Is Botox the Answer?
Steve
I've suffered with Focal Segmental Dystonia for 16yrs, and been on
prescribed medication of Artane, Clonazapam & Sodium Valproate (Epilepsy).
I seen my consultant last week, and he suggested that I should opt for Botox
injections, 3 every two months. One in the front of my neck, and two in the
back of head. But, he told me there can be side-effects if the injection in
the front neck muscle, drains down towards the bottom of this muscle - which
would cause problems with swallowing.
So, I've got to either have the Botox injections or put up with the extreme
pain in my neck and shoulder....... I've read on here that Botox can take
2-3 weeks before any effect is noticeable - Is there any other medication
that can ease the pain? I don't like the sound of Botox injections for the
rest of my life..
TIA...
Les..
gary
I would have to say that Botox would be worth the time to try. I hate
needles and maybe that's what helped me get off all. At least to this
point .I only have the odd day of some small thing showing up.
gary;
os-curo
Ive been on Botox for 5 yrs. Very effective at first. Not too great now. I
refuse to increase the dose which is 200cc right now. 3 times per year.
Ask your Dr where he came up with that protocol. 3 every 2 months??? I hate
drugs and injections but it should help you. Find out how often your Doc
does botox. i have some minimal problems swallowing.
joe
gary <blackn...@sympatico.ca> wrote in message
news:3C1D3217...@sympatico.ca...
Steve
I will contact my doctor regarding Botox. He did tell me that the
injections do wear off, after a certain period - which he told me was
2mths!!! He has now referred me to see a specialist in Botox adminstration.
I am supposed to be seen by the specialist in January or February, I have to
wait until then to find out what exact dosage I will be on. I don't mind
needles, I've had so many when first diagnosed.
Thx.
Les...
"os-curo" <os-...@mindspring.com> wrote in message
news:9vk65a$td4$1...@slb6.atl.mindspring.net...
Diana Knight
units per visit. My doctor would like to see me every 3 to 4 months. I try
to hold off at least 6 months so I won't build an immunity to the botox as
that is the best treatment for me. We have taken the dose up to 300 units
now. That is 3 syringes about the length and diameter of a pencil including
the needle which is very short. The number of injections vary, on some
visits he may have to put more in one sight and less in others than he did
on the previous visit.I have tried to keep count of the injections but
always loose count talking and joking with my doctor or he might have some
residents in there and the are full of questions. I would say I get at least
15 injections. This is how comfortable I am getting the injections, I can
talk and joke back and forth with him while he gives the injections. When he
finds a spot he wants to get he says stick and I prepare for it then go back
to what we were talking about. Botox helps me, it does not do a lot for the
tremor but gives me so much relief from the pain. I have had none of the
possible side affects he has to rattle off to me before giving the
injections. I have had little blood spots and one time had a large bruise.
Botox, when it works, it works well but the doctor doing the injections
should really know what he is doing. When my botox has worn off and I've
tolerated the pain and discomfort I can take,I call and set up an
appointment for more botox and count the days until I go back for the magic
poison. This is how a visit is for me and how botox helps me but as many of
us know what works for one may not work for others.
Roger
Steve <logon2net@hotmail_dot.com> wrote in message
news:Ip7T7.606$4w1....@news-binary.blueyonder.co.uk...
Olivier Chararas
>
> Hi,
>
> I've suffered with Focal Segmental Dystonia for 16yrs, and been on
> prescribed medication of Artane, Clonazapam & Sodium Valproate (Epilepsy).
>
> I seen my consultant last week, and he suggested that I should opt for Botox
> injections, 3 every two months. One in the front of my neck, and two in the
> back of head. But, he told me there can be side-effects if the injection in
> the front neck muscle, drains down towards the bottom of this muscle - which
> would cause problems with swallowing.
>
I have been injected for a ST in the back and the front of the neck.
Doctors always warn against problems with swallowing when they inject
the front of the neck, although I never had this problem. Do not be
too affraid with this.
> So, I've got to either have the Botox injections or put up with the extreme
> pain in my neck and shoulder....... I've read on here that Botox can take
> 2-3 weeks before any effect is noticeable
>
Yes effect may be late
> - Is there any other medication
> that can ease the pain?
>
Doctors sometimes give benzodiazepines like rivotril but be careful
not to get addicted with this
> I don't like the sound of Botox injections for the
> rest of my life..
>
When the ST evolves favourably you can consider getting less injections
and perhaps even stop them : I was on 4 doses a year but for 5 years but
after the last injection something has changed, I am now far better and
didn't have injection for 10 months. Keep hope : the onset of the ST
seems to be always the most difficult time but things _can_ better.
Cafgarden
suffers from spasmodic distonia (vocal cords). For the first few years, it
seemed that it did take 2-3 weeks to feel any effect, but after her last year,
she has noticeable change the next morning following the injections. She
always had bad side effects leaving her ill for as much as 6 weeks (flu like
symptoms) but this last time she began with a new specialist having moved from
the Virginia area back to Florida. This doc is at the Jackson Memorial in Miami
and he did not inject novacaine before the botox and she has had no side
effects. She also has discontinued other drugs she was taking for depression.
This problem we have not worked out yet. Anyway, I'm not happy about the botox
injections not knowing what future effect they will have, but for now, that is
all we have. My daughter is 29 years old and this has had a tremendous effect
on her professional life. >opt for Botox
Also, her injections go directly into the vocal cords. She has a higher dosage
than normal. It's a big decision whether to go for botox. Its the future I
worry about.
hamza...@gmail.com
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