Autism Advocate Jae Davis Passes Away
Me
that autism advocate Jeanette "Jea" Davis
passed away at 2pm, October 8, 2003, from
complications related to cancer. Her husband,
Bill Davis, said that she passed away peacefully.
Jae has been a stalwart supporter of those with
autism for more than seven years. Her efforts
to advance services provided to children with
autism are most significantly noticed where she
lived in Lancaster County, Pennsylvania;
however, the scope of her work is well known
within the general autism society.
Jae leaves behind her husband Bill, her 14 year-
old daughter Jessica, and her 10 year-old son
with autism, Chris.
The Davis family has decided to hold a small
service for family members only. At an
appropriate time in the future the Davis’ will
hold a memorial reception for friends and
acquaintances.
Uninsured, the Davis family now faces overwhelming
expenses... medical and other.
Those interested in helping to offset those
expenses can do so via mail:
Bill Davis Family
146 Colonial Crest Drive
Lancaster, PA 17601
Or by PayPal via the "Make a Donation" link on Bill’s
web site:
http://www.AutismAdvocate.com
Bill expresses his appreciation for the overwhelming
warmth and spirit of support he and his family has
received from those who have been touched by
Jae’s struggle.
Kind Regards,
Joe Peifer
Robin May
news:om09ovs3k7omp0s5q...@4ax.com
> Uninsured, the Davis family now faces overwhelming
> expenses... medical and other.
Appalling.
--
message by Robin May, consumer of liquids
Hello. I'm one of those "roaring fascists of the left wing".
Hacker is to computer as boy racer is to Ford Escort.
Me
>> expenses... medical and other.
>
>Appalling.
It sure is appalling when a father (who works 50-60 hours a week as a
bartender... who often stays awake until 5am before his son with
autism falls asleep... and who provides a loving home for his teenage
daughter, disabled son and his dying wife) can't provide what some
consider a basic necessity of life... simple health insurance.
I'm sure that's what you were referring to when you replied,
"Appalling."
If not, please walk a mile in his shoes before you cast stones.
Robin May
>>> Uninsured, the Davis family now faces overwhelming
>>> expenses... medical and other.
>>
>>Appalling.
>
> It sure is appalling when a father (who works 50-60 hours a week as a
> bartender... who often stays awake until 5am before his son with
> autism falls asleep... and who provides a loving home for his teenage
> daughter, disabled son and his dying wife) can't provide what some
> consider a basic necessity of life... simple health insurance.
Actually, it's appalling that these basic necessities of life
were not taken care of by the government.
> I'm sure that's what you were referring to when you replied,
> "Appalling."
I was actually referring to the fact that because there weren't insured
they are now burdened with massive expenses, simply because they needed
medical treatment for a very serious illness. Such treatment should be
free to all and based on need rather than ability to pay.
> If not, please walk a mile in his shoes before you cast stones.
I don't really understand what stones I could be casting at him. Could
you please explain?
Me
>>>> expenses... medical and other.
>>>
>>>Appalling.
>
>
>I don't really understand what stones I could be casting at him. Could
>you please explain?
Written communication leaves soooo much open to interpretation. I
could not decipher from the one-word response "appalling" whether you
were saying...
"It's appalling that this deserving person must live his life without
the benefit of health insurance."
OR
"It's appalling that this man deliberately doesn't cover his family
with health insurance."
See the difference? The first example shows compassion, the second
shows the complete lack of it.
>I was actually referring to the fact that because there weren't insured
>they are now burdened with massive expenses, simply because they needed
>medical treatment for a very serious illness. Such treatment should be
>free to all and based on need rather than ability to pay.
Now that I've read your follow-up post I understand the context of
your original response. You and I are on the same page... Why can't
we provide affordable medical insurance to the masses?
Peace,
Joe
Mike Stanton
Like myself, Robin writes from the UK where, for all its manifold
faults, the National Health Service is free at the point of use to all
who need it. We find the lack of a comprehensive health service for all
citizens appalling.
