fra...@yahoo.com wrote in message <72occp$k93$1...@nnrp1.dejanews.com>...
>I am searching for some resources for Aspergers syndrome.
>Does anyone know of a webpage, mailing list, or national agencies/programs
>or even support groups for Aspergers sufferers?
>I am located in NW Oregon.
>Thank you for any help!! Very much appreciated!!
>
>-----------== Posted via Deja News, The Discussion Network ==----------
>http://www.dejanews.com/ Search, Read, Discuss, or Start Your Own
I recently posted information about a support group for adults with AS (HFA and
related) which is located in the NW Oregon/Seattle WA Area on my OASIS page
(Online Asperger Syndrome Information and Support) at
http://www.udel.edu/bkirby/asperger/
Go to "where to find support" then "local" click on either Oregon or
Washington. Hope this helps.
Barb
Not wishing to point out the obvious, but if you want a newsgroup, then
whats wrong with this one?
err....
--
-Ian aka Lennier
Acorn Computers, the best in the world
http://www.users.zetnet.co.uk/hawk/
BaBe - Women's human rights organisation in Croatia
http://www.users.zetnet.co.uk/hawk/babe/
Preferences: Cats, Zap, Purple, Aspie
http://www.inlv.demon.nl
That's the page for Independent Living on the Autism Spectrum. Take a
look.
Jane
On Mon, 16 Nov 1998 fra...@yahoo.com wrote:
> I am searching for some resources for Aspergers syndrome.
> Does anyone know of a webpage, mailing list, or national agencies/programs
> or even support groups for Aspergers sufferers?
> I am located in NW Oregon.
> Thank you for any help!! Very much appreciated!!
>
The IRC channel #asperger is good, there is information at:
http://www.invl.demon.nl/irc.asperger
Its *only* for people with autism, aspergers and similar conditions
though..
--
wASP
Ian Molton wrote in message <48a5bdef6...@staffs.ac.uk>...
>In article <72occp$k93$1...@nnrp1.dejanews.com>,
> <fra...@yahoo.com> wrote:
>> I am searching for some resources for Aspergers syndrome. Does anyone
>> know of a webpage, mailing list, or national agencies/programs or even
>> support groups for Aspergers sufferers?
>
M. Meyerding wrote in message ...
>http://www.udel.edu/bkirby/asperger/
>That's the main resource page for AS overall, I think, although it's
>mainly for parents of AS kids.
>
>http://www.inlv.demon.nl
>That's the page for Independent Living on the Autism Spectrum. Take a
>look.
>
>Jane
>
>On Mon, 16 Nov 1998 fra...@yahoo.com wrote:
>
>> I am searching for some resources for Aspergers syndrome.
>> Does anyone know of a webpage, mailing list, or national
agencies/programs
>> or even support groups for Aspergers sufferers?
wASP wrote in message ...
>In article <72occp$k93$1...@nnrp1.dejanews.com>, fra...@yahoo.com writes
>>I am searching for some resources for Aspergers syndrome.
>>Does anyone know of a webpage, mailing list, or national agencies/programs
>>or even support groups for Aspergers sufferers?
>>I am located in NW Oregon.
>>Thank you for any help!! Very much appreciated!!
>>
>>-----------== Posted via Deja News, The Discussion Network ==----------
>>http://www.dejanews.com/ Search, Read, Discuss, or Start Your Own
>
> Its *only* for people with autism, aspergers and similar conditions
> though..
The URL is broken - what is it?
Congratulations on being one of not very many people who managed to get me
not to like them. now GIVE IT A F**KING REST YOU ASSHOLE!!!
> In article <r1HZaKAC...@ossett-mouldings.demon.co.uk>,
> wASP <wa...@ossett-mouldings.demon.co.uk> wrote:
> > The IRC channel #asperger is good, there is information at:
> > http://www.invl.demon.nl/irc.asperger
>
> > Its *only* for people with autism, aspergers and similar conditions
> > though..
>
> The URL is broken - what is it?
http://www.inlv.demon.nl/irc.asperger/
There is also an IRC channel, #autism, which is also (but not
exclusively) for those who do *not* have an autism spectrum condition
themselves. Its homepage is at:
http://www.norwich.net/~kellysm/autism.html
- Martijn
--
Martijn Dekker http://www.inlv.demon.nl/martijn/
mar...@inlv.demon.nl martijn...@spidernet.nl
ICQ#13344793 AIM: McDutchie PGP key-ID: 1FCBAD6D
> In article <72occp$k93$1...@nnrp1.dejanews.com>,
> <fra...@yahoo.com> wrote:
> > I am searching for some resources for Aspergers syndrome. Does anyone
> > know of a webpage, mailing list, or national agencies/programs or even
> > support groups for Aspergers sufferers?
>
> Not wishing to point out the obvious, but if you want a newsgroup, then
> whats wrong with this one?
By "support groups" I think he probably means in-the-flesh meeting
groups, rather than virtual ones...
Since he is in Oregon, he can mail Roger Meyer <r...@inetarena.com> who
runs one such support group in Portland, Oregon.
well, he DID say mailinglists, which is similar in a lot of ways to
newsgroups....
I am 18.901 years old now... I have AS.
We are (generally) loners, and tend toward tehnically minded subjects.
We tend to be obsessive
We do "eccentric things"
For example, I have about 4 real friends, and a few "associates".
My main interests are Computers, Scifi/fantasy, and dragons (drawing them)
I sharpen my fingernails.
You can see my dragons at http://www.users.zetnet.co.uk/hawk/pictures/
Other than all that, we're just better than "normals", so ner :-)
> Ian everytime I read your posts you give me so much hope for my son. He is
> 8 and diagnosed AS. In the last couple months he has become withdrawn and
> very depressed. Can not remember a happy moment of his life although there
> have been soooo many. He is trying to run away from himself because he just
> realized that he was different and no matter how much we tell him everyone
> is different in some way he can get beyond it. He talks of running away and
> has changed his name in an effort to run from his pain and himself. Did you
> experience any of this sadness at a younger age? Is this normal? Does
> anyone have any suggestions to help us get by this stage? Has anyone dealt
> with a psychiatrist for their AS child? He lives in his own dream world in
> many ways and has trouble with his receptive and expressive language, I just
> don't understand how a psychiatrist is able to get through to these kids. I
> was told that these years would be hard for us a peer pressure and the need
> to fit in comes to play, I just never imagined it would be this bad, any
> suggestions are greatly appreciated!
