SO my grandma that got RA in the 50's was just lucky??????
>So, I have tried many times to get you to
>listen,
No SHaron, you have tried to SELL us something.
>I am off to the beach
See ya!
Keep Smilin'
~krissy
Vist my web page at:
http://members.aol.com/KrissyJo/RA.html
"The most thoroughly wasted of all days is that
in which one has not laughed." Nicolas Chamfort
> Why doesn't anyone listen????????? The toxic additives in food , drinks
>and yes even medication is your major problem.
I kept a diary once for about a year writing down exactly what I ate, drank,
how much exercise I had managed, how much sleep I had had, what day of my
monthly cycle it was AND how I felt pain-wise. There was no link between my
pain and anything!
I'm glad you have found something that works for you - but it may not be right
for everybody.
Persistent isn't she? And yet, she won't post this wonderful information she
has to share with all of us here. Hmmmmm.....wonder why??
Bonnie
Never enter into a battle of wits with an unarmed opponent :o)
Christine
>>>The first rule of intergalactic travel:
>>>Never get a cat.
Lynmari
Sharon:
Have you ever wondered if you might be listened to if you listened to
others?
We are happy for you that you are in control of your RA.
Please let the rest of us be ignorant and control our own selves and
diseases as we choose. You have made your choice. Please allow the
rest of us to make our own choices.
Shanti
Susan
I too avoid the chemicalized foods and my pains have gone away, until I dine
with "friends" and give in to eating regular foods.
We just have to shut up about it, its a waste of time and energy to tell the
"hard core" pain lovers here!
Im happy for you, your happy for me, isnt that enough?
love
bob
> Why doesn't anyone listen????????? The toxic additives in food , drinks
>and yes even medication is your major problem. The chemicals to modify food
>starch is the same chemical other countries use to kill rodents, no wonder
>we are a country of killers.
>2/3 of the food in stores wasn't even invented til the 70's an since the
>disabilities have gone up 25-30%. So, I have tried many times to get you to
>listen, God gave me a miracle an I will share it with whoever WANTS to feel
>better, I am off to the beach after I mow an yes I have RA an have had
>since 1985, but I am in control not my disease.
>Sharon
>
>------------------- Headers --------------------
>
>P
Lynmari
"John_popovich" <john_p...@paralynx.com> wrote:"John_popovich"
Hey, I remember that one! Was on prodigy... sheesh, another good group killed
off. Like you say, ignoring is the best medicine.
Best regards,
LadyAndy2
Read my previous post as to improvement in my condition. Cleaning up my
diet was one of the things I have done to get relief and I appreciate the
encouragement and information I got from Bob about that.
To deny that attitude plays a part in pain management is not realistic.
There are many things people can learn to do in order to manage pain. Note
here I say "manage".
I am grateful there are some people on this list who encourage me to do
everything I can do to promote a healthier immune system.
I have been held up to ridicule by the "good" doctor who writes to this list
because I didn't just roll over and jeopardize my liver by taking
chemotherapy. I haven't had to use steroids and I pray to G-d I never have
to take them because I am all too aware of their horrible side affects. I
am off NSAIDS because when I used aspirin and then ibuprofen I ended up in
the hospital because of bleeding ulcers and had to get transfusions.
What I have done is to eliminate from my diet every food that is known to
contribute to inflammation. I also take many nutritional supplements--I
sell nothing and I didn't have to put my liver at risk with what I am doing.
My health has improved over the last month and I am feeling good. My most
recent flare affected one finger joint instead of both hands, wrists and
knees. This is exactly what my homeopathic physician predicted would
happen. I took some Orudus for it and was able to use my hands just fine
after I washed my dishes.
My tests show great improvement in that my sed rate is down and my
rheumatoid factor dropped from 349 to 237. My tests are done at Kaiser and
my Kaiser doctor is very impressed with my progress.
Had Bob AKA Drijer not posted to this list I might have waffled and gone a
different route because I was very frightened. Instead I made some drastic
changes in my lifestyle and I am thankful they have so far paid off.
Those of you who enjoy hating Bob are welcome to dwell in a negative mire
but the opinion you hold of him is NOT unanimous and frankly, I'd bet your
attitude doesn't make you feel good either.
I had a whole battery of lab work done and my liver and other organs are
working great because the things I am using to promote my health don't ruin
my organs.
Bob's condition has improved and so has mine. How are you doing?
Denise j.
That doesn't mean it will help everybody.
The problem with that person is his posts are inconsistant and often
meanspirited and accusatory. Perhaps you haven't been here long enough to see
him at his worst, but we have been, and we won't be fooled into thinking he's a
great guy after seeing him turn so many times.
I'm glad you got the good part... we choose to reject the messenger, but not
the message. Healthy eating is basic good sense for anybody, with or without a
disease.
Now please have the good sense to realize that not everybody will have your
good luck following this regime. We know not every treatment works for every
person, and that includes diet.
Best regards,
LadyAndy2
I didn't say that it would but then we can't be sure about that, maybe it
would. There are many scientific studies available on the internet
describing the side affects of chemotherapy as well as steroids.
<<The problem with that person is his posts are inconsistant and often
meanspirited and accusatory.>>
Not nearly as mean spirited and accusatory as the responses to his posts.
<<Perhaps you haven't been here long enough to see him at his worst, but we
have been, and we won't be fooled into thinking he's a great guy after
seeing him turn so many times.>>
I have seen many people on this list at what I hope is their worst, in fact
some of them have been rude and boorish towards me in private email.
