Fibrocytis
Carolyn Burton
new diagnoisis to add to the osteo, but don't know much about it. The
doc said that I'm developing a condition called fibrocytis, brought on
by lack of sleep. I'm not finding much on a search. Anyone know anything
about this? Does adequate rest take care of the problem?
Thanks,
Carolyn
RM Balan
<cj...@ix.netcom.com> wrote:
The >doc said that I'm developing a condition called fibrocytis,
brought on >by lack of sleep. I'm not finding much on a search. Anyone
know anything >about this? Does adequate rest take care of the
problem?
>Thanks,
>Carolyn
>
information available on this condition. As well, there is a support
group at alt.support.fibromyalgia.
When the doctors say that lack of rest exascerbates this condition
they do not mean quantity, they mean quality of sleep. You can sleep
for long periods of time, but if you are not getting sufficient sleep
in the deeper stages of the cycle, then you have a problem.
Doctors offten prescribe tricyclic antidepressants to treat
fibromyalgia because these allow for a more restful sleep. One
commonly prescribed antidepressant for this condition is amytriptylene
or elavil. But there are certainly others. I have recently read a
paper about the combination of prozac and elavil in low doses.
According to the study this combo was more effective than either drug
used alone.
Hth.
Rose
Jseyller1
I was just recently diagnosed with fibromyalgia (fibrositis) also. I know
exactly what you are going through. I was also diagnosed with OA years ago. If
you would like more info on Fibro let me know. I have tons. Also........someone
also mentioned alt.support.fibromyalgia This is a great newsgroup to be in
also.
JoLynn
-----------
"Find some good in everybody and perhaps
everybody will find some good in you."
http://www.tp.net/tp/users/tonym/jolynnFrame1Source1.htm
DeeTee
Fibrocytis is the old, old name for fibromyalgia. Your
doctor is dating himself. Anyway, I've had fibro many, many
years now. Sometimes it's worse than others depending on the
QUALITY of my sleep. You see, in fibromyalgia, you sleep, but
you don't go into the deep sleep needed to repair the minor
muscle tears that occur every day. After a couple of weeks of
this, you have pain...sometimes a little, sometimes a lot. I
am in a flare right now, which means I can't sleep, which
means I hurt a lot. There are several treatments, you'll just
have to try to see which works best for you. Unfortunately
for me, none of them have worked so far. That's why I am here
typing to you at 4:36 in the morning when most "right-minded"
people are in bed sleeping. Also, arthritis is starting to
manifest itself big time in my joints and I think that's got
something to do with my flare. (A flare is a flare-up of the
symptoms. You'll hear people use that term on this newsgroup.)
Anyway, you're in the right spot for support. Please let us
know what treatment you and your doctor decide on because I'm
always hoping that someone will think of something that will
help me.
DeeTee
Carolyn Burton wrote:
>
> Hi--I've been on the group off and on for a couple of years, now have a
> new diagnoisis to add to the osteo, but don't know much about it. The
Diane A.
I like your very succinct description of fibromyalgia. It kind of puts
so much of what I got from the internet into a simple perspective. But
it also makes me wonder about my dx a couple of months ago (from that
dope of a rheumy that I saw for my knuckles). She was convinced that I
have FMS, but I don't think so. I don't have those muscle aches, or the
severe fatigue (although sometimes....oh, a nap, please.....OK, nap in a
cup - coffee <g>). My problem is strictly joints, OA, bursitis,
tendentitis, HMS, but I did test positive for many of the trigger points.
I still don't feel like I have FMS. I love it when I can dismiss one of
the many dx's as not appropriate. Maybe just in denial, but so far so
good. :-) Although, the Serzone did wonders for my insomnia. Hmmmm....
maybe that was it..... If it was, it worked. Something that maybe you
should think about, Carolyn.
--
Di - Long Island, NY (AKA dab...@my-dejanews.com)
Replace "nospam" with "access1" before replying
RiverRat
> so much of what I got from the internet into a simple perspective. But
> it also makes me wonder about my dx a couple of months ago (from that
> dope of a rheumy that I saw for my knuckles). She was convinced that I
> have FMS, but I don't think so. I don't have those muscle aches, or the
> severe fatigue (although sometimes....oh, a nap, please.....OK, nap in a
> cup - coffee <g>). My problem is strictly joints, OA, bursitis,
> tendentitis, HMS, but I did test positive for many of the trigger points.
> I still don't feel like I have FMS. I love it when I can dismiss one of
> the many dx's as not appropriate. Maybe just in denial, but so far so
> good. :-) Although, the Serzone did wonders for my insomnia. Hmmmm....
> maybe that was it..... If it was, it worked. Something that maybe you
> should think about, Carolyn.
I can second this one. If you've caught it early enough to nip it in the
bud, that's great. I put up with FMS for years just getting worse and worse
before I finally got something done about it, because no one knew what the
h**l was going on. Now it's to the point where a combination of NSAIDS and
low-dose antidepressants help tremendously, but nothing makes it go
completely away. People take the OA in my knees seriously, I guess because
they know what it is. But it's nowhere near as bad as the FMS because along
with the pain there's the fatigue and the cognitive problems to deal with.
Actually as far as turning my life upside down, those things did a much more
thorough job than the pain ever did. I should think the cycle would be
easier to break early on, so I'd advise you to treat it aggressively now in
hopes of getting it under control *early.*
RiverRat
Carolyn Burton
for a year that I have fibromyalgia, but I keep telling her that I've read
about it and don't think that it applies to me. Yes, I have serious sleep
disturbances, but that's because of the pain due to oa in my back,
trochanteric bursistis, shoulder bursitis, oa in knees, etc. etc. etc. Looks
like this is one of those "what came first, the chicken or the egg?" deals.
Carolyn
Ifish2b
>for a year that I have fibromyalgia, but I keep telling her that I've read
>about it and don't think that it applies to me. Yes, I have serious sleep
>disturbances, but that's because of the pain due to oa in my back,
It is possible to have FMS secondary to your OA. The pain leads to lack of
sleep which leads to pain in more places, which leads to further lack of sleep.
My FMS definately increases when my RA gets worse.
Sarah L
"The problem with people who have no vices is that generally you can be
pretty sure they’re going to have some pretty annoying virtues."
Andrea Fuller
What have you tried that hasn't worked? My fibro-fog is bad, so I can't
remember.
Andrea
--
Andrea Fuller
MQSeries for MVS/ESA Development
IBM Hursley, England
DeeTee
has worked (for this week anyway 8->) is to stop taking naprosyn.
I am on feldene now, which is supposed to take several months to
make a difference. Stopping the naprosyn stopped the fluid retention
which was making my hands as stiff as boards. The RD said that some
people react that way after a while on it. I had been on naprosyn
for 11 years! Anyway, I doubt seriously if I could remember everything
we've tried, Andrea. However, thank you for asking.
DeeTee