I have to agree that Ian is a help. He has certainly helped our son,
Christopher, who is now 11, and also has AS. Chris has shown many of
the symptoms which you describe for your son. We got Ian to come and
stay with us for a weekend, and they both correspond by email now,
sporadically. Although Ian must have problems with Chris's emails
because he is dyslexic as well!
Anyway, we have fewer problems when Chris has a strictly controlled
routine, and this includes going to bed at, what is for other
children, an early time. He has come to learn that he copes better
when he goes to bed early. I also allow him to talk...and I mean
really talk. When this first started he would sit and tell me for
hours how unhappy he was and how everybody else hated him. He really
broke my heart at the time. It still hurts when I think about it.
Anyway, he has learnt that he can trust me and that I will listen.
This has helped at school in that, the teachers will now say to him
that to save up the problem and talk to me when he gets home; if he
is really bad in school, they have let him phone home and I've told
him myself that I would talk when he got home. When this first
started, I would actually go into the school and we would be given a
quiet place where he could talk. It was very upsetting for me, and
it was a long slow road, but it has helped him in the long
run...unfortunately that long run is about three years!
Chris does see a Clinical Psychologist now once a week. Personally I
am not sure that it is doing Chris any good, but it is not doing him
harm. I think the help to Chris is more indirect in that the school
see him getting 'professional' help and they tend to make a few more
allowances. Getting this help proves, if proof is necessary, that I
am not a neurotic mum making too much of my little boy.
With regards to the happy days...boy does that ring a bell. Chris
came home with homework just tonight which was to write about one of
the best days of his life. He sent an email to Ian tonight telling
him this and saying...'as if I had many days to choose from, maybe
five or six in my whole life...' Like you, he has had happy days but
a) he does not remember them and b) they are nearly always
overshadowed by something going wrong which makes the whole day bad.
I hope the above gives some ideas on how to interact with your
son...I prefer not to call it control. Chris is much better when you
get him to work with you rather than control him, and he takes words
so literally that you learn to be very careful what words you use.
Sorry for waffling on...
Jacqui
Thank you Jacqui for telling me about your son, I was beginning to believe I
was the only one going through this. My son also goes to sleep earlier than
most children his age because it helps him cope better when he has more
sleep. I try to get my son to tell me what is hurting him and making him
sad and when he does open up it is heart breaking. He has a wonderful life,
so many people love him, a wonderful neighborhood, school, friends, family,
he has what any child would love, yet he sees none of it. He is so hard to
break through to because he sees things that aren't really there, so many of
the things that he says make him sad don't even exsist. The kids he says
don't like him really do, the things he says he is bad at he does well...
there is no convincing him of this. I only hope with persistance, love and
the help we are receiving we will be where you are in 3 years.
Jacqui Houlding wrote in message <199811182...@zetnet.co.uk>...
>The message <72vbam$rpi$1...@news1.fast.net>
> from "partkr" <par...@snip.net> contains these words:
>
Ian Molton wrote in message <48a6ba815...@staffs.ac.uk>...
>In article <19981117222606...@ng55.aol.com>,
> ELLYT <el...@aol.com> wrote:
>> My little boy 3 1/2 has been disgnosed with AS. I am trying to read as
>> much as I can so I can see where this lfe might be heading. It is a
>> totoal mystery to me. Sometime he is perfect, and his demands can be
>> met, but sometimes, there is no reasonable way to makeeveryone happy.
>> How do these kids do as they come along? I am curious wheter they are
>> happy, proud, gleeful, enterprising?? Please talk abou th distinction
>> between the AS and the Autistic ones. Can any one spead to that. E.
>> Tucker
>
Not really, actually....
>I hope the above gives some ideas on how to interact with your
>son...I prefer not to call it control. Chris is much better when you
>get him to work with you rather than control him, and he takes words
>so literally that you learn to be very careful what words you use.
>
>Sorry for waffling on...
>
Jacqui
Do not be sorry! what you say is so true. Talking with another parent today we
decided that with all people with autism the key is not to control their
behaviour but to teach them the most effective and socially acceptable ways to
manage our behaviour. We are a bigger *problem* for them than they are for us
sometimes.
Mike
parent and teacher and learning all the time.
>
>Thank you Jacqui for telling me about your son, I was beginning to believe I
>was the only one going through this. My son also goes to sleep earlier than
>most children his age because it helps him cope better when he has more
>sleep. I try to get my son to tell me what is hurting him and making him
>sad and when he does open up it is heart breaking. He has a wonderful life,
>so many people love him, a wonderful neighborhood, school, friends, family,
>he has what any child would love, yet he sees none of it. He is so hard to
>break through to because he sees things that aren't really there, so many of
>the things that he says make him sad don't even exsist. The kids he says
>don't like him really do, the things he says he is bad at he does well...
>there is no convincing him of this. I only hope with persistance, love and
>the help we are receiving we will be where you are in 3 years.
We need to store memories for our kids so they can look back with pleasure.
Matthew blocked out a whole year as bad. it was. But the good times in that
year went as well.
We can sometimes forget as well. The bad overwhelms the good. When I moan about
Matthew now he says I should remember when he was worse and be happy instead of
criticizing all the time. Why should he improve if I am never satisfied and
always want more? Good question, Matthew.
I did the name thing around age 5... I was Rosemary and not Amanda. I
didn't realise I was different then, though. Age 10 I figured that out
and age 11 I "covered myself"... gained a lot of names then and I'm now
figuring out what used to be there (I felt almost ashamed for some
reason) It's a bad situation which can trigger emotional/mental
problems...
>experience any of this sadness at a younger age? Is this normal? Does
>anyone have any suggestions to help us get by this stage? Has anyone dealt
>with a psychiatrist for their AS child? He lives in his own dream world in
>many ways and has trouble with his receptive and expressive language, I just
>don't understand how a psychiatrist is able to get through to these kids. I
>was told that these years would be hard for us a peer pressure and the need
>to fit in comes to play, I just never imagined it would be this bad, any
>suggestions are greatly appreciated!