<<I'm glad you got the good part... >>
Me too since I'm getting better--pretty good for a progressive disease.
<<we choose to reject the messenger, but not the message. >>
It doesn't seem emotionally healthy for people to take so much enjoyment
from trashing another person.
<<Healthy eating is basic good sense for anybody, with or without a
disease.>>
One could hardly know that from reading this list. Almost every post about
diet or nutritional supplementation as treatment for rheumatoid arthritis
gets piled on.
<<Now please have the good sense to realize that not everybody will have
your good luck following this regime. We know not every treatment works for
every person, and that includes diet.>>
I beg your pardon, I had good sense before I found this list. I am doing
far more than just changing my diet. I have learned a lot about nutritional
supplements, thanks, Cush. I was treated by a homeopathic doctor and have
gotten advice from a naturopath also.
I came to this list because it is a support list for people with arthritis.
I was not looking for sympathy for being sick. I am seeking solutions and
apparently some of them are helping my body heal.
I will continue to post my experience to this list. I am not here to fight
with anyone. I have no need to convince people to do what I'm doing. I
will merely report what is happening with me as it relates to rheumatoid
arthritis and the other arthritic problems I have.
Regards,
Denise J.
Ps. It is my new policy to report all private hate mail to the sender's
ISP.
Lynmari
"We are all in the gutter, but some of us are looking up at the stars."
Oscar Wilde
http://home.talkcity.com/spiritcir/lynmari
What bob and denise and sharon are saying to you is not attacking you or your
arthritis. Granted, they have said some things that they shouldn't have, but
that was said in retaliation to your attack.
Please, lets stop the attacks right now, both sides, and keep an open mind
about what is being said.
These people are not just saying to eat sensably, but to omit certain things
from your diet, adding supplements, changing everything, and not just for a few
weeks.
for those of you that say you have tried this, take an honest look at what you
have done and if you can say that during the time you tried this nutrition
approach you did not eat any form of sugar, canned foods, packaged foods, diet
foods, diary, and you did this for at least a year, then maybe this approach
doesn't work for you.
But then again, maybe Denise is right in that the drugs might be hindering the
healing process of changing your diet.
Rusty
I thanked God the day Bob said he was leaving. But I think he lied.
>To deny that attitude plays a part in pain management is not realistic.
Atittude is major part of pain management!
>
>I have been held up to ridicule by the "good" doctor who writes to this list
>because I didn't just roll over and jeopardize my liver by taking
>chemotherapy.
And I have been held to ridicule by your friend Bob for not choosing his way of
treatment.
>I
>am off NSAIDS because when I used aspirin and then ibuprofen I ended up in
>the hospital because of bleeding ulcers and had to get transfusions.
Me too.
>My health has improved over the last month and I am feeling good.
So has mine, and I am feeling good!
>My tests show great improvement in that my sed rate is down
My sed rate is not only down, but it is normal!
>Those of you who enjoy hating Bob are welcome to dwell in a negative mire
>but the opinion you hold of him is NOT unanimous and frankly, I'd bet your
>attitude doesn't make you feel good either.
>
>
After the things Bob has said to this group a negative mire is too good for
him! My attitude makes me feel great!
>I had a whole battery of lab work done and my liver and other organs are
>working great because the things I am using to promote my health don't ruin
>my organs.
>
Well, gosh. I take all those "organ ruining things" and I just had a bunch of
lab work two weeks ago. Ya know what? My levels are all perfect.
>
>Bob's condition has improved and so has mine. How are you doing?
>
Great, thanks for asking!
So, Denise, I am not sure how you can say that your treatment is better than
mine. They both work for us. Thats all that counts.
We can be sure diet doesn't work for everyone because I TRIED IT AND I
GOT WORSE!!!!!
I would never push my treatment on anyone or insist that 'my way' was
the 'right way'. Everyones body is different and reacts differently to
drugs, supplements and foods. If I ever find something that works for
me I will share the information and leave it at that.
At this point it appears your problem might be a LACK of drugs as in
tranquilzers so you can calm down and stop being so defensive. Enjoy
your good fortune.
Kitty
It is difficult to see how someone mentioning a television show that
addressed the emotional and psychological component of chronic illness and
pain as being a direct attack on anyone. Just because someone threatens an
idea you have doesn't mean they are are attacking you. The center of the
solar system is the sun and not any one person on this list.
As the venom and attacks spewed forth against Bob I was surprised he was as
polite as he was.
I write G-d out of respect for my G-d. It is not because of any lack of
respect for your version of G-d. It is none of your business what my
religious affiliation is. It is rude and boorish to attack other peoples
religious practices. I would be absolutely lost with out the love and
protection of a Power Greater than myself. This is not something I will
debate.
I will, however, pray for you and hope that your pain and hyper-sensitivity
will abate.
Regards,
Denise J.
>Just because someone threatens an
>idea you have doesn't mean they are are attacking you.
No, but saying that we are all addicted to pain killers was an attack. Saying I
sounded like a dirty whore was an attack. He has attacked us many times, maybe
you just didnt read those posts?
>As the venom and attacks spewed forth against Bob I was surprised he was as
>polite as he was.
He was just getting back what he spewed. (is that a respew?)
Keep Smilin'
~Krissy
No you didn't. I have read your posts. Giving up this food or that food
and taking this or that supplement for a month or two is not the same thing
I am doing. I am doing ALL of the following.
