medical Doctor (MD) or *any* other type of Medical Professional.
PLEASE consult your own Dr. for medical advice. The information posted is
information I have learned from researching or learning from my own disease.
gzel...@gmail.com
Thanks guisela gonzalez