One good thing is that you know your kid is AS. That may not
sound good, but you can get help specifically tailored around the AS.
With me it was "self-esteem counselling" which was the last thing I
needed... I don't know about psychiatrists (I'm told I fall under
"atypical autism" which is one of many things under pdd-nos)
--
Galig Dulin "The web was woven curiously,
nigh...@netcom.com The charm is broken utterly,
Draw near and fear not -- this is I,
The Lady of Shalott" (Alfred, Lord Tennyson, 1832)
Chick wrote in message <73d81d$q10$6...@news-inn.inet.tele.dk>...
>>The email lists are all run by twit-listowners who propagandize their
>>own little twitty narrow-minded views of autism and Aspergers.
>
>Seldom one have the honour of meeting someone as omniscient as you.
>You must have remarkable language skills?
>Knowing the "twitty" psyche of ALL listowners!???
>
>I must increase your misery, by telling that a new Danish list is soon
>available!
>Not intended to be propogandizing anything,
>but just offering friendship and support.
>
>VERY happy to annoy you...
>
>Maybe we are having our brains washed,
>but you should try washing your mouth with some soap...
>
>>The listowners all praise each other and scratch each other's backs.
>>None of them can survive in the light of day, which is why they keep
>their
>>email lists private and suck onto their lists only the naive, new,
>scared,
>>and malleable.
>
>Why do you not make your own mailinglist?
>Are you afraid noone will join?
>I wonder why...
>
>
> This is "my own" mailing list and no one censors it.
Er. how wrong you are. This newsgroup does not belong to you, and it's
entirely possible to censor people in the newsgroups. (I wont detail how)
Ian Molton wrote in message <48a9f1a53...@staffs.ac.uk>...
Mike, are you trying to be unpleasant, or does it come naturally?
You said this was "your" mailinglist - it isnt. Fact.
You said no-one could censor it - it CAN be censored. Fact.
All I did was state two facts. from this you have inferred that
a) I am in the habit of cancelling usenet posts.
b) I am in the habit of cancelling YOUR posts specifically.
c) I am underhanded and sneaky.
I can assure you that I have never issued a single usenet cancel, although
I am well aware how to. This is because as someone with an interest in
computers, networking, etc. one tends to pick up these bits of information.
I also have no interest in cancelling your posts, seeing as all you ever do
in them is embarrass yourself.
Have a nice day.
Ian Molton wrote in message <48aa213c2...@staffs.ac.uk>...
Yes, but there is a difference between brandishing a weapon and knowing how
to use one. I know how to use cancels, I refuse to, because I believe
everyone has the right to free speech. That is why I refuse to ignore /
cancel / killfile anyone. (except spam mailers - people have a right to
privacy, too)
> I suggest you stop reading my posts before you put your foot in it.
You are the only one putting your foot in it, accusing me of things I have
not done. <read on>
> Since you have deleted your own nasty little pieces of this thread, I'd
> call that down right sneaky. Got a different word for it??
I have ALL of this thread of news on my computer in it's message history. I
can assure you that I have written nothing nasty in it. I can post the
entire contents (but I wont, as no-one else here really wants to read your
drivel on this subject), and you can verify what I claim with a quick
search on www.dejanews.com
I challenge YOU to provide evidence that I have been cutting "my own nasty
little pieces of this thread" from the posts I have made.
I *have* removed all other quoting from this article, because I believe
everyone has seen it before and I am not going to bore them with it again.
For the record, as I write this, there have been 7 posts to this thread.
two are by me, one by "Chick", one by "CWilson379", and three by yourself
"MikeHack".
I'll just get back to grinding the edge of my newspost cancelling sword to
a sharp an edge as I can get. dont mind the scraping noises.
Ha! now leave me alone.
[some really scary paranoid stuff snipped]
Mike, I was really tempted to flame you, but I won't.
I'm glad to see that Ian can well take care of himself, and doesn't
need anybody to defend him. Nevertheless let me say I disapprove
your rants, and I'm somewhat worried about you. Frankly, I have the
impression that you are in dire need of professional help. Maybe
there's a cure for your delusions.
Speedy recovery,
Sven
Use Reply-To: Address line wrote in message
<36635ee1...@personalnews.de.uu.net>...
Ian Molton wrote in message <48aa58c92...@staffs.ac.uk>...
Mstantonuk wrote in message
<19981125195237...@ngol04.aol.com>...
>
>In article <19981124000044...@ng34.aol.com>, cwils...@aol.com
>(CWilson379) writes:
>
>> I believe depression is an inherent part of the AS
>>experience, and needs to be addressed
>
>Matthew gets really depressed at times. He is 13. He takes clomipramine
[100mg
>a day] for obsessive compulsive disorder. It does help. A two hour bathroom
>ritual is now a manageable 30 minutes except when he is stressed out.
>But knowing he is autistic and railing against the unfairness of it all
when he
>measures his life against that of his NT friends is a source of depression
and
>despair. We get, "Why was I born? I hate you for having me. I should have
been
>an abortion then you would all be happy. Why don't I kill myself?" Usually
>when he is angry and wants to hurt us, which he does with unerring
accuracy.
>This is easy compared to when he hurts himself. "I've lost/wasted my
childhood.
>I wish I was really autistic then I would not know."
>Once he set his alarm for midnight and decided when the the alarm went he
would
>be Kanner autistic instead of Asperger. He would be like the boy he looked
>after on a Riding for the Disabled Holiday, who was autistic and happy
because
>he was learning disabled and did not know he was autistic. [if you know the
>song 'How Sweet to be an Idiot' by Neil Innes you'll know exactly where
Matthew
>was coming from] Anyway, the alarm goes and Matthew sits up in bed, tongue
>lolling, eyes distant and starts flapping. I just happened to be in the
room at
>the time and I went head to head and shocked him out of it, put the lid on
that
>one in a big way. The best thing I've ever done. If that had become an
>obsessive compulsion...?!
>I wish I could get him on line again. He's over the porno spam he got. But
now
>my web browser has crashed - IE4 for the technically minded - he wont go on
>line because, without web access, our internet connection is not complete
and
>he is a perfectionist. It has to be all or nothing.