I got homeopathic treatment, eliminated all foods connected with
contributing to inflammation and I am taking glucosamine sulfate,
chondroitin sulfate, cat's claw, mullein, bromelain, evening primrose oil,
cod liver oil, gamma linolenic acid and mixed tocopherols, multi-vitamins,
calcium magnesium, multi-vitamins and minerals, iron complex and a number of
other supplements.
I have eliminated nightshade vegetables, coffee, soda pop, aspartame, citrus
fruits, meat, dairy, soy, wheat, saturated fats, all refined carbohydrates
including bread and pasta. I buy organic whenever available and eat raw
foods as much as possible.
I am willing to go to any lengths to promote my health. Of course what I am
doing may not work for you. It may be that once a person starts on the
chemotherapy or long-term anti-biotics they are trapped. The purpose of the
chemotherapy is to knock out the immune system in order to stop it from
attacking the host. I've also read up on long-term use of anti-biotics and
the studies weren't that encouraging to me. Besides that, my immune system
is nuts enough without adding to the problem.
I chose not to attack my immune system because it doesn't make sense to me.
Instead I have chosen to do everything I can to promote a healthy immune
system that had run riot and resulted in rheumatoid arthritis. My goal has
been to get my immune system calmed down in the hope that it will again work
as wonderfully as it did before.
It may well be that the destruction caused by drugs, such as MTX or
long-term use of antibiotics, may assault the body in ways that make it too
late to do what I am doing. MTX sure as heck causes a lot of damage
according to studies I read on the National Institute of Health site. I am
glad I have access to the internet so I could research the chemicals the
arthritis specialist recommended.
It is irresponsible to discourage people from taking steps to promote a
healthier immune system and to attack people like me who are getting
improvement by doing this.
My lab results confirm the improvement I am experiencing in alleviation of
pain and swelling.
Regards,
Denise
Apparently you DIDN'T read my posts. I tried the diet route BEFORE I
ever saw a doctor and BEFORE I ever took any drugs for it as well as
AFTER I started the drugs. I gave it a year and a half.
How interesting that you've been secretly living in my house to 'know'
what I have or have not done! I would like you to move out immediately!
It's amazing how you 'know' whether any of us are leading healthy lives
or not. You're making huge assumptions without any facts. Perhaps you
would be happier if you formed an "all natural' group.
No one else in this group espouses that their way is the only way or
that others are not doing everything they can to help themselves except
you and a few other diet zealots. They simply support each other
whatever their endeavors might be. Don't you find that interesting?
Personally I couldn't care less what crusade you're on but there are
people in this group who are very ill and in a lot of pain as well as
emotionally fragile at times. When you get on your soapbox it's like
kicking them when they are down.
We get the message - diet works for you. When others have questions
about that aspect, fine, fill them in on it. My request is STOP SHOVING
IT DOWN OUR THROATS!!! Frankly, your attitude would make me NOT want to
try it if I hadn't already.
Kitty
Christy
"Reality is for people who can't handle drugs."
First let me say that I am happy for you that what you are doing for
your health works but I worked in dietary of a local hospital for 7
years and I eat a well balanced nutritional diet and I am a lot worse
off than people I know that just eat junk.
Secondly, I sense a little sarcasm when you say the "good doctor" and I
am assuming you are talking about Dr. Susan. Let me tell you she is
better than the "good doctor" she is the greatest doctor. I was going
to wait to make this testimonial but after reading your post I feel the
need to do it now.
As I have told the group before I was only diagnosed with RA in May and
was referred to a very good Rheumatologist. After several visits with
blood tests and x-rays I was also diagnosed with FMS and osteoporosis.
My rheumatologist prescribed plaquenil, relafen, and pamelor.
Everytime my PCP (primary care provider) did blood tests on me for the
past 10 years he would always say that my liver enzymes were very high
and ask me if my gall bladder bothered me and I would remind him that it
was removed years ago. He said that since I had high cholesterol that I
probably had a fatty liver. Until I found this group I never questioned
my doctors and always took what they said as the gospel. When I read
the information on the meds I take now I noticed that the relafen is
toxic to the liver. I went to the liver support group on Saturday and I
posted a note directly to Dr. Susan and asked her should I bring it to
my Rheumatologist attention since I was scheduled to see him on
Thursday. I have had a lot of abdominal pain in the past month and I
was concerned. Dr. Susan sent me a lot of information which I wish I
could post to you but I don't know how with this web tv if I only had my
computer at work. Anyway she advised me to contact my rheumatologist
and let him know this information and told me some tests that maybe he
would want to do. I called my PCP on Monday morning and had them make
copies of all blood tests for the past 5 years and I called my
rheumatologist to see if he would like for me to bring them on Monday
for him to review before my appointment this Thursday. My
rheumatologist wanted me to bring him the information that afternoon.
When I went to my rheumatologist he was very impressed with everything
Dr. Susan said and he was upset that my PCP had not provided him with
this information. As of Monday I had blood work taken for hepatitis B
and hepatitis C and some vitamin D levels. I should learn the results
by Friday and if they are negative my rheumatologist wants me to see a
liver specialist because my enzyme levels are extremely high. He also
had me stop taking the relafin.
So when you say that Dr. Susan is not worried about our livers you are
dead wrong and she possibly has saved mine. I have also learned from my
rheumtologist that my liver may be part of the RA problem.
DR. Susan if you are lurking you are my hero!