--
Mike
Serving neither God nor Mammon
on the Lonely Planet
Terry Jones
For an autistic - "face to face" 'communication' is even more
confusing - you're expected to ignore the words which are actually
*said* in favour of a whole set of non verbal "signals" and modifiers,
and "everybody knows"-es, which can totally change or even reverse the
actual words. - Why can't humans say what they mean and mean what they
say?
Terry
Terry Jones
>faults, the National Health Service is free at the point of use to all
>who need it. We find the lack of a comprehensive health service for all
>citizens appalling.
Including in the UK unfortunately :(
Terry
Me
>
>say?
I suspect you're answer lies in the fact that communication hinges SO
greatly on non-verbal clues. This being the case, written
communication is a horrible method for conveying an emotion.
(Robin May... if you're reading this now... I completely understand
your position and respect you for it. Sorry that the whole
"appalling" thing has become a sticking-point, but I feel I need to
carry this through)
Robin May was expressing an emotion when she wrote, "Appalling". Now,
as a person who's reading this single word... without the benefit of
being able to talk directly the Robin May (who may or may not be a
person with autism)... how am I supposed to interpret the feelings,
motivations and thoughts behind the word? Should I consider her word
to positive or negative?
One (1) written word isn't adequate enough to express an entire
thought. So if a person is supposed to take words at their face-value
(as you suggest), and ignore all of the other 80% of communication
(the expression on the face, the intonation in the voice, the posture
of the body)... then by your definition a person with autism (at least
a high-functioning person with autism), above all others, should
understand the importance of conveying an idea in more than just a
single word.
Robin May has done a great job explaining her position. I now
understand what she meant when she wrote "appalling". With due
respect to Robin May..., had she expressed her entire thoughts from
the start we wouldn't be having this dialog right now.
---
NatureloverChris
>
>>>Written communication leaves soooo much open to interpretation.
>>
>>Why can't humans say what they mean and mean what they
>>say?
>
>
>I suspect you're answer lies in the fact that communication hinges SO
>greatly on non-verbal clues. This being the case, written
>communication is a horrible method for conveying an emotion.
not for me. verbally can't express emotion and my body cues are often
misleading
>
>(Robin May... if you're reading this now... I completely understand
>your position and respect you for it. Sorry that the whole
>"appalling" thing has become a sticking-point, but I feel I need to
>carry this through)
>
Robin is a he
>Robin May was expressing an emotion when she wrote, "Appalling". Now,
>as a person who's reading this single word... without the benefit of
>being able to talk directly the Robin May (who may or may not be a
>person with autism)... how am I supposed to interpret the feelings,
>motivations and thoughts behind the word? Should I consider her word
>to positive or negative?
>
>One (1) written word isn't adequate enough to express an entire
>thought. So if a person is supposed to take words at their face-value
>(as you suggest), and ignore all of the other 80% of communication
>(the expression on the face, the intonation in the voice, the posture
>of the body)... then by your definition a person with autism (at least
>a high-functioning person with autism), above all others, should
>understand the importance of conveying an idea in more than just a
>single word.
I agree one written word is probably not sufficient in most case to convey an
idea. That does not mean that ideas and emotions can not be better conveyed in
writing for some.
>
>Robin May has done a great job explaining her position. I now
>understand what she meant when she wrote "appalling". With due
>respect to Robin May..., had she expressed her entire thoughts from
>the start we wouldn't be having this dialog right now.
>
I don't think Terry was continuing the dialog about Robin's post. Terry was
expressing an idea he has many times before. The topic shifted a bit, it does
that here.
Chris <not feeling very verbal in spoken words or writing>
Robin May
>>>Written communication leaves soooo much open to interpretation.
>>
>>Why can't humans say what they mean and mean what they
>>say?
>
>
> I suspect you're answer lies in the fact that communication hinges
> SO greatly on non-verbal clues. This being the case, written
> communication is a horrible method for conveying an emotion.