>But there are some lovely people out there who've been there, done that and
got
>the T shirt. All you lovely people who have survived autism and adolescence
and
>are beginning to find a way forward as adults with autism. Matthew needs to
>hear positive messages. So does Chris Wilson's son by the sound of it.
>I will print your emails and give them to him. If you want to send him
snail
>mail under private cover email me and I will send you our postal address.
partkr wrote in message <73iofv$2c7$1...@news1.fast.net>...
>Fear has taken over my 8 year old son's life too. He now talks of
>nightmares and fears of everyday things that never bothered him before. It
>seems from what I have been reading that it is fairly common for our kids
to
>experience hard emotional times at this age. I just wish I could find a
>reason for the depression so that I can find a way to help him through it.
>Does the realization that you are different, which my son recently told me
>he now knows he is, cause these setbacks? Contrary to what MH might have to
>say about us as parents, I am a good parent who loves my son with all my
>heart. I have tried to do everything I know how to help him to have as
>happy and productive a life as possible. That is our struggle, trying to
>find the correct help. Noone gave me an instruction manual to help me deal
>with my AS son or my other children. We do our best and pray that the best
>is good enough.
>
>After a neurologist diagnosed my son with AS and ADD (still have doubts
>about the ADD) several months ago we have been basically begging for help
>and guidance. We have been waiting for over 3 months to get a complete
>Pediatric Developmental Evaluation from Childrens Hospital in our area, we
>are in the process of getting and IEP, and have found a psycologist to try
>to help him cope with what his doctor, school and we consider to be severe
>depression that just recently became apparent. How do you convince a child
>who lives a life in which he has experienced so much happiness, so many
>great times, that he actually was happy at one time in his life? In a day
>that he spent having a wonderful time, smiling and laughing, one little
tiny
>thing going wrong destroys the day.... and he becomes convinced that he has
>never been nor will ever be happy. I feel like I keep hitting dead ends, I
>just hope if I keep turning around and try another route some day I will
see
>my sweet, happy, content boy again.
>
>
>Ali656 wrote in message <19981125230428...@ngol03.aol.com>...
>>
>>I am so happy that I recently joined this list. Our son,Joshua, is ten
and
>we
>>have spent the last 7 years treating him for severe adhd with a possible
>mood
>>disorder. The older he gets the more the problems seem to escalate. He
>has
>>now been diagnosed as having pdd also, however in the last 6 weeks he has
>been
>>so frightened which with Joshua translates into anger. alot of it. He
has
>>missed so much school and we can't quite tell if he is hallucinating or if
>he
>>is so frightened of not being in control that he has retreated into his
>>formidable imagination. the moods are swinging fast and furious here and
>right
>>now there is no way to tell what will trigger one. sorry for the rambling
>but
>>we are so worried, he is such a magical little boy and he tries so hard to
>do
>>what he needs to get through each day. I don't think that alot of people
>know
>>what real bravery is until they see just how courageously our kids go
>through
>>life. Thanks for listening, alice
>
>
/me stays in the bath until the water goes cold usually. (well, until the
water feels colder than outside the bath....
--
-Ian aka Lennier
Acorn Computers, the best in the world
http://www.users.zetnet.co.uk/hawk/
BaBe - Women's human rights organisation in Croatia
http://www.users.zetnet.co.uk/hawk/babe/
True creativity comes from not being like everyone else. Aspie and proud of it.
> yawn
Didnt think you'd provide any evidence that I'd "underhandedly" cut my
"nasty little" remarks from this thread. I rest my case. Let the jury
decide.
Oh, er, yeah. All of them. uh. I have crowds of them, all round me.
Dont be so stupid.
Don't worry too much about MH. He is caustic and sometimes pretty callous, but
he can have his better side, as with most of us.
He's expressing his idea in an offensive way, but I will say that when our
daughter finally achieved language skills that helped us to believe she knew
what the rules are and we cracked down on genuinely spoiled behavior, many
things in her life and ours improved. (The question of what is spoiled
behavior and what is the result of the struggle with autism/PDD/OCD etc. is one
which parents have to work out for themselves. The rest of us on this group
have never seen your children and cannot judge.) She seems happier, now that
she knows the rules will remain constant, like walking on firm ground instead
of quicksand. She is charming, polite, and apparently enjoying life a lot more
than when she could manipulate us to dodge the rules.
Unlike MH, I don't feel like judging people who have difficulty figuring out
how to discipline an autistic child, and I believe that harsh criticism of our
ability as parents is destructive to the fragile self-confidence we all need to
cope with our daily lives. I can remember too vividly the time when my
daughter was non-verbal and non-responsive to any attempt to talk to her about
what she had done wrong, the time when we got whatever she wanted the minute
she grunted because we didn't know what else to do with a child who couldn't
talk and didn't understand what was said to her. During the time she was
making the transition from being non-verbal to talking, we walked a fine line,
uncertain whether she understood or not. No one could tell us whether she was
ready to be held to the kind of standards you expect from NT children except
us, and we didn't know anything about her disorder. We've found our way so far
and will continue to do our best as she grows and her issues change with the
different levels of maturity. One skill I have learned is the ability to let
harsh, ill-natured advice roll off, like water off a duck's back. MH is by no
means the only source of that kind of remark.
Here's to not letting anyone make you doubt that you are good parents! : )
Chyrl
Mother of 7-yr-old w/PDD
> In a day that he spent having a wonderful time, smiling and laughing,
> one little tiny thing going wrong destroys the day....
To a lesser extent I used to have whole days spoilt by one bad thing. I had
a long memory for bad things, and a shorter one for good things. The memory
for good things eventually outgrows the memory for bad things, so it seems.
I have a shockingly short term memory overall, though.... except in my
favorite fields.
> You two have sufficiently impressed the ladies with your high
> testosterone levels. Let me know how many of them are now swooning over your
> macho gang-warfare mentality.
As one of the ladies on the group - let me assure you that you are
the one who comes over as being a complete and utter idiot who seems
to shout loudly in the hopes of being taken seriously.