Thank you for your post. I was wandering why GOD was not being spelled
out. I know that the only miracle with this disease I will receive will
come from GOD.
I am sending healing prayers your way.
Annette
That does it you definetly get the Arthritis Warrior of the Month Award.
Annette
Denise - I had a nice long post written in response to your 8/20, 12:51
am posting, but then I realized that you are no longer rational at this
point.
I don't know if you have a problem with depression, unresolved anger or
the dreaded disease Lackanookie, but I won't be debating you under this
subject heading anymore. It's only fun if you can keep up with me
without resorting to anger and absurdities. You can't.
Do I hear an amen out there -g- ?
Kitty
><<That doesn't mean it will help everybody.>>
>
>I didn't say that it would but then we can't be sure about that, maybe it
>would. There are many scientific studies available on the internet
>describing the side affects of chemotherapy as well as steroids.
I don't know, seems to me that I've read posts by people here who have
tried the diet, and it didn't work. One thing I can think that makes
it difficult to know if diet, or for that matter medication, is
working is the cyclical nature of the disease. It first hit me about 6
years ago then went away for almost 4 years. If I had changed diets
when it struck (or started MTX or some such) I would probably have
been convinced that that was the cause for the remission. I'm on MTX
right now, if I start to get better I still couldn't say that I'm 100%
sure that the MTX is the reason.
>
>I have seen many people on this list at what I hope is their worst, in fact
>some of them have been rude and boorish towards me in private email.
>
Tell us who they were and we'll cyber whack them. I for one don't care
for anyone that would attack someone in private e-mail. After all it
was when bob called Krissy a whore via e-mail, that I finally gave up
on him. Up until that point I had been trying my best to like him.
Unfortunately for him, people in cyber land have to live by their
post.
>
>
>Regards,
>
>Denise J.
>
>Ps. It is my new policy to report all private hate mail to the sender's
>ISP.
>
>
Regards,
Steve
http://www.zoomnet.net/~steve
Regards,Dave.
In so far as being on a soap box goes I would say the soap boxes on this
list are dominated by the people who are pushing the use of MTX and
paquinal. Never does anyone rush to post to the list that those drugs
didn't work for them though they have little benefit when weighed against
the side affects they produce.
I am making improvement using alternatives to the drugs that would harm my
liver and you and a couple others get all in a hissy fit over my progress.
I would suggest you examine your own motives for being so defensive.
Perhaps it is because you may know, at a deep level, that YOU have made the
wrong decision? I would further suggest that some of the drugs encouraged
on this list, steroids, ultrum, marijuana, and opiates have as side effects,
for many people, the inability to tell the true from the false as well as
extreme mood swings.
I'm getting better. I got great numbers on liver function tests and I'm not
taking any mind altering drugs.
Why are you so threatened by my improved health? Do you own stock in the
pharmaceutical companies?
You try to speak as an authority and insist everyone fall into line behind
allopathic medicine. I am not impressed by your anger or your determination
to dominate this list. I've never considered being able to write rude
letters to be a character asset and do not applaud your ability to do so.
I came here looking for solutions. I have no stake at all in what course of
treatment you use.
In fact, many of the main-stream drugs used for RA will so damage the human
body that the option of emulating what I am doing will be lost.
I am doing what works for me and it doesn't have to work for you or anyone
else. It is working for me and you and a few others just seem madder than
hell that my choices are having a better outcome than the choices you have
made.
And in so far as my attitude goes, Kitty, yours, is nothing I'd be proud of.
I haven't shoved any of my ideas down your throat or any one else's throat.
I have merely posted my choices and the progress I am making. You are not
the center of my universe. I have just as much right to post in this venue
as anyone else and I will continue to do so whether you like it or not.
So back down, sweetie, you are taking yourself way too seriously.
<<How interesting that you've been secretly living in my house to 'know'
what I have or have not done! >>
ROTFL, yup, you're right, I just have to go by what you post, but judging
from what I've read, I'm grateful not to be there. It must be hell.
Regards,
Denise
Sorry, Lynmari... but to some people it is blasphemous to use the name. You
should respect that. Has nothing whatsoever to do with arthritis or diet
though.
I agree about some of the tone of the posts regarding diet in this newsgroup,
but we are all individuals looking for what works and I am open to hearing
about things that help people.
We have a poster on the psoriasis newsgroup named Terry who has been posting of
his success in using diet to treat psoriasis for a long time now. Somehow even
though he sometimes sounds like a broken record, he doesn't antagonize people
the way some do here. Same for Lisanorth on that group... wish tempers would
just cool off a little and people would decide to live and let live. <sigh>
Best regards,
LadyAndy2
In some religions, it is blasphemous to spell out or say openly the name. It
is considered too holy for common speech.
I know you didn't mean it that way, and I personally am not religious, but I
know that orthodox Jews believe this, and perhaps others as well (I don't
know). A little respect goes a long way...
Best regards,
LadyAndy2
Christine
>>>The first rule of intergalactic travel:
>>>Never get a cat.
ROFL! Or at least first cousins!!!!!!
Keep Smilin'
~krissy
Livid101 wrote:
> I think Denise and Bob are the same person.
>
ROFL!! Stop making me spit on my monitor!!!!!
>Do I hear an amen out there
AMEN!
Well, Lynmari, I agree you can refer to G-d however you choose. I do object
to you attacking me for how I refer to
G-d. Please be assured that the manner in which I refer to G-d is not with
the intention of offending you or anyone else; it is simply the way I show
respect for G-d. Now let it drop, please.
