Pain Relief from Neurontin??
margaret zimmermann
mood disorder/cyclothymia and have come across a number of references to
this meds use for pain. Apparently it was sold for it's antiseizure
properties but now people are experimenting with it for post polio pain,
post herpetic/shingles pain, as well as a mood stabilizer and other
things.
I was wondering if anyone in the group who is on Neurontin as an anti
depressant has experienced pain reduction as well??? or if any rheumy is
experimenting with it's application with fibro.
From what I gather, most of the info on ancillary uses comes from
anecdotal reports not clinical trials.
Wishing you peace~Mag
Priestess
cocktail. He says it helps reduce pain by doing ~~something
neurochemical that makes the pain less~~ (duh... I can't remember).
I've never heard of it being used as an anti-depressant, though.
I'll let you know what the neurontin does to me.
--
Jean
ICQ# 19761807
xjeah...@mindspring.com remove the x to reply
Breathe life into this feeble heart
Lift this mortal veil of fear
Take these crumbled hopes, etched with tears
We'll rise above these earthly cares
Cast your eyes on the ocean
Cast your soul on the sea
When the darK night seems endless
Please remember me
-- Loreena McKennitt
margaret zimmermann wrote in message
<13683-36...@newsd-124.bryant.webtv.net>...
Beady1
14 months ago I woke up with what I can best describe as having a bolt of
excruciating electrical pain in my face. I had one more later that day. My
face and teeth are in pain with something diagnosed as atypical trigeminal
neuralgia. (With regular trigeminal neuralgia the pain shoots on and on.)
Anyway, because I was also having a lot of heat, tingling, and numbish feelings
in my hands and feet, the neurologist put me on neurontin - 300 3X a day. He
says it is just a part of my fibromyalgia and listed it under fibromyalgia.
Sadly, to say, 3 of my fibro friends have this also. When my Dad had a bout of
bad back pain last year, the doctor put him on neurontin too. It deadens the
nerve pain - therefore can be used for both our diagnosis. Without a nerve
problem, I have no information about it being useful for other pain. Take
care.
Marie
margaret zimmermann
neuralgia though. I know that can be extremely painful. I never
realized that it can fall into the FM syndrome of symptoms. I guess
the dosing for nerve pain is low like yours is. I can see from the
literature that neurotin dosing can go very high.
Let's hope that as they learn more about the gaba system, even more
positive stuff can be developed for pain.
Wishing you peace~Mag
Brewer
dilantin. I too had heard that neurontin could help with pain so I
asked his neurologist about it. And he said yes it does help many with
pain. So far he won't give it to my son because he says that by itself
it won't work for seizures. I was so hoping that I had found something
that would help with both.
Janice
Afretire97
I have been taking Neurontin for the past three months and find that it does
help both with sleep and with pain. I'm not sure if it gets the pain, under
control because I always Hurt but, I do think that it helps me keep a better
attitude towards my recovery. I know that I will never have full range of
motion like I did a few years back but, I find I don't set around and suffer
as much as I did only a few short months ago.
I Think it works for me but I have heard of different results from others who
are being treated by the same Dr. I must say that I didn't think it was working
at first but after not taking it for about a week as a trial period , I do not
want to be with out it again. I have been warned by my Dr. that it does loose
it's effectiveness after a prolong period of time .
I also take several other medications each day and have tryed several others
on a trial basis and got poor or less than positive results.
The combination of meds I take now have given me the best functional
capabilities thus far. I take Neurontin 1 tab three times a day, Entex La
for my allergies1 tab twice a day, Prilosec for gastric reflex one tab every
AM, Flexeril for muscle cramps and to help relax my muscles prior to bed time.
I sometimes take up to 4 tabs if I have had a real bad day. I find I have
Less Bad Days since I started on the Neurontin than Before. I still stay
active I go to Physical Therapy twice a week and walk several miles a day. I
find it very difficult to use staires and must depend on a cain to get around.
My Knees are very pain ful and I have very bad back pain But, I will NOT quit.