I would not care to comment on what the other members on the group of
my sex feel, but we tend to read this ng for information, help and
reassurance - certainly not to have to read your ravings. Perhaps if
you wish for a decent conversation/response, you should address
things in a mature fashion.
Jacqui
> In article <19981125195237...@ngol04.aol.com>,
> Mstantonuk <mstan...@aol.comnospam> wrote:
> > A two hour bathroom
> > ritual is now a manageable 30 minutes except when he is stressed out. '
> /me stays in the bath until the water goes cold usually. (well, until the
> water feels colder than outside the bath....
Chris is the same. He also has the water so deep to start with that
there is a severe danger of overflow!
Jacqui
> In article <73idqb$uus$2...@nntp1.u.washington.edu>,
> MH <mike...@u.washington.edu> wrote:
> > You two have sufficiently impressed the ladies with your high
> > testosterone levels. Let me know how many of them are now swooning over
> > your macho gang-warfare mentality.
> Oh, er, yeah. All of them. uh. I have crowds of them, all round me.
So *that's* what was hidden under the blanket! ;)
Jacqui
Chris is exactly the same. He will also go from bad to worse if
something happens early in the day. For example, this morning he
thought he had left his school tie at school yesterday; he kicked out
at the dog, slammed his school bag around and was being generally
obnoxious. He then found the tie in the pocket of the school bag.
Unfortunately it was too late and he was in trouble on and off all
day at school apparently. On a day off we can usually bring him
around, but the teachers do not have the time for this and cannot
leave him alone to get over things.
One thing which has helped is using a time-out system where he is
allowed to go to the library to sit quietly whilst he calms down.
However, this only allows him to bring himself under control; it does
not bring him down to a level where he can cope with even a minor setback.
This is so common in our house now that we tend to have a bad day
when Chris starts off with a bad day - usually because we know that
the school will call us in so that they can have a complain!
Jacqui
LOL! :)
He wont when he realises what can happen to the floorboards :)
Ian Molton wrote in message <48aad9db6...@staffs.ac.uk>...
>In article <73idqb$uus$2...@nntp1.u.washington.edu>,
> MH <mike...@u.washington.edu> wrote:
>> You two have sufficiently impressed the ladies with your high
>> testosterone levels. Let me know how many of them are now swooning over
>> your macho gang-warfare mentality.
>
>Oh, er, yeah. All of them. uh. I have crowds of them, all round me.
>
>Dont be so stupid.
Ian Molton wrote in message <48aad9ff0...@staffs.ac.uk>...
>In article <73idq9$uus$1...@nntp1.u.washington.edu>,
> MH <mike...@u.washington.edu> wrote:
>
>> yawn
>
>Didnt think you'd provide any evidence that I'd "underhandedly" cut my
>"nasty little" remarks from this thread. I rest my case. Let the jury
>decide.
>
Jacqui Houlding wrote in message <199811262...@zetnet.co.uk>...
>The message <73idqb$uus$2...@nntp1.u.washington.edu>
> from "MH" <mike...@u.washington.edu> contains these words:
>
>
>> You two have sufficiently impressed the ladies with your high
>> testosterone levels. Let me know how many of them are now swooning over
your
>> macho gang-warfare mentality.
>
Chyrl wrote in message <19981126061912...@ng116.aol.com>...
Jacqui Houlding wrote in message <199811262...@zetnet.co.uk>...
>
MH wrote in message <73mq3t$r8e$5...@nntp1.u.washington.edu>...
> I recommend you put me on your computer's filter / delete, Jacqui, as
>you seem more interested in sympathetic chit-chat from this newsgroup than
>information that would help autistic children. If you want sympathy, go
have
>your insurance company pay a counselor $50 a hit or join a private autism
>list dedicated to parental boo-hoo-hooing, parental martyrdom, and parental
>incompetence.
>
>Jacqui Houlding wrote in message <199811262...@zetnet.co.uk>...
MH wrote in message <73mq3p$r8e$2...@nntp1.u.washington.edu>...
> My 14yo Aspie son sees a psychiatrist to monitor his meds, and for several
> years he also saw a psychologist for counseling. He has always been highly
> verbal, so he benefited a lot from counseling (although being somewhat
detached
> and not having his emotions on the surface, he probably didn't get the same
> mileage as a NT kid merely going through a bad phase might have).
> He has been clinically depressed at times, and even had to be
hospitalized once
> at age 12. If not for medication (he takes Paxil now, but he has also taken
> Prozac, Luvox and Zoloft and has done well with all of them)
My son is sixteen and has Aspergers. He takes Luvox, and Risperadol along
with Tegretol for his TLE seizures. He has Tourettes also but I think that
has lessened a great deal. I think there has been an improvement with
the Luvox/Risperadol combination as far as socialization issues goes. Not
real dramatic but every bit helps. He likes high school so much better
than the earlier grades. Maybe it is the age, maybe the peer pressure
thing is worse in fourth thru eighth grades. But he wasn't diagnosed then
either. We just had an awful time and he had (still has) a good
therapist. (psychologist for that. Psychiatrist for meds) <--we had bad
experiences with MD's prescribing psychiatric meds.
>he would be
> unbearably depressed. I believe depression is an inherent part of the AS
> experience, and needs to be addressed. Sometimes my son would start crying for
> no apparent reason and express thoughts of despondency. He has also been
teased
> at times, and is excruciatingly sensitive to slights. All AS children need to
> be protected from the depths their emotions can take. My .02, Chris
> <<Ian everytime I read your posts you give me so much hope for my son. He is
> 8 and diagnosed AS. In the last couple months he has become withdrawn and
> very depressed. Can not remember a happy moment of his life although there
> have been soooo many. He is trying to run away from himself because he just
> realized that he was different and no matter how much we tell him everyone
> is different in some way he can get beyond it. He talks of running away and
> has changed his name in an effort to run from his pain and himself. Did you
> experience any of this sadness at a younger age? Is this normal? Does
> anyone have any suggestions to help us get by this stage? Has anyone dealt
> with a psychiatrist for their AS child?
psychiatrists are usually more up on medications and psychologists are
usually more up on mental/interpersonal things. That is my experience
anyway. There are always differences though. I have both for my son.