In so far as you bullying me --in your dreams. You have my best wishes and
prayers, dear, but not my obedience.
<<By the way, if you disagree so vehemently with this board, why continue
to read it and post here? I am sure there are other
places more ameniable to your point of view. And if the reason you do
post here is to change peoples minds, then you ARE on a soap box.>>
Lynmari
Not really. Read and compare. My diet is much more strict than his and I
also use Homeopathy.
Denise,
As someone who loves food, I gotta ask, do you enjoy your diet????
I eat what I like within reason. I dont eat what I know will cause me major
problems.....well sometimes I do, then I just live with the consenquences. It's
worth it on occasion.
If I ate what you ate, I would be a very unhappy person. And if I aint happy,
aint nobody gonna be happy!!!!!
I learned the hard way a few years ago, that life is too damn short and can end
too damn early. I may get hit by a truck getting my paper in the morning, but I
will die with a smile knowing the last morsel of food that hit my lips was a
peice of choclate peanut butter cheesecake!!!!!!
Keep Smilin'
~Krissy
Denise J.
<snip>
>but I
>will die with a smile knowing the last morsel of food that hit my lips was a
>peice of choclate peanut butter cheesecake!!!!!!
Yaaaaahh Krissy. My sentiments exactly. lol
Barb
><<How can you support a man who attacks others?>>
>
>It is difficult to see how someone mentioning a television show that
>addressed the emotional and psychological component of chronic illness and
>pain as being a direct attack on anyone. Just because someone threatens an
>idea you have doesn't mean they are are attacking you. The center of the
>solar system is the sun and not any one person on this list.
I take MTX. He said anyone taking prescription drugs is a drug addict.
How is that NOT an insult. I didn't insult him because he uses a diet
to do the same thing I'm doing. He chose to use the inflammatory words
not us. Also he called KJ a whore. How is that NOT an attack? I don't
recall her attacking him before that. He was the one who chose the
negative path and I truly feel for him for that.
Steve
Usually this meant the personal name of God, not the reference. In the case
of Judaism it was Jehovah, or more closer was, Yahweh. (There are other
variations though)
He was refered to as JHWH in ancient Jewish writings. The scribes when they
came to His name would stop, wash and then write the name. EVERYTIME they
came to the name!!!! Oooooooh talk about getting shower wrinkles!
However, when I first saw some people writing "G-D", I thought it was
Blasphemous, thinking it was refering to God D-md. Ooops was I wrong...
;-) Glad I stay silent on that! :-D
OK History lesson over, lets get back to our pain!
Rick
PS. Tomatos make me flair big time!
Shandi
It is very natural for someone who has found an effective remedy to want
to tell everyone else about it. With magnets, it's called selling. In
religion, it is called preaching. I note the number of references to
God on this newsgroup. Curiously, I don't see any complaints about that.
--
Dr G Chiu
http://www.geocities.com/HotSprings/Villa/7472
Shandi,
Thanks for such a succinct summary of the 39 (?!) posts of this thread.
>As a youngin in this group I think you adults need to chills out and accept
others beliefs and therapies. YEESH.
Please let me know when *that* happens, Shandi! Double YEESH!
Denise
:>Denise J.
:>
:>Ps. It is my new policy to report all private hate mail to the sender's
This is from someone who ignored my request NOT to email me, however, I am sure that she has NOT
been eating organic carrots recently,<BG> the reason I say this, is that she was unable to "see" the
word NOT, which was the bit you found dificulty with, the N or the T, I returned her unsolicited
mailing to her and have kept a copy of them on file for future referral if she does insist on
contaminating my screen, in the future.
I beleive she signed off with something like ,
Good Health,
returned a thousand fold Denise J.
ConnieD.
:>ISP.
:>
:>
:
:Regards,
:Steve
:http://www.zoomnet.net/~steve
But if someone were to come in (as they did in another group I participate in,
alt.support.skin-diseases.psoriasis) with a post stating blatantly that Jesus
heals arthritis and going on for paragraphs about this weird theory and how our
sins cause our disease, you'd better believe there would be complaints!
Best regards,
LadyAndy2
Addiction is only a problem when it becomes detrimental to your life. I
for one am addicted to air, water and baseball (in reverse order of
importance), and I like it.
Sean
>
> Steve
>
> http://www.zoomnet.net/~steve
>
>
Trying to tell a poster what worked for her (referring
to Denise) is one thing, doc. That's fine. I'm glad
her vegetarian approach seemed to work for her.
But for her to sit back and CONDESCENDINGLY state those
who treat their arthritis via other methods are wrong, I,
as I am sure others do, vehemently RESENT.
And no matter how much she tries to deny it, she *IS*
on a soap box.
I wasn't referring to the fall out. Bob posted about a television show he
saw where the doctor speaking suggested other doctors ask their patients
what benefits they get from their arthritis. Many people took this as a
direct attack against them in particular and acted accordingly. At the
latter part of the mutual attacks none of them looked good to me.
Had others not reacted so defensively in the first place there would have
been a much different outcome. However the strident little group responded
like a pack of dogs each urging the others on. It was a pitiful sight to
observe.
However, the original point that doctor on the television show was making in
regard to the emotional benefits of being a victim are valid. It was not to
say that the pain was not real but rather to look at the whole picture.