I didn't Do much except set around (FEAR OF MAKING THINGS WORSE) when I first
was diagnosed with FM and the setting around was the worse thing I could have
done for myself.
I think that of all the things I have learned ; A positive Can Do Attitude is a
big part of my active recovery as any of my medications. Diet is also a very
Important Part along with vitamins and nutricianal suppliments.
Best Of Luck And GOD BLESS
If You Need to Talk Just Write Back
I enjoy writing it helps keep my fingers working. RJ.
Sully&Lynn
>
> I've been doing some poking around about neurontin for someone with a
> mood disorder/cyclothymia and have come across a number of references to
> this meds use for pain. Apparently it was sold for it's antiseizure
> properties but now people are experimenting with it for post polio pain,
> post herpetic/shingles pain, as well as a mood stabilizer and other
> things.
>
> I was wondering if anyone in the group who is on Neurontin as an anti
> depressant has experienced pain reduction as well??? or if any rheumy is
> experimenting with it's application with fibro.
>
> From what I gather, most of the info on ancillary uses comes from
> anecdotal reports not clinical trials.
>
> Wishing you peace~Mag
me...I WISH it had! Everyone`s different,tho.LynnTX.
margaret zimmermann
you tell me if the dosage is 200 mg or 300 mg 3 times a day. I think it
would be interesting to know for any one who wants to explore this
medication with their physician for pain relief.
I want to add that the results that my pal has seen to date for a
mood disorder/cyclothymia with neurontin and anti D's have been
fantastic.
This is someone who has been on lithium plus a variety of anti D's over
the years. Past results were better than nothing but not great. So
far, this has been wonderful treatment. While my friend does not have
fibro, I'm very impressed with it's effect on mood.
Peace~Mag
Softah1
time sufferer. sof...@aol.com
MBOYDSNOOZ
finally built up to 400 mg. 4 times daily.....which gave me some relief....I
finally told my dr. I was afraid of the dosage and stopped. However, I do take
one 400mg. pill at bedtime along with 1 mg. of Klonapin which helps me sleep.
It is my understanding that not all persons react the same with different
doses of medidations. For example Ultram makes me desperately ill.
LadyKrysti
disorder. The current regime had quit working and a change needed to be made.
She knows of my many painful diagnoses and suggested Neurontin because of it's
aide in Chronic Pain. I can't say there's been a miraculous improvement or
anything (although it DOES help my seizures... LOL) but that constant dull ache
did seem to get a little duller after being on it a few weeks and I can tell
when I've missed a dose. Hope this helps. :-)
Krystie Rose
Joan @ home
group for Neurotonin in the index plus some
description of how it is being used to help with
FM. I am writing this off-line and cannot check it
right now but hope this helps:
http://www.geocities.com/HotSprings/6028/
Joan @ home
Donna and Cindy Brewer
My doctor put me on Neurontin some time ago. It was strictly for pain
relieve because I was taking other medicines for depression. They
started me out at 300 mg then it went to 600 mg, 900 mg, 1200 mg and
1800 mg. I found no pain relieve whatsoever. I was on it for several
months. I finally requested to be taken off of it because it was doing
nothing for me. Of course then I had to be weaned off of it so I was on
it for a little bit longer.
Hope this helps.
Cindy in St. Louis
*************************************
Donna and Cindy Brewer
(Remember, God allows U-turns
on the "freeway of life".)
MamaLee50
month. I had been on it before about 16 months ago. It was prescribed at
Stanford's Pain Mgt. Clinic for pain from damaged nerves following surgeries,
including 6 abdominal and chest procedures to dig out necrotic tissue from
massive infection from 2 gram negative bugs. I was an inpatient for nearly 3
months. I hear now that I am fortunate to be alive. I know that. I could tell
by the number of specialists I saw and the high level of care on the nursing
unit. Also the length of stay was a hint.
It all started with mastectomies and reconstruction. The wounds were left open
for 5 months to shrink and heal from the inside and were covered with wet-wet
dressings. Then they were covered with self-donor skin from my thighs. (Ouch!)
Nothing touched to pain of skin grafts unless I was unconscious.