His therapist feels that Chris (my son) needs to have therapy since things
bother him so much and he's able to pick up on a few things. Like the
personal hygine problem. <--- Doesn't help with peer issues, that's for
sure. It helps me, to know that Dr. G is there for him and to help me
learn to deal with things appropriately. My son's father has very little
to do with him except to take him to church once a week when he feels like
it and the occasional evening once or twice a month. He loves and needs
his father and that is ok with me, but as far as real help goes, Dr. G and
other sources are my lifeline and his too. His therapist has said once
(when I was asking about more frequent sessions to hopefully get him to
feel more safe and open up more) that he felt that my son just isn't that
"deep". He is more superficial and one track minded in therapy and deep
introspective therapy may just not do the trick for him. I guess I kind
of know what he means but didn't want to hear it. My heart broke since
I'm a pretty introspective type and know how therapy could help him. As
far as the depression goes, it does help to keep someone around that can
watch him for signs of more serious issues that may crop up. Just to keep
him safe.
> He lives in his own dream world in
> many ways and has trouble with his receptive and expressive language, I just
> don't understand how a psychiatrist is able to get through to these kids. I
> was told that these years would be hard for us a peer pressure and the need
> to fit in comes to play, I just never imagined it would be this bad, any
> suggestions are greatly appreciated!>>
My son wanted to have friends but had an awful time trying to keep them.
He was too pushy and controlling. He didn't know how to be a friend and
let them do things their way. He tried to tell them how to do it all the
time. All very well meaning, of course, but not many kids will put up
with it for long. He tended to hang around with younger kids a lot. Now
he is older and has one good friend, who's pretty tolerant but still will
tell Chris when to back off and let him do it himself. But he won't
desert my son. That is a first. I really hope you can find someone like
that for your son. Maybe the school can mention a really nice easy going
type friend in his class? Just a suggestion. It helps my son also to
have one thing he is really good at and looked up to as the expert on that
particular thing. For him it is computers and programming. That is his
niche. In his programming class they gave the programs that the school
uses to him and told him to see if they can be gotten around by
industrious students. (password/security) He showed them how easy it was
of course. They know he's a pretty good kid and didn't care about doing
that sort of thing himself. He just likes to help people. Loves to show
them how to do things.
Is your son good at anything that you can focus on like this to help his
self esteem? Even though he may feel different than the others, he needs
to know that he is his own person and good at something that makes him
unique and useful in his own right. Everyone does.
hope you find what he needs,
Linda
--
I haven't lost my mind -
It's backed up on tape somewhere...
> The message <48aacc1e8...@staffs.ac.uk>
> from Ian Molton <mh12...@cr10m.staffs.ac.uk> contains these words:
>
>
> > In article <19981125195237...@ngol04.aol.com>,
> > Mstantonuk <mstan...@aol.comnospam> wrote:
> > > A two hour bathroom
> > > ritual is now a manageable 30 minutes except when he is stressed out. '
>
> > /me stays in the bath until the water goes cold usually. (well, until the
> > water feels colder than outside the bath....
>
> Chris is the same. He also has the water so deep to start with that
> there is a severe danger of overflow!
>
> Jacqui
My Chris won't take a bath. He only takes showers and they last for
hours. I don't think he is in the water most the time if at all. You can
tell when the water is beating off someone or just running down the
drain. And I have to watch that he doesn't take books/pillows/camera's or
anything else to "play" with in with him. He isn't clean when he comes
out is all I can say. We're working on that one with positive rewards if
he is clean by my standards with no arguments. (right) I think the Luvox
helps with some of his OCD tendencies though.
> Fear has taken over my 8 year old son's life too.
I think this may be why my son hoarded knives and kept poking holes in
walls when he was that age. School wasn't safe and he felt ostrasized.
(sp)
> He now talks of
> nightmares and fears of everyday things that never bothered him before. It
> seems from what I have been reading that it is fairly common for our kids to
> experience hard emotional times at this age. I just wish I could find a
> reason for the depression so that I can find a way to help him through it.
> Does the realization that you are different, which my son recently told me
> he now knows he is, cause these setbacks? Contrary to what MH might have to
> say about us as parents, I am a good parent who loves my son with all my
> heart. I have tried to do everything I know how to help him to have as
> happy and productive a life as possible. That is our struggle, trying to
> find the correct help. Noone gave me an instruction manual to help me deal
> with my AS son or my other children. We do our best and pray that the best
> is good enough.
>
> After a neurologist diagnosed my son with AS and ADD (still have doubts
> about the ADD) several months ago we have been basically begging for help
> and guidance. We have been waiting for over 3 months to get a complete
> Pediatric Developmental Evaluation from Childrens Hospital in our area, we
> are in the process of getting and IEP, and have found a psycologist to try
> to help him cope with what his doctor, school and we consider to be severe
> depression that just recently became apparent. How do you convince a child
> who lives a life in which he has experienced so much happiness, so many
> great times, that he actually was happy at one time in his life? In a day
> that he spent having a wonderful time, smiling and laughing, one little tiny
> thing going wrong destroys the day....
boy, does this sound familiar! The whole day is ruined after one simple
little thing happens to make him upset. Really hard to turn him around.
(finding something he/she really likes and excels at helps though)
and he becomes convinced that he has
> never been nor will ever be happy. I feel like I keep hitting dead ends, I
> just hope if I keep turning around and try another route some day I will see
> my sweet, happy, content boy again.
>
My son is sixteen. I am still waiting to catch a glimpse here and there.
Now he's only happy when he can be online (where no one can see him as he
puts it) and playing Avera or different MUDS with his online buddies.
Just have to watch to make sure they aren't inappropriate friends like
child stalkers or something. That is scarey, since he's so trusting and
say's I'm always exaggerating. Maybe I am? You're definitely correct
when you say that they don't come with manuals. Wish they did. :-( He
is my only child and it will stay that way.
>
> Ali656 wrote in message <19981125230428...@ngol03.aol.com>...