I am far more than just my arthritis. I have in addition to a physical an
emotional and spiritual being as well and allopathic medical delivery
generally over looks that.
This list is available to all people and not the private domain of a few
strident voices. Though I'd like to point out that the people complaining
about their pain and attacking anyone using alternatives to allopathic
medicine are generally very sick people, as they are so quick to point out.
When someone posts about the degree of their pain on this list there are
always two or three people who immediately post how their pain is so much
worse than that of the original poster's.
Then this same group jumps forward and volunteers to the rest of us that
they are arthritis warriors and all sorts of rude behavior is endorsed. I
will not involve myself further with them for several reasons.
1. Name calling is childish and not conducive to good mental health.
2. If one can judge from their posts, the people in the strident group are
doing things that are not solving their difficulties.
3. I came here seeking solutions not to co-miserate about pain.
4. It is impossible to have an authentic conversation with people who are
under the influence of some mood altering substance.
5. I am able to validate myself and do not need the approval of a small
group of people whom I do not know or have much in common with.
6. I have a life.
I am getting relief by methods which do not threaten my liver, make me throw
up, lose my hair, get Cushing's Syndrome or the host of other horrible side
effects which have been mentioned on this list and are posted in studies at
the National Institute of Health site.
I have been able to transition off indocin and omeprazole to natural
anti-inflammatories. I do not need prescription pain medications now.
I will continue to do what works for me, whatever that may be.
Regards,
Denise J
On Wed, 19 Aug 1998 18:51:52 GMT, "Denise" <den...@teleport.com>
wrote:
><<How can you support a man who attacks others?>>
>
>It is difficult to see how someone mentioning a television show that
>addressed the emotional and psychological component of chronic illness and
>pain as being a direct attack on anyone. Just because someone threatens an
>idea you have doesn't mean they are are attacking you. The center of the
>solar system is the sun and not any one person on this list.
I take MTX. He said anyone taking prescription drugs is a drug addict.
How is that NOT an insult. I didn't insult him because he uses a diet
to do the same thing I'm doing. He chose to use the inflammatory words
not us. Also he called KJ a whore. How is that NOT an attack? I don't
recall her attacking him before that. He was the one who chose the
negative path and I truly feel for him for that.
Steve
Denise J
:o)
I did my research, so as not to be rude and boorish, or ill-mannered.
For some religions it is considered blasphemous for they themselves to
speak the name of God.
Regardless, I am truly sorry for offending anyone in that matter due to
religious preference. It was certainly not intended that way.
However, if you continue to read my posts you will see reference to
God. If it
offends you, you have been forewarned.
Please accept my apology for an unintentional, ignorant comment.
Lynmari
Tell that to your buddy Bob.
>2. If one can judge from their posts, the people in the strident group are
>doing things that are not solving their difficulties.
>
>
Many of us are much better than we were pre-drugs. And are doing what *we*
think is right as far as our disease goes.
>3. I came here seeking solutions not to co-miserate about pain
See the SUPPORT in the name?? Support often means co-miserateing. We are here
to find SUPPORT from people who know how we feel. Not to be told that we are
killing our organs.......blah blah blah.
>4. It is impossible to have an authentic conversation with people who are
>under the influence of some mood altering substance.
That Denise, was a low blow! And you have the nerve to say we put you down.
>5. I am able to validate myself and do not need the approval of a small
>group of people whom I do not know or have much in common with.
>
>
Peachy fine with me. Validate all you want, just dont tell me my choice is
wrong. I have not told you that your choice is wrong. Whatever works.
>6. I have a life.
Judging from the number of posts from you lately, I am beginning to wonder!
>I am getting relief by methods which do not threaten my liver, make me throw
>up, lose my hair, get Cushing's Syndrome or the host of other horrible side
>effects which have been mentioned on this list and are posted in studies at
>the National Institute of Health site.
>
>
And I am perfectly happy with my choice to live with the side effects of the
drugs I choose.
I watched my grandmother die a horrible death of RA. Yes RA can be fatal. So
can the drugs. I made a choice. She did not have access to all the treatment
options I have. DONT tell me my choice is wrong. You have not been thru what I
have. You do not know what will or wont work for me. I made my choice, you made
yours.
>I will continue to do what works for me, whatever that may be.
>
>
And I will continue to do what works best for me.
I do not have a problem with your sharing what works for you. We each make our
decisions on our own research and what we feel is right for us. Where I do
have a problem is when you don't get off that soap box and start running down
the other people in this group and the choices we have made.
Barb (who is proud to call her herself....)
Arthritis Warrior
because to me that means I am fighting this disease and not letting it control
me or my life
Ummm, Krissy, you got a recipe for that? Those are my three favorite sweets:
chocolate, peanut butter and cheesecake!!! All 3 combined in one, I have died
and gone to heaven!!!
Bonnie
Never enter into a battle of wits with an unarmed opponent :o)
>>In so far as being on a soap box goes I
>>would say the soap boxes on this list are
>>dominated by the people who are pushing
>>the use of MTX and paquinal. Never does
>>anyone rush to post to the list that those
>>drugs didn't work for them though they
>>have little benefit when weighed against
>>the side affects they produce.
>>I am making improvement using
>>alternatives to the drugs that would harm
>>my liver and you and a couple others get
>>all in a hissy fit over my progress.
>>I would suggest you examine your own
>>motives for being so defensive. Perhaps it
>>is because you may know, at a deep level,
>>that YOU have made the wrong decision?