I don't really think that written communication is a horrible method
for conveying an emotion. If that were true then books would be pretty
crap and there'd by no such thing as a love letter. My first reply in
this thread was quite unclear though, because I really didn't make it
very clear what I meant. I was going to say more, but I didn't want it
to seem as though I was taking advantage of the announcement of
someone's death to make a political statement.
> (Robin May... if you're reading this now... I completely
> understand your position and respect you for it. Sorry that the
> whole "appalling" thing has become a sticking-point, but I feel I
> need to carry this through)
At this point in your post I'm beginning to suspect you are one of the
people who on first seeing my name thinks that I'm a woman with one of
those double first names like Anne-Marie.
> Robin May was expressing an emotion when she wrote, "Appalling".
Yep, you do. I am in fact Robin E. May, and I'm male.
> Now, as a person who's reading this single word... without the
> benefit of being able to talk directly the Robin May (who may or
> may not be a person with autism)...
I'm autistic (diagnosed AS), but I don't quite see what that has to do
with the issue at hand.
I don't really think that Terry was talking about my post specifically,
but more about communication in general.
Ian Molton
Robin May <northc...@btopenworld.com> wrote:
>
> Yep, you do. I am in fact Robin E. May
I knew it! You are Robin Elizabeth May, and I claim my 5ukp ;-)
--
Spyros lair: http://www.mnementh.co.uk/ |||| Maintainer: arm26 linux
Do not meddle in the affairs of Dragons, for you are tasty and good with
ketchup.
Me
>for conveying an emotion. If that were true then books would be pretty
>crap and there'd by no such thing as a love letter.
Good point. I guess this time it's my fault for not being more clear.
>Yep, you do. I am in fact Robin E. May, and I'm male.
>
My sincere apologies.
---
Robin May
>>Yep, you do. I am in fact Robin E. May, and I'm male.
>>
>
> My sincere apologies.
It's alright, it happens a lot.
Terry Jones
>(as you suggest), and ignore all of the other 80% of communication
>(the expression on the face, the intonation in the voice, the posture
>of the body)... then by your definition a person with autism (at least
>a high-functioning person with autism), above all others, should
>understand the importance of conveying an idea in more than just a
>single word.
It's nothing to do with "supposed" - simply the practical problem that
a significant proportion of autistics have intrinsic impairments in
"reading" non verbal signals and / or "multi-tasking" ie. trying to
read signals *and* hear a speakers words at the same time.
What I was actually complaining about is the NT habit of saying
something in words, but modifying it with non verbals so as to have a
significantly different meaning or even to negate the verbal content.
Example "Sure, I'll help you with ... on Saturday" meant as a general
token of emotional good will, but by no means a real practical
intention to actually help you out on Saturday.
(This sort of topic drift is quite common here).
Anyway, given that this medium *doesn't* carry non verbal signals
apart from a few very basic "emoticons", it's probably good practice
to simply *ask* "do you mean X or Y" / "I don't understand what you
mean by ..." if someone's post is unclear, rather than straightaway
passing comment on some possible interpretation.
BTW "Robin" is a he - In the UK this is predominantly a male name (as
in "Robin Hood"). It is sometimes used for females, but usually in a
variant spelling.
Terry (also male :)
HGJ
> BTW "Robin" is a he - In the UK this is predominantly a male name (as
> in "Robin Hood"). It is sometimes used for females, but usually in a
> variant spelling.
>
> Terry (also male :)
In Sweden, 24,822 men and 212 women have the name Robin, 8 men and 106
women have the name Robyn, and 145 men and 26 women have the name
Terry.
HGJ
> > understand your position and respect you for it. Sorry that the
> > whole "appalling" thing has become a sticking-point, but I feel I
> > need to carry this through)
>
> At this point in your post I'm beginning to suspect you are one of the
> people who on first seeing my name thinks that I'm a woman with one of
> those double first names like Anne-Marie.