> >
> >I am so happy that I recently joined this list. Our son,Joshua, is ten and
> we
> >have spent the last 7 years treating him for severe adhd with a possible
> mood
> >disorder. The older he gets the more the problems seem to escalate. He
> has
> >now been diagnosed as having pdd also, however in the last 6 weeks he has
> been
> >so frightened which with Joshua translates into anger. alot of it. He has
> >missed so much school and we can't quite tell if he is hallucinating or if
> he
> >is so frightened of not being in control that he has retreated into his
> >formidable imagination. the moods are swinging fast and furious here and
> right
> >now there is no way to tell what will trigger one. sorry for the rambling
> but
> >we are so worried, he is such a magical little boy and he tries so hard to
> do
> >what he needs to get through each day. I don't think that alot of people
> know
> >what real bravery is until they see just how courageously our kids go
> through
> >life. Thanks for listening, alice
--
partkr wrote in message <73mvt6$hs8$1...@news1.fast.net>...
> Nobody's reading your prissy little posts anyway. Grow up.
You are :)
> Hate to get in the middle of an argument, but I am reading them Ian, in
> fact I look forward to your posts.... keep them coming!!!
:) I'm afraid I got more than a little annoyed with his last batch, particularly his attack on Jacqui, whom I know personally and is a very
good mum.
Sorry about the language...
You fucking idiot, MH. Jacqui is about as far from an incompetant parent as
you can get. I *KNOW* this, I've met her.
Does the word "appologise" actually appear in your vocabulary, or are you
too stupid to learn it?
<post not censored - I dont feel you deserve it>
> I see Ian that you have done some judicious pruning of your previous
> parts of this thread which were indicative your macho gang-warfare
> mentality. Sneaky again!
If you were actually competant at using your computer, you'd realise that
what we are posting messages on here is called Usenet (it is *not* a
mailinglist, as you rather wrongly put it). It is a forum for debate and
conversation (and mindless argument!, hehehe).
Now, on usenet, people customarily quote text out of messages they reply
to. If this were to simply go on and on, messages would soon grow out of
all proportion, and people with modems would be left with a huge bill (dont
forget, us brits have to pay by the minuite for internet access.)
To circumvent the obvious problems of messages growing to an unmanageable
(and unreadable!) size, Usenet users have developed a concept, apparently
alien to you, known as "Snipping". This is a powerful technique whereby the
parts of the message you are quoting which are no longer relevant to the
discussion are left out of the quote. This prevents unneccassary growth of
the messages, whilst still giving any text you add a context.
If the full text of any previous messages is required, then it is generally
accepted that the person requiring such data should either look in their
message history, or use one of the popular Usenet archive services, such as
Dejanews.
In fact, ignorance of the above is quite often enough to get you thrown off
your internet service provider, as their Acceptable Use Policy (AUP)
generally requires you learn how to use services before you dive in and
abuse them.
I cut bits from what I quote for the above reasons, and no other. Why would
I even try to selectively quote text when it is impossible to alter the
original text. Sure, I could cancel the post, but anyone who got it before
I cancelled it would know that I was lying, so why waste the time?
> Although some of the flamers on these lists are merely twits, you
> fit the category of flamer who tries to impress others and win friends
> by jumping on some other twit's flaming bandwagon."
I beg to differ, but I really, really think you have no grounds for that
statement.
> You may see yourself as a defender of the Vestal Virgins. However,
> some probably view you as a riled-up pimp whose girls have been
> insulted.
I have no girls. And I'm not a pimp.
> The various autism private lists, like the autism@maelstrom, used to
> keep junk yard dogs like yourself to snarl at and censor off of their
> lists anybody the listowner did not agree with,
Well, seeing as I refuse to censor anything* (even you!) they would
probably find me a somewhat useless yard dog.
*Anything does NOT include child porn, violence, etc.
> but now austism@maelstrom has a "Panel of censors" to do the job and you
> are left to irritate the readers of the open forums like
> alt.support.autism
I'm not irritating anyone (other than you), I hope...
Oh, by the way, if you are looking for examples of "sneaky", and
"underhanded", you could look at yourself - why did you move this post out
of it's original thread? Think I wouldnt see it here? Trying to make
yourself more visible? Why your ungrounded and ill reasearched attack on
Jacqui? not that one was simply below low.
Try looking in a mirror, but make sure it's an industrial grade one. You
might crack anything lesser.
Good day!
Child stalkers are actually rather rare in MUDS, which is surprising....
> Ian attacks people for the fun of it or because it is the "in" thing to
> do. Hope everybody knows it is you who is responsible for inciting
> another two dozen of his flames.
Hahahahahaahahahhaa... Sorry, but this has got silly now! you dont even
know me!
Ian Molton wrote in message <48abc5092...@staffs.ac.uk>...
>In article <73mq3p$r8e$2...@nntp1.u.washington.edu>,
> MH <mike...@u.washington.edu> wrote:
>
>> Nobody's reading your prissy little posts anyway. Grow up.
>
>You are :)
>
Ian Molton wrote in message <48abc562a...@staffs.ac.uk>...
>In article <73mq3t$r8e$5...@nntp1.u.washington.edu>,
> MH <mike...@u.washington.edu> wrote:
>> or join a private autism list dedicated to parental boo-hoo-hooing,
>> parental martyrdom, and parental incompetence.
>
>You fucking idiot, MH. Jacqui is about as far from an incompetant parent as
>you can get. I *KNOW* this, I've met her.
>
>Does the word "appologise" actually appear in your vocabulary, or are you
>too stupid to learn it?
>
><post not censored - I dont feel you deserve it>
>
Is a flap trap a special kind of mouse trap?
what does a flap look like, anyway? :-)
If anyone feels I am cutting relevant parts of any of MH's posts to which I
reply, then please feel free to use the *public* *service* dejanews, which
will be happy to supply you with full, unaltered copies of my original
posting to usenet. Dejanews is available from http://www.dejanews.com/
Ian Molton wrote in message <48ac3e1e7...@staffs.ac.uk>...
>In article <73pfmf$hmc$1...@nntp1.u.washington.edu>,
> MH <mike...@u.washington.edu> wrote:
>> I read your posts because they almost all contain my name AND I am
>> interested in flap-trap from a scientific point of view.
>
>Is a flap trap a special kind of mouse trap?
>
>what does a flap look like, anyway? :-)
>
Ok, so we've established what the trap is...
now, how do I recognise one of these flaps? what do they look like, and how
does one catch them by blowing air through ones lips?
hehehehe :-)
Ian Molton wrote in message <48ac9b2a8...@staffs.ac.uk>...
