Pain Study
Penpoint
participated in a study on amputee pain (including phantom) at the
Pain Center of the Rehabilitation Institute of Chicago. They did a
physical exam of both my stump and my good leg, then a series of tests
on both limbs' sensitivity to hot and cold and to very mild electrical
currents. This was followed by some kind of photograph that showed
heat patterns in both limbs. Of course there were also many
questionnaires to fill out on lifestyle, degree of pain, occurrence,
and such. I don't know what they gathered from me, but perhaps it
will be useful in some way.
I do have what I think is a moderate amount of phantom pain in the
form of a burning sensation in the smaller toes and along the outside
of my foot. This comes and goes to some degree every day and happens
when I am seated. To relieve it, I stand and walk around a bit if
possible. The worst is when I go to bed at night and am trying to
fall asleep; if I can't get my mind off the pain, I end up tossing
about for some time. It is totally unpredictable--had no pain the
last two nights, for example. But what about tonight? Bellatrix is
right--sometimes you just have to get your mind on something else.
Relaxtion exercises can work--but it may be that in concentrating on
the exercise, I'm actually ignoring the phantom pain.
--Penpoint
Glenn Woodell
says...
>
>Bellatrix is
>right--sometimes you just have to get your mind on something else.
>Relaxtion exercises can work--but it may be that in concentrating on
>the exercise, I'm actually ignoring the phantom pain.
This is very true to a large extent, especially with us who have the moderate
pains. I'm only defending those with severe pain because I can imagine that it
might be very difficult to get your mind off of it.
Glenn
Jack
I'm not promoting this, but I've heard of people with severe pain using
POT (weed, refer, maryjane) to help combat the night-time pains.
jack
Glenn Woodell
>
>I'm not promoting this, but I've heard of people with severe pain using
>POT (weed, refer, maryjane) to help combat the night-time pains.
Along with a bunch of others. No comments on the legality of the particular
drugs but almost any drug the numbs the senses to relieve pain will also numb
the mind. I'd have to be hurting pretty bad to use them although I know some
do hurt pretty bad. I've just seen a lot of cases of mild pain being used to
justify the use of certain chemicals.
Glenn
Bellatrix
>I'm not promoting this, but I've heard of people with severe pain using
>POT (weed, refer, maryjane) to help combat the night-time pains.
Booze does wonders for phantom pains except when it wears off the next
morning hehe. And hash is very good for it too but just like booze -
it's gotta wear off unless you're crazy enough to want to be drunk or
stoned all the time so I guess booze and other drugs is definitely not
advised if trying to alleviate those pains.
Tell ya something though, all that talk of phantom pains really gave
me some pretty intense pains the other night. It really does seem that
the more you think about 'em, the more you feel 'em. Or maybe it was
my 'punishment' for being a bit harsh about that guys treatments
methods lol.
I see he still hasn't responded to any of the points I made though -
kinda makes you wonder doesn't it?
b
Glenn Woodell
>
>Tell ya something though, all that talk of phantom pains really gave
>me some pretty intense pains the other night. It really does seem that
>the more you think about 'em, the more you feel 'em. Or maybe it was
>my 'punishment' for being a bit harsh about that guys treatments
>methods lol
Must have been punishment. :) This talk has had no effect on me. Actually I
don't think I've had any for three days. Of course having said that I wil
probably get no sleep tonight.
>I see he still hasn't responded to any of the points I made though -
>kinda makes you wonder doesn't it?
Not really. I can imagine that he is pretty good at defending himself. He may
not be interested in following the thread.
Glenn
Jack
mussles and the next thing you know... pain
I don't drink any more... kept waking up places I didn't want to be...
HASH...?? have not seen any of that since the 70's
Bellatrix
>>I see he still hasn't responded to any of the points I made though -
>>kinda makes you wonder doesn't it?
>
>Not really. I can imagine that he is pretty good at defending himself. He may
>not be interested in following the thread.
Wouldn't it be a wee bit odd not to be interested in a critique of
your own business?
Penpoint
Bellatrix, since you roasted him up one side and down the other, he
probably has the idea that this is not a Mirror Box-friendly site.
Bellatrix
>
>
>Bellatrix, since you roasted him up one side and down the other, he
>probably has the idea that this is not a Mirror Box-friendly site.
can't seem to turn off my in built baloney detector :-)
b
Bellatrix
>Bellatrix, since you roasted him up one side and down the other, he
>probably has the idea that this is not a Mirror Box-friendly site.
I've asked a few people in the disability conference of my Uni's
intranet to have a look at the mirror box site.
It seems I was completely wrong in assuming that Mr Austin had
actually 'invented' that mirror box thing. It's apparently used to
treat some people (mainly people with upper limb amputations) and can
be effective on a TEMPORARY basis.
I sincerely apologise for any offence caused to anyone and yet I have
to stress that even the people who told me that the mirror box can
work for some people said that it's only a temporary solution. So this
leaves the question about the 'no win no fee' basis of Mr Austin's
treatments.
There is also the question of his 80% success rate which my fellow
students agreed is wholly unsubstantiated by any data or facts or
testimony. This is a serious consideration, not least because money is
involved here.
The general opinion of Mr Austins web site was one of dubiousness
because of the irrelevancy of much of his text and the fact that
despite being a UK resident, he does not inform people that the mirror
box treatment is part of research projects here in the UK and as such,
patients may take part in these studies and easily experience the
mirror box for free.
I have also been advised by the people at the uni, that the mirror box
technique has nothing to do whatsoever with hypnotism.
Anyway, I know some of you guys think I'm a bit of a loud mouthed
smart ass (glances over at Glenn hehe) but I'd remind you that as an
amputee, part of my disability is all the experiences I had as small
child right up until the amputation aged 17. I guess I kinda jump the
gun sometimes and am too ready to do battle with people far too often.
I reckon this may be part of the PTSD which I suffer from. This makes
me sound maybe a little too forceful sometimes and you guys here are
not the first to notice that :-)
It's part of my 'amputeeness' if you know what I mean.
Anyway, I meant no offence to anyone and perhaps over reacted to what
I saw as an attempt at financial gain at the expense of my fellow
amputees.
So, with respect to Mr Austin, the general consensus is that he does
need to clean up his act a wee bit there - provide testimony and data
and facts regarding his claims and that he does need to emphasise that
the mirror box is but a temporary solution, is actually experimental
and that the technique is actually part of government back research
projects here in the UK and that UK residents may be able to avail
themselves of the treatment for free.
Anyway guys, I'm all mirror boxed out now :-)
btw - one of the students I was talking to was telling me that in a
couple of years all phantom pains may be made to be a thing of the
past, such is the pace of neurological research.
I'm cautious about this claim myself - remember as kids we used to see
futurist movies and 'documentary' type films which claimed that by the
year 2000 we'd all be flying around up and down the street using our
own personal anti gravity boots and all the buildings would look like
gleaming silver domes and entire gourmet meals would just appear from
a hole in the wall at the touch of a button? ;-)
But who knows huh?
b
Shirley Ann Tatum
legal and prescribed daily by Vascular Professionals. Ask for it.
jack
> Just to let you know NEURONTIN has the same effect as marijuana. Plus its
> legal and prescribed daily by Vascular Professionals. Ask for it.
>
>
thanks anyway
Cheryl M
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