How did you suspect that already at this point? I didn't suspect
anything until I read the following sentence:
Gareeth
> I suspect you're answer lies in the fact that communication hinges SO
> greatly on non-verbal clues. This being the case, written
> communication is a horrible method for conveying an emotion.
>
Your missing it. For an autistic person face to face communication is
usually more appalling for the whole emotion thing. In writing we generally
expect people to be clearer about emotional stuff than they ever will face
to face. One of the things that maks something like this newsgroup good is
that to some degree it levels the playing field with no one able to make use
of the cues that autistic people generally suck at.
Gareeth
Robin May
news:5ba9b417.03101...@posting.google.com
Because he (I'm guessing that Me is male, because one of their posts is
signed Joe which is the usual male spelling) included my surname, which
is what a lot of people do when they think I'm a woman (they seem to
think that it's part of my first name). So instead of just calling me
Robin, which is what you'd normally do, he called me Robin May at every
point. For a while I had a signature that mentioned this:
http://groups.google.com/groups?selm=Xns9367581A570CChrisEubankisnotama
n%40130.133.1.4
The URL is on two lines unfortunately.
Terry Jones
>women have the name Robyn, and 145 men and 26 women have the name
>Terry.
In my case, Terry is just a short form for my formal name, whereas
AFIK in the case of women, Terry / Terri etc., seems to be their
actual official name.
Terry
HGJ
> svch...@yahoo.se (HGJ) wrote the following in:
> news:5ba9b417.03101...@posting.google.com
>
> > Robin May <northc...@btopenworld.com> wrote in message
> > news:<Xns94106FC9...@130.133.1.4>...
> >> Me <n...@spam.com> wrote the following in:
> >> news:ep8cov05du7255cjj...@4ax.com
> >> > (Robin May... if you're reading this now... I completely
> >> > understand your position and respect you for it. Sorry that
> >> > the whole "appalling" thing has become a sticking-point, but I
> >> > feel I need to carry this through)
> >>
> >> At this point in your post I'm beginning to suspect you are one
> >> of the people who on first seeing my name thinks that I'm a woman
> >> with one of those double first names like Anne-Marie.
> >
> > How did you suspect that already at this point? I didn't suspect
> > anything until I read the following sentence:
>
> Because he (I'm guessing that Me is male, because one of their posts is
> signed Joe which is the usual male spelling) included my surname, which
> is what a lot of people do when they think I'm a woman (they seem to
> think that it's part of my first name). So instead of just calling me
> Robin, which is what you'd normally do, he called me Robin May at every
> point. For a while I had a signature that mentioned this:
>
> http://groups.google.com/groups?selm=Xns9367581A570CChrisEubankisnotama
> n%40130.133.1.4
>
> The URL is on two lines unfortunately.
I remember that signature, but I didn't realize that the purpose of it
was to prevent people from believing you were a woman.
HGJ
Okay. The statistics I gave refer to official names.
Two men and ten women are called Terri in Sweden.
Robin May
> I remember that signature, but I didn't realize that the purpose
> of it was to prevent people from believing you were a woman.
It was more to cover the issue that people kept calling me Robin May in
posts where other people were just referred to by their first name.
sggaB the Slug
> Because he (I'm guessing that Me is male, because one of their posts is
> signed Joe which is the usual male spelling) included my surname, which
> is what a lot of people do when they think I'm a woman (they seem to
> think that it's part of my first name). So instead of just calling me
> Robin, which is what you'd normally do, he called me Robin May at every
> point. For a while I had a signature that mentioned this:
Interestingly, while thinking of you as male, I also think of you as
"Robin May". But then, other people are "Larry Arnold", "Jim Sinclair",
"Donna Williams", "Ian Molton", "Temple Grandin", etc, and it takes a bit
of mental effort to remember to leave off the surname.
--
sggaB
Autistic Spectrum Code, v1.0
AA! dpu s-:+ a-- c+(++) p(+) t--- f--- S--(++)@ p?@ e-(+)@ h- r--@ n--
i++ P m--(++)@ M