Alternative Therapy: Feldenkrais for Dystonia
JVol...@aol.com
Hello,
The following is a copy of an article recently published in the NSTA
(National Spasmodic Torticollis Association) newsletter. I thought it
may be helpful to other dystonia patients who might be interested in
trying an alternative therapy called Feldenkrais. It has helped me
immensely!
Best Wishes,
Joanne Volponi
>>From the Other Side
By Joyce Dye
I would like to share with you the story of one of our members who has
successfully used an alternative treatment to improve her dystonic
symptoms and with it, the quality of her life. Joanne Volponi first began
experiencing symptoms in October of 1993. By February of 1994, she was
forced to take a medical leave from her job. Like many of us, she saw
numerous physicians, some of whom were unfamiliar with dystonia and
decided her problem was psychological. Unwilling to accept this
assessment, Joanne kept searching for answers. Eventually she was put on
a variety of medications, including Artane and Ativan which worked best
for her.
Quite by accident, she found information on a local teaching hospital
bulletin board on the Dystonia Foundation and the NSTA. They led her to a
doctor familiar with this condition who diagnosed her with segmental
Dystonia affection her neck and jaw muscles. At this point, Joanne had
trouble walking, eating and talking. She returned to work despite that
and began biofeedback sessions. They helped her to relax and provided
some small control over the spasming. BOTOX worked only initially for
her.
Discouraged, Joanne kept searching. A chance visit with her mother to
her mother's neurologist resulted in a referral to a Feldenkrais
practitioner who had helped another of his patients with ST. In January,
1995, Joanne began seeing Mary Spire, a Feldenkrais practitioner
in Berkeley, California, for twice weekly sessions. The Feldenkrais
Method was developed by Moshe Feldenkrais, who was a physicist. He
developed it to treat his injured knee and based it on physics,
biomechanics, martial arts, and theories of learning and human
development.
Joanne explains how it works as follows: "Through this method, you can
increase your ease and range of motion, improve flexibility and
co-ordination, and rediscover your innate capacity for graceful, efficient
movement. The Feldenkrais Method works with your ability to regulate and
co-ordinate your movement; which means working with the nervous system.
By expanding the self image through movement sequences that bring
attention to the parts of the self that are out of awareness, the Method
enables you to include more of yourself in your functioning movement."
Feldenkrais is done in two formats. In group classes, called Awareness
Through Movement, the Feldenkrais teacher leads you through a sequence of
movement in basic positions: sitting or lying on the floor, standing or
sitting in a chair.
Private Feldenkrais lessons, called Functional Integration, are tailored
to each student's individual learning needs; the teacher guides your
movement through touch. Practitioners of Feldenkrais use small gentle
movement, presented either manually or with verbal instruction, to help
students explore and develop the awareness and control process of their
bodies. The intention of the teacher is to present some novel stimulus
which the student will then explore and attempt to incorporate into the
action image. This is done without the intention of a particular outcome.
Thus, the student is free to explore the sensory images and motor
responses without forcing a particular type of response. A clearer image
of how movement is controlled and performed can be developed. In this
way, it is possible to stop performing old movement patterns and learn new
ones.
Feldenkrais has proved helpful with central nervous system conditions
like dystonia, cerebral palsy, multiple sclerosis, and stroke. A typical
Functional Integration session has the student lying on a table fully
clothed. The practitioner then touches and moves the student's body in
non-invasive ways that help communicate how you organize your body. "The
intent of this touch is to explore your neuromuscular organization - your
subconscious responses to touch and movement - and to have tactile,
nonverbal conversation with your central nervous system about how you
organize your body and your movement." Gradually the student learns to
reorganize in new ways that allow for more expanded motor patterns.
Joanne began with individual sessions and a few group classes during the
first year of treatment. With improvements, she gradually decreased the
frequency of the lessons until, at this writing, she goes every three
weeks. In May of 1995, she began using a counter to keep track of the
number of spasms she had daily. She saw their number decrease from 300 or
more a day in May to none in December. "I can now walk with my head
relatively straight without the intense neck muscle spasms I once had. I
still have neck muscle tightening that seems to draw my head down, but it
is much easier to control now." Eating and talking are much easier, also.
She no longer uses Artane and is on half the Ativan she was on. "All in
all, the Feldenkrais lessons as taught by Mary Spire have given me back my
life. I am not totally free of symptoms, but the ones I have now are
minor compared to what I have had before. I highly recommend that anyone
with dystonia or spasmodic torticollis give Feldenkrais a try."
For more info:
Joanne Volponi
4844 Kimberley Common
Livermore, CA
94550
Hm (510) 447-7262
Wk (510) 294-3292
Mary Spire (Feldenkrais Practitioner)
861 Creston Road
Berkeley, CA
94708-1531
(510) 528-3173
FAX (510) 528-3174
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