>>I would further suggest that some of the
>>drugs encouraged on this list, steroids,
>>ultrum, marijuana, and opiates have as
>>side effects, for many people, the inability
>>to tell the true from the false as well as
>>extreme mood swings.
Denise
How nice that what your doing is woring for you. I do apreciate you
sharing that information with us. Now as for ayone pushing MTX down
anybodies throat-I've not seen that in here. I personally have taken 20
mgs of MTX a week by injection and have yet to have a liver function
test show up bad. I've also taken 5 mgs of predisone a day for 7 years
and bone density scans show almost normal bones for a 50 year old. I do
take vitamines and minerals and a few other things. I haven't had to
take over 5 naprosyn this whole year and 8 years ago i was eating them
like candy......Now would I suggest to you or anyone else this is what
they should do? I think not. What got me at my point would surely not
work for everyone. After all, we are not all the same. As for as love
hisself bob goes. He ruined himself when he e-mailed Krissy Jo and
talked to her in the manner he did. I don't feel sorry for him nor do I
like him and I could care less what he thinks of me. Hope your having a
good day.
~~~Kenny~~~
Lynmari
"We are all in the gutter, but some of us are looking up at the stars."
Oscar Wilde
http://home.talkcity.com/spiritcir/lynmari
Yep. Denise's tone sure sounds CONDESCENDING to me.
This is America in the 90s, calling someone a drug addict is a pretty
big insult.
>I think Denise and Bob are the same person.
>
>
>Christine
>>>>The first rule of intergalactic travel:
>>>>Never get a cat.
OUCH ! what a mean thing to say! Seriously comparing someone to bob is
a pretty mean thing to do.
>By the way, if you disagree so vehemently with this board, why continue
>to read it and post here? I am sure there are other
>places more ameniable to your point of view. And if the reason you do
>post here is to change peoples minds, then you ARE on a soap box.
>
>Lynmari
>
>"We are all in the gutter, but some of us are looking up at the stars."
>Oscar Wilde
>http://home.talkcity.com/spiritcir/lynmari
Hi, Lynmari,
I may not agree with Denise, but I have to say that she has as much
right to be heard as any of us. I would hate to see anyone run off
ASA. I think we're bigger than that.
Steve
I eat organic vegetables, exercise, don't smoke, don't drink, don't eat tomatoes,
peppers due to another condition I have and rarely drink coffee or tea due to the
same condition. I researched my choices very well and have NEVER suggested anyone
should do the same as I. It works for me - everything else so far did not. We are
all individuals.
I am not criticising you - what you are doing is working for you. I am glad - the
last thing I would wish on anyone is this disease. However, yes I am taking a mood
taking disease. Being under control changes my mood - to happiness.
Kelly who is also fighting this disease in the best way I can and not letting it
control me or my life. (What a powerful statement Barb)
No recipe! My parents got it when they went out to dinner. Saw it on the
menu...and knowing my three loves.......they brought it home for me.
Ahhhhhhhh.......gotta love em! It was marvy!!!!!
Keep Smilin'
~krissy
ROFL! I have that effect on some men! <beg> But I am afraid I dont have the
recipe......sorry Myron!!!!
Keep Smilin'
~Krissy
I get so much unsolicited e-mail ( mostly requests for information/help
regarding arthritis ), that I probably wouldn't notice.
I *do* have this great freeware program which scans my pop3 mailbox and
deletes spam *before* I download it.
Well part is clear, I was just trying to explain why she is there.
Nocki
DCCDGriggs wrote:
> From my point of view, and I've been reading all the posts for quite some time
> and only recently deciding to post some things right now, have found that the
> only ones that are attacking is the ones who don't want to hear anything about
> diet.
>
> What bob and denise and sharon are saying to you is not attacking you or your
> arthritis. Granted, they have said some things that they shouldn't have, but
> that was said in retaliation to your attack.
>
> Please, lets stop the attacks right now, both sides, and keep an open mind
> about what is being said.
>
> These people are not just saying to eat sensably, but to omit certain things
> from your diet, adding supplements, changing everything, and not just for a few
> weeks.
>
> for those of you that say you have tried this, take an honest look at what you
> have done and if you can say that during the time you tried this nutrition
> approach you did not eat any form of sugar, canned foods, packaged foods, diet
> foods, diary, and you did this for at least a year, then maybe this approach
> doesn't work for you.
>
> But then again, maybe Denise is right in that the drugs might be hindering the
> healing process of changing your diet.
>
> Rusty
--
We thought that we had the answers; it was the questions we had lost. -U2
I know I am a little corky today.
To Denise: What a live you have...sure sounds complicated and absolutely
boring...but what ever tickles your fancy......
Nocki
Denise wrote:
> <<We can be sure diet doesn't work for everyone because I TRIED IT AND I
> GOT WORSE!!!!!>>
>
> No you didn't. I have read your posts. Giving up this food or that food
> and taking this or that supplement for a month or two is not the same thing
> I am doing. I am doing ALL of the following.
>
> I got homeopathic treatment, eliminated all foods connected with
> contributing to inflammation and I am taking glucosamine sulfate,
> chondroitin sulfate, cat's claw, mullein, bromelain, evening primrose oil,
> cod liver oil, gamma linolenic acid and mixed tocopherols, multi-vitamins,
> calcium magnesium, multi-vitamins and minerals, iron complex and a number of
> other supplements.