You are right on point with your comments on MH. He is a sadistic
exhibitionist who gets his jollies by being rude and attracting attention to
himself.
If that was all he accomplished we could just totally ignore him and hope that
he would fade away.
But the problem is...he offends new posters who are looking for help.
So, maybe we should generally ignore him except for posting an occasional
warning about wolves that can't even hide themselves in sheep's clothing.
Fargo
-----------== Posted via Deja News, The Discussion Network ==----------
http://www.dejanews.com/ Search, Read, Discuss, or Start Your Own
I've never seem Ian flame anyone..
MH it sounds to me like your a control freak, for example the put your
post at the top (which btw isn't good netiquette), telling people where
to post and attacking people who have different views to yourself..
You were most likely thrown off the mailing lists because you were
hurting people..
--
wASP
wASP wrote in message <8p3cdGAywXY2EwU$@ossett-mouldings.demon.co.uk>...
wynds...@zianet.com wrote in message <73s4uf$hfh$1...@nnrp1.dejanews.com>...
>Child stalkers are actually rather rare in MUDS, which is surprising....
Maybe since on a MUD it's hard to tell who's a kid... (especially the
MUDs with very standardised character settings)
--
Galig Dulin "The web was woven curiously,
nigh...@netcom.com The charm is broken utterly,
Draw near and fear not -- this is I,
The Lady of Shalott" (Alfred, Lord Tennyson, 1832)
Is twit your favourite word? or just one you use when you don't want to
admit your wrong? I notice you didn't answer my question so will assume
I was right.
And you think telling parents they have munchausands by proxy doesn't
harm some of them?.. just because you dont get hurt by things doesn't
mean someone else doesn't.. try using some empathy..
I don't want to control anyone, I didn't ask you to put your post at the
top.. It is hard to read posts backwards- which is why most people post
below and why its the accepted way.
I don't care if you don't read what I post.. actually I would prefer you
didn't..
Sorry to post to the newsgroup.. but as MH has stated many times he
doesn't read emails..
btw Anyone who doesn't want to recieve this thread- you could try
putting it in your kill file, if you have one..
--
wASP
I have a suggestion; why don't all of you take a break, and go read a long
book. I recommend Deborah Tannen's latest book, entitled "The Argument
Culture: Moving from Debate to Dialogue." There is a chapter in the book
about the contribution of the internet and e-mail to the polarization of our
society. Or pick up one of Tannen's previous books on interpersonal
communication. Effective communication is difficult even for those who don't
suffer from biologically based social deficits. I found Tannen's books helpful
in understanding differenct communication styles. (You don't have to read a
book, though, to know that name-calling is not a productive communication, in
any situation.)
Myzsterious
>So, maybe we should generally ignore him except for posting an occasional
>warning about wolves that can't even hide themselves in sheep's clothing.
perhaps write a form letter to post in response to everything he
posts, as well as sending off a pre-written complaint to
he...@cac.washington.edu everytime he posts. I've already sent one
complaint off to them and offered them all of his offensive posts back
into october, that should get things started.
========================
http://www.bigfoot.com/~jenwolf
========================
> In article <2creus-2711...@ts001d02.mer-nh.concentric.net>,
> Linda -2creus <2cr...@macol.net> wrote:
> > and playing Avera or different MUDS with his online buddies.
> > Just have to watch to make sure they aren't inappropriate friends like
> > child stalkers or something. That is scarey, since he's so trusting and
> > say's I'm always exaggerating. Maybe I am?
>
> Child stalkers are actually rather rare in MUDS, which is surprising....
That is good.
Linda
In article <19981130123620...@ng-cb1.aol.com>, Mzsterious
<mzste...@aol.com> writes
--
Sandra Wilkinson
--
Sandra Wilkinson
<< When people don't agree with you they pretend to be "hurt." It is one
of the oldest tricks in the book. Wise up, twit.
Fortunately the old message at the top was short, so I caught a glimpse
of your new message which you put at the bottom to control people to have to
scroll down looking for the new message. Some probably didn't see it and
simply went to the next post like I usually do. Nobody should have to go on
an Easter egg hunt to find the new posting hidden down somewhere at the
bottom, twit.
>>
There! I made you scroll down, MH. All because I wanted to control you!! We all
do that, we sit and conspire - let's make MH use his scroll bar to read the new
message. That oughtta ruin his day!
Are you crazy or what?!? If you can't figure out how to move the scroll bar
down you must have a SEVERE case of ADHD. And you spew out these "consumer
protection warning" posts to scare off the newcomers from the e-mail lists.
Telling them they have to watch out for censors who don't want them to think
for themselves!?! Who's trying to think for them, MH? Don't you think anyone
capable of independent thought in the first place can smell a scam and check
out other people's information for themselves?? And if they can't, there's no
advice you can give them that will protect them from con artists and phonies!!!
Is that too deep for you, MH?? I swear, St. John's University must have some
exorcising priests who have hexed you or zapped you with a brain-eating fungus,
right through the Internet! You pissed off everyone on the e-mail list and
you're STILL perseverating on it!! Trying to get even with Ray Kopp by ranting
over here, how long has it been, 18 months or something?? No one was listening
to you then, Mike, and no one is listening to you now. Even when you have good
advice to give (too bad you don't do it more often) half the readers don't
believe it because your bile has destroyed your credibility!! And the way you
pick on Ian - what do you do, sit in bed at night and dream this stuff up? If
you really cared about the message you're giving, you'd send it in a way that
people would want to listen. After the way you talk about the government and
schools not wanting to do anything to help disabled people including your own
son, I'd think you would have a teeny bit of respect for the folks here, who
have something in common with you and your son.
If you can't be halfway nice here, go piss up a rope.
Sandra Wilkinson wrote in message <8Fx8XAAl...@gwtech.demon.co.uk>...
Sandra Wilkinson wrote in message <3lE+PFAz...@gwtech.demon.co.uk>...
CWilson379 wrote in message <19981203132058...@ng103.aol.com>...
hehe - how about TRU(e) :)
--
Sandra Wilkinson
Dunno. cant remember, and the original has expired....