Now, nearly two years later, I am still in pain, but the FMS is as painful as
the nerve damage, which is controlled adequately with Neurontin.
The criteria for using Neurontrin or for using a similar anti-siezure drug,
Tegretol, was a positive Lidocaine test. Lidocain was administered via IV and
the pain assessed. Neurontin is not organ toxic, yet I switched from it
because I was also on Narcotics, Methadone and morpine for 8 months then
another 10 months to wean off of it in the clinic. I walked in circles and
bumped into things and had swollen hands and feet on Neutontin. I had better
balance wit Tegretol, but is involved with white blood cell problems and I
would rather not take it. I also took Naproxen, with subsequent GI issues so
take Zantac
The FMS is at a worst point now, as if I am on no treatment and I am on
Trazadone and Serzone as I have been for several years. Last month I tried
discontinuing the Naprozen and just using Neurontin. Without Tegretol (3Xdaily)
or the Neurontin, I can't tolerate clothing and with winter here in the
midwest, I need my tights and bras, and warm loose dresses,although I can't
tolerate trousers or skirts.
With either one of the seizure drugs I can tolerate clothing. Even decreasing
Tegretol to2x daily caused the problem with clothing. ONe quality of Neurontin
I like is the 12 hour dosing schedule. I forget take midaay meds and don't want
to eat when I am not hungry.
My next step is another medication review with a psychiatrist. A psychiatrist
spotted the cause of the major depression I experienced last year: Tegretol
using the same enzyme as Serzone, an antidepressant and my other FMS drug. When
I increased the serzone to 1-1/2 tablet twice a day instead of 1 tablet twice a
day, I regained my normal optomistic outlook. If one can be optomistic in
chronic pain, but I manage by doing the things I like because I can't work. I
like writing, quilting and sewing and reading. I have to limit all but reading
because of neck, back and hand pain.
I know I must sound like a walking pharmacy, but I feel quite normal once I
got off of the prescribed narcotics. They were necessary or I wouldnt' have
moved with all the open wounds and nerve damage.
When I was zonked on narcotics I had no FMS pain, but I dont' recommend it. I
was on IV Fentynol which is a heavy hitter. Following each surgery I needed
more. I am grateful to be narcotics free now. I had tapered myself off of the
Methadone and Morpine tablets over a few days and ended up in the ER in painful
withdrawal and put back on my previous top doses to begin the supervised
detox. I had no history of drug or alcohol use and used only the meds
prescribed by my original University of Washington Rhuemy, with the adjustment
made by the psych clinic mentioned above.
The depression from adding the anti-siezure drugs was sudden and dramatic, I
wept constantly, even waking in the night weeping.
I did have enough to be depressed about, but I was on the downhill ramp and
had been through the hellish hospital parts. Yea, I know about Post traumatic
Stress, but that reaction was physical and very peculiar. I had counseling
during the detox, until I moved from California.
I still have more repair work and scar reduction to go. Hopefully the
Anesthesia guys who work with my new surgeon will help with pain mgt.
I plan to try magnet therapy next. I know women who have had dramatic results
for CFS and pelvic fracture pain relief. The less meds the better, but I will
take what I need to stay dressed and functioning. Best wishes
Margaret
Linda
tu...@my-dejanews.com
I
> care.I have just been diagnosed with trigeminal neuaralgia. I am being treated
with nneurontin, 4 pills 3x a day. I started out with the excruciating pain
in my teeteeth and ear, mainly on the right side. I also have neck and
shoulder pain pain. I have found doing stretches are helping some. I have
numbness in my jsauwjjaw and bhind my ear. I would appreciate any input or
support. Feeling lowiiilow. I am 46, and have degenerative arthritus and have
had a total knee replacreplacement a few years ago, which is doing great.
Diane
paojn
>
> Marie
>
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FMSTess
take what I need to stay dressed and functioning.......
Linda
>>
Take Care and thank you kindly! from "Queen of the House."/ Heaven's just a
sneeze away./I'd rather be acting/singing./ Sometimes you're the windshield,
and sometimes you're the bug (splat).