>
> I have eliminated nightshade vegetables, coffee, soda pop, aspartame, citrus
> fruits, meat, dairy, soy, wheat, saturated fats, all refined carbohydrates
> including bread and pasta. I buy organic whenever available and eat raw
> foods as much as possible.
>
> I am willing to go to any lengths to promote my health. Of course what I am
> doing may not work for you. It may be that once a person starts on the
> chemotherapy or long-term anti-biotics they are trapped. The purpose of the
> chemotherapy is to knock out the immune system in order to stop it from
> attacking the host. I've also read up on long-term use of anti-biotics and
> the studies weren't that encouraging to me. Besides that, my immune system
> is nuts enough without adding to the problem.
>
> I chose not to attack my immune system because it doesn't make sense to me.
> Instead I have chosen to do everything I can to promote a healthy immune
> system that had run riot and resulted in rheumatoid arthritis. My goal has
> been to get my immune system calmed down in the hope that it will again work
> as wonderfully as it did before.
>
> It may well be that the destruction caused by drugs, such as MTX or
> long-term use of antibiotics, may assault the body in ways that make it too
> late to do what I am doing. MTX sure as heck causes a lot of damage
> according to studies I read on the National Institute of Health site. I am
> glad I have access to the internet so I could research the chemicals the
> arthritis specialist recommended.
>
> It is irresponsible to discourage people from taking steps to promote a
> healthier immune system and to attack people like me who are getting
> improvement by doing this.
>
> My lab results confirm the improvement I am experiencing in alleviation of
> pain and swelling.
>
> Regards,
>
> Denise
Nocki
Lynda Gottschalk wrote:
> I agree with all that you said...except(isn't there always an except?)
> my use of God.I have never heard that using the term God was
> blasphemous. I am sorry, but if that offends some I will continue to
> offend in that manner, because I refer to God often. He is the source of
> all my inspiration and in that I cannot be silenced. I agree tho, it is
> not a subject to be discussed here.I do not get offended when someone
> REFERS
> to Buddha, etc. and I expect others to understand that a simple
> referral to God is
> not intended to persuade or be offensive in any manner.
>
> Lynmari
>
> "We are all in the gutter, but some of us are looking up at the stars."
> Oscar Wilde
> http://home.talkcity.com/spiritcir/lynmari
--
I have been reading this thread just recently and I find something extremely
ODD. A LOT of people seem so unwilling to give up their favorite foods. I
cannot believe that if it meant tremendous help in pain relief that you
wouldn't do it. I actually find it very sad. I take all the RA staples, MTX,
Plaquenil etc but when I had cut out tomatos in my diet it helped greatly but
not totally. I always thought those who had it bad enough would try anything
to just decrease the effects. I know its not a cure all, nothing is, but why
not help yourself if you can? To me if you know your having a problem with a
certain food be it your favorite or not you are really harming your body. You
would be in essense killing yourself and keeping yourself in greater pain. I
would assume live on brown rice and fish than to be in pain.
Sorry, just had to rant a little bit...
Shandi
Hey, Shandi;
I'm glad cutting out tomatoes helped you, and we should probably all try it, as they seem to be a
fairly common trigger. But, as usual, it doesn't work for everyone. If fresh tomatoes made me
flare, I'd be comatose by now...
Leslie
Steve, I will agree that Denise has a right to be heard.
I'd hate to see her "run off" as well. Many of us are
glad that her diet seemed to work for HER. But the prob-
lem started with her APPROACH.
What the posters of this newsgroup were resenting was her
condescending insinuation that her method of treatment
was the only valid one. Now although I can't speak for
the others, I take that as a slap in the face. And I don't
even have RA. (I suffer from OA.) At least lately, I
remember seeing one of her post where she has somewhat
modified her statements, saying she was/is trying to inform
people what worked for HER.
Shandster wrote:
> For all the FELLOW druggies out there :)...
>
> I have been reading this thread just recently and I find something extremely
> ODD. A LOT of people seem so unwilling to give up their favorite foods. I
> cannot believe that if it meant tremendous help in pain relief that you
> wouldn't do it. I actually find it very sad. I would assume live on brown
> rice and fish than to be in pain.
>
> Sorry, just had to rant a little bit...
>
> Shandi
Good Point Shandi...........I for one would have no problem with brown rice and
fish :) like them both! I think the sticker is HOW do we know WHAT is
affecting us and WHEN. Very few meds even give instant relief.....except for
the temporay pain meds. It is usually 6 weeks or 6 months to see any improvement
in our condition. I have just finished 30 days of GS/C. (Cush finally made me
curious). Now I need to decide whether to try some more......can't see as it has
done a thing so far. Now if I had to give up say, potatoes or red meat for a
month and could not tell for sure if it had made a difference......
Kay
Keep Smilin'
~krissy
yes, but some of us *do* try and find that foods have no effect on our RA. why
cut things out if they don't make you flare? i have indeed tried elimination
diet, keeping a journal, etc., but my RA has no correllation to my diet (my IBS
is another story). i can eat tomatoes till the cows come home, and my joints
aren't any more swollen than they were before.
my RA is influenced by weather (low pressure systems), exercise (too much, too
little) and stress. oh, and not taking my meds. can't do much about the
weather, trying to find the balance with the exercise, doing my best about the
stress, and taking my meds faithfully. if anything i eat is worsening my RA,
it's so minute a change it's like a raindrop in the ocean.
but, as always, that's just me. i have severe, aggressive RA. YMMV :